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aiha and cll

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I would like to hear from anyone who has had effective treatment long

term for AIHA caused by CLL. I am heart broken. My one cycle of PCR

has caused a resurgence of my AIHA with LDH and bilirubin higher than

they have ever been. I am now back on steroids which are like the

devil for me, unbelievably bad side effects especially mental. My

doctor thinks this might have been caused by a temporary imbalance in

my interior landscape of lymphocytes. But he also says there may not

be anything that gets rid of the AIHA. In the midst of devastation I

thought I would reach out to anyone who has found a good treatment for

AIHA, knowing full-well and to my detriment, how different our bodies

all are. Thank you, Carol

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