Re: I must face it, I can no longer live without, Surgery???

[Guest guest]

I've had A. for about 20 years. I also stop seeing the doctar after a raptureJUDE <judesplaying@...> wrote: Hello All. I have belonged to this group for a very long time. I have had A for over 8 years. I have just learned to live with it, until 3 days ago, I totally freaked out. I have passed out, in the past, choked, gasped for a breath. I had a panic attack, that changed my life. The fear, has now taken over, I need help. I live in New Jersey, have medicade, on SSI, cancer, fibro myalgia, diabeties, and of course, lung abesses, are on my list. I come here every now and then to read, I have not posted in over 1 and a half years. I have 3 daughters, 2 are teenagers and a 4 year old grandson. My doctor asperated my lung over 4 years ago, pneumonia and 7 days in the hospital. I have not seen one since,

for this condition. I now have decided, I WANT HELP........So I am comming here, to the ones with the knowlage. I do not come out of anesthesia, well..So I do fear that. Please, anyone have any suggestions for doctor's in my area....or that I can try to get my insurance to cover. Surgeries?Botox shots?Wraps? I THANK YOU, for your opinions. I have not posted all this time, because, reading about it does make me more nervious, now it is the only thing that will save my life and sanity. Jude....

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[Guest guest]

The botox injection are said to last about 3 to for months. That will very between different people. I had 4 injections and they lasted about 3 months and then I would have to go back in. I would suggest skipping the dilation's and injection if all possible and go and get the surgery. That way there is less chance of scar tissue building up and hindering a successful surgery. I think that all the dilation's and injections I had an effect on my first surgery and I ended up having another surgery about two years after my first surgery.

in Suffolk

[Guest guest]

Any time. There is help and good doctors out there. Just ask as many questions as you can and if you can talk to other people that were the doctors patients then you might be able to gauge better if that doctor is the one you really want. GO with your gut, if it does not feel right then get a second opinion. IF we can help we will do the best we can to do so.

in Suffolk

[Guest guest]

Hey Jude,

(I was tempted to type out the lyrics to " your song, " but you've

probably heard it more than enough.) My, you are such a strong

person. Unfortunately, I'm going through the process of selecting a

surgeon right now, too, so I cannot help you there. People on this

site have been ever so helpful, though. You'll find the advice and

support you need here. I would not recommend botox injections. I had

them, and they were temporarily successful. However, now that I'm

looking at surgery, every doctor and surgeon I've seen has said that

scar tissue (or something) from the botox injections makes the

surgery harder. I never would have had the injections if I had known

that.

-Aileen

>

> Hello All.

> I have belonged to this group for a very long time. I have had A

for

> over 8 years. I have just learned to live with it, until 3 days

ago,

> I totally freaked out. I have passed out, in the past, choked,

gasped

> for a breath. I had a panic attack, that changed my life. The

fear,

> has now taken over, I need help. I live in New Jersey, have

medicade,

> on SSI, cancer, fibro myalgia, diabeties, and of course, lung

> abesses, are on my list. I come here every now and then to read, I

> have not posted in over 1 and a half years. I have 3 daughters, 2

are

> teenagers and a 4 year old grandson.

> My doctor asperated my lung over 4 years ago, pneumonia and 7

days

> in the hospital. I have not seen one since, for this condition. I

now

> have decided, I WANT HELP........So I am comming here, to the ones

> with the knowlage. I do not come out of anesthesia, well..So I do

> fear that. Please, anyone have any suggestions for doctor's in my

> area....or that I can try to get my insurance to cover.

> Surgeries?

> Botox shots?

> Wraps?

> I THANK YOU, for your opinions. I have not posted all this time,

> because, reading about it does make me more nervious, now it is

the

> only thing that will save my life and sanity.

> Jude....

>

[Guest guest]

Aileen,

Please do sing, we need to keep our spirits up. I have been told the

same thing about the botox shots, it does seem to be the eaiest but

temporary way out. Since I have not had anything as of yet, I was

thinking of the shots. How many have you had? How often are they

needed? Surgery, I know will be the right choice, but bringing myself

to make the decision's of, where and who, are really getting to me.

My prayer's are with you. Thank you, for taking the time, to respond

to my post.

Jude

[Guest guest]

Thank you , I do value your info. Since I tried to deal with

this by myself, all these year's. Fearing the doctor's, more than the

disease. I thank you, sincerely.

Jude

[Guest guest]

Nell...it totally scared me away from ever going back to see any doctor

for A. The pneumonia, even though I have it 4 times a year, was much

more severe, when the doctor, raptured me. I not sure who to word this,

but, I now know, I am not alone. Since all the other doctor's I see,

think I am crazy, for not treating my A. Time to get over my fear, and

work on trusting a doctor, for my surgery. Thank you, for letting me

know, I am not alone.

Jude

[Guest guest]

Nell, Thank you, I now know, I am not alone. After, not seeing a doctor

for year's, I must get over my fear, of not trusting. I no longer, even

eat, I live on ensure. Time to wake up, and this group, has helped me

do so. Jude

[Guest guest]

-Hi Jude,

The ultimate decision is yours, but my surgeon told me it was an option

to have botox but he recommended not to use it. They only really want

to use it in limited cases where it might be the only option. As many

have said here it can cause more scar tissue for surgery later. Here it

is not concidered often at all.

-- In achalasia , " JUDE " <judesplaying@...> wrote:

>

> Aileen,

> Please do sing, we need to keep our spirits up. I have been told

the

> same thing about the botox shots, it does seem to be the eaiest but

> temporary way out. Since I have not had anything as of yet, I was

> thinking of the shots. How many have you had? How often are they

> needed? Surgery, I know will be the right choice, but bringing myself

> to make the decision's of, where and who, are really getting to me.

> My prayer's are with you. Thank you, for taking the time, to

respond

> to my post.

> Jude

>

[Guest guest]

Jude wrote:

> ...or that I can try to get my insurance to cover.

> Surgeries?

> Botox shots?

> Wraps?

>

If you can get the insurance to cover surgery that is probably the way

to go. If you can't get surgery covered dilation is an alternative. If

it were me and I could not have the surgery I would go with the

dilation. It has some possible problems, but all the treatments, even

surgery, have problems. Skip the botox if you can. To wrap or not to

warp, and what kind of wrap, is the question for your surgeon. I suggest

you let the surgeon have his way on that issue or find another surgeon.

notan

[Guest guest]

OK, I lost my internet connection, so I'm rewriting this...sorry if it

sent the first time. When first diagnosed, my specialist recommended

botox shots. She told me that she had no way of knowing how long they

would last on me because everyone's body reacts differently. The first

shot helped for about a year. The second worked for only about six

months. At that point, I was sent to Dr. Sidney Cohen in Philly to

begin balloon dilations. Of course, it's your choice, but I would not

do the shots if given the opportunity to be treated over again. I'm

now on the road to surgery this summer.

Aileen

>

> Aileen,

> Please do sing, we need to keep our spirits up. I have been told

the

> same thing about the botox shots, it does seem to be the eaiest but

> temporary way out. Since I have not had anything as of yet, I was

> thinking of the shots. How many have you had? How often are they

> needed? Surgery, I know will be the right choice, but bringing

myself

> to make the decision's of, where and who, are really getting to me.

> My prayer's are with you. Thank you, for taking the time, to

respond

> to my post.

> Jude

>