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Zyflo

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Hi Dave,

I am not the best person to reply because of my limited experience but you

deserve a reply. There are several members, including the founder of this

group who swear by zyflo and have been tracking it's reappearance closely.

It is basically the same as Singulair but with some specific differences

that Samterites feel are right on target. The problem is that it has a

higher liver toxicity risk. Singulair is safer that way so it was favored.

Zyflo was discontinued despite a lot of protest. I had a samters savvy

allergist who stock piled it to give to his desense patients. He gave me

some but I was taking theophylin at the time and they are not compatible.

In summary, I think you should try it if Singulair is disappointing.

Pam

On 12/14/05 6:38 AM, " Koller " <dbkoller@...> wrote:

>

> Can anyone recommend Zyflo ? Does it make a

> noticable difference ?

>

> It is available now...it appears to be expensive with

> my insurance (2X any other prescription I have) and 4

> tablets/day is a pain so I want to make sure it's

> useful.

>

> Thanks,

> Dave

>

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> > Where are you getting the desense done, with Dr.

> > Bosso? If it's with a

> > good doctor, I really feel it's nothing to worry

> > about. I had very

> > severe reactions and almost died when I took it

> > before I knew I would

> > have a reaction, but the desense was really a

> > piece of cake. I already

> > had an IV in so they could administer the meds

> > right away and control

> > the reaction from the first moment I felt it.

> >

> > As you probably know, it most definitely

> > improved my symptoms, and not

> > only was I able to stay off prednisone while on

> > the aspirin, I have

> > rarely taken prednisone since the first time I

> > was desensitized ten

> > years ago, even since I've been off the aspirin

> > now for three and a

> > half years. Before the desense, even doses as

> > high as 50 milligrams

> > and up of prednisone did not control my symptoms

> > at all.

> >

> > Lori

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

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Hi Dave, I started taking Zyflo right before my sinus surgery in mid

November. I feel it is making a difference. One interesting thing I noticed

is that the rash I usually get when taking high doses of prednisone pre

surgery did not appear at all this time. My recovery from surgery was very

quick. I just feel less " snotty " so to speak! I feel like it addresses the

issue more specifically than steroids. At my two and a half week check up my

ENT thought things looked great. After my last surgery I had polyps back

immediately. This difference could be to so many things it is hard to figure

it all out. But I thought I would give the zyflo a try, since I have tried

so many other things- why not! I had planned to do aspirin desensitization

but my doctor wants me to do it in the hospital and my insurance won't cover

it. ( they feel it is investigational- like everything else we do isn't!) I

can't decide if I should do it and pay for it on my own or not.

NH

Re: Zyflo

Hi Dave,

I am not the best person to reply because of my limited experience but you

deserve a reply. There are several members, including the founder of this

group who swear by zyflo and have been tracking it's reappearance closely.

It is basically the same as Singulair but with some specific differences

that Samterites feel are right on target. The problem is that it has a

higher liver toxicity risk. Singulair is safer that way so it was favored.

Zyflo was discontinued despite a lot of protest. I had a samters savvy

allergist who stock piled it to give to his desense patients. He gave me

some but I was taking theophylin at the time and they are not compatible.

In summary, I think you should try it if Singulair is disappointing.

Pam

On 12/14/05 6:38 AM, " Koller " <dbkoller@...> wrote:

>

> Can anyone recommend Zyflo ? Does it make a

> noticable difference ?

>

> It is available now...it appears to be expensive with

> my insurance (2X any other prescription I have) and 4

> tablets/day is a pain so I want to make sure it's

> useful.

>

> Thanks,

> Dave

>

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Guest guest

I know your question was for Lori, however...

I personally use Pulmicort in my rinses, and I know you can also drop

those directly into your nose.

>

> Hi,

> I am in my third week of Zyflo. My asthma symptoms are nearly gone!

> The polyps are still being treated with Nasacort AQ. Lori, What were

> the drops that you lie back and drip up your nasal passages? lj

>

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Guest guest

Maybe you were asking for a different Lori -- there are other Loris

here. I don't have any drops.

I use Nasonex and spray it and then lay back over the bed.

Make sure you get your liver function tested while on Zyflo. It can

cause liver damage in some people.

Lori

>

> Hi,

> I am in my third week of Zyflo. My asthma symptoms are nearly gone!

> The polyps are still being treated with Nasacort AQ. Lori, What were

> the drops that you lie back and drip up your nasal passages? lj

>

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My doctor today is encouraging me to try Zyflo again. I tried it about

a year ago, but wasn't able to tolerate it without getting a severe

migraine. I am wondering if anyone has had the experience of migraine

from Zyflo as I am not positive at this point that it was actually the

Zyflo that caused the headaches. (I happen to be the Migraine Queen!)

Also, I would be interested in any opinions as to whether those who

have tried both Singulair and Zyflo feel they get greater benefit from

one over the other.

Thanks all!

Jane

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