Guest guest Posted August 8, 2002 Report Share Posted August 8, 2002 Sara 18 yrs have had 3.5 yrs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2002 Report Share Posted August 8, 2002 56/30 Rod ---------- > From: beckhs <beckhs@...> > < > > Subject: How Old Are You? > Date: Wednesday, August 07, 2002 8:29 PM > > Informal Survey > > How Old Are You? > > How Many Years Have You Had CFS? > > Beck > > Me: 60,19 > > Will post and update results > > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2002 Report Share Posted August 8, 2002 60/19 It would also be interesting to know how it began. Accident, infection? Mine began after a car accident. --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2002 Report Share Posted August 8, 2002 25; began at age 13 or 14. Slow and steady progression. only symptom for first 3 years was joint stiffness migrating throughout body. Then at age 16 adrenal burnout, fatigue, depression, etc etc began. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2002 Report Share Posted August 8, 2002 In a message dated 8/8/02 2:20:58 PM Eastern Daylight Time, writes: > Re: How Old Are You? > 29, going on 3 deep stage CFS (was always a bit tired and brain fog before that though). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2002 Report Share Posted August 8, 2002 54/2 How Old Are You? > Informal Survey > > How Old Are You? > > How Many Years Have You Had CFS? > > Beck > > Me: 60,19 > > Will post and update results > > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2002 Report Share Posted August 8, 2002 I'm 33, have been sick for 10 years. Peggy ********************************* web page: www.angelfire.com/ri/strickenbk Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2002 Report Share Posted August 8, 2002 Me: 58/12 My daughter: 38/7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2002 Report Share Posted August 8, 2002 50yrs old 14yrs ill L in Mn >Informal Survey > >How Old Are You? > >How Many Years Have You Had CFS? > >Beck > >Me: 60,19 > >Will post and update results > > > >This list is intended for patients to share personal experiences >with each other, not to give medical advice. If you are interested >in any treatment discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2002 Report Share Posted August 8, 2002 40/11yrs. Nat > > > > > > > > > >Informal Survey > > > >How Old Are You? > > > >How Many Years Have You Had CFS? > > > >Beck > > > >Me: 60,19 > > > >Will post and update results > > > > > > > >This list is intended for patients to share personal experiences > >with each other, not to give medical advice. If you are interested > >in any treatment discussed here, please consult your doctor. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2002 Report Share Posted August 8, 2002 50 / 201/2 Re: How Old Are You? 40/11yrs. Nat > > > > > > > > > >Informal Survey > > > >How Old Are You? > > > >How Many Years Have You Had CFS? > > > >Beck > > > >Me: 60,19 > > > >Will post and update results > > > > > > > >This list is intended for patients to share personal experiences > >with each other, not to give medical advice. If you are interested > >in any treatment discussed here, please consult your doctor. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2002 Report Share Posted August 8, 2002 I am 51 and diagnosed with CFS in 98. I felt I had it in 93. I first got sick in 78 but, got better.I believe your age is a big key. Maybe HGH and bovine growth can help one overcome.- Original Message ----- From: Sydney_nc Sent: Thursday, August 08, 2002 1:25 PM Subject: Re: How Old Are You? 50yrs old 14yrs ill L in Mn >Informal Survey > >How Old Are You? > >How Many Years Have You Had CFS? > >Beck > >Me: 60,19 > >Will post and update results > > > >This list is intended for patients to share personal experiences >with each other, not to give medical advice. If you are interested >in any treatment discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2002 Report Share Posted August 8, 2002 44, diagnosed 6 yrs ago, first struck in '83 (19 yrs ago) and was ill for three years, went into partial remission (defined by an ability to struggle through work and physical workouts - highlight struggle), crashed to the floor in '96 when I was finally dx. I do think age matters - was in my late twenties the first go around. No getting up this time. Donna in NC How Old Are You? > Informal Survey > > How Old Are You? > > How Many Years Have You Had CFS? > > Beck > > Me: 60,19 > > Will post and update results > > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2002 Report Share Posted August 8, 2002 I just can't give a simple answer like everyone else. Maybe it's some sort of vestibular dysfunction that makes me have to ramble on, but...here goes: 42 yo, CFS for 26 yrs (Came down with food poisoning that put me in the hospital a couple months after having a couple amalgam fillings put in, (that a couple years later had to be replaced because they became severely corroded, and probably were poisoning me from the day they were put in) and then turned around and came down with Mono a couple months after the food poisoning and before I had gotten to a point where I felt healed from the food poisoning, and just never got over the symptoms of the mono.) FM for 3 1/2 yrs (Came down with Type A Influenza during very stressful time that turned into pneumonia, then tore a muscle in my back a couple months later from the vertigo from the neurological problems that developed following the pneumonia, then tore a ligament in my neck a few months later still in a car accident, which pretty much made me bedridden, made my CFS/neurological problems much worse, and caused me to develop MCS and RA about the same time) But...I had Sensory Integration Dysfunction (SID) from the age of 2 1/2 on from vaccination damage. (Had seizures, high fevers, etc. with vaccinations as a child, and a major personality change after a DTP shot at 2 1/2) Some people feel autistic spectrum disorders (like SID) are related to CFS. My son has Asperger's, which is an Autistic Spectrum Disorder, but he developed CFS 3 years ago at the age of 14, (he's now 17) about 6 months after I developed FM. And my husband (age 42) has slowly been developing symptoms of CFS over the last 3 years (he was recently diagnosed with Myofacial Pain Syndrome, has fatigue problems, sleep disturbance, increased sinus and soar throat problems, foggy minded, poor memory, and allergies have gotten much worse) but refuses to believe he might have CFS. How Old Are You? > Informal Survey > > How Old Are You? > > How Many Years Have You Had CFS? > > Beck > > Me: 60,19 > > Will post and update results > > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2002 Report Share Posted August 8, 2002 Oh maybe I should have given alittle more detail for the survey. Sudden viral onset in '91 (woke up in the morning with my head spinning). Was a very healthy athletic women before this, never sick in my life. So now I'm 40yrs old and had CFS for 11 yrs. Nat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2002 Report Share Posted August 8, 2002 I'm 24 and have had CFS for 4 years Suzanne ----- Original Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2002 Report Share Posted August 8, 2002 51/6 -- Re: How Old Are You? 54/2 How Old Are You? > Informal Survey > > How Old Are You? > > How Many Years Have You Had CFS? > > Beck > > Me: 60,19 > > Will post and update results > > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2002 Report Share Posted August 8, 2002 age:- 27 illness started around age 14. Always suffered from severe dust allergies (excessive sneezing) every day for several years before I fell sick. started with a headache(burning pressure like band) at the age of 14 and then in 4 months progressed into flu like symptoms, muscle aches, increased heart rate, excessive perspiration, extreme fatigue,weakness, brain fog, insomnia, burning sensation all over the body(not fever like- had to pour cold water on me all the time to cool myself), intense thirst, excessive tremors in fingers, shortness of breath etc etc. Now my major symptoms are adrenal burn out, fatigue, extreme weakness, insomnia and brain fog, thirst, shortness of breath. Thanks Gayathri __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2002 Report Share Posted August 8, 2002 i am 52, have been sick for 19 years onset was 1983 with 'flu like' infection after returning from holiday in western isles of scotland Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2002 Report Share Posted August 9, 2002 Thats great that you are in remission! What were your main cfs symptoms? Also what does BVT therapy involve?? How is it done? I have heard of it before. Thanks! Sara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2002 Report Share Posted August 9, 2002 Am 38... Who knows when I get sick, either 10 years ago when I had CMV or 4 years ago when I had EBV followed by a series of other things. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2002 Report Share Posted August 9, 2002 >But for those of us who are older I am not sure there is much hope. I'm 53, had a " sudden onset " 10/25/94, but had symptoms 3 years prior after my thyroid was destroyed with radioactive iodine treatment for Graves' Disease (autoimmune hyperthyroidism). I AM IN 100% REMISSION FROM ALL CFS/FM SYMPTOMS FOR 5 MONTHS with bee venom therapy (BVT). My thyroid is also bouncing back with BVT in spite of the radiation damage. I have been on the same full thyroid hormone replacement dose for 11 years, but had to LOWER the dose two months ago as indicated by recent multiple thyroid tests. My endocrinologist is astounded! I'm in the early stages of menopause and never felt better. Steve, don't underestimate the innate ability of the body to heal for older PWCs! There is always hope! Bzzz... (who didn't have time to wait for a conventional medical breakthrough) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2002 Report Share Posted August 9, 2002 -Age 62 , onset of CFS at age 49. Flu like symptoms which didn't go away. Low grade fever, sore throat, insomnia, fatigue, inability to concentrate. Deeper relapses brought on burning skin. All symptoms abated except adrenal depletion, extreme fatigue, particularly after activity (social or physical). Need 12 - 14 hours rest,sleep to somewhat function. Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2002 Report Share Posted August 11, 2002 Guess I'll join the party I'm 39. Got CFS gradual onset from age 19. Started with mono. Zippy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2002 Report Share Posted August 11, 2002 This is a depressing thread. So do we have a tally yet, what are the stats of the board. 23 here since 18. I mean if we're all going to share our age, what's the point without some kind of stat...you know. Somebody do the totals please... Oh, and chronic fatigue, it is curable. To all you skeptics out there. You need the right doctor, the right insurance, and you have to pro-active even in your sickened condition. Believe me, I'm not well, not at all, but I will get well...it's just a matter of time. And I plan on it sooner than later. That's why we need to help each other out. The insurance issues are the problems. They don't want to cover anything exp. that costs them money. > Guess I'll join the party > > I'm 39. > Got CFS gradual onset from age 19. > Started with mono. > > Zippy Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.