Re: Re: babies with DS

[Guest guest]

In a message dated 19/09/2006 20:01:23 GMT Standard Time, ps1272000@... writes:

Hi Leann,

It really depends on the baby. :-) All kids are different. Some of the kids show delays in some areas, while actually being ahead in others! has been able to do things typicaly developing children couldn't. I assume it's because she had a team of therapists and a pushy mom teaching her, where as the typical child was not given such attention.

i do agree with u there hun alex is very good at signing but sit stand +crawl was slow

alex's is allso very good at getting in to things +undoing things + but gags with lumps and still has a wobbly bit in the middle he can stand 4 long time but walk very wobbly and blow his nose

[Guest guest]

That's the same with at our house. Connor is just 10 mos old, and pretty

close to typical kids. We, too, have been very deliberate in helping him

get to the next step...and I'm ashamed to say I may not have been giving him

enough credit. He is ready for more, and I didn't realize it. More

advanced toys, for example. I find I have to introduce new things, where my

older children sought them out. The great thing is that he is the most

joyful little boy I've ever met, and so willing to try new things. He seems

so happy that we are helping him to the next phase. We didn't find out

about his DX until he was 6 mos. old, so we don't have all the PT and OT and

all in place....that will only help and am looking forward to it. Looking

forward to learning along with you! Enjoy the ride!

Eagle Acres Ranch

Craig Weaver and

308 Twin Lakes Rd.

Winthrop, WA 98862

(509) 996-7807

[Guest guest]

,

I have my almost 3 year old (DS) and my almost 1 year

old. I have notice that my 1 year old seeks it out.

I feel the same as you. I have a tendancy to not

challenge him or give him more challenging toys. My

oldest was just into everything and my yougest is the

same but it is different with and I have to get

in that mode!

--- <Stahome@...> wrote:

> That's the same with at our house. Connor is just

> 10 mos old, and pretty

> close to typical kids. We, too, have been very

> deliberate in helping him

> get to the next step...and I'm ashamed to say I may

> not have been giving him

> enough credit. He is ready for more, and I didn't

> realize it. More

> advanced toys, for example. I find I have to

> introduce new things, where my

> older children sought them out. The great thing is

> that he is the most

> joyful little boy I've ever met, and so willing to

> try new things. He seems

> so happy that we are helping him to the next phase.

> We didn't find out

> about his DX until he was 6 mos. old, so we don't

> have all the PT and OT and

> all in place....that will only help and am looking

> forward to it. Looking

> forward to learning along with you! Enjoy the ride!

>

>

>

> Eagle Acres Ranch

> Craig Weaver and

> 308 Twin Lakes Rd.

> Winthrop, WA 98862

> (509) 996-7807

>

>

>

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>

>

[Guest guest]

Isabella was right on target as well until she developed Infantile Spasms at 7months old. She rolled over earlier than any of our other children, was belly crawling and sitting up. After these seizures it has taken her a long time to get back what she lost . You never know what is around the next corner, keep challenging your children everyday to do more. Especially to be independent. It is not too early to begin working on getting dressed (they could help to get their own arm through sleeves (etc). Use deep pressure on the hands/arms and legs/feet to help with fine motor skills and walking.

Good to hear your news,

Caroline

[Guest guest]

I have to admit that when it came to crawling, I took

an approach that was tough for me. I would take his

favorite toy and put it out of his range. He would

start to cry. This is the part that I would normally

go and give it to him but instead I got down by the

toy that he really really really wanted and told him

to come here over and over and over and over and over

and he finally comando crawled and the move to the

crawling stage.

As far as cruising, I pulled the couch cushions off

the love seat and put his favorite musical loud and

exciting toys up there. Then I would place one toward

the edge and then he would try to reach and reach and

he started to pull up. I would then just stand him up

leaning his weight into the loveseat and then he would

play. I did this over and over and over and the only

time he got to play with the cool loud toys was

standing up or when I need to clean something. Once

he got the pull up to stand then I would put the toy

off to the side just out of his reach and he fussed

but I just encouraged and helped him in the movement

of cruising and then he eventually got it.

I hope this helps.

--- ztribemom <ztribe@...> wrote:

> Dear Leann,

>

> My little boy is 8 1/2 months old and as of now,

> there have been no

> differences when compared to charts. I do think

> that the PT has

> been very helpful but, I am not sure if some of the

> things done are

> not just instinctual in mommies. In some areas, he

> is actually

> ahead of expectation...babbling and rolling over. I

> attribute this

> to tummy time and living with

> three older sisters who talk...ALOT. I do think

> that I have had to

> be deliberate in moving him along. By this I mean,

> I have had to

> think " Okay, where should he be ?? Is he there? "

> I did not do

> this with my other children. When we do things, we

> talk about what

> we're doing, what color his clothes are, putting

> your arm in jacket

> now, changing your diaper...etc. I'm only a few

> months ahead of you

> with this little blessing so, I'm sure others have

> more advice and

> maybe can tell you (and me) what their experience

> is.

>

> Many

> Blessings,

>

> Becky, mama to Jack

> -

> -- In Down Syndrome Treatment ,

> ChiLuvCali@... wrote:

> >

> >

> > Hi,

> > My son is now nearly 9 weeks and I notice no

> difference in his

> behavior and

> > the things he is learning to do when comparison to

> my non DS

> children.

> >

> > I read a book on children, month by month and what

> they might be

> doing at

> > two months of age,

> > such as finding their fingers and trying to put in

> their mouth,

> smiling,

> > beginning to laugh, watching faces and following

> voices,ect........ and Noah

> > seems to be right on schedule.

> >

> > When did it show up for other babies ?

> >

> > Thanks in advance~ Many Blessings to all,

> > Leann and family in Ohio

> > mom to Noah (9weeks) DS

> >

> > In a message dated 9/18/2006 8:41:16 A.M. Eastern

> Daylight Time,

> > pbeurrier@... writes:

> >

> > Faith started wearing glasses at 5. She would

> take them off and

> fling them

> > whenever they got dirty. We were always searching

> for glasses on

> the

> > playground. Finally we convinced her to give them

> to us or her

> teacher when they were

> > dirty. She was doing very well until a RX change

> and then started

> taking them

> > off again. At her 6 month check up we discovered

> the RX of the

> glasses was

> > wrong. They were fixed and she began to wear them

> again. So have

> your doctor

> > check the RX to make sure it is correct.

> Faith’s eyes are so

> bad she likes

> > wearing her glasses now.

> > ette

> > Mom to Faith (9)DS

> >

>

>

>

>

>

>

>

>

>

>

> 1. Anything suggested on this site or opinions

> offered are not intended to be medical or

> pharmaceutical advice or otherwise take the place of

> your physicians orders, nor to diagnose or treat

> your specific health problems.

> Please discuss all methods of treatment with your

> practitioner.

>

> 2 *****WARNING: Flames and inappropriate treatment

> of other members on this list will NOT be tolerated.

>

> 3. Our HOME page is

>

Down Syndrome Treatment

> where all archived posts as well as photos,links,

> files, articles etc. are found. You " MUST " have a

> ID and pass word to enter it.

>

> To contact Carol, owner & moderator

> doihavtasay@...

>

> To contact Kathy, owner & moderator

> kathy_r@...

>

> To contact , owner & moderator

> jules@...

>

>

[Guest guest]

Hi Leann, It really depends on the baby. :-) All kids are different. Some of the kids show delays in some areas, while actually being ahead in others! has been able to do things typicaly developing children couldn't. I assume it's because she had a team of therapists and a pushy mom teaching her, where as the typical child was not given such attention. Most often the big delays seem to pop up with a lack of crawling, walking and talking. Even though we think of these things as 'physical' delays, they are also 'developmental' as they also require a great deal of brain function to pull off. ( no, it doesn't mean cause your child is a late walker that they are going to behind cognitively too!! It's far more complex then that ) Some of the kids seem to hold off on talking til they have walking down! I have heard that many times. The most common across

the board delay with our children is speech. could babble with the best of them and had all the pre-speech skills too, but darn.... speech is STILL delayed at 6. My best advice would be to take hold of that lead he has and keep working!! Join Dr Jim's list!! Do what he recommends and also start signing now. Milk is a good sign to begin with for a baby. :-) Mommy, Daddy. It's going to take *you* longer then your child to learn signs, so may as well make good use of your free time now. :-) Signing has been the number one tool for improving her speech. I saw a couple of mom's say they have to teach and expose their child with DS to everything as opposed to a typical child who given the right enviornment will figure it out on their own and I have to agree that is a MAJOR difference. Don't wait on your child, keep adding the next thing even if it seems out of reach. Talk and teach EVERYTHING, including what you

think is the obvious. They do so well if you give them the chance to play and manipulate a new toy or concept then start in showing them how to do it. But they do need to be shown many things. Not all! After awhile they do start to apply what they know to new situations, and that is SO exciting to watch!! Some things I did with that have helped her in the long run- watching lots of vocabulary videos. Baby Einstien, Baby Bumble Bee, Signing Time, Love and Learning ALL great for baby to watch. Even better if you watch and speak them with him. There is a new one out called Baby Babble, which is great for getting kids to make speech sounds. still works on that one!!! Though she is pretty bored with it. Wish they would make a more age appropiate one! MUSIC!! Great for speech and learning. Flash cards of pictures and words - Baby bumble bee has free ones that match the videos. He's not tot young to start

with these, really. LOVES them still. They are just plain fun for her and she has learned SO much. It has also helped in the long run with ST too as they tend to use a lot of cards. The most important thing is to stay a bit ahead and just keep him moving along the same path he is on. And have FUN while you are doing it. Anything that is not fun for baby, is not going to be of much help.Carol in IL Mom to seven including , 6 with TOF, AVcanal, GERD, LS, Asthma, subglottal stenosis, chronic constipation ( cured now ) and DS. My problem is not how I look. It's how you see me.

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[Guest guest]

For crawling incentive we put a bin of water with toys in it across the living room floor (yes, you must be a parent who is not to worried about getting your carpet a little wet) and just entice her to crawl to the bin. It was really tough for her, but we kept pushing her and the water was a huge motivator. Figure out what motivates your child (that is always ever changing) and use it to help them move to the next level! I agree , it was tough for me as well, but as soon as I saw it worked I had no problem continuing!!

Caroline

[Guest guest]

Regan loves hats. When we finally got him to start walking was after our OT put his back against the wall and held a hat in front of him. He took a step and fell and so she just put him back against the wall and didn't let him have the hat. He screamed and cried and threw horrible fits but after two hours for two days he figured out he could take some steps. At first it was 2 steps then 4 and one day it was 10. After that he just got good. Now he is all over the place!! Now if I could figure out the way to encourage his speech. Caroline Skalsky <cskalsky@...> wrote: For crawling incentive we put a bin of water with toys in it across the living room floor (yes, you must be a parent who is not to worried about getting your carpet a little wet) and just entice her to crawl to the bin. It was really tough for her, but we kept pushing her and the water was a huge motivator. Figure out what motivates your child (that is always ever changing) and use it to help them move to the next level! I agree , it was tough for me as well, but as soon as I saw it worked I had no problem continuing!! Caroline <a href="http://lilypie.com"><img src=" " alt="Lilypie 2nd Birthday Ticker" border="0" width="400" height="80" /></a>

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[Guest guest]

Yes!!!!!! WATER....why didn't I think of that! Will give it a try!!! JudyCaroline Skalsky <cskalsky@...> wrote: For crawling incentive we put a bin of water with toys in it across the living room floor (yes, you must be a parent who is not to worried about getting your carpet a little wet) and just entice her to crawl to the bin. It was really tough for her, but we kept pushing her and the water was a huge motivator. Figure out what

motivates your child (that is always ever changing) and use it to help them move to the next level! I agree , it was tough for me as well, but as soon as I saw it worked I had no problem continuing!! Caroline

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