Guest guest Posted September 22, 2010 Report Share Posted September 22, 2010 Hello. I was just told today that I have a cholesteatoma. I've NEVER had an ear infection in my life! It started with ringing in my left ear back in March (it is now Sept.). I saw a doctor about it and he said if it didn't go away in a few weeks to go see an ENT doctor. I finally saw an ENT dr. in July. They said to take allergy pills and see if it went away. By this time I had started to lose hearing in the left ear. Nothing helped. Finally last week they did a CT scan and told me today that it is a Cholesteatoma. They said that it looks like it is just starting off and that I'm lucky to catch it so early. They said that most people don't catch it from only hearing loss like I did. Is this true? Did any of you learn of your problem from only hearing loss? Anyway... now I have to have surgery and I'm really scared. He said it will take from 1-4 hours depending on what he finds once in the ear. This whole thing just freaks me out. He said after the surgery that I shouldn't have any problems with this again. So... tell me about the surgery... should I be scared? Is it better, worse or the same as what you thought it would be? How long did it take? Would you suggest traveling to have the surgery done at a better hospital with more experienced doctors? Any kind of advice, or stories will help! E Quote Link to comment Share on other sites More sharing options...
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