Re: seriuos complications after heller myotomy

[Guest guest]

Where did he have the surgery done, and by whom?It is not normal to still be losing weight a month after a heller. Most people are back to school/work within a week or two, and even if they're not on a full diet yet, they're usually at least able to get down liquids.

If he had a fundoplication, it's entirely possible that it was done too tight.

Debbi in Michigan

seriuos complications after heller myotomy

Some one please give me some info or advice that has had this done.My son is 12 just had a heller myotomy done 3 1/2 weeks ago.He has lost 18 pounds(down to 83 now) and still cant eat soft foods or really drink much with out it still getting stuck or taking forever to go down.Drs say its normal cause of swelling.Is this true? I just dont know how much more this kid can take.Hes getting depressed, is being home bound for school(teacher comes here) cause hes lost so much weight and is too weak.Could something be wrong inside? Too tight> I just dont know.PLEASE SOME ONE HELP ME FIGURE THIS OUT.Thank god I found this site- I thought we were the only ones out here dealing with this.Please any help would be great!

[Guest guest]

I would be very concerned. The time after a myotomy is highly positive. Even if swollen, we can tell the wate is going down. I'd check the list of doctors here, tell us where you are and go to a new doctor. It isn't normal. I would guess if your son had a wrap it is too tight or the cut wasn't long enough. Find better doctors. Your son's condition is rare. Any doctor here should return a phone call in hours, although with the weekend it may not be until Monday. Sandy in So Cal.>> Some one please give me some info or advice that has had this done.My > son is 12 just had a heller myotomy done 3 1/2 weeks ago.He has lost > 18 pounds(down to 83 now) and still cant eat soft foods or really > drink much with out it still getting stuck or taking forever to go > down.Drs say its normal cause of swelling.Is this true? I just dont > know how much more this kid can take.Hes getting depressed, is being > home bound for school(teacher comes here) cause hes lost so much > weight and is too weak.Could something be wrong inside? Too tight> I > just dont know.PLEASE SOME ONE HELP ME FIGURE THIS OUT.Thank god I > found this site- I thought we were the only ones out here dealing with > this.Please any help would be great!>

[Guest guest]

>

I don't think this is normal - I was able to eat right away - I still had some

sticking

sometimes which improved - but I noticed a huge improvement right away.

> Some one please give me some info or advice that has had this done.My

> son is 12 just had a heller myotomy done 3 1/2 weeks ago.He has lost

> 18 pounds(down to 83 now) and still cant eat soft foods or really

> drink much with out it still getting stuck or taking forever to go

> down.Drs say its normal cause of swelling.Is this true? I just dont

> know how much more this kid can take.Hes getting depressed, is being

> home bound for school(teacher comes here) cause hes lost so much

> weight and is too weak.Could something be wrong inside? Too tight> I

> just dont know.PLEASE SOME ONE HELP ME FIGURE THIS OUT.Thank god I

> found this site- I thought we were the only ones out here dealing with

> this.Please any help would be great!

>

[Guest guest]

I would also be concerned about this but we have all had a variety

of different issues following our surgeries. Maybe it is possible he

has some swelling still. I am not sure if you can have your dr.

paged or something. I know my dr was always available to me for

questions and concerns.

This is a very depressing disease. I am sure he is weak and tired,

malnourished....I understand all of this.

Please contact someone about your son. He can be helped.

Keep us informed. I am thinking of you.

Dawn in Ohio

> >

> > Some one please give me some info or advice that has had this

done.My

> > son is 12 just had a heller myotomy done 3 1/2 weeks ago.He has

lost

> > 18 pounds(down to 83 now) and still cant eat soft foods or

really

> > drink much with out it still getting stuck or taking forever to

go

> > down.Drs say its normal cause of swelling.Is this true? I just

dont

> > know how much more this kid can take.Hes getting depressed, is

being

> > home bound for school(teacher comes here) cause hes lost so much

> > weight and is too weak.Could something be wrong inside? Too

tight> I

> > just dont know.PLEASE SOME ONE HELP ME FIGURE THIS OUT.Thank god

I

> > found this site- I thought we were the only ones out here

dealing with

> > this.Please any help would be great!

> >

>

[Guest guest]

I would contact his doctor right away. There are quite a few of us who have recently had Heller Myotomy, and most have seen drastic improvement. We are glad you found this site, and hope you will keep us posted on his progress. Where are you located? Who are his doctors? Jotoniasdogsandi <toniasdogsandi@...> wrote: Some one please give me some info or advice that has had this done.My son is 12 just had a heller myotomy done 3 1/2 weeks ago.He has lost 18 pounds(down to 83 now) and still cant eat soft foods or really drink much with out it still getting stuck or taking forever to go down.Drs say its normal cause of swelling.Is this true? I just dont know how much more this kid can take.Hes getting depressed, is being home bound for school(teacher comes here) cause hes lost so

much weight and is too weak.Could something be wrong inside? Too tight> I just dont know.PLEASE SOME ONE HELP ME FIGURE THIS OUT.Thank god I found this site- I thought we were the only ones out here dealing with this.Please any help would be great!

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[Guest guest]

I would contact his doctor right away. There are quite a few of us who have recently had Heller Myotomy, and most have seen drastic improvement. We are glad you found this site, and hope you will keep us posted on his progress. Where are you located? Who are his doctors? Jotoniasdogsandi <toniasdogsandi@...> wrote: Some one please give me some info or advice that has had this done.My son is 12 just had a heller myotomy done 3 1/2 weeks ago.He has lost 18 pounds(down to 83 now) and still cant eat soft foods or really drink much with out it still getting stuck or taking forever to go down.Drs say its normal cause of swelling.Is this true? I just dont know how much more this kid can take.Hes getting depressed, is being home bound for school(teacher comes here) cause hes lost so

much weight and is too weak.Could something be wrong inside? Too tight> I just dont know.PLEASE SOME ONE HELP ME FIGURE THIS OUT.Thank god I found this site- I thought we were the only ones out here dealing with this.Please any help would be great!

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[Guest guest]

> Some one please give me some info or advice that has had this

done.My

> son is 12 just had a heller myotomy done 3 1/2 weeks ago.He has

lost

> 18 pounds(down to 83 now) and still cant eat soft foods or really

> drink much with out it still getting stuck or taking forever to go

> down.Drs say its normal cause of swelling.Is this true? I just

dont

> know how much more this kid can take.Hes getting depressed, is

being

> home bound for school(teacher comes here) cause hes lost so much

> weight and is too weak.Could something be wrong inside? Too tight>

I

> just dont know.PLEASE SOME ONE HELP ME FIGURE THIS OUT.Thank god I

> found this site- I thought we were the only ones out here dealing

with

> this.Please any help would be great!

>

>

>

>

>

>

[Guest guest]

toniasdogsandi wrote:

Some one please give me some info or advice that has had this done.My son is 12 just had a heller myotomy done 3 1/2 weeks ago.He has lost 18 pounds(down to 83 now) and still cant eat soft foods or really drink much with out it still getting stuck ...

I know that in children the esophagus can be smaller. I don't know

if at 12 that would matter much or not. I know some of the other

children in this group have had a hard time. In any case you may want

to get a second opinion.

notan

[Guest guest]

Insists on the Dr seeing him Maybe another Ba swallow to see whats going on from nasty NJ

-- Re: seriuos complications after heller myotomy

I would contact his doctor right away. There are quite a few of us who have recently had Heller Myotomy, and most have seen drastic improvement. We are glad you found this site, and hope you will keep us posted on his progress. Where are you located? Who are his doctors?

Jotoniasdogsandi <toniasdogsandi@...> wrote:

Some one please give me some info or advice that has had this done.My son is 12 just had a heller myotomy done 3 1/2 weeks ago.He has lost 18 pounds(down to 83 now) and still cant eat soft foods or really drink much with out it still getting stuck or taking forever to go down.Drs say its normal cause of swelling.Is this true? I just dont know how much more this kid can take.Hes getting depressed, is being home bound for school(teacher comes here) cause hes lost so much weight and is too weak.Could something be wrong inside? Too tight> I just dont know.PLEASE SOME ONE HELP ME FIGURE THIS OUT.Thank god I found this site- I thought we were the only ones out here dealing with this.Please any help would be great!

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