Guest guest Posted November 30, 2004 Report Share Posted November 30, 2004 Lee and Jarom and others... Oh gosh... Lee, thank you for taking the brave move in seeking a CI for Diamond. I know it would make her life easier in the long run, and give her ANOTHER TOOL (while it wouldn't make her a " hearing person " as the Deaf family probably feared) with which to make sense of the world around her, for learning, living and experiencing. I know if I had received an implant when I was 3 or 4 years old (I'm 43 now, having worn hearing aids since then, but they were not very powerful nor useful, but still provided me with some residual hearing), it would have made life easier for me. Go for it... my fingers are crossed for you and Diamond! implanted 10/20, waiting for 12/8 and parents to come to town to be there in the room with me On Tue, 30 Nov 2004 14:00:34 -0500, Lee Willis <lwillis56@...> wrote: > > Jarom, > Thank you for this post. This gives me such hope for Diamond. She is 3 > 1/2 and is deaf from birth. She was fitted with HA's a year ago but to > no avail. We just got her about a month ago. I am taking her to the ENT > at AI DuPont next month, to talk about CI. She was supposed to receive > them a year ago, but another family was going to adopt her, and being a > deaf family, they didn't want her to get the CI. I have heard from > several places that she should have been fitted sooner, and now it will > be so difficult for her to learn to adjust and to learn to speak... > don't expect too much. I have thought all along, she is only 3. Even if > she is 4 by the time she can hear, she can still learn to talk, etc. > But, what do I know? It is so great to see how well you are doing being > fitted so much later. Thank you again. You have made my day. > ---Lee, mom to 11, 8 official, 1 by birth, 7 at home. My candidate for > CI is Diamond, 3 yrs, Lumbar and Sacral Agenesis, deaf, other issues, > my shining star. > lwillis56@... > > On Nov 26, 2004, at 5:24 PM, cuteboi12001 wrote: > > > > > Chris- > > > > I am prelingually profound deaf since birth too but it is due to the > > genetic because my birth mother is deaf. I was diagnoised with > > hearing loss when I was about 18 months old and was immediately > > fitted with hearing and shipped off to a school that are trained to > > teach the deaf children how to talk. Jarom > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2005 Report Share Posted January 5, 2005 Hang in there, Jarom! Don't give up! Seventeen years ago there were days when I felt like throwing my processor across the room and smashing it across the brick fireplace wall. I'm glad I didn't do that! ....muriel in fort worth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2005 Report Share Posted February 1, 2005 Hi, Jarom! Congratulations on getting a date for getting your new implant and Happy Birthday! I just had my implant replaced (same ear) and will be getting hooked-up while you are in surgery. We can read each other's results together! Good luck Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2005 Report Share Posted December 27, 2005 Hi, Jarom, I'm sorry to hear that your N24C has failed. Are you going to be reimplanted? I have the N24C implanted in my right ear and the Freedom implanted in my left ear. My first 24C was implanted in such a way as to not allow all sounds to come through. The reimplantation has been extremely successful and I am so pleased. Upon going bilateral, the Freedom was the " latest and greatest " in the Nuclleus arsenal, so that's what I got. I've just been implanted with it since September of 2005, so hearing with it is still a work in progress. Technically, I've had no problems whatsoever. The implant tested fine during the surgery, as well as after. The processor is working well and holding up to sweating, and a few drops to the floor. (Be careful when kissing and hugging! <giggling>) I'm not familiar with the AB Hi res, but I know someone will post the information for you. Whichever device you choose to go with, I wish you good luck! ) Jackie Implanted - right ear - Oct.2002 - Nucleus 24/3G Reimplanted - right ear - Jan.2005 - Nucleus 24C/3G Implanted - left ear - Sept.2005 - Nucleus-Freedom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2006 Report Share Posted January 1, 2006 Yes, I have to get it replaced as soon as Cochlear give my surgeon a green light. My surgeon just want to go in immediately and get it replaced as soon as possible because he said he don't like the idea of me being deaf in one ear for while since I depends on my cochlear implants so much to function. It has been about 2 weeks and I am going nut not being able to understand the speech as well as I used to with both implants. My surgeon has been bothering the Cochlear almost everyday to get the informations and he is prepared to squeeze me in anytime soon. > > Hi, Jarom, > I'm sorry to hear that your N24C has failed. Are you going to be > reimplanted? > I have the N24C implanted in my right ear and the Freedom implanted in > my left ear. My first 24C was implanted in such a way as to not allow all > sounds to come through. The reimplantation has been extremely successful and I > am so pleased. Upon going bilateral, the Freedom was the " latest and greatest " > in the Nuclleus arsenal, so that's what I got. I've just been implanted with > it since September of 2005, so hearing with it is still a work in progress. > Technically, I've had no problems whatsoever. The implant tested fine during > the surgery, as well as after. The processor is working well and holding up > to sweating, and a few drops to the floor. (Be careful when kissing and > hugging! <giggling>) > I'm not familiar with the AB Hi res, but I know someone will post the > information for you. Whichever device you choose to go with, I wish you good > luck! > ) Jackie > Implanted - right ear - Oct.2002 - Nucleus 24/3G > Reimplanted - right ear - Jan.2005 - Nucleus 24C/3G > Implanted - left ear - Sept.2005 - Nucleus-Freedom > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2006 Report Share Posted January 11, 2006 Hi, Jarom, Prayers for an easy surgery and recovery on Feb. 1. I was reimplanted, also, and the CI has been very successful for me since. Hope you have results as good. ) Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2006 Report Share Posted April 21, 2006 Jarom, It's really nice to cybermeet you! :-) Do you plan to go to this 40th Anniversary Cued Speech Conference in Towson, MD? I have been asked numerous times to attend, so my plans still remain indefinite. Regards, Kent jarom_matheson <jarom_matheson@...> wrote: Yes- I am a native cuer. --Mekutochi Left Ear -- Cochlear Nucleus Freedom Implanted: August 15, 2005 Activated: August 23, 2005 Right Ear -- Pending __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2006 Report Share Posted April 21, 2006 No, but I was asked to go there by many people but my schedule prevent me from going. But I will be teaching some workshops through the west of USA also work at Camp Cuetah in Utah. What about you? Jarom > Yes- I am a native cuer. > > > --Mekutochi > > Left Ear -- Cochlear Nucleus Freedom > Implanted: August 15, 2005 > Activated: August 23, 2005 > > Right Ear -- Pending > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2006 Report Share Posted May 29, 2006 Hi Jarom, You did the right thing, telling your cousins to see about getting their child amplified NOW. It's critical to make sure he can hear during these young ages. He might just need a hearing aid or 2, not a cochlear implant. But they need to do something about it ASAP. They're very lucky to have someone with firsthand knowledge to guide them along the way. The Original Today, when I got home from spending the dinner with my friend. My mom told me to call my cousin, and his wife, . So I called them and asked them what is up. They informed me that their 18 months old son Casey failed all hearing tests. I was like " Oh okay... How much is his hearing loss? " They informed that Casey was diagnosed with severe hearing loss. I asked them what their plan is. told me that she don't believe that he is deaf because she knew he can hear her. I flatly out told her that there is many degrees of hearing loss. I reminded her of my hearing loss history that I could hear little at the beginning til I lost my hearing completely. She gave me many reasons why she couldn't believe he is deaf. I told her it is normal to be in denial but I recommend her to see the audiologist that I worked with for most of my life, a Dyntropp at Mayo Clinic in sdale. She now work with cochlear implant. I explained to how CI works and the feature of Nucleus Freedom. I also told her to explore into getting Freedom for Casey. I also told her to go to a school that I attended as young kid on Tuesday and check him in. Just to mention my name and they will take him immediately. I also told them to learn Cued Speech immediately because it is much easier and faster way to learn visual system and use it fluently instead of sign language. I told them that Casey can learn sign language as teenager or whenever he want to learn. I told her that it is very critical that she do those that I told her to guarantee his success. was all crying on the phone. I told her at the end that it won't be a easy journey but it will be worth it at the end... And that I know he will be very success if they do what I told them to do. I hope everything work out for them... Jarom N24C ® Freedom (L) Quote Link to comment Share on other sites More sharing options...
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