Guest guest Posted November 22, 2006 Report Share Posted November 22, 2006 I feel that I need to share this story with all of you, especially at this time. When I began working at the school I am at now, I took the position as a one on one with a severely autistic young lady who was 19, at the time. She was also dx'd with bipolar disorder and had severe aggression. She had actually disabled several staff members, one teacher who was subsequently unable to have children. Two others endured surgeries for injuries sustained earlier. I was trained extensively in CPI, so I felt comfortable taking the job. When a and I walked down the hall, I often felt the discomfort of other staff members and students. Still, almost everyone loved her. She really had little control over her outbursts. They were for the most part, predictable, and I can honestly say that although there were times when I harbored a healthy " fear " for my own safety (I used to refer to it as a 'healthy respect') I was never injured. Part of my affection for her was her age. She and my dd Deb (Noah's mom) had birthdays that were 2 weeks apart. a's parents were both Professionals, her mom being the Director of Spec Ed at a High School. I absolutely love them and we always had a great relationship. a is 34 now. She has to wear a helmet at all times because she has banged her head so often and so severely, that she could injure herself to the point of death if left unprotected. Of course, she has not lived at home since she was a young teenager, but her parents live close by. Her mom is a Board Member, and their involvement with her is continual. I am telling you all of this for a reason. When I told a's mom about my grandson's dx 18 months ago, her face dropped and her eyes teared up. She hugged me with true sympathy. I told her that we were starting Noah on a biomedical protocol that included chelation. She looked at me curiously, but we couldn't talk anymore at that time. I spoke with her again, several months ago. I told her how much a meant to me, and just how much she had taught me. I told her that I learned far more from her than I did from any text book or other life experience. She was actually my mentor. She then asked how Noah was doing. I told her that he moves closer to recovery every day. I gave her a brief synopsis of the DAN! protocol and told her how we are healing him from the inside out. In turn, he is able to learn through the educational process and the therapy that he is receiving. She then told me how hard it was to have her daughter live outside of their home. However, before they placed her in the residence, they had sent her to a Treatment Center out of State. She said that there was a Doctor who was treating her with an alternative approach that involved more natural therapies. I became curious and asked her some questions. I asked her if they had seen an improvement in a's health and behavior. She said " Yes, we did, and we were actually quite encouraged. " She paused and went on to say that the opening came up at the residence, and they were forced to make the decision. They really had no choice, as it could be another year or more before another opening came up. When they enrolled her, they brought all of her supplements with them. However, the " Powers that Be " refused to continue this protocol. They were told that this is just another form of quackery, and that they " would not be doing any that. " These parents had already gone through so much mental and physical anguish. There were NO support groups, NO internet groups and no other sources for biomedical treatment in the area. So, these wonderful, caring parents had no choice but to allow the Phsychiatrist, Phsychologist, Therapists and Nursing Staff to take over her care. Of course, that meant phychotropic medications on a trial and error basis. That's what they did back then. Before I left, I asked her if she remembered who the Doctor was who was treating a. She said, " Yes, I do...... It was Dr. Bernarnd Rimland. " ....and I left there in tears. I cried for what could have been. I join in the Autism Community in extending my deepest sympathy to the Rimland family. And Dr. Rimland himself will always be in my thoughts and prayers. -Trish Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.