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Hi Meghan...

I'm not sure I have any answers for you but wanted to acknowledge your post. I

fought cluster headaches and migraines for 30+ years and interestingly enough,

when I was in treatment my headaches went away and haven't returned 1-1/2 years

after finishing treatment...I am a 1b non-responder.

However I made some lifestyle changes after being diagnosed that may contribute

to my not having headaches any more. I changed my diet to a liver healthy diet,

learned to relax and breathe properly to control my stress level and started

accupuncture (I'm fortunate to be a big city with two oriental schools of

medicine with free clinics). I think (these are only my thoughts and not fact to

my knowledge) that tx changes something in our physiological structure and

ofcourse the virus itself affects who knows what besides our livers. It is after

all a systemic virus and not a liver disease.

In chinese medicine the liver holds our anger and controls the sinews...muscles,

tendons, ligaments, etc...so that we become inflexible. People with dis-eased

livers often deal with muscoskelatal (sp?) issues. Maybe your headaches are a

result of a neck problem...have you thought about seeing a chiropractor? If you

go to a chiro and they don't want xrays done before working on you, find another

chiro. A lot of people swear by their chiros and most insurance plans cover

chiros. Personally I would take a shot with a chiro before I started pumping

more drugs into my body.

If you can afford accupuncture or have access to an oriental school of medicine

where they have a free clinic, accupuncture is very successful with a multitude

of ailments. For years I have been controlling my lower back and hip pain with

accupuncture along with any other ailments that pop up including liver tonifying

treatments. If you want to read about the theories behind chinese medicine and

accupuncture in layman's terms, the best book I've found is " Between Heaven and

Earth, A Guide to Chinese Medicine. " If you are interesting I can post the

author's names.

Good luck Meghan. It's always a challenge to find the causes of our discomfort.

I once read a book, " Feelings Buried Never Die " that concludes all dis-eases are

caused by unresolved emotional issues. I found that it ran pretty parallel to

the theories of chinese medicine.

Tatezi

post treatment blues

Hi all,

I posted a message a few days ago, but I don't think it got to

the list. I had an MRI last week, because of the constant

headaches. Everything was fine. I went to the neurologist yesterday

and he said he thinks the headaches are as a result of the treatment,

but doesn't know why they haven't stopped after 6 1/2 months off

treatment. He thinks he can help me with medication to prevent

rather than treat the headaches with painkillers. He thinks an

antipressant, an antiseizure, or blood pressure medication, even

though I don't have high blood pressure, will work. I am hopeful. In

a post, DB wrote about ACV and honey. What is ACV? What is TMTD? I

also have back pain and sinus problems, and would like to find your

solution. Thanks, Meghan

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Hi Meghan...

I'm not sure I have any answers for you but wanted to acknowledge your post. I

fought cluster headaches and migraines for 30+ years and interestingly enough,

when I was in treatment my headaches went away and haven't returned 1-1/2 years

after finishing treatment...I am a 1b non-responder.

However I made some lifestyle changes after being diagnosed that may contribute

to my not having headaches any more. I changed my diet to a liver healthy diet,

learned to relax and breathe properly to control my stress level and started

accupuncture (I'm fortunate to be a big city with two oriental schools of

medicine with free clinics). I think (these are only my thoughts and not fact to

my knowledge) that tx changes something in our physiological structure and

ofcourse the virus itself affects who knows what besides our livers. It is after

all a systemic virus and not a liver disease.

In chinese medicine the liver holds our anger and controls the sinews...muscles,

tendons, ligaments, etc...so that we become inflexible. People with dis-eased

livers often deal with muscoskelatal (sp?) issues. Maybe your headaches are a

result of a neck problem...have you thought about seeing a chiropractor? If you

go to a chiro and they don't want xrays done before working on you, find another

chiro. A lot of people swear by their chiros and most insurance plans cover

chiros. Personally I would take a shot with a chiro before I started pumping

more drugs into my body.

If you can afford accupuncture or have access to an oriental school of medicine

where they have a free clinic, accupuncture is very successful with a multitude

of ailments. For years I have been controlling my lower back and hip pain with

accupuncture along with any other ailments that pop up including liver tonifying

treatments. If you want to read about the theories behind chinese medicine and

accupuncture in layman's terms, the best book I've found is " Between Heaven and

Earth, A Guide to Chinese Medicine. " If you are interesting I can post the

author's names.

Good luck Meghan. It's always a challenge to find the causes of our discomfort.

I once read a book, " Feelings Buried Never Die " that concludes all dis-eases are

caused by unresolved emotional issues. I found that it ran pretty parallel to

the theories of chinese medicine.

Tatezi

post treatment blues

Hi all,

I posted a message a few days ago, but I don't think it got to

the list. I had an MRI last week, because of the constant

headaches. Everything was fine. I went to the neurologist yesterday

and he said he thinks the headaches are as a result of the treatment,

but doesn't know why they haven't stopped after 6 1/2 months off

treatment. He thinks he can help me with medication to prevent

rather than treat the headaches with painkillers. He thinks an

antipressant, an antiseizure, or blood pressure medication, even

though I don't have high blood pressure, will work. I am hopeful. In

a post, DB wrote about ACV and honey. What is ACV? What is TMTD? I

also have back pain and sinus problems, and would like to find your

solution. Thanks, Meghan

Link to comment
Share on other sites

Hi Meghan...

I'm not sure I have any answers for you but wanted to acknowledge your post. I

fought cluster headaches and migraines for 30+ years and interestingly enough,

when I was in treatment my headaches went away and haven't returned 1-1/2 years

after finishing treatment...I am a 1b non-responder.

However I made some lifestyle changes after being diagnosed that may contribute

to my not having headaches any more. I changed my diet to a liver healthy diet,

learned to relax and breathe properly to control my stress level and started

accupuncture (I'm fortunate to be a big city with two oriental schools of

medicine with free clinics). I think (these are only my thoughts and not fact to

my knowledge) that tx changes something in our physiological structure and

ofcourse the virus itself affects who knows what besides our livers. It is after

all a systemic virus and not a liver disease.

In chinese medicine the liver holds our anger and controls the sinews...muscles,

tendons, ligaments, etc...so that we become inflexible. People with dis-eased

livers often deal with muscoskelatal (sp?) issues. Maybe your headaches are a

result of a neck problem...have you thought about seeing a chiropractor? If you

go to a chiro and they don't want xrays done before working on you, find another

chiro. A lot of people swear by their chiros and most insurance plans cover

chiros. Personally I would take a shot with a chiro before I started pumping

more drugs into my body.

If you can afford accupuncture or have access to an oriental school of medicine

where they have a free clinic, accupuncture is very successful with a multitude

of ailments. For years I have been controlling my lower back and hip pain with

accupuncture along with any other ailments that pop up including liver tonifying

treatments. If you want to read about the theories behind chinese medicine and

accupuncture in layman's terms, the best book I've found is " Between Heaven and

Earth, A Guide to Chinese Medicine. " If you are interesting I can post the

author's names.

Good luck Meghan. It's always a challenge to find the causes of our discomfort.

I once read a book, " Feelings Buried Never Die " that concludes all dis-eases are

caused by unresolved emotional issues. I found that it ran pretty parallel to

the theories of chinese medicine.

Tatezi

post treatment blues

Hi all,

I posted a message a few days ago, but I don't think it got to

the list. I had an MRI last week, because of the constant

headaches. Everything was fine. I went to the neurologist yesterday

and he said he thinks the headaches are as a result of the treatment,

but doesn't know why they haven't stopped after 6 1/2 months off

treatment. He thinks he can help me with medication to prevent

rather than treat the headaches with painkillers. He thinks an

antipressant, an antiseizure, or blood pressure medication, even

though I don't have high blood pressure, will work. I am hopeful. In

a post, DB wrote about ACV and honey. What is ACV? What is TMTD? I

also have back pain and sinus problems, and would like to find your

solution. Thanks, Meghan

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Share on other sites

Sorry I couldn't help, Meghan. I'm shocked that accupucture hasn't help at

all...the only time it hasn't helped me is when I had severe sciatica pain and

lower back pain. Turned out to be spinal stenosis that had gotten so bad it was

compressing my spinal cord and that meant surgery and surgery right away.

And you are so right about physical therapists. Their schooling is as tough as a

physician's. And PT sometimes is the only answer for some things. I learned to

walk again after my surgery because of outstanding PT.

Maybe DB is behind in mail and hasn't learned that you are trying to get

information from shim (that's my non gender term for she/he). And maybe someone

else will know something. Maybe you might post a message to DB's attention in

the subject line.

Hang in there and remember we are here to help if we can. There is nothing worse

than living with headaches and I sure wish I could have helped.

Blessings

Tatezi

Re: post treatment blues

Hi Tatezi,

Thanks for trying to help. I have been to accupuncture for eight weeks

straight. My daughter is a physical therapist, and has more knowledge than a

chiropractor. Nothing helped. I would think you were right about buried

feelings, if I was a headache sufferer before treatment, but I wasn't,

inspite of burying a son and nearly burying a husband. My diet is fairly

healthy, lots a fruits and some vegetables. Sugar, however is my downfall,

and I know that is bad. I am trying to cut back in that area. I am 1 b and

was negative at 3 months, but positive at 6 months post treatment. I still

have no strength to speak of. I wish I would hear from DB. He wrote about

changes he made and I didn't understand what he meant, which helped him with

his back and sinus problems. It is so frustrating after so long, my life is

still so messed up. The new drugs , whatever they are will be better than

the narcotics I am taking, and not getting much help from. Eventually, maybe

they will stop and I can get back to normal, whatever that is. Thanks, Meghan

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Share on other sites

Sorry I couldn't help, Meghan. I'm shocked that accupucture hasn't help at

all...the only time it hasn't helped me is when I had severe sciatica pain and

lower back pain. Turned out to be spinal stenosis that had gotten so bad it was

compressing my spinal cord and that meant surgery and surgery right away.

And you are so right about physical therapists. Their schooling is as tough as a

physician's. And PT sometimes is the only answer for some things. I learned to

walk again after my surgery because of outstanding PT.

Maybe DB is behind in mail and hasn't learned that you are trying to get

information from shim (that's my non gender term for she/he). And maybe someone

else will know something. Maybe you might post a message to DB's attention in

the subject line.

Hang in there and remember we are here to help if we can. There is nothing worse

than living with headaches and I sure wish I could have helped.

Blessings

Tatezi

Re: post treatment blues

Hi Tatezi,

Thanks for trying to help. I have been to accupuncture for eight weeks

straight. My daughter is a physical therapist, and has more knowledge than a

chiropractor. Nothing helped. I would think you were right about buried

feelings, if I was a headache sufferer before treatment, but I wasn't,

inspite of burying a son and nearly burying a husband. My diet is fairly

healthy, lots a fruits and some vegetables. Sugar, however is my downfall,

and I know that is bad. I am trying to cut back in that area. I am 1 b and

was negative at 3 months, but positive at 6 months post treatment. I still

have no strength to speak of. I wish I would hear from DB. He wrote about

changes he made and I didn't understand what he meant, which helped him with

his back and sinus problems. It is so frustrating after so long, my life is

still so messed up. The new drugs , whatever they are will be better than

the narcotics I am taking, and not getting much help from. Eventually, maybe

they will stop and I can get back to normal, whatever that is. Thanks, Meghan

Link to comment
Share on other sites

Sorry I couldn't help, Meghan. I'm shocked that accupucture hasn't help at

all...the only time it hasn't helped me is when I had severe sciatica pain and

lower back pain. Turned out to be spinal stenosis that had gotten so bad it was

compressing my spinal cord and that meant surgery and surgery right away.

And you are so right about physical therapists. Their schooling is as tough as a

physician's. And PT sometimes is the only answer for some things. I learned to

walk again after my surgery because of outstanding PT.

Maybe DB is behind in mail and hasn't learned that you are trying to get

information from shim (that's my non gender term for she/he). And maybe someone

else will know something. Maybe you might post a message to DB's attention in

the subject line.

Hang in there and remember we are here to help if we can. There is nothing worse

than living with headaches and I sure wish I could have helped.

Blessings

Tatezi

Re: post treatment blues

Hi Tatezi,

Thanks for trying to help. I have been to accupuncture for eight weeks

straight. My daughter is a physical therapist, and has more knowledge than a

chiropractor. Nothing helped. I would think you were right about buried

feelings, if I was a headache sufferer before treatment, but I wasn't,

inspite of burying a son and nearly burying a husband. My diet is fairly

healthy, lots a fruits and some vegetables. Sugar, however is my downfall,

and I know that is bad. I am trying to cut back in that area. I am 1 b and

was negative at 3 months, but positive at 6 months post treatment. I still

have no strength to speak of. I wish I would hear from DB. He wrote about

changes he made and I didn't understand what he meant, which helped him with

his back and sinus problems. It is so frustrating after so long, my life is

still so messed up. The new drugs , whatever they are will be better than

the narcotics I am taking, and not getting much help from. Eventually, maybe

they will stop and I can get back to normal, whatever that is. Thanks, Meghan

Link to comment
Share on other sites

Sorry I couldn't help, Meghan. I'm shocked that accupucture hasn't help at

all...the only time it hasn't helped me is when I had severe sciatica pain and

lower back pain. Turned out to be spinal stenosis that had gotten so bad it was

compressing my spinal cord and that meant surgery and surgery right away.

And you are so right about physical therapists. Their schooling is as tough as a

physician's. And PT sometimes is the only answer for some things. I learned to

walk again after my surgery because of outstanding PT.

Maybe DB is behind in mail and hasn't learned that you are trying to get

information from shim (that's my non gender term for she/he). And maybe someone

else will know something. Maybe you might post a message to DB's attention in

the subject line.

Hang in there and remember we are here to help if we can. There is nothing worse

than living with headaches and I sure wish I could have helped.

Blessings

Tatezi

Re: post treatment blues

Hi Tatezi,

Thanks for trying to help. I have been to accupuncture for eight weeks

straight. My daughter is a physical therapist, and has more knowledge than a

chiropractor. Nothing helped. I would think you were right about buried

feelings, if I was a headache sufferer before treatment, but I wasn't,

inspite of burying a son and nearly burying a husband. My diet is fairly

healthy, lots a fruits and some vegetables. Sugar, however is my downfall,

and I know that is bad. I am trying to cut back in that area. I am 1 b and

was negative at 3 months, but positive at 6 months post treatment. I still

have no strength to speak of. I wish I would hear from DB. He wrote about

changes he made and I didn't understand what he meant, which helped him with

his back and sinus problems. It is so frustrating after so long, my life is

still so messed up. The new drugs , whatever they are will be better than

the narcotics I am taking, and not getting much help from. Eventually, maybe

they will stop and I can get back to normal, whatever that is. Thanks, Meghan

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