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Re: MGB/Pregnancy - to Kris

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I just had a question about the prescription strength compression stockings

- did they work well with your edema? I have lymphedema due to cancer

surgery (all lymph nodes were removed on both sides of my groin) and I'm

having terrible swelling in my feet and ankles and the tops of my feets are

really painful - kind of like each foot is one big bruise?! Anyway, I can't

get in to see the vascular doctor until March 1, so I bought

over-the-counter stockings at Walmart, but they don't seem to do anything.

The vascular doc is supposed to measure me for special made ones (I think)

so I was just wondering if yours worked well? Thanks for the input!

Kellie in OKC

12-19-03

>From: Kris T. <mrstippytoes@...>

>Reply-

>

>Subject: Re: MGB/Pregnancy

>Date: Wed, 16 Feb 2005 13:52:45 -0500

>

>

>

>

>On Feb 16, 2005, at 10:06 AM, Peg wrote:

>Hi Peg,

> I too am a nurse, an OR nurse however. I had the MGB in August of

>2003 and conceived eight months later. I had no problems with my

>sugery. I lost 120 pounds. I started at 260 and came down to 140 and

>got pregnant. I gained 25 pounds during pregnancy. I had no problems

>in my first trimester. In my second trimester I developed severe

>nephrotic syndrome. My protein albumin was extremely low and I had

>severe proteinurea, (+5). I had really bad edema. I had to wear

>prescription strength compression garments for the duration of my

>pregnancy. I never became pre-eclamptic. My BP never went above

>120/70. I did have a little bit of IUGR but I had that during my first

>pregnancy as well. None of my docs know whether the nephrotic syndrome

>was a result of the MGB or something else. My kidney function tests

>were normal throughout my pregnancy. I delivered a 4lb10oz baby boy

>who is now gaining weight appropriately. He was completely healthy

>otherwise. I'm having a terrible time breastfeeding. I'm a month post

>partum and my milk still hasn't come in. I'm pumping and putting the

>baby to breast constantly, but no milk. Again, no one seems to know

>why. I've been back to my nephrologist and he wants to do a 24 hour

>urine collection to measure output and creatinine clearance. I did one

>during the pregnancy that was normal, except for output, it was only

>500cc.s in 24h. I am notorious for not drinking enough. I've

>contacted other MGB moms, most had completely normal pregnancies and

>most did not have trouble breastfeeding. Any other questions, write me

>back. I'd be happy to answer.

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Kellie,

If you truly have " lymphedema " and not just swelling my advice is

that you see someone who specializes in vascular problems. They can

prescribe the stockings for you. You will actually have to be

measured for them. I had to wear them for a while after my thigh

lift for some disruption of the lymphatics in one leg with severe

swelling in my foot on that side. It finally cleared up though.

in GA

> >Hi Peg,

> > I too am a nurse, an OR nurse however. I had the MGB in

August of

> >2003 and conceived eight months later. I had no problems with my

> >sugery. I lost 120 pounds. I started at 260 and came down to 140

and

> >got pregnant. I gained 25 pounds during pregnancy. I had no

problems

> >in my first trimester. In my second trimester I developed severe

> >nephrotic syndrome. My protein albumin was extremely low and I had

> >severe proteinurea, (+5). I had really bad edema. I had to wear

> >prescription strength compression garments for the duration of my

> >pregnancy. I never became pre-eclamptic. My BP never went above

> >120/70. I did have a little bit of IUGR but I had that during my

first

> >pregnancy as well. None of my docs know whether the nephrotic

syndrome

> >was a result of the MGB or something else. My kidney function

tests

> >were normal throughout my pregnancy. I delivered a 4lb10oz baby

boy

> >who is now gaining weight appropriately. He was completely healthy

> >otherwise. I'm having a terrible time breastfeeding. I'm a month

post

> >partum and my milk still hasn't come in. I'm pumping and putting

the

> >baby to breast constantly, but no milk. Again, no one seems to

know

> >why. I've been back to my nephrologist and he wants to do a 24

hour

> >urine collection to measure output and creatinine clearance. I

did one

> >during the pregnancy that was normal, except for output, it was

only

> >500cc.s in 24h. I am notorious for not drinking enough. I've

> >contacted other MGB moms, most had completely normal pregnancies

and

> >most did not have trouble breastfeeding. Any other questions,

write me

> >back. I'd be happy to answer.

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Kellie,

The stockings worked wonders. I lost 30 pounds of water weight in one

month after wearing them. Only problems is that they're extremely

expensive. My insurance company didn't cover them. I had one pair of

thigh highs that cost $80.00 and one pair of pantyhose that cost

$130.00. I had to wear them every waking moment. It's best to shower

at night and put them on first thing in the morning as you get out of

bed. I had the same problem with the tops of my feet, extremely

painful. If you buy over the counter compression stockings please stay

away from the knee highs. Your edema, I assume, starts at your groin

and gets progressively worse as it goes down your legs. It's difficult

to find good over the counter thigh high compression stockings that

actually work. I recommend Jobst brand. Try your drugstore. Until

then, you can always get 4 6 " ace wraps and wrap your legs from the

feet up.

On Feb 17, 2005, at 10:19 AM, Kellie L wrote:

>

>

> I just had a question about the prescription strength compression

> stockings

> - did they work well with your edema? I have lymphedema due to cancer

> surgery (all lymph nodes were removed on both sides of my groin) and

> I'm

> having terrible swelling in my feet and ankles and the tops of my

> feets are

> really painful - kind of like each foot is one big bruise?! Anyway, I

> can't

> get in to see the vascular doctor until March 1, so I bought

> over-the-counter stockings at Walmart, but they don't seem to do

> anything.

> The vascular doc is supposed to measure me for special made ones (I

> think)

> so I was just wondering if yours worked well? Thanks for the input!

>

> Kellie in OKC

> 12-19-03

>

>

>

>

>> From: Kris T. <mrstippytoes@...>

>> Reply-

>>

>> Subject: Re: MGB/Pregnancy

>> Date: Wed, 16 Feb 2005 13:52:45 -0500

>>

>>

>>

>>

>> On Feb 16, 2005, at 10:06 AM, Peg wrote:

>> Hi Peg,

>> I too am a nurse, an OR nurse however. I had the MGB in August of

>> 2003 and conceived eight months later. I had no problems with my

>> sugery. I lost 120 pounds. I started at 260 and came down to 140 and

>> got pregnant. I gained 25 pounds during pregnancy. I had no problems

>> in my first trimester. In my second trimester I developed severe

>> nephrotic syndrome. My protein albumin was extremely low and I had

>> severe proteinurea, (+5). I had really bad edema. I had to wear

>> prescription strength compression garments for the duration of my

>> pregnancy. I never became pre-eclamptic. My BP never went above

>> 120/70. I did have a little bit of IUGR but I had that during my

>> first

>> pregnancy as well. None of my docs know whether the nephrotic

>> syndrome

>> was a result of the MGB or something else. My kidney function tests

>> were normal throughout my pregnancy. I delivered a 4lb10oz baby boy

>> who is now gaining weight appropriately. He was completely healthy

>> otherwise. I'm having a terrible time breastfeeding. I'm a month

>> post

>> partum and my milk still hasn't come in. I'm pumping and putting the

>> baby to breast constantly, but no milk. Again, no one seems to know

>> why. I've been back to my nephrologist and he wants to do a 24 hour

>> urine collection to measure output and creatinine clearance. I did

>> one

>> during the pregnancy that was normal, except for output, it was only

>> 500cc.s in 24h. I am notorious for not drinking enough. I've

>> contacted other MGB moms, most had completely normal pregnancies and

>> most did not have trouble breastfeeding. Any other questions, write

>> me

>> back. I'd be happy to answer.

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