Guest guest Posted June 17, 2003 Report Share Posted June 17, 2003 Hello , Welcome to the forum, it's a great place to gather info, get support, and meet new friends. The chats are a lot of fun too. there are HOH and ci chats going on all week long at hearing exchange. Thursday night is ci chat night there so hope you can join us. the chat starts at 9 P.M. EST Perhaps you could give us a little rundown on your hearing loss and what led you to the path of seeking a ci, where you're from and just a little about yourself. Glad to see you here.. Enjoy Cheers, Silly in MI (not the same ee you met in chat last night) In , " cindy " <cindyrowe500@h...> wrote: > tonight was my very first time to java chat for cochlear implant > users and candidates ....i enjoyed my self and in look forward to > being there again soon.thankyou juliee whom gave me this > addy ........hugs and i look forward to getting to know you all > better through your posts as well as your replys ...hugs and God > bless ....love skylarose//////islandgirlcici2000 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2003 Report Share Posted June 17, 2003 (Sky) it was great to meet you in chat last night and welcome to the where you will find superduper support as you do your research on the CI's and wait for your surgery date. If you have any questions you will find terrific answers here. People are wonderful here. Just as you found in the chat room last night. I am glad that we were able to help you out with your questions. -- Snoopy N24C-bilateral Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2003 Report Share Posted June 17, 2003 Welcome to the club! This is a great place to learn something new about CI's The chats are a lot of fun and yu learn something every day. Re: hi there new here Hello , Welcome to the forum, it's a great place to gather info, get support, and meet new friends. The chats are a lot of fun too. there are HOH and ci chats going on all week long at hearing exchange. Thursday night is ci chat night there so hope you can join us. the chat starts at 9 P.M. EST Perhaps you could give us a little rundown on your hearing loss and what led you to the path of seeking a ci, where you're from and just a little about yourself. Glad to see you here.. Enjoy Cheers, Silly in MI (not the same ee you met in chat last night) In , " cindy " <cindyrowe500@h...> wrote: > tonight was my very first time to java chat for cochlear implant > users and candidates ....i enjoyed my self and in look forward to > being there again soon.thankyou juliee whom gave me this > addy ........hugs and i look forward to getting to know you all > better through your posts as well as your replys ...hugs and God > bless ....love skylarose//////islandgirlcici2000 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2012 Report Share Posted March 4, 2012 Hello Alison Welcome to the forum! I'm sorry poor health has brought you here, but you are in the right place to get some help now. So, are you on 125mcg thyroxine at the moment? When it was increased, did you feel any better, even only briefly? >> Hi there to you all,my name is Alison and I am 43.i was diagnosed in 1996 with hypothyroidism after the birth of my daughter. It went again after the birth of my son so my thyroxine was raised from 100 mcg to 125 mcg. Sorry but please could you expand on what 'it went again' refers to? do you mean you felt worse after your son was born? or were you not treated after your daughter was born as the blood tests went back to 'normal'? Have they treated your Vitamin D deficiency? What are your levels now? Muscle pain can be a hypothyroid symptom, and is listed amongst other symptoms, on here: http://www.tpa-uk.org.uk/symptoms_hypot.pdf You will see on there that anxiety and depression are also symptoms of hypothyroidism. They can also be symptoms of low adrenal function. There is some good information on low adrenal function here: http://www.tpa-uk.org.uk/adrenals.php > A member on here told me to join and see if anyone can help. Shall I go back to the doc and get some thyroid tests done? Do I need to ask for anything specifically? If you can ask for TSH, Free T4, and Free T3 (they don't always do Free T3). If your thyroid problems is from autoimmune problems, please ask for antibody tests (sorry, I'm not 100% on which antibody tests to ask for). Just because a lab result is in the normal range, it doesn't mean there isn't a problem, and that someone doesn't still have thyroid symptoms. Below is some more information on what else to consider testing for - i've pinched this from someone else's post on here; it's information that is often reposted. best regards chris === There are MANY reasons and many medical conditions associated with thyroid disease that stop thyroid hormone from getting into the cells, where it does its work. I mention these over and over and over again - ad nauseum - people must be bored with the same old, same old but as each new member joins us, they need to know. The main condition responsible for stopping thyroid hormone from working, is, quite simply, a patients thyroxine dose is too low because the doctor or consultant refuses to increase it, because the serum thyroid function test results appear OK. Sometimes, the thyroxine dose is too high, yet patients still don't feel well. They continue to suffer. Some reasons for this: They may be suffering with low adrenal reserve. The production of T4, its conversion to T3, and the receptor uptake requires a normal amount of adrenal hormones, notably, of course, cortisone. (Excess cortisone can shut production down, however.) This is what happens if the adrenals are not responding properly, and provision of cortisone usually switches it on again. But sometimes it doesn't. If the illness has been going on for a long time, the enzyme seems to fail. This conversion failure (inexplicably denied by many endocrinologists) means the thyroxine builds up, unconverted. So it doesn't work, and T4 toxicosis results. This makes the patient feel quite unwell, toxic, often with palpitations and chest pain. If provision of adrenal support doesn't remedy the situation, the final solution is the use of the active thyroid hormone, already converted, T3 - either synthetic or natural Then, we have systemic candidiasis. This is where candida albicans, a yeast, which causes skin infections almost anywhere in the body, invades the lining of the lower part of the small intestine and the large intestine. Here, the candida sets up residence in the warmth and the dark, and demands to be fed. Loving sugars and starches, candida can make you suffer terrible sweet cravings. Candida can produce toxins which can cause very many symptoms of exhaustion, headache, general illness, and which interfere with the uptake of thyroid and adrenal treatment. Sometimes the levels - which we usually test for - can be very high, and make successful treatment difficult to achieve until adequately treated. Then there is receptor resistance which could be a culprit. Being hypothyroid for some considerable time may mean the biochemical mechanisms which permit the binding of T3 to the receptors, is downgraded - so the T3 won't go in. With slow build up of T3, with full adrenal support and adequate vitamins and minerals, the receptors do come on line again. But this can be quite a slow process, and care has to be taken to build the dose up gradually. And then there are Food allergies. The most common food allergy is allergy to gluten, the protein fraction of wheat. The antibody generated by the body, by a process of molecular mimicry, cross reacts with the thyroperoxidase enzyme, (which makes thyroxine) and shuts it down. So allergy to bread can make you hypothyroid. There may be other food allergies with this kind of effect, but information on these is scanty. Certainly allergic response to certain foods can affect adrenal function and imperil thyroid production and uptake. Then we have hormone imbalances. The whole of the endocrine system is linked; each part of it needs the other parts to be operating normally to work properly. An example of this we have seen already, with cortisone. But another example is the operation of sex hormones. The imbalance that occurs at the menopause with progesterone running down, and a relative dominance of oestrogen is a further case in point – oestrogen dominance downgrades production, transportation and uptake of thyroid hormones. This is why hypothyroidism may first appear at the menopause; the symptoms ascribed to this alone, which is then treated – often with extra oestrogen, making the whole thing worse. Deficiency in progesterone most especially needs to be dealt with, since it reverses oestrogen dominance, improves many menopausal symptoms like sweats and mood swings, and reverses osteoporosis. Happily natural progesterone cream is easily obtained: when used it has the added benefit of helping to stabilise adrenal function. Then, we must never forget the possibility of mercury poisoning (through amalgam fillings) - low levels of ferritin, vitamin B12, vitamin D3, magnesium, folate, copper and zinc - all of which, if low, stop the thyroid hormone from being utilised by the cells - these have to be treated. Should your GP or endocrinologist try to tell you that there is no association between low levels of these specific minerals and vitamins and low thyroid status, print off the information at the bottom of this message to show him just some of the references to research/studies to show that there is.*** As Dr Peatfield says "When you have been quite unwell for a long time, all these problems have to be dealt with; and since each may affect the other, it all has to be done rather carefully. Contrary to cherished beliefs by much of the medical establishment, the correction of a thyroid deficiency state has a number of complexities and variables, which make the treatment usually quite specific for each person. The balancing of these variables is as much up to you as to me – which is why a check of morning, day and evening temperatures and pulse rates, together with symptoms, good and bad, can be so helpful. Many of you have been ill for a long time, either because you have not been diagnosed, or the treatment leaves you still quite unwell. Those of you who have relatively mild hypothyroidism, and have been diagnosed relatively quickly, may well respond to synthetic thyroxine, the standard treatment. I am therefore unlikely to see you; since if the thyroxine proves satisfactory in use, it is merely a question of dosage. For many of you, the outstanding problem is not that the diagnosis has not been made – although, extraordinarily, this is disgracefully common – but that is has, and the thyroxine treatment doesn't work. The dose has been altered up and down, and clinical improvement is variable and doesn't last, in spite of blood tests, which say you are perfectly all right (and therefore you are actually depressed and need this fine antidepressant). The above problems must be eliminated if thyroid hormone isn't working for you. Should your GP or endocrinologist tell you that there is no connection between these minerals or vitamin levels and hypothyroidism, then copy the following links out to show him/her Good luck! ***Low iron/ferritin: Iron deficiency is shown to significantly reduce T4 to T3 conversion, increase reverse T3 levels, and block the thermogenic (metabolism boosting) properties of thyroid hormone (1-4). Thus, iron deficiency, as indicated by an iron saturation below 25 or a ferritin below 70, will result in diminished intracellular T3 levels. Additionally, T4 should not be considered adequate thyroid replacement if iron deficiency is present (1-4)). 1. Dillman E, Gale C, Green W, et al. Hypothermia in iron deficiency due to altered triiodithyroidine metabolism. Regulatory, Integrative and Comparative Physiology 1980;239(5):377-R381. 2. SM, PE, Lukaski HC. In vitro hepatic thyroid hormone deiodination in iron-deficient rats: effect of dietary fat. Life Sci 1993;53(8):603-9. 3. Zimmermann MB, Köhrle J. The Impact of Iron and Selenium Deficiencies on Iodine and Thyroid Metabolism: Biochemistry and Relevance to Public Health. Thyroid 2002;12(10): 867-78. 4. Beard J, tobin B, Green W. Evidence for Thyroid Hormone Deficiency in Iron-Deficient Anemic Rats. J. Nutr. 1989;119:772-778. Low vitamin B12: http://www.ncbi.nlm.nih.gov/pubmed/18655403 Low vitamin D3: http://www.eje-online.org/cgi/content/abstract/113/3/329 and http://www.goodhormonehealth.com/VitaminD.pdf Low magnesium: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC292768/pdf/jcinvest00264-0105.pdf Low folate: http://www.clinchem.org/cgi/content/full/47/9/1738 and http://www.liebertonline.com/doi/abs/10.1089/thy.1999.9.1163 Low copper http://www.ithyroid.com/copper.htm http://www.drlwilson.com/articles/copper_toxicity_syndrome.htm http://www.ithyroid.com/copper.htm http://www.rjpbcs.com/pdf/2011_2(2)/68.pdf http://ajplegacy.physiology.org/content/171/3/652.extract Low zinc:http://www.istanbul.edu.tr/ffdbiyo/current4/07%20Iham%20AM%C4%B0R.pdf and http://articles.webraydian.com/article1648-Role_of_Zinc_and_Copper_in_Effective_Thyroid_Function.html Ferritin levels for women need to be between 100 and 130 for women (for men around between 150 and 170) Vitamin B12 needs to be at the top of the range. D3 levels need to be top of the range. Magnesium levels need to be at the top of the range, it's one thing that often gets missed. >> Hi there to you all,my name is Alison and I am 43.i was diagnosed in 1996 with hypothyroidism after the birth of my daughter. It went again after the birth of my son so my thyroxine was raised from 100 mcg to 125 mcg.> 3 years ago I was diagnosed with fibromyalgia and after a year also diagnosed with VitD deficiency . To say its been a struggle is an understatement. I live with chronic pain every day and just feel generally unwell. I have lost 3 stone with slimming world but instead of feeling great I feel awful,very low and anxious,I look unwell,black under my eyes.> A member on here told me to join and see if anyone can help. Shall I go back to the doc and get some thyroid tests done? Do I need to ask for anything specifically?> Alison> Quote Link to comment Share on other sites More sharing options...
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