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Re: Question about increase in autistic behaviors

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Too bad and Noah don't live closer...they would probably be great work

buddies...Noah likes many of the same things...especially walking the

neighborhood!!!

He would be great on a delivery route!

Ellen

Ellen Garber Bronfeld

egskb@...

Re: Question about increase in " autistic " behaviors

Ellen,

You have asked the million dollar question, that although I do

not have the answer, my , does the same noises, literally all day

also. Not high pitched but grunting and " ha " and " ohhh " in a deep

voice. My husband is also extremely bothered by it, and now my

daughter who is very tolerant, is going nuts too. I'm okay with it,

school is very okay with it. is cooperative, sweet and

productive as well, but the noises are a problem, because I fear it

will hurt his abilities to work in the outside world. It just plain

is not appropriate in a work setting. It has been going on now for

about 1 year, he is almost 16 now. He is on clonazepam and Abilify,

neither of which help it much.

So anyone out there, help our families! To me it's not really that

bad, but the world at large unfortunately will not tolerate it.

Diane S

>

> Hi all:

> Just wondering what others do when an individual with autism gets

> real noisy and " hyper " ?

> Noah is not among the great sleepers, but over the past half dozen

> years or so, his behavior has been pretty calm and relatively

> controlled, in spite of sleep issues...The past several weeks there

> has been a pretty dramatic change; very noisy, flapping,

> jumping...basically a resurgence of " old " behaviors...He is still

> sweet, often smiley and cooperative. He does tend to " cycle up "

more

> in the fall and spring. He says he feels ok but cannot control the

> noise. My husband is going CRAZY!!! He is really affected by the

> constant (and I mean CONSTANT) noise. I am pretty tolerant but

after

> a few hours of hearing his high pitched humming and other variety

of

> sounds, I am ready to start using ear plugs. As a migraine

sufferer,

> this is particularly difficult for me when I have a migraine, as

you

> can imagine.

> Noah is currently on 10 mg of Lexapro once a day and 7.5 mg of

Buspar

> twice a day and 1 mg of Klonipin in the evening before bed. I am

> considering weaning him off the Lexapro...not that I think it is

> causing a problem but, I don't think it is helping...

> I have an appointment with the internist to check him out...there

is

> no evidence of an illness, but I want to make sure his throat and

> ears are ok...maybe run some blood work...I am a nurse and in my

> opinion, he is not ill...He says he feels ok and that nothing

hurts.

> He is eating and drinking...all other bodily functions seem ok...

> I have a call in to the psychiatrist...

> Any thoughts out there???

> Ellen

>

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I have worked with on this since he started to talk at age 4, I remember

thinking " and I asked for this :-) " but it does make them stand out.? does

it more to get attention if my boyfriend is over or quite honestly he will do it

when he knows it's totally annoying me.? I have told him it looks weird, people

will make fun of him, etc and when it gets on my last nerve at home I tell him

that he needs to go into his room and shut the door if he can't control

himself.? I will say that the Zoloft he takes does help but if he gets a bit

hyper.....aaaaaaaccccccccccckkkkkkkkk and his thing is to recite dialog over and

over and replay DVD's or video games over and over, the crash noises, etc.? I do

feel he has become more aware of it and they have really worked with him at

school on this too, we called in a behaviorist freshman year to help.

God help us all and pass the wine!

H.

Re: Re: Question about increase in " autistic " behaviors

IPADDUnite

Date: Tuesday, October 28, 2008, 8:15 AM

Hi Diane,

We, too, have a 'loud' girl whose vocalizations have often been uncontrollable

and very inappropriate to many business settings. It's a constant struggle,

because like many young adults, she is capable of doing many productive

things...the trick is to find places where either her noises won't be so

disruptive as to get her 'fired', or to find work (mostly all volunteer so far)

where she can keep moving around (which reduces the noises for her) or where she

picks up the work, completes it off-site, then returns the finished product to

the worksite. Right now we're fortunate that our school district/transition has

a few options within some administrative buildings where can go to

complete work. What happens beyond transition, I'm not really sure.

I suspect that our kids' vocalizations will not only limit their abilities to

work in the 'community' at large, but will also limit/impair their ability to

live with others in a group home or apartment, or even to attend some of the day

programs! It stinks!! I, too, wish there was some ready solution but we're

still plugging along, trying to find work where we can so that she will have a

meaningful day beyond transition.

For her, the noise level goes noticeably UP when she is in less structured, more

down-time, situations. Which does not bode well for the average day program or

a 'stay-happily- at-home-with- mom' option. Yikes!

Which is why I stress to anyone who has younger children to focus on the

behaviors and communication aspects of their child -- because these are the

skills, or lack thereof, that seem to most limit 's options as she goes

forward. Her teachers tell me she can 'work circles around' most of the other

transition students; but it's her vocalizations/ behaviors that prevent her from

getting or keeping many assignments in the community.

Let's keep this dialogue going. I'm investigating right now whether there would

be a market for a 'door-to-door shredding business' for businesses in strip

malls. could purchase a shredder and pull it around door-to-door on a

wheeled luggage carrier...'do you have any shredding today?' and then shred in

their backrooms. Gives her a purpose, helps some small businesses (maybe), and

she likes to pull heavy objects and watch the paper going thru the shredder

(great visual display).

We'll see. Her residential real estate 'stuffing and delivery' service is

something she also enjoys a lot (she's the one who stuffs marketing materials

into cello bags and then walks them door-to-door) was great but right now the

real estate business is NOT the place to be.

With any of these ideas, I'm trying to find jobs that would pay her some money

to offset the costs of paying for her support person (who drives her, supervises

for safety etc). Thinking that someday soon we'll find a friend who has similar

support needs/strengths who would be interested in doing it with her; then we'd

share cost of the support person.

Sorry if this is long, it's a subject that is near and dear to my heart. :)

Laurie

Re: Question about increase in " autistic " behaviors

Ellen,

You have asked the million dollar question, that although I do

not have the answer, my , does the same noises, literally all day

also. Not high pitched but grunting and " ha " and " ohhh " in a deep

voice. My husband is also extremely bothered by it, and now my

daughter who is very tolerant, is going nuts too. I'm okay with it,

school is very okay with it. is cooperative, sweet and

productive as well, but the noises are a problem, because I fear it

will hurt his abilities to work in the outside world. It just plain

is not appropriate in a work setting. It has been going on now for

about 1 year, he is almost 16 now. He is on clonazepam and Abilify,

neither of which help it much.

So anyone out there, help our families! To me it's not really that

bad, but the world at large unfortunately will not tolerate it.

Diane S

>

> Hi all:

> Just wondering what others do when an individual with autism gets

> real noisy and " hyper " ?

> Noah is not among the great sleepers, but over the past half dozen

> years or so, his behavior has been pretty calm and relatively

> controlled, in spite of sleep issues...The past several weeks there

> has been a pretty dramatic change; very noisy, flapping,

> jumping...basically a resurgence of " old " behaviors... He is still

> sweet, often smiley and cooperative. He does tend to " cycle up "

more

> in the fall and spring. He says he feels ok but cannot control the

> noise. My husband is going CRAZY!!! He is really affected by the

> constant (and I mean CONSTANT) noise. I am pretty tolerant but

after

> a few hours of hearing his high pitched humming and other variety

of

> sounds, I am ready to start using ear plugs. As a migraine

sufferer,

> this is particularly difficult for me when I have a migraine, as

you

> can imagine.

> Noah is currently on 10 mg of Lexapro once a day and 7.5 mg of

Buspar

> twice a day and 1 mg of Klonipin in the evening before bed. I am

> considering weaning him off the Lexapro...not that I think it is

> causing a problem but, I don't think it is helping...

> I have an appointment with the internist to check him out...there

is

> no evidence of an illness, but I want to make sure his throat and

> ears are ok...maybe run some blood work...I am a nurse and in my

> opinion, he is not ill...He says he feels ok and that nothing

hurts.

> He is eating and drinking...all other bodily functions seem ok...

> I have a call in to the psychiatrist. ..

> Any thoughts out there???

> Ellen

>

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Glenkirk called me about Noah's recent loudness, but they were not

complaining...just wanted me to know...Noah is much quieter, typically when he

is working, fortunately, though his cleaning job at the synagogue isn't a major

problem, as there aren't many people around when he is there in the mornings.

His new job, at a very busy health club would be more problematic...other than

the business owners of the food concession are dear friends and Noah is a

member at the club and has been using the facilities for a number of years...

Still...I will worry a little more about that job.

Ellen

Ellen Garber Bronfeld

egskb@...

Re: Question about increase in " autistic " behaviors

Ellen,

You have asked the million dollar question, that although I do

not have the answer, my , does the same noises, literally all day

also. Not high pitched but grunting and " ha " and " ohhh " in a deep

voice. My husband is also extremely bothered by it, and now my

daughter who is very tolerant, is going nuts too. I'm okay with it,

school is very okay with it. is cooperative, sweet and

productive as well, but the noises are a problem, because I fear it

will hurt his abilities to work in the outside world. It just plain

is not appropriate in a work setting. It has been going on now for

about 1 year, he is almost 16 now. He is on clonazepam and Abilify,

neither of which help it much.

So anyone out there, help our families! To me it's not really that

bad, but the world at large unfortunately will not tolerate it.

Diane S

>

> Hi all:

> Just wondering what others do when an individual with autism gets

> real noisy and " hyper " ?

> Noah is not among the great sleepers, but over the past half dozen

> years or so, his behavior has been pretty calm and relatively

> controlled, in spite of sleep issues...The past several weeks there

> has been a pretty dramatic change; very noisy, flapping,

> jumping...basically a resurgence of " old " behaviors... He is still

> sweet, often smiley and cooperative. He does tend to " cycle up "

more

> in the fall and spring. He says he feels ok but cannot control the

> noise. My husband is going CRAZY!!! He is really affected by the

> constant (and I mean CONSTANT) noise. I am pretty tolerant but

after

> a few hours of hearing his high pitched humming and other variety

of

> sounds, I am ready to start using ear plugs. As a migraine

sufferer,

> this is particularly difficult for me when I have a migraine, as

you

> can imagine.

> Noah is currently on 10 mg of Lexapro once a day and 7.5 mg of

Buspar

> twice a day and 1 mg of Klonipin in the evening before bed. I am

> considering weaning him off the Lexapro...not that I think it is

> causing a problem but, I don't think it is helping...

> I have an appointment with the internist to check him out...there

is

> no evidence of an illness, but I want to make sure his throat and

> ears are ok...maybe run some blood work...I am a nurse and in my

> opinion, he is not ill...He says he feels ok and that nothing

hurts.

> He is eating and drinking...all other bodily functions seem ok...

> I have a call in to the psychiatrist. ..

> Any thoughts out there???

> Ellen

>

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Funny, Marie!

Guess this is just LOUD season for lots of individuals with ASD!!!

Ellen

Ellen Garber Bronfeld

egskb@...

Re: Question about increase in " autistic " behaviors

This has been a " loud " few days for as well (and with my

concert next week, I hope he quiets down soon LOL!). Russ doesn't

do well with the change of seasons and does have allergic rhinitis

which doen't help. We are now at the end of that season and he

should be better with a good, hard frost. Until that time, we do

what we can. He has his own business--envelope stuffing--and can

make all the noise he wants.

We had a major pipe burst in our basement a month ago and with the

professional cleaners ( the pipe carried all the junk from the

disposal--it STUNK) and plumbers and workmen to put back the drywall

and tile (mess, mess, mess), he has not been happy. Our basement is

partially finished and it was in the unfinished part (thank goodness)

but Russ still cannot go and watch his movies in the basement with

all the junk from the storage area sitting on the recliner and

daybed and the area around the TV. This does not please him. And

having workman around (and him being loud)is not easy for him. Or

me. We have the last part to do next week. I am hoping it makes a

difference whan he can go back to the rec room.

Anyway, we all do what we can and some days (and weeks and months)

are louder than others. BTW Chuck is the one that can take the

noise, I am the one ready to scream (and I am a soprano--hear me

roar, but HIGH!)most days!

Marie

> >

> > Hi all:

> > Just wondering what others do when an individual with autism

gets

> > real noisy and " hyper " ?

> > Noah is not among the great sleepers, but over the past half

dozen

> > years or so, his behavior has been pretty calm and relatively

> > controlled, in spite of sleep issues...The past several weeks

there

> > has been a pretty dramatic change; very noisy, flapping,

> > jumping...basically a resurgence of " old " behaviors...He is

still

> > sweet, often smiley and cooperative. He does tend to " cycle

up "

> more

> > in the fall and spring. He says he feels ok but cannot control

the

> > noise. My husband is going CRAZY!!! He is really affected by

the

> > constant (and I mean CONSTANT) noise. I am pretty tolerant but

> after

> > a few hours of hearing his high pitched humming and other

variety

> of

> > sounds, I am ready to start using ear plugs. As a migraine

> sufferer,

> > this is particularly difficult for me when I have a migraine,

as

> you

> > can imagine.

> > Noah is currently on 10 mg of Lexapro once a day and 7.5 mg of

> Buspar

> > twice a day and 1 mg of Klonipin in the evening before bed. I

am

> > considering weaning him off the Lexapro...not that I think it

is

> > causing a problem but, I don't think it is helping...

> > I have an appointment with the internist to check him

out...there

> is

> > no evidence of an illness, but I want to make sure his throat

and

> > ears are ok...maybe run some blood work...I am a nurse and in

my

> > opinion, he is not ill...He says he feels ok and that nothing

> hurts.

> > He is eating and drinking...all other bodily functions seem

ok...

> > I have a call in to the psychiatrist...

> > Any thoughts out there???

> > Ellen

> >

>

>

>

>

>

>

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I will let you know if we find something that works, Diane.

It is comforting to know that we are not alone.

Ellen

Ellen Garber Bronfeld

egskb@...

Re: Question about increase in " autistic " behaviors

Ellen,

You have asked the million dollar question, that although I do

not have the answer, my , does the same noises, literally all day

also. Not high pitched but grunting and " ha " and " ohhh " in a deep

voice. My husband is also extremely bothered by it, and now my

daughter who is very tolerant, is going nuts too. I'm okay with it,

school is very okay with it. is cooperative, sweet and

productive as well, but the noises are a problem, because I fear it

will hurt his abilities to work in the outside world. It just plain

is not appropriate in a work setting. It has been going on now for

about 1 year, he is almost 16 now. He is on clonazepam and Abilify,

neither of which help it much.

So anyone out there, help our families! To me it's not really that

bad, but the world at large unfortunately will not tolerate it.

Diane S

>

> Hi all:

> Just wondering what others do when an individual with autism gets

> real noisy and " hyper " ?

> Noah is not among the great sleepers, but over the past half dozen

> years or so, his behavior has been pretty calm and relatively

> controlled, in spite of sleep issues...The past several weeks there

> has been a pretty dramatic change; very noisy, flapping,

> jumping...basically a resurgence of " old " behaviors...He is still

> sweet, often smiley and cooperative. He does tend to " cycle up "

more

> in the fall and spring. He says he feels ok but cannot control the

> noise. My husband is going CRAZY!!! He is really affected by the

> constant (and I mean CONSTANT) noise. I am pretty tolerant but

after

> a few hours of hearing his high pitched humming and other variety

of

> sounds, I am ready to start using ear plugs. As a migraine

sufferer,

> this is particularly difficult for me when I have a migraine, as

you

> can imagine.

> Noah is currently on 10 mg of Lexapro once a day and 7.5 mg of

Buspar

> twice a day and 1 mg of Klonipin in the evening before bed. I am

> considering weaning him off the Lexapro...not that I think it is

> causing a problem but, I don't think it is helping...

> I have an appointment with the internist to check him out...there

is

> no evidence of an illness, but I want to make sure his throat and

> ears are ok...maybe run some blood work...I am a nurse and in my

> opinion, he is not ill...He says he feels ok and that nothing

hurts.

> He is eating and drinking...all other bodily functions seem ok...

> I have a call in to the psychiatrist...

> Any thoughts out there???

> Ellen

>

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Make mine a shot of tequila :)

I have had many conversations with Noah about how noises and OCD type behavior

may be a barrier to full community inclusion and employment. It does help but

he says he cannot usually control it.

I wonder if some of you have also experienced " the look " when our sweet young

men and women decide they are going to be obnoxious and " devilish " ...oh

boy...when I see " the look " I know I had better not let him out of my sight...he

will tear things up (bags, boxes, containers) he will rip stems off fruit,

labels off anything...does this also sound familiar to anyone, as long as we are

" chatting " about challenging behaviors :)

Ellen

Ellen Garber Bronfeld

egskb@...

Re: Question about increase in " autistic " behaviors

Ellen,

You have asked the million dollar question, that although I do

not have the answer, my , does the same noises, literally all day

also. Not high pitched but grunting and " ha " and " ohhh " in a deep

voice. My husband is also extremely bothered by it, and now my

daughter who is very tolerant, is going nuts too. I'm okay with it,

school is very okay with it. is cooperative, sweet and

productive as well, but the noises are a problem, because I fear it

will hurt his abilities to work in the outside world. It just plain

is not appropriate in a work setting. It has been going on now for

about 1 year, he is almost 16 now. He is on clonazepam and Abilify,

neither of which help it much.

So anyone out there, help our families! To me it's not really that

bad, but the world at large unfortunately will not tolerate it.

Diane S

>

> Hi all:

> Just wondering what others do when an individual with autism gets

> real noisy and " hyper " ?

> Noah is not among the great sleepers, but over the past half dozen

> years or so, his behavior has been pretty calm and relatively

> controlled, in spite of sleep issues...The past several weeks there

> has been a pretty dramatic change; very noisy, flapping,

> jumping...basically a resurgence of " old " behaviors... He is still

> sweet, often smiley and cooperative. He does tend to " cycle up "

more

> in the fall and spring. He says he feels ok but cannot control the

> noise. My husband is going CRAZY!!! He is really affected by the

> constant (and I mean CONSTANT) noise. I am pretty tolerant but

after

> a few hours of hearing his high pitched humming and other variety

of

> sounds, I am ready to start using ear plugs. As a migraine

sufferer,

> this is particularly difficult for me when I have a migraine, as

you

> can imagine.

> Noah is currently on 10 mg of Lexapro once a day and 7.5 mg of

Buspar

> twice a day and 1 mg of Klonipin in the evening before bed. I am

> considering weaning him off the Lexapro...not that I think it is

> causing a problem but, I don't think it is helping...

> I have an appointment with the internist to check him out...there

is

> no evidence of an illness, but I want to make sure his throat and

> ears are ok...maybe run some blood work...I am a nurse and in my

> opinion, he is not ill...He says he feels ok and that nothing

hurts.

> He is eating and drinking...all other bodily functions seem ok...

> I have a call in to the psychiatrist. ..

> Any thoughts out there???

> Ellen

>

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I'm also a nurse. Think he has become refractory to his meds?

IPADDUnite@...: egskb@...: Mon, 27 Oct 2008

21:14:29 +0000Subject: Question about increase in " autistic "

behaviors

Hi all:Just wondering what others do when an individual with autism gets real

noisy and " hyper " ?Noah is not among the great sleepers, but over the past half

dozen years or so, his behavior has been pretty calm and relatively controlled,

in spite of sleep issues...The past several weeks there has been a pretty

dramatic change; very noisy, flapping, jumping...basically a resurgence of " old "

behaviors...He is still sweet, often smiley and cooperative. He does tend to

" cycle up " more in the fall and spring. He says he feels ok but cannot control

the noise. My husband is going CRAZY!!! He is really affected by the constant

(and I mean CONSTANT) noise. I am pretty tolerant but after a few hours of

hearing his high pitched humming and other variety of sounds, I am ready to

start using ear plugs. As a migraine sufferer, this is particularly difficult

for me when I have a migraine, as you can imagine.Noah is currently on 10 mg of

Lexapro once a day and 7.5 mg of Buspar twice a day and 1 mg of Klonipin in the

evening before bed. I am considering weaning him off the Lexapro...not that I

think it is causing a problem but, I don't think it is helping...I have an

appointment with the internist to check him out...there is no evidence of an

illness, but I want to make sure his throat and ears are ok...maybe run some

blood work...I am a nurse and in my opinion, he is not ill...He says he feels ok

and that nothing hurts. He is eating and drinking...all other bodily functions

seem ok...I have a call in to the psychiatrist...Any thoughts out there???Ellen

_________________________________________________________________

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Thanks,....you know these changes are really hard. You feel for the child. But

as the parent, it is especially depressing when you have seen the progress that

your child has made. It is hard to see the child who you could take anywhere

become someone else. I live in a condo building and my neighbours are really

concerned about him. They have never seen him acting like this. He closes his

eyes and will not open them. He keeps thinking about thoughts and can not

control them. I really hope he comes out of this soon!

Thanks so much.....I really want to make an impact in my future students. You

can make miracles happen.

Re: Question about increase in " autistic " behaviors

Thanks for sharing! Great to know we have another fabulous teacher out there!!!

Ellen

Ellen Garber Bronfeld

egskb@...

Re: Question about increase in " autistic " behaviors

Ellen

I too just used the word 'cycle' at Shane's psyciatrist appt today. 1 month

ago we had nothing to report and today I'm saying he is back to not

sleeping, flapping more and seeking out more ways to do it, his OCD seems to

have

kicked in and his ability to cope as well. Someone said fall can be a bad time,

why do you think that is? Our Dr uses Seroquel to help him sleep and

control some other symptoms, we upped it today.

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The dads seem to have the hardest time when these changes occur.

Re: Question about increase in " autistic " behaviors

Nonsense,Ellen, the dads can all tune it out.

They just need pharmacological assistance...

Jean

On Mon, Oct 27, 2008 at 10:25 PM, ELLEN BRONFELD <egskb@...>wrote:

> Thanks for sharing! Great to know we have another fabulous teacher out

there!!!

Ellen

Ellen Garber Bronfeld

egskb@... <egskb%40sbcglobal.net>

Re: Question about increase in " autistic " behaviors

Ellen

I too just used the word 'cycle' at Shane's psyciatrist appt today. 1 month

ago we had nothing to report and today I'm saying he is back to not

sleeping, flapping more and seeking out more ways to do it, his OCD seems

to have

kicked in and his ability to cope as well. Someone said fall can be a bad

time,

why do you think that is? Our Dr uses Seroquel to help him sleep and

control some other symptoms, we upped it today.

**************Play online games for FREE at Games.com! All of your

favorites,

no registration required and great graphics – check it out!

(http://pr.atwola.com/promoclk/100000075x1211202682x1200689022/aol?redir=

http://www.games.com?ncid=emlcntusgame00000001)

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Imagine being a single mom!! I am, it's a lesson in patience that's for sure. 

just finished taking his shower singing at the top of his lungs in the

dark......and I'm not kidding!

H.

Re: Question about increase in " autistic " behaviors

The dads seem to have the hardest time when these changes occur.

----Original Message-----

rom: Kulczyk <advocate4kids@...>

o: IPADDUnite

ent: Mon, 27 Oct 2008 10:29 pm

ubject: Re: Question about increase in " autistic " behaviors

Nonsense,Ellen, the dads can all tune it out.

hey just need pharmacological assistance...

ean

n Mon, Oct 27, 2008 at 10:25 PM, ELLEN BRONFELD <egskb@...>wrote:

Thanks for sharing! Great to know we have another fabulous teacher out

there!!!

Ellen

Ellen Garber Bronfeld

egskb@... <egskb%40sbcglobal.net>

Re: Question about increase in " autistic " behaviors

Ellen

I too just used the word 'cycle' at Shane's psyciatrist appt today. 1 month

ago we had nothing to report and today I'm saying he is back to not

sleeping, flapping more and seeking out more ways to do it, his OCD seems

to have

kicked in and his ability to cope as well. Someone said fall can be a bad

time,

why do you think that is? Our Dr uses Seroquel to help him sleep and

control some other symptoms, we upped it today.

**************Play online games for FREE at Games.com! All of your

favorites,

no registration required and great graphics – check it out!

(http://pr.atwola.com/promoclk/100000075x1211202682x1200689022/aol?redir=

http://www.games.com?ncid=emlcntusgame00000001)

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U r a saint!!! I could only imagine!!

Re: Question about increase in " autistic " behaviors

The dads seem to have the hardest time when these changes occur.

----Original Message-----

rom: Kulczyk <advocate4kids@...>

o: IPADDUnite

ent: Mon, 27 Oct 2008 10:29 pm

ubject: Re: Question about increase in " autistic " behaviors

Nonsense,Ellen, the dads can all tune it out.

hey just need pharmacological assistance...

ean

n Mon, Oct 27, 2008 at 10:25 PM, ELLEN BRONFELD <egskb@...>wrote:

Thanks for sharing! Great to know we have another fabulous teacher out

there!!!

Ellen

Ellen Garber Bronfeld

egskb@... <egskb%40sbcglobal.net>

Re: Question about increase in " autistic " behaviors

Ellen

I too just used the word 'cycle' at Shane's psyciatrist appt today. 1 month

ago we had nothing to report and today I'm saying he is back to not

sleeping, flapping more and seeking out more ways to do it, his OCD seems

to have

kicked in and his ability to cope as well. Someone said fall can be a bad

time,

why do you think that is? Our Dr uses Seroquel to help him sleep and

control some other symptoms, we upped it today.

**************Play online games for FREE at Games.com! All of your

favorites,

no registration required and great graphics – check it out!

(http://pr.atwola.com/promoclk/100000075x1211202682x1200689022/aol?redir=

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2 of my 3 kids and I have allergies.  As in ER visits, allergy shots, and big

fat files at the allergist's office.

When the leaves come down and decompose, they become moldy, and if there's rain,

that adds to it.  Mold season is in full swing until the first hard frost.

Maybe Marie can get her husband to comment on the possibility of vocalizing

actually being a method of throat-clearing for those with mild sinus/ear

discomfort.

As I said, a possibility.

-Gail

From: ELLEN BRONFELD <egskb@...>

Subject: Re: Question about increase in " autistic " behaviors

IPADDUnite

Date: Tuesday, October 28, 2008, 2:06 PM

That is one thing I have considered, , since I have allergies.

I tried about a week's worth of an OTC 10mg decongestant. ..no change occurred.

I will be discussing with the internist the possibility of putting him on

Claritin short term to see if that makes a difference.. .

Ellen

Ellen Garber Bronfeld

egskbsbcglobal (DOT) net

Re: Question about increase in " autistic " behaviors

Ellen

too just used the word 'cycle' at Shane's psyciatrist appt today. 1 month

go we had nothing to report and today I'm saying he is back to not

leeping, flapping more and seeking out more ways to do it, his OCD seems to

ave

icked in and his ability to cope as well. Someone said fall can be a bad

ime,

hy do you think that is? Our Dr uses Seroquel to help him sleep and

ontrol some other symptoms, we upped it today.

hristine

 

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I think that is a possibility.

ly, I would like to see him off the Lexapro...as for the Buspar...I am

undecided...

I would like a sleeper...just to see if increasing sleep will take care of some

of the noisy behavior...

Ellen

Ellen Garber Bronfeld

egskb@...

Question about increase in " autistic "

behaviors

Hi all:Just wondering what others do when an individual with autism gets real

noisy and " hyper " ?Noah is not among the great sleepers, but over the past half

dozen years or so, his behavior has been pretty calm and relatively controlled,

in spite of sleep issues...The past several weeks there has been a pretty

dramatic change; very noisy, flapping, jumping...basically a resurgence of " old "

behaviors...He is still sweet, often smiley and cooperative. He does tend to

" cycle up " more in the fall and spring. He says he feels ok but cannot control

the noise. My husband is going CRAZY!!! He is really affected by the constant

(and I mean CONSTANT) noise. I am pretty tolerant but after a few hours of

hearing his high pitched humming and other variety of sounds, I am ready to

start using ear plugs. As a migraine sufferer, this is particularly difficult

for me when I have a migraine, as you can imagine.Noah is currently on 10 mg of

Lexapro once a day and 7.5 mg of Buspar twice a day and 1 mg of Klonipin in the

evening before bed. I am considering weaning him off the Lexapro...not that I

think it is causing a problem but, I don't think it is helping...I have an

appointment with the internist to check him out...there is no evidence of an

illness, but I want to make sure his throat and ears are ok...maybe run some

blood work...I am a nurse and in my opinion, he is not ill...He says he feels ok

and that nothing hurts. He is eating and drinking...all other bodily functions

seem ok...I have a call in to the psychiatrist...Any thoughts out there???Ellen

__________________________________________________________

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Sounds like fun...for him!!!

Ellen

Ellen Garber Bronfeld

egskb@...

Re: Question about increase in " autistic " behaviors

Ellen

I too just used the word 'cycle' at Shane's psyciatrist appt today. 1 month

ago we had nothing to report and today I'm saying he is back to not

sleeping, flapping more and seeking out more ways to do it, his OCD seems

to have

kicked in and his ability to cope as well. Someone said fall can be a bad

time,

why do you think that is? Our Dr uses Seroquel to help him sleep and

control some other symptoms, we upped it today.

**************Play online games for FREE at Games.com! All of your

favorites,

no registration required and great graphics – check it out!

(http://pr.atwola.com/promoclk/100000075x1211202682x1200689022/aol?redir=

http://www.games.com?ncid=emlcntusgame00000001)

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Thanks, Gail. It would not surprise me...both spring and fall can cause an

increase in allergy symptoms...

Noah had nothing notable on exam by the physician but he did have a little nasal

congestion...I may try a two week trial of Claritin, which does not interact

with any meds...I will of course avoid Claritin-D...

I take Allegra all year long and my left ear is miserably clogged...can't see it

on exam because it is eustacian tube fluid (probably).

Ellen

Ellen Garber Bronfeld

egskb@...

Re: Question about increase in " autistic " behaviors

Ellen

too just used the word 'cycle' at Shane's psyciatrist appt today. 1 month

go we had nothing to report and today I'm saying he is back to not

leeping, flapping more and seeking out more ways to do it, his OCD seems to

ave

icked in and his ability to cope as well. Someone said fall can be a bad

ime,

hy do you think that is? Our Dr uses Seroquel to help him sleep and

ontrol some other symptoms, we upped it today.

hristine

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I think we are all saints :)

By the way, someone (?) earlier asked about PUNS...

You can google Illinois Department of Human Services PUNS and that will give you

a good description of the PUNS.

If you have any questions after reading that...feel free to ask...

There is also a description on Family Support Network website.

Ellen

Ellen Garber Bronfeld

egskb@...

Re: Question about increase in " autistic " behaviors

Ellen

I too just used the word 'cycle' at Shane's psyciatrist appt today. 1 month

ago we had nothing to report and today I'm saying he is back to not

sleeping, flapping more and seeking out more ways to do it, his OCD seems

to have

kicked in and his ability to cope as well. Someone said fall can be a bad

time,

why do you think that is? Our Dr uses Seroquel to help him sleep and

control some other symptoms, we upped it today.

**************Play online games for FREE at Games.com! All of your

favorites,

no registration required and great graphics – check it out!

(http://pr.atwola.com/promoclk/100000075x1211202682x1200689022/aol?redir=

http://www.games.com?ncid=emlcntusgame00000001)

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As my son went through the stage of distracting noise we

experimented with a personal music player. At the time it was a CD

player. This seemed to provide the aural stimulation he needed. As I am

sure many of you all ready know the ADD/ADHD aspect is not that they do

not pay attention, it is that they hear everything, so the noise they

make in many ways is their own way to tune out the world around them.

Our world is far to loud for them. I saw this with my son, and now with

another young man I deal with at church. They youth room is loud and

the music is louder yet, so I brought him some ear protection

headphones and he does much better.

Give it a try, if it does not work, you have one less thing to try.

-Lee

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I agree, Ellen!! Quite honestly.......being a single mom has been easier, I

don't have to deal with another male, LOL

H.

Re: Question about increase in " autistic " behaviors

I think we are all saints :)

y the way, someone (?) earlier asked about PUNS...

ou can google Illinois Department of Human Services PUNS and that will give you

good description of the PUNS.

f you have any questions after reading that...feel free to ask...

here is also a description on Family Support Network website.

llen

llen Garber Bronfeld

gskb@...

Re: Question about increase in " autistic " behaviors

Ellen

I too just used the word 'cycle' at Shane's psyciatrist appt today. 1 month

ago we had nothing to report and today I'm saying he is back to not

sleeping, flapping more and seeking out more ways to do it, his OCD seems

to have

kicked in and his ability to cope as well. Someone said fall can be a bad

time,

why do you think that is? Our Dr uses Seroquel to help him sleep and

control some other symptoms, we upped it today.

**************Play online games for FREE at Games.com! All of your

favorites,

no registration required and great graphics – check it out!

(http://pr.atwola.com/promoclk/100000075x1211202682x1200689022/aol?redir=

http://www.games.com?ncid=emlcntusgame00000001)

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This reminds me of something I keep forgetting to tell the group. :) A while

back, a friend gave me one of those over-the-door marketing/business bags he'd

received at his house in St. ; it had a direct marketing company name

listed in Huntley, IL along with a website so I followed up on it directly with

their owner. I wanted to better understand how a big direct marketing company

hires employees to do the stuff has done on a small scale for several

local realtors.

Here's what I found out, some good and some pretty appalling:

1) They rely on almost exclusively 'home based businesses' to do the assembly

and delivery throughout the Chicago region -- starting in north suburbs,

expanded to west and now southwest burbs are a planned expansion area. This

particular company was started and still run by two 'moms' who wanted to stay at

home but make money too.

2) The home-based businesses are required to provide own transportation, pick up

materials at a distribution warehouse in Huntley, and then walk around the

assigned neighborhoods either hanging bags on doorknobs or on mailboxes.

So far, so good, right? Ok, here was the most surprising part to me....

3) They pay people 1/2 cent PER PIECE DELIVERED. I'm not making this up. So

if an average 'job' is 5,000 pieces (which is what she said is their average),

the person doing the deliveries, door-to-door, gets $25.00.

I'll tell you what. I can't believe the hard-working folks we've all seen

running around our neighborhoods doing this work are doing it for that amount of

money unless they are truly desperate (and probably not in this country legally

or else they'd complain about it). When you think about it, it's pretty

sickening really.

I'm sharing this because at one time I thought this door-to-door business idea

could be a good one for and many others with DDs. My inital thought was

that eventually she could get a job with one of these larger companies that do

direct marketing, and would earn enough to help offset the cost of her job

coach. Not so much after talking with that business owner.

The local realtor, by the way, who has employed on several jobs paid

a more than generous rate based on our equation of what it would cost her to

mail out a postcard greeting herself (about .45 per piece including cost of

postcard, stamp and time to affix labels and stamps = $45 per 100 deliveries)

So with , we charged her for 3 to 3 1/2 hours total time, start to finish,

and charged the realtor $10/hour or $30 to $35 for a job of assembling and then

delivering to 100 homes. So she saved both time and money on the deal, plus

did something really nice for another human being.

It takes all kinds, I guess. Makes me realize how naive I can be sometimes, to

think that a fellow 'mom' running a company would be employing people at that

low rate just makes me sick to think about it.

L.

Re: Question about increase in " autistic " behaviors

Ellen,

You have asked the million dollar question, that although I do

not have the answer, my , does the same noises, literally all day

also. Not high pitched but grunting and " ha " and " ohhh " in a deep

voice. My husband is also extremely bothered by it, and now my

daughter who is very tolerant, is going nuts too. I'm okay with it,

school is very okay with it. is cooperative, sweet and

productive as well, but the noises are a problem, because I fear it

will hurt his abilities to work in the outside world. It just plain

is not appropriate in a work setting. It has been going on now for

about 1 year, he is almost 16 now. He is on clonazepam and Abilify,

neither of which help it much.

So anyone out there, help our families! To me it's not really that

bad, but the world at large unfortunately will not tolerate it.

Diane S

>

> Hi all:

> Just wondering what others do when an individual with autism gets

> real noisy and " hyper " ?

> Noah is not among the great sleepers, but over the past half dozen

> years or so, his behavior has been pretty calm and relatively

> controlled, in spite of sleep issues...The past several weeks there

> has been a pretty dramatic change; very noisy, flapping,

> jumping...basically a resurgence of " old " behaviors...He is still

> sweet, often smiley and cooperative. He does tend to " cycle up "

more

> in the fall and spring. He says he feels ok but cannot control the

> noise. My husband is going CRAZY!!! He is really affected by the

> constant (and I mean CONSTANT) noise. I am pretty tolerant but

after

> a few hours of hearing his high pitched humming and other variety

of

> sounds, I am ready to start using ear plugs. As a migraine

sufferer,

> this is particularly difficult for me when I have a migraine, as

you

> can imagine.

> Noah is currently on 10 mg of Lexapro once a day and 7.5 mg of

Buspar

> twice a day and 1 mg of Klonipin in the evening before bed. I am

> considering weaning him off the Lexapro...not that I think it is

> causing a problem but, I don't think it is helping...

> I have an appointment with the internist to check him out...there

is

> no evidence of an illness, but I want to make sure his throat and

> ears are ok...maybe run some blood work...I am a nurse and in my

> opinion, he is not ill...He says he feels ok and that nothing

hurts.

> He is eating and drinking...all other bodily functions seem ok...

> I have a call in to the psychiatrist...

> Any thoughts out there???

> Ellen

>

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That is pretty appalling, Laurie and very disappointing.

I thought you had a great idea...still might be with your local businesses.

Ellen

Ellen Garber Bronfeld

egskb@...

Re: Question about increase in " autistic " behaviors

Ellen,

You have asked the million dollar question, that although I do

not have the answer, my , does the same noises, literally all day

also. Not high pitched but grunting and " ha " and " ohhh " in a deep

voice. My husband is also extremely bothered by it, and now my

daughter who is very tolerant, is going nuts too. I'm okay with it,

school is very okay with it. is cooperative, sweet and

productive as well, but the noises are a problem, because I fear it

will hurt his abilities to work in the outside world. It just plain

is not appropriate in a work setting. It has been going on now for

about 1 year, he is almost 16 now. He is on clonazepam and Abilify,

neither of which help it much.

So anyone out there, help our families! To me it's not really that

bad, but the world at large unfortunately will not tolerate it.

Diane S

>

> Hi all:

> Just wondering what others do when an individual with autism gets

> real noisy and " hyper " ?

> Noah is not among the great sleepers, but over the past half dozen

> years or so, his behavior has been pretty calm and relatively

> controlled, in spite of sleep issues...The past several weeks there

> has been a pretty dramatic change; very noisy, flapping,

> jumping...basically a resurgence of " old " behaviors...He is still

> sweet, often smiley and cooperative. He does tend to " cycle up "

more

> in the fall and spring. He says he feels ok but cannot control the

> noise. My husband is going CRAZY!!! He is really affected by the

> constant (and I mean CONSTANT) noise. I am pretty tolerant but

after

> a few hours of hearing his high pitched humming and other variety

of

> sounds, I am ready to start using ear plugs. As a migraine

sufferer,

> this is particularly difficult for me when I have a migraine, as

you

> can imagine.

> Noah is currently on 10 mg of Lexapro once a day and 7.5 mg of

Buspar

> twice a day and 1 mg of Klonipin in the evening before bed. I am

> considering weaning him off the Lexapro...not that I think it is

> causing a problem but, I don't think it is helping...

> I have an appointment with the internist to check him out...there

is

> no evidence of an illness, but I want to make sure his throat and

> ears are ok...maybe run some blood work...I am a nurse and in my

> opinion, he is not ill...He says he feels ok and that nothing

hurts.

> He is eating and drinking...all other bodily functions seem ok...

> I have a call in to the psychiatrist...

> Any thoughts out there???

> Ellen

>

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I hear you, !!!

You can borrow my spouse anytime you begin to miss an additional whiner :)

Ellen

Ellen Garber Bronfeld

egskb@...

Re: Question about increase in " autistic " behaviors

Ellen

I too just used the word 'cycle' at Shane's psyciatrist appt today. 1 month

ago we had nothing to report and today I'm saying he is back to not

sleeping, flapping more and seeking out more ways to do it, his OCD seems

to have

kicked in and his ability to cope as well. Someone said fall can be a bad

time,

why do you think that is? Our Dr uses Seroquel to help him sleep and

control some other symptoms, we upped it today.

**************Play online games for FREE at Games.com! All of your

favorites,

no registration required and great graphics – check it out!

(http://pr.atwola.com/promoclk/100000075x1211202682x1200689022/aol?redir=

http://www.games.com?ncid=emlcntusgame00000001)

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Thanks, Lee...I will try it!

Ellen

Ellen Garber Bronfeld

egskb@...

Re: Question about increase in " autistic " behaviors

As my son went through the stage of distracting noise we

experimented with a personal music player. At the time it was a CD

player. This seemed to provide the aural stimulation he needed. As I am

sure many of you all ready know the ADD/ADHD aspect is not that they do

not pay attention, it is that they hear everything, so the noise they

make in many ways is their own way to tune out the world around them.

Our world is far to loud for them. I saw this with my son, and now with

another young man I deal with at church. They youth room is loud and

the music is louder yet, so I brought him some ear protection

headphones and he does much better.

Give it a try, if it does not work, you have one less thing to try.

-Lee

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Ellen wrote:

<<I wonder if some of you have also experienced " the look " when our

sweet young men and women decide they are going to be obnoxious

and " devilish " ...oh boy...when I see " the look " I know I had better

not let him out of my sight...he will tear things up (bags, boxes,

containers) he will rip stems off fruit, labels off anything...does

this also sound familiar to anyone, as long as we are " chatting "

about challenging behaviors :)>>

Jack's impulsivity is wa-a-a-a-ay up right now. He has the look with

the " laugh " to go with it! It has been very difficult to keep him

occupied and out of trouble at home. Jack tends to take things

apart: takes the batteries out of things and then loses them (I swear

we should take stock in Duracell! lol); rips paper; colors so hard it

rips through paper; gets into things he shouldn't in the garage and

just spreads it all around; " cooks " which is just getting out

miscellaneous ingredients and putting them in a bowl and stirring

them together...we have to watch him like a hawk! The only " safe "

place for him is in the backyard where he walks around and does

his " monologues " to blow off steam.

Holly

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Shameless plug here....the Autism Society of Illinois has such cards

available...you can order them through the website autismillinois.org

In a message dated 10/30/2008 3:43:24 P.M. Central Daylight Time,

egskb@... writes:

I love your card idea, Gloria.

Wish I had thought of that years ago, when Noah used to tantrum. Even now,

though, I can see an advantage in having cards available for the noisier days.

It is wonderful when we can get to a point of appreciating the really fine

qualities our children possess.

Ellen

Ellen Garber Bronfeld

_egskb@..._ (mailto:egskb@...)

----- Original Message -----

From: Gloria Kern

_IPADDUnite@groIPADDUn_ (mailto:IPADDUnite )

Sent: Thursday, October 30, 2008 2:32 PM

Subject: Re: Question about increase in " autistic " behaviors

I too am a single mom and cannot believe the amount of patience I have

somehow found. Mine also " sings " on top of her lungs in the dark in the shower,

and singing is not the word for it!!!!!! Getting over the embarrassment in

public was one of the hardest things. We often left stores, restaurants,

movies,

etc. when the noises (or screaming) got too much and I knew we were offending

others (who weren't subtle in the least). Sometimes, however, I just had to

finish the shopping, etc. because I also worked full time, and just had to

endure. I finally got some business sized cards that stated this is an

individual with autism and is being trained. Please be patient with us. That

seemed

to help. She's 21 now and things have improved greatly unless we are around

young children. Then she reverts to acting as a young child. How I long to go

out to lunch with my young adult daughter and have a conversation!I too am a

single mom and cannot believe the amount of patience I have somehow found.

Mine also " sings " on top of her lungs in the dark in the shower, and singin

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

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I too am a single mom and cannot believe the amount of patience I have somehow

found. Mine also " sings " on top of her lungs in the dark in the shower, and

singing is not the word for it!!!!!! Getting over the embarrassment in public

was one of the hardest things. We often left stores, restaurants, movies, etc.

when the noises (or screaming) got too much and I knew we were offending others

(who weren't subtle in the least). Sometimes, however, I just had to finish the

shopping, etc. because I also worked full time, and just had to endure. I

finally got some business sized cards that stated this is an individual with

autism and is being trained. Please be patient with us. That seemed to help.

She's 21 now and things have improved greatly unless we are around young

children. Then she reverts to acting as a young child. How I long to go out to

lunch with my young adult daughter and have a conversation!!! But I also am

blessed with a happy spirit on a day to day basis, and I don't have to wonder

where she is - cause she's right here sharing the love! Gloria

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