Can I ask for your thoughts please?

[Guest guest]

As you may know, I've had a few issues with adrenal tests lately - and was put

on hydrocortisone, and felt better for this.

Now i've been told I need to come off it, but I am really struggling to do this.

Yesterday i had no interest in doing anything, i just sat around the flat for

hours which is unlike me.

Today i felt similar, so i decided to try taking more HC, and lo and behold, i

can function again- having a big tidy up at the moment.

It is a dilemma whether to come off the hc or not because well the endo has

asked me to (via the nurse-though the level of communication between me and the

nurse/endo service is poor-i had to ask for a weaning schedule, for instance

(and got a poor one at that) .

the endo may want me to do more tests, for things like growth hormone, in which

case i probably would need to be off the hc. i am also not really convinced

that i don't have low adrenal function.

does anyone have any thoughts on this? i was told i could come off hc in 3

days! i have found that difficult to achieve as my brain fogs up and i have no

energy without it

thanks

chris