Re: closing eyes after surgery

[Guest guest]

-Hi Tessa, My name is Jill and my daughter is Ruth. She is 2 now but

had her first surgery when she was 7 months old. She couldn't close

her eyes for a couple of days but she seemed to sleep okay. Her eyes

close all the way when she is sleeping now but sometimes when she is

deeply sleeping they seem to be open slightly. Hope this helps, Jill--

In blepharophimosis , Tessa Mackenzie

<tessamackenzie@...> wrote:

>

> Dear all

> Our son Bipin is 11 months now and due his first surgery (Dr Collin

at

> Moorfields, London) at the end of March. His eyes seem very similar

to

> Jonah's and, like and , the operation is about

making

> sure his eyesight develops properly - we'll think about cosmetic

> issues at a later stage. One question that has been going round my

head for a while

> - Will he be able to close his eyes properly after the operation?

My husband also

> has Bleph and had slings as a child. His eyes don't close fully when

> he's asleep. Bipin is not a great sleeper (especially at the

moment -

> teething!) and I am beginning to worry that not being able close his

> eyes properly is just going to make it harder.

> any experience about this? Is Jonah able to close his eyes?

> Thanks!

> Tessa

>

[Guest guest]

Hi Tessa,

Our son, Micah, is almost four and had his surgery

last year in Feb. He does not close his eyes at all

when he sleeps. His eyes do roll back in his head so

you can only see the white when he is first trying to

go to sleep. When you say, " Close your eyes " that is

what he does - rolls them back in his head. But once

he is asleep his eyes are wide open and he looks like

he is looking right at you. We put an ointment in

each night before bed to keep his eyes moist. He

sleeps just fine and it does not seem to bother him.

You can see pictures of him under " Eisele Family " .

Best wishes for you and Bilpin!

April Eisele, Colorado, USA

Wife to Jon

Mommy to Mira, Micah & Misha

--- jricard5 <jricard5@...> wrote:

> -Hi Tessa, My name is Jill and my daughter is Ruth.

> She is 2 now but

> had her first surgery when she was 7 months old. She

> couldn't close

> her eyes for a couple of days but she seemed to

> sleep okay. Her eyes

> close all the way when she is sleeping now but

> sometimes when she is

> deeply sleeping they seem to be open slightly. Hope

> this helps, Jill--

> In blepharophimosis , Tessa

> Mackenzie

> <tessamackenzie@...> wrote:

> >

> > Dear all

> > Our son Bipin is 11 months now and due his first

> surgery (Dr Collin

> at

> > Moorfields, London) at the end of March. His eyes

> seem very similar

> to

> > Jonah's and, like and , the

> operation is about

> making

> > sure his eyesight develops properly - we'll think

> about cosmetic

> > issues at a later stage. One question that has

> been going round my

> head for a while

> > - Will he be able to close his eyes properly after

> the operation?

> My husband also

> > has Bleph and had slings as a child. His eyes

> don't close fully when

> > he's asleep. Bipin is not a great sleeper

> (especially at the

> moment -

> > teething!) and I am beginning to worry that not

> being able close his

> > eyes properly is just going to make it harder.

> > any experience about this? Is Jonah able to close

> his eyes?

> > Thanks!

> > Tessa

> >

>

>

>

>

>

__________________________________________________

[Guest guest]

Out of all three kids ...NIck (14) closes his eye all the way..Tom (11) never ever closes his eyes...you can see them roll to white we gel him everynight too...and (8 months) closes her eyes i would say 90% no gel required only drops during the day. Tom sleeps like the dead ! So no problem with them open. april Eisele <aprileisele@...> wrote: Hi Tessa,Our son, Micah, is almost four and had his surgerylast year in Feb. He does not close his eyes at allwhen he sleeps. His eyes do roll back in his head soyou can only see the white when he is first trying togo to sleep. When you say, "Close your eyes" that iswhat he does - rolls them back in his head. But oncehe is asleep his eyes are wide open and he looks likehe is looking right at you. We put an ointment

ineach night before bed to keep his eyes moist. Hesleeps just fine and it does not seem to bother him. You can see pictures of him under "Eisele Family".Best wishes for you and Bilpin!April Eisele, Colorado, USAWife to JonMommy to Mira, Micah & Misha--- jricard5 <jricard5@...> wrote:> -Hi Tessa, My name is Jill and my daughter is Ruth.> She is 2 now but > had her first surgery when she was 7 months old. She> couldn't close > her eyes for a couple of days but she seemed to> sleep okay. Her eyes > close all the way when she is sleeping now but> sometimes when she is > deeply sleeping they seem to be open slightly. Hope> this helps, Jill--> In blepharophimosis , Tessa> Mackenzie > <tessamackenzie@...> wrote:> >> > Dear all> > Our son Bipin is 11 months now and due his

first> surgery (Dr Collin > at> > Moorfields, London) at the end of March. His eyes> seem very similar > to> > Jonah's and, like and , the> operation is about > making> > sure his eyesight develops properly - we'll think> about cosmetic> > issues at a later stage. One question that has> been going round my > head for a while> > - Will he be able to close his eyes properly after> the operation? > My husband also> > has Bleph and had slings as a child. His eyes> don't close fully when> > he's asleep. Bipin is not a great sleeper> (especially at the > moment -> > teething!) and I am beginning to worry that not> being able close his> > eyes properly is just going to make it harder.> > any experience about this? Is Jonah able to close> his eyes?> >

Thanks!> > Tessa> >> > > > > __________________________________________________

[Guest guest]

Hi Tessa,

Long answer:

I believe it is very difficult for a surgeon to judge the exact height

to sling an eyelid so that it can open enough to fully expose the pupil

when awake/open, yet close fully when asleep/closed, especially with a

little child's tiny eyes. There are plenty of complicating factors

involved, small margins for error, and things change over time (sling

materials might stretch, one's face will grow, etc). It's therefore also

difficult for a surgeon to get both lids exactly even, too.

Some responders have told of their kids' lids not closing fully. Mine

have always closed fully (often against my will), as have plenty of

others', so there's a range of possibilities, and it depends on a number

of factors.

There are plenty of good questions arising here with which to grill

one's surgeons, mercilessly. For example:

- Can initially non-closing lids " settle " over time, and close better later?

- Can the lower lid of a non-closing upper learn to " stretch " up to meet

its partner?

- Can a non-meeting pair of lid's sling be adjusted to fit better?

- Does it depend on the material used? (Fascia lata vs silicone vs piano

wire, etc) And will it change over time?

- What are the likely long-term repercussions of a non-closing pair of lids?

- (Tighten the thumb-screw as you ask this one:) What has YOUR success

rate been for lids meeting fully, Mr Surgeon? Stop squirming.

- What is the air speed velocity of an unladen swallow?

I'm sure many folks can think of more grist for the surgeon-roasting

mill than this, but it's a start.

Short answer:

Maybe.

I hope this has been helpful.

Rob W.

Eyes wide shut.

Tessa Mackenzie wrote:

> Dear all

> Our son Bipin is 11 months now and due his first surgery (Dr Collin at

> Moorfields, London) at the end of March. His eyes seem very similar to

> Jonah's and, like and , the operation is about making

> sure his eyesight develops properly - we'll think about cosmetic

> issues at a later stage. One question that has been going round my head for a

while

> - Will he be able to close his eyes properly after the operation? My husband

also

> has Bleph and had slings as a child. His eyes don't close fully when

> he's asleep. Bipin is not a great sleeper (especially at the moment -

> teething!) and I am beginning to worry that not being able close his

> eyes properly is just going to make it harder.

> any experience about this? Is Jonah able to close his eyes?

> Thanks!

> Tessa

[Guest guest]

Hi Tessa

Mr Collin did my daughters surgery when she was just over 2 years

old. She couldn't close her eyes for about 6 months. We used eye

ointment frequently in the 1st 4 weeks, although Mr Collin suggested

it wouldn't be necessary after 4 weeks. I did continue putting

ointment in her eyes before she went to bed though because it made

me feel better. I stopped that 6 months after her surgery and now

don't use any at all. Her nursery school teachers were also great at

putting in ointment before her afternoon nap and she slept well.

She now generally closes her eyes completely when she is asleep,

though there is the odd time that I find her eyes open a fraction

and it doesn't bother her.

Her eyes changed alot during the first 6 months after her surgery. I

suppose all the stitches " settled " in. I was initially slightly

disappointed with the result as her eyes were marginally uneven, but

as I said, a few months later they were symmetric. At 11 months, as

with my daughter's surgery, the slings are temporary and will be

replaced at a later stage with the child's facia, so any cosmetic

tweaking can be done then.

Kirsten's photos are under " Kirsten Parsons " and you can see what Mr

Collin achieved with her. He is fantastic.

Lots of luck

Parsons

>

> Dear all

> Our son Bipin is 11 months now and due his first surgery (Dr

Collin at

> Moorfields, London) at the end of March. His eyes seem very

similar to

> Jonah's and, like and , the operation is about

making

> sure his eyesight develops properly - we'll think about cosmetic

> issues at a later stage. One question that has been going round

my head for a while

> - Will he be able to close his eyes properly after the operation?

My husband also

> has Bleph and had slings as a child. His eyes don't close fully

when

> he's asleep. Bipin is not a great sleeper (especially at the

moment -

> teething!) and I am beginning to worry that not being able close

his

> eyes properly is just going to make it harder.

> any experience about this? Is Jonah able to close his eyes?

> Thanks!

> Tessa

>

[Guest guest]

I am 35, my eyes only close partially. I think I force them closed

until I fall asleep, then they open partially and look white while I

am sleeping. I don't have dry eyes, but I can't sleep with a ceiling

fan on.

Lily's eyes close completely, she is 18 months.

> > >

> > > Dear all

> > > Our son Bipin is 11 months now and due his first

> > surgery (Dr Collin

> > at

> > > Moorfields, London) at the end of March. His eyes

> > seem very similar

> > to

> > > Jonah's and, like and , the

> > operation is about

> > making

> > > sure his eyesight develops properly - we'll think

> > about cosmetic

> > > issues at a later stage. One question that has

> > been going round my

> > head for a while

> > > - Will he be able to close his eyes properly after

> > the operation?

> > My husband also

> > > has Bleph and had slings as a child. His eyes

> > don't close fully when

> > > he's asleep. Bipin is not a great sleeper

> > (especially at the

> > moment -

> > > teething!) and I am beginning to worry that not

> > being able close his

> > > eyes properly is just going to make it harder.

> > > any experience about this? Is Jonah able to close

> > his eyes?

> > > Thanks!

> > > Tessa

> > >

> >

> >

> >

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

Thanks all of you for your answers. It seems to be a mixed experience,

but hopefully Bipin should be ok with drops if need be.

My husband's eyes were 'done' by Mr Collin as well, but that was 25

years ago so maybe his technique has changed over time!

I've never really understood how he can sleep with his eyes open (not

that sleeping is something that either of us have had

much time to practice recently thanks to young Bipin!) but he's only

really affected by fans at night.

thanks again

Tessa

On Fri, 03 Feb 2006 14:25:41 -0000, " bethgordon03 "

<bethgordon03@...> said:

>

> I am 35, my eyes only close partially. I think I force them

> closed

> until I fall asleep, then they open partially and look white

> while I

> am sleeping. I don't have dry eyes, but I can't sleep with a

> ceiling

> fan on.

> Lily's eyes close completely, she is 18 months.

>

> > > >

> > > > Dear all

> > > > Our son Bipin is 11 months now and due his first

> > > surgery (Dr Collin

> > > at

> > > > Moorfields, London) at the end of March. His eyes

> > > seem very similar

> > > to

> > > > Jonah's and, like and , the

> > > operation is about

> > > making

> > > > sure his eyesight develops properly - we'll think

> > > about cosmetic

> > > > issues at a later stage. One question that has

> > > been going round my

> > > head for a while

> > > > - Will he be able to close his eyes properly after

> > > the operation?

> > > My husband also

> > > > has Bleph and had slings as a child. His eyes

> > > don't close fully when

> > > > he's asleep. Bipin is not a great sleeper

> > > (especially at the

> > > moment -

> > > > teething!) and I am beginning to worry that not

> > > being able close his

> > > > eyes properly is just going to make it harder.

> > > > any experience about this? Is Jonah able to close

> > > his eyes?

> > > > Thanks!

> > > > Tessa

> > > >

> > >

> > >

> > >

> > >

> > >

> >

> >

> > __________________________________________________

> >

[Guest guest]

Hi Tessa.. I am Leah from NewZealand and my son Ethan had surgery done at

two with slings method. He was unable to shut his eyes or blink even for a

few weeks afterwards, I remember being quite shocked and thinking he will

always be like this!!! The only reason i knew he was asleep is that he used

to snore.. due to large tonsils and adenoids which we had removed a couple

of years ago. as he was forever getting tonsiitis and colds... Kids adjust

so well to things, way better than we do. i remember when Ethan had his

surgery they bandaged his eyes which they wanted left on overnight and half

a day the next day, i think to protect them a little bit and i thought 'Yeah

right, with Ethan ... No way will he leave them on.. but he seemed to know

it was for his own good and he didnt even bother trying to get them off.. I

was very suprised!!! But he sleeps fine now tho his eyes are open a crack!!

And he looks awesome!!!

Good luck with your little man...

blepharophimosis closing eyes after surgery

> Dear all

> Our son Bipin is 11 months now and due his first surgery (Dr Collin at

> Moorfields, London) at the end of March. His eyes seem very similar to

> Jonah's and, like and , the operation is about making

> sure his eyesight develops properly - we'll think about cosmetic

> issues at a later stage. One question that has been going round my head

for a while

> - Will he be able to close his eyes properly after the operation? My

husband also

> has Bleph and had slings as a child. His eyes don't close fully when

> he's asleep. Bipin is not a great sleeper (especially at the moment -

> teething!) and I am beginning to worry that not being able close his

> eyes properly is just going to make it harder.

> any experience about this? Is Jonah able to close his eyes?

> Thanks!

> Tessa

>

>

>

>

[Guest guest]

Hi Tessa, My eyes are slightly open when I sleep and I have only had to battle with dry eyes in the past couple of years (I am now 31). Anyway, it never really bothered me while I was growing up other than holding them shut while trying to get to sleep. But after I am asleep there is no problem. I do have a funny story relating to it. When I was a child my parents left me with my aunt, uncle, and cousins for a week so they could travel. One night my uncle came in to check on my cousin and me and I was sleeping with my eyes open. My uncle thought I was dead! He eventually realized I wasn't but he was shocked to say the least. That was the only time it bothered anyone! Ha! He still gets a big laugh out of it today! All the best for Bipin's surgery, Tessa Mackenzie

<tessamackenzie@...> wrote: Dear allOur son Bipin is 11 months now and due his first surgery (Dr Collin atMoorfields, London) at the end of March. His eyes seem very similar toJonah's and, like and , the operation is about makingsure his eyesight develops properly - we'll think about cosmeticissues at a later stage. One question that has been going round my head for a while- Will he be able to close his eyes properly after the operation? My husband alsohas Bleph and had slings as a child. His eyes don't close fully whenhe's asleep. Bipin is not a great sleeper (especially at the moment -teething!) and I am beginning to worry that not being able close hiseyes properly is just going to make it harder.any experience about this? Is Jonah able to close his

eyes?Thanks!Tessa

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