Lee Ann

[Guest guest]

> Glad you were able to find some Unitards , what luck . <

Thanks, actually the unitard thing did not work. No one had a pair that

would

fit 24 pound kid. So I did go to the web site you gave me and ordered some

onesies for him. They are going to make them with a zipper in the back.

The

legs will come down to mid thigh with a cuff. That should work for a while.

I

also found little jump suits that zip up the back! What luck! I am going

to

buy so for him for winter.

>What part of Ind. are you from ?<<

I am 15 minutes south of South Bend.

> That is a nice state to VISIT . <

This is home to me. I have never lived anywhere else. My family goes back

a

few generations from here.

>My husband has been wanting me to move up there . is doing fine at

this time , so no plans . I do know there is a Trisomy 21 Research there

> in South Bend and that is where my husband is from . <

Tamara Ragan has done a lot in this area.

>When we were visiting last month , I noticed alot of Down Syndrome at a

mall .

> Well behaved and an adult DS living right next to my mother-in-law .

> Just made me wonder how they were educated and if anyone had a kid

> like mine . Always wondering . <

There are a lot of resources here. Logan Center is the big one for South

Bend. I am not sure about the schools though. We are not at that point

yet.

>Enjoy your weather ! Its HOT here in <

It is actually hot and stormy here. 90 today. The humidity is really bad.

It

gets dead hot here too. We have days in the mid to upper 90's to 100 with

high

humidity. If it were not for the humidity it would not be so bad. I

would

actually like to live in a warmer climate though (during the winter). At

least

I would not freeze when the temps get to 20 below and horrible with chills!

Never happy are we ;D

Lee Ann

1

[Guest guest]

>> No one had a pair that would fit 24 pound kid. So I did go to

the web site you gave me and ordered some onesies for him. They are

going to make them with a zipper in the back.

Wow ! Special order , hope it works out .

>> This is home to me. I have never lived anywhere else. My family

goes back a few generations from here.

Sounds alot like my husbands family , we've finally had some of them

come and visit here in Texas and they loved it .

>> There are a lot of resources here. Logan Center is the big one

for South Bend.

Interesting , was not aware of that . Thanks for the info .

>> It is actually hot and stormy here. 90 today. The humidity is

really bad.

Glad I was there when it was a spring like weather . Even went out

boating in Elkhart . Walked around the Notre Dame campus, had a nice

time . When we feel like spending a white Christmas , thats when

I'll deal with the cold weather y'all have . You know the white

stuff , haha . Take Care . Oops ! my husband caught me writing to

you , what a coincidence . " You have an Ind. e-friend ? " , " maybe she

can convince you to move up there " . Yeah , Right !

Irma , 12,DS/ASD.

[Guest guest]

In a message dated 7/8/01 7:33:52 PM Pacific Daylight Time,

sawalter@... writes:

<< Thanks, actually the unitard thing did not work. No one had a pair that

would

fit 24 pound kid. So I did go to the web site you gave me and ordered some

onesies for him. They are going to make them with a zipper in the back.

The

legs will come down to mid thigh with a cuff. That should work for a while.

I

also found little jump suits that zip up the back! What luck! I am going

to

buy so for him for winter. >>

How did I miss this? LOL Can you post the site again? Thanks

Gail

[Guest guest]

>>>Glad I was there when it was a spring like weather . Even went out

boating in Elkhart . Walked around the Notre Dame campus, had a nice

time . When we feel like spending a white Christmas , thats when

I'll deal with the cold weather y'all have . You know the white

stuff , haha . Take Care . Oops ! my husband caught me writing to

you , what a coincidence . " You have an Ind. e-friend ? " , " maybe she

can convince you to move up there " . Yeah , Right !

Irma , 12,DS/ASD.<<<

It is nice here in the spring and fall. January and February are really

cold. June - August can be very hot. My biggest gripe about living up here

is the lack of sun in the winter time. It hits me about the middle of

December and lasts until mid to late February. It is cold, dark, and

dreary. It would be wonderful to move south that time of year! A lot of

people actually do that when they retire. I have an uncle who runs a

campground up here from Memorial Day - Labor Day, then he heads to Arizona

for the winter. Sounds like a great plan to me!

I do not blame you for not wanting to come this far north. I would much

rather visit the snow than live in it! Tell your husband I am sorry for

not being more supportive of his position! But I get COLD! I would miss

having a white Christmas though.

Lee Ann

[Guest guest]

What part in Texas?

--- jfcanfield@... wrote:

> >> No one had a pair that would fit 24 pound kid.

> So I did go to

> the web site you gave me and ordered some onesies

> for him. They are

> going to make them with a zipper in the back.

>

> Wow ! Special order , hope it works out .

>

> >> This is home to me. I have never lived anywhere

> else. My family

> goes back a few generations from here.

>

> Sounds alot like my husbands family , we've finally

> had some of them

> come and visit here in Texas and they loved it .

>

> >> There are a lot of resources here. Logan Center

> is the big one

> for South Bend.

>

> Interesting , was not aware of that . Thanks for the

> info .

>

> >> It is actually hot and stormy here. 90 today.

> The humidity is

> really bad.

>

> Glad I was there when it was a spring like weather .

> Even went out

> boating in Elkhart . Walked around the Notre Dame

> campus, had a nice

> time . When we feel like spending a white Christmas

> , thats when

> I'll deal with the cold weather y'all have . You

> know the white

> stuff , haha . Take Care . Oops ! my husband caught

> me writing to

> you , what a coincidence . " You have an Ind.

> e-friend ? " , " maybe she

> can convince you to move up there " . Yeah , Right !

>

> Irma , 12,DS/ASD.

>

>

>

>

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>

[Guest guest]

Hi ,

Thats a thought living in 2 places , should it occur . Keeping the

other info for future references . This past visit in Ind . , as I've

mentioned. We were able to do more outings with . That made it

more interesting . What is Josh up to ? Take Care .

Irma , 12,DS/ASD.

It is nice here in the spring and fall. January and February are

really

> cold. June - August can be very hot. My biggest gripe about

living up here

> is the lack of sun in the winter time. It hits me about the middle

of

> December and lasts until mid to late February. It is cold, dark,

and

> dreary. It would be wonderful to move south that time of year! A

lot of

> people actually do that when they retire. I have an uncle who runs

a

> campground up here from Memorial Day - Labor Day, then he heads to

Arizona

> for the winter. Sounds like a great plan to me!

> I do not blame you for not wanting to come this far north. I would

much

> rather visit the snow than live in it! Tell your husband I am

sorry for

> not being more supportive of his position! But I get COLD! I would

miss

> having a white Christmas though.

>

> Lee Ann

[Guest guest]

>>Hi ,

Thats a thought living in 2 places , should it occur . Keeping the

other info for future references . This past visit in Ind . , as I've

mentioned. We were able to do more outings with . That made it

more interesting . What is Josh up to ? Take Care .

Irma , 12,DS/ASD.<<<

I am sure it is much more pleasant to be outside this time of year in

Indiana than in Texas! My husbands cousin moved from Indiana to Texas and

says she will never move back north. She said as long as you stay in the

air conditioning during the really hot time of year it is much better than

being stuck in the snow.

There are many resources here in this area for the disabled. Chicago is not

all that far away either. You can see specialists there. Indianapolis has

a DS clinic also. will be going there this fall. Josh is doing ok.

We saw our Ped last week and did his little hand thing and the doctor

saw him. I asked him what he thought and he said Autism. So - that answer

any doubt I may have had. Fortunately is not really bad but I know

he is at that age where things can really start. So we are seeing another

specialist in the area of Autism. But other than that is doing well.

How is your son when you go out into public? Did he ever scream as you were

shopping for groceries? fusses the whole time! Does it get better?

Lee Ann

[Guest guest]

In a message dated 7/10/01 6:39:38 PM Eastern Daylight Time,

sawalter@... writes:

> Sounds like a great plan to me!

> I do not blame you for not wanting to come this far north. I would much

> rather visit the snow than live in it! Tell your husband I am sorry for

> not being more supportive of his position! But I get COLD! I would miss

> having a white Christmas though.

>

> Lee Ann

>

Me too Lee Ann. Although we only live in Philly, so there's no guarantee of

a white X-mas. But last winter was fun with all the snow we got (I KNOW I

KNOW---easy to say now, since it was 95 here yesterday....LOLOL). But I do

love the change of seasons. Always ready for the next one by the end of the

current one, but the change is always so exhilirating. Living on the east

coast, I bet you can guess my favorite season. yep, autumn.

Donna

[Guest guest]

>>Me too Lee Ann. Although we only live in Philly, so there's no guarantee of

a white X-mas. But last winter was fun with all the snow we got (I KNOW I

KNOW---easy to say now, since it was 95 here yesterday....LOLOL). But I do

love the change of seasons. Always ready for the next one by the end of the

current one, but the change is always so exhilirating. Living on the east

coast, I bet you can guess my favorite season. yep, autumn.

Donna<<

Autumn is for sure my favorite time of the year! I love football and the smell

of burning wood and wearing sweat shirts and the thought of Thanksgiving and

Christmas....! I am strange but I play Christmas music in July. In fact, I

just bought some Christmas gifts this week! I need to get a head start! I buy

things and hide them and forget that I have them! The kids like it because they

get a lot of gifts that way. I am going to make a list this year! With 5 kids

we end up with so many gifts that we can not see the tree! Oh well, it is fun!!

Lee Ann

[Guest guest]

I love the Autumn weather up there . That is one of the seasons when

we're up there visiting , you know its football time, Notre Dame. My

husband had mentioned where you had lived , we drove by , on our way

to Chicago . I'm pretty sure we'll be visiting again . Because my

mother-in-law is not doing good . I know we have e-friends that had

watch their grandma's or parents . Boy ! I got a taste of it , thats

work from AM to PM . I guess my husbands family had a week off, while

I was there . Glad to hear Josh's Ped . noticed the Autism . Never

doubt , you know you're son . I have my son's Ped. & Neuro learning

along with me . They were glad to hear what I've learned, so they are

being very supportive . Whenever I have any questions to ask, for me

to feel free to call them and they will be glad to work with me . We

just had to put our heads together and work whats best for our kids .

Next Medical Conference for Autism in the year 2002 , I've recruited

them . I've had better luck with the Autism information then the DS .

I do hope will receive some good care , its such a relief once

you find some strategies once the diagnosis is discovered. Boy! Oh

Boy! Did we ever deal with . did not just scream he

always wanted to run or just sit and plastered himself to the floor

at the grocery store . You say Josh is not really bad yet ! It will

get better once you find results . This may be where the visual

pictures may help him , it might cut his fussiness. This has helped

, now that his behavior has been better. Luck with the Autism

Specialist ! I still do alot of reading on behaviorial issues . That

website is http://autism.about.com/cs/behaviorialissues/index.htm ,

which is my latest reading materials at this time . Take Care ! Luck

with Josh !

Irma, 12,DS/ASD.

[Guest guest]

Dear Lee Ann, I am going to be sending my very best thoughts, wishes, prayers for you and I can say that from everything people on this list have said, it will be a good turn of events, a coming-back to normalcy, swallowing smoothly, feeling the satisfaction of having food go where it ought to, and no more foam, etc. So, I'll be thinking of you a lot, with all best thoughts for a speedy recovery and excellent results. I will be going in for my myotomy on 25 January, so I am sitting here, paying very close attention to your surgery. I am rooting for you. It's funny how some people go home after two nights...I kept thinking that this was a three to four day stay but you know what, Lee Ann, I'd assume from a short stay that this procedure isn't that rough on us. Sandy from

Northern Cal. told me that it's somewhat like the recuperation from a Cesarion surgery and I can relate to that (I've had two C-sections). I was tired afterwards but it got better and better in a very short while, oh, say, two weeks. That sounds just fine to me. And the lip balm sounds smart, too. So, great going to you! Wishing you a fantasticly short surgery/recuperation time/and excellent swallowing for the rest of your life! cheers, Deborah at the beach P.S. And, OH! The rain has cleared and it's gorgeous at Malibu right

now! Anybody want to make a movie?!