Guest guest Posted July 28, 2006 Report Share Posted July 28, 2006 Ok I don't post very often but do read the posts. Todd is just turned 4 and our third son but the only person in the family to have BPES. It took till he was about 7 months old to be told there was actually officially something " wrong " with him up to then we had just accepted that was how Todd looked, but even then it was only diagnosed as ptosis. We eventually came up with our own diagnosis of BPES about 6 months ago, when we found ths brilliant site. Since then our local hospital have confirmed our diagnosis! and thanks to info found and help given here we have got a NHS referral to Mr Collin at Moorfields. Mr Collin was more than happy to offer Todd surgery, both for lids and folds as apparently his folds are quite severe. But we decided that as it would only be cosmetic we would leave it for now and see how he progresses as a person. Obviously things may change as he starts school - though nursery hasn't been a problem - or as he gets older, who knows?? but he is a happy little boy who has only once asked why his eyes are a different shape to his daddys so long may this continue without us having to go through the heartache of him not being happy and all the emotions that an operation would bring! Obviously this is just our perspective and Todd's BPES isn't too bad, though he does wear glasses and in some way they improve his appearance without the need for surgery! Good luck with whatever decision you make Caroline > > TAILYNN HAS ALREADY HAD 3 SURGERIES TO DATE.... THEY WANT TO DO > THE INNER EPI FOLDS.. WHEN SHE TURNS 3.5 /4 YRS... HAS ANYONE DECIDE > NOT TO DO THIS SURGERY BECASUE THEY FELT LIKE THEY WHERE > SATISFIED WITH WHAT RESULTS THEY HAVE ALREADY HAD??? > > > WHATS THE REASON.. TO DO THE EPI FOLDS.. BESIDES COSMETIC > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2006 Report Share Posted July 28, 2006 It increases the width of the eyes, improves the person's vision. Some may not need it. My daughter is nearly 2 and her eye openings are very narrow, she has limited horizontal movement of her eyes which we would like to improve. I had canthiplasty and so did my dad. > > TAILYNN HAS ALREADY HAD 3 SURGERIES TO DATE.... THEY WANT TO DO > THE INNER EPI FOLDS.. WHEN SHE TURNS 3.5 /4 YRS... HAS ANYONE DECIDE > NOT TO DO THIS SURGERY BECASUE THEY FELT LIKE THEY WHERE > SATISFIED WITH WHAT RESULTS THEY HAVE ALREADY HAD??? > > > WHATS THE REASON.. TO DO THE EPI FOLDS.. BESIDES COSMETIC > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2006 Report Share Posted August 1, 2006 Hi, I'm a new member. My daughter is almost 9 years old and we had the sling surgury when she was five. We have not had the inner epi folds surgury. I was going to leave it up to my daughter I guess. I think the surgury is cosmetic. I do feel satisfied as of now. But now some kids are asking her why does she have small eyes. I told her that if she wanted to get the surgury she could. She doesn't seem to want it. But part of me wants her to look as " normal " as possible to fit in. Its something I've been thinking about lately, like you. Thanks, > > TAILYNN HAS ALREADY HAD 3 SURGERIES TO DATE.... THEY WANT TO DO > THE INNER EPI FOLDS.. WHEN SHE TURNS 3.5 /4 YRS... HAS ANYONE DECIDE > NOT TO DO THIS SURGERY BECASUE THEY FELT LIKE THEY WHERE > SATISFIED WITH WHAT RESULTS THEY HAVE ALREADY HAD??? > > > WHATS THE REASON.. TO DO THE EPI FOLDS.. BESIDES COSMETIC > Quote Link to comment Share on other sites More sharing options...
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