Guest guest Posted January 27, 2006 Report Share Posted January 27, 2006 Oh you had me laughing. I always have frozen M & M products in my freezer in case of snow storms so that is one nice habit of mine. But thanks for the tip on Jell-O and pudding in case my jaw is sore. Hmm, driving? Boy won't that be nice but sorry I am legally blind. I did drive once but no more. I will asks some people I know in my condo if they are available to help out if needed (like some groceries if I ran out of something like maybe orange juice). Who will have time to watch TV, lol, when I have all the to catch up with as I most likely if a candidate have the surgery done in another Province. Well, my friends could flips some fish into the condo's inside swimming pool as long it is not a shark. Thank you for the tips. I really appreciated it very much. Dolly Dolphin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2008 Report Share Posted March 31, 2008 Welynda, I am currently single, and have been for the past four years of my life. Since I have been dx with Stills and RA. Before I was dx I lived alone and found it very hard to do things for myself so that is when I had to move back in with my parents because I became very ill and didn't want to do things for myself. Right at the moment I still live with my parents, I am still functional and able to do things but I find it hard to do things like get up in the morning and go to classes. I am still trying to figure out what to do with my college degree because of my disease. I can not go into a field that is going to require me to stand on my feet for hours at a time. So at the moment I am going back to school to get another degree, which I am finding it harder because of the whole memory process. It is frustrating. I am 25 years old. My brother is a Doctor and is very successful but I don't like to burden him with my questions and medical case because I am his little sister and I know it is hurtful to see a family member go through something like this. But it is always a good thing to have good friends and a great support group to vent to and lean on. Take care Corpus Christi, Tx > > I'm curious about how many other people live alone with this disease. I'm single with no significant other or partner, etc. I do have friends who understand and help me out a lot. But there are times when I wish that I didn't have to do everything: keep the house clean, walk the dog twice a day, take care of the car. do laundry, cook, wash dishes, take out the trash etc, etc. If I want hot tea, I have to make it. Frequently, even making hot tea is hard for me. Sometimes it would be so nice to have someone who would want to make a hot cup of tea for me. Anything that gets done around here, I do it. I'm not whinning- - - I just wonder about any others of you who live alone. Thanks & love, Welynda ( p.s. The other night I wanted a cup of hot chocolate & it was just more than I could think about doing) > > > --------------------------------- > You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2008 Report Share Posted April 1, 2008 Welynda, I live alone as well. And don't really have any family or friends who offer to help me, ever. If I am desperate I'll ask for a favor, but it's so humiliating to do that, so I try to reserve those for the times when it's most urgent. It is difficult without others around. And i do envy those that seem to have partners who are willing to help and understanding. But there sure are plenty of others who have spouses who turn on them and have a hard time, so I guess it's better to be alone than to have someone by your side and still feel alone. At least we have each other here on the net! Houston Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2008 Report Share Posted April 1, 2008 Welynda, I live alone as well. And don't really have any family or friends who offer to help me, ever. If I am desperate I'll ask for a favor, but it's so humiliating to do that, so I try to reserve those for the times when it's most urgent. It is difficult without others around. And i do envy those that seem to have partners who are willing to help and understanding. But there sure are plenty of others who have spouses who turn on them and have a hard time, so I guess it's better to be alone than to have someone by your side and still feel alone. At least we have each other here on the net! Houston Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2008 Report Share Posted April 1, 2008 Welynda, I live alone as well. And don't really have any family or friends who offer to help me, ever. If I am desperate I'll ask for a favor, but it's so humiliating to do that, so I try to reserve those for the times when it's most urgent. It is difficult without others around. And i do envy those that seem to have partners who are willing to help and understanding. But there sure are plenty of others who have spouses who turn on them and have a hard time, so I guess it's better to be alone than to have someone by your side and still feel alone. At least we have each other here on the net! Houston Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2008 Report Share Posted April 1, 2008 Hello Welynda I am sorry that things are so difficult for you at the moment. It must be really hard coping on your own I can only imagine what it must be like but I do understand how sometimes you get so exhausted you just cannot manage to get a drink. On a practical level I wondered if you have thought of maybe filling a thermos flask of drink perhaps to take to bed at night in case you want a drink or at any time in the day really. I know when I came home from hospital at one point and I was too weak to do much I tried to think of anything I would need in the day and get them ready when I felt at my strongest. I am sure you have thought of this but I just wanted to try and help. I hope that you get some replies from others on their own as I am sure even that would give you a boost. Thinking of you. Best wishes Joan U.K. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2008 Report Share Posted April 1, 2008 Hello Welynda I am sorry that things are so difficult for you at the moment. It must be really hard coping on your own I can only imagine what it must be like but I do understand how sometimes you get so exhausted you just cannot manage to get a drink. On a practical level I wondered if you have thought of maybe filling a thermos flask of drink perhaps to take to bed at night in case you want a drink or at any time in the day really. I know when I came home from hospital at one point and I was too weak to do much I tried to think of anything I would need in the day and get them ready when I felt at my strongest. I am sure you have thought of this but I just wanted to try and help. I hope that you get some replies from others on their own as I am sure even that would give you a boost. Thinking of you. Best wishes Joan U.K. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2008 Report Share Posted April 1, 2008 Hello Welynda I am sorry that things are so difficult for you at the moment. It must be really hard coping on your own I can only imagine what it must be like but I do understand how sometimes you get so exhausted you just cannot manage to get a drink. On a practical level I wondered if you have thought of maybe filling a thermos flask of drink perhaps to take to bed at night in case you want a drink or at any time in the day really. I know when I came home from hospital at one point and I was too weak to do much I tried to think of anything I would need in the day and get them ready when I felt at my strongest. I am sure you have thought of this but I just wanted to try and help. I hope that you get some replies from others on their own as I am sure even that would give you a boost. Thinking of you. Best wishes Joan U.K. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2008 Report Share Posted April 2, 2008 Welynda I have lived both ways with some one , alone and now with some one again. I can say the stress of being with some one is not the same as being alone. each had its own benefits. I do know I did worry about it when i started to flair as I also was getting light headed and in the past I had even blacked out. at the time I was with some one and it was my kids that came to my aid not my wife of the time . My poor Girl could not stand the sight of blood and there was a lot of it as I hit my head on the corner of the counter and split you forehead and corner of my eye wide open . a few mints later the now ex then wife came in saw the blood and turned around and left . so in that case good thing for kids and well might as well not had any one there if I had to count on my ex . when alone i did get lonely and wanted some one being at the time I had some family but they were about 70 miles away or at lest the ones that cared were LOL. my kids were 700 miles away and I had no friends to speak of at the time . now days my friends are every one here and I do have my son two step sons and a step daughter living with me and my awesome wife who is per redneck I truly am blessed with that fits me to a tea . any hoot neither is fun and both can be it is all in how you deal with it and what you make of it . if you lock your self away like i did then yes you will be alone if you open up and get out some as I did later things can change . one good thing is any one you meet now friends or other will know you have stills from the get go and not keep wishing for the way you were or begging the docs for a pill to make it all go away and if they do not get that then they go away and as in my case took every thing from me when they did . hell man I started life over At 42 with a truck three changes of clothing and 45 cents to my name . yup that s what the ex left me and the divorce judge did not give me much more only some of my personal things and wow one hundred dollars so when i got my ssdi back pay it was all gone to pay off lawyers and others I had been bar-owing from to live but i can say I am happier for the most part now over what i was then but i do miss my home and living with both my kids seeing them grow up and all as she will not let me see them tell there 18 always finds a legal way to do it and so I have not seen my daughter in over 54 years now nor have i gotten a phone call or letter or even a card for fathers day, Birth day or any time o well some day things may change if they do not her lose that's for sure so any hoot not easy no matter what tell you make some thing of it the redneck Marty " The right of a citizen to bear arms, in lawful defense of himself or the State, is absolute. He does not derive it from the State government. It is one of the " high powers " delegated directly to the citizen, and 'is excepted out of the general powers of government.' A law cannot be passed to infringe upon or impair it, because it is above the law, and independent of the lawmaking power. " [Cockrum v. State, 24 Tex. 394, at 401-402 (1859)] " This year will go down in history. For the first time, a civilized nation has full gun registration! Our streets will be safer, our police more efficient, and the world will follow our lead into the future. " Adolf Hitler, 1935 " Waiting periods are only a step. Registration is only a step. The prohibition of private firearms is the goal. " Janet Reno as United States attorney general in the Clinton white house (now do we really want Hillary there to?) " We can't be so fixated on our desire to preserve the rights of ordinary Americans... " Bill Clinton Stills ; An illness I know to well! To learn about Stills http://www.stillsdisease.org/stills_info ________________________________________________________________________________\ ____ You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost. http://tc.deals.yahoo.com/tc/blockbuster/text5.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2008 Report Share Posted April 2, 2008 Welynda I have lived both ways with some one , alone and now with some one again. I can say the stress of being with some one is not the same as being alone. each had its own benefits. I do know I did worry about it when i started to flair as I also was getting light headed and in the past I had even blacked out. at the time I was with some one and it was my kids that came to my aid not my wife of the time . My poor Girl could not stand the sight of blood and there was a lot of it as I hit my head on the corner of the counter and split you forehead and corner of my eye wide open . a few mints later the now ex then wife came in saw the blood and turned around and left . so in that case good thing for kids and well might as well not had any one there if I had to count on my ex . when alone i did get lonely and wanted some one being at the time I had some family but they were about 70 miles away or at lest the ones that cared were LOL. my kids were 700 miles away and I had no friends to speak of at the time . now days my friends are every one here and I do have my son two step sons and a step daughter living with me and my awesome wife who is per redneck I truly am blessed with that fits me to a tea . any hoot neither is fun and both can be it is all in how you deal with it and what you make of it . if you lock your self away like i did then yes you will be alone if you open up and get out some as I did later things can change . one good thing is any one you meet now friends or other will know you have stills from the get go and not keep wishing for the way you were or begging the docs for a pill to make it all go away and if they do not get that then they go away and as in my case took every thing from me when they did . hell man I started life over At 42 with a truck three changes of clothing and 45 cents to my name . yup that s what the ex left me and the divorce judge did not give me much more only some of my personal things and wow one hundred dollars so when i got my ssdi back pay it was all gone to pay off lawyers and others I had been bar-owing from to live but i can say I am happier for the most part now over what i was then but i do miss my home and living with both my kids seeing them grow up and all as she will not let me see them tell there 18 always finds a legal way to do it and so I have not seen my daughter in over 54 years now nor have i gotten a phone call or letter or even a card for fathers day, Birth day or any time o well some day things may change if they do not her lose that's for sure so any hoot not easy no matter what tell you make some thing of it the redneck Marty " The right of a citizen to bear arms, in lawful defense of himself or the State, is absolute. He does not derive it from the State government. It is one of the " high powers " delegated directly to the citizen, and 'is excepted out of the general powers of government.' A law cannot be passed to infringe upon or impair it, because it is above the law, and independent of the lawmaking power. " [Cockrum v. State, 24 Tex. 394, at 401-402 (1859)] " This year will go down in history. For the first time, a civilized nation has full gun registration! Our streets will be safer, our police more efficient, and the world will follow our lead into the future. " Adolf Hitler, 1935 " Waiting periods are only a step. Registration is only a step. The prohibition of private firearms is the goal. " Janet Reno as United States attorney general in the Clinton white house (now do we really want Hillary there to?) " We can't be so fixated on our desire to preserve the rights of ordinary Americans... " Bill Clinton Stills ; An illness I know to well! To learn about Stills http://www.stillsdisease.org/stills_info ________________________________________________________________________________\ ____ You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost. http://tc.deals.yahoo.com/tc/blockbuster/text5.com Quote Link to comment Share on other sites More sharing options...
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