Guest guest Posted February 16, 2003 Report Share Posted February 16, 2003 Hi Meghan... I'm not sure I have any answers for you but wanted to acknowledge your post. I fought cluster headaches and migraines for 30+ years and interestingly enough, when I was in treatment my headaches went away and haven't returned 1-1/2 years after finishing treatment...I am a 1b non-responder. However I made some lifestyle changes after being diagnosed that may contribute to my not having headaches any more. I changed my diet to a liver healthy diet, learned to relax and breathe properly to control my stress level and started accupuncture (I'm fortunate to be a big city with two oriental schools of medicine with free clinics). I think (these are only my thoughts and not fact to my knowledge) that tx changes something in our physiological structure and ofcourse the virus itself affects who knows what besides our livers. It is after all a systemic virus and not a liver disease. In chinese medicine the liver holds our anger and controls the sinews...muscles, tendons, ligaments, etc...so that we become inflexible. People with dis-eased livers often deal with muscoskelatal (sp?) issues. Maybe your headaches are a result of a neck problem...have you thought about seeing a chiropractor? If you go to a chiro and they don't want xrays done before working on you, find another chiro. A lot of people swear by their chiros and most insurance plans cover chiros. Personally I would take a shot with a chiro before I started pumping more drugs into my body. If you can afford accupuncture or have access to an oriental school of medicine where they have a free clinic, accupuncture is very successful with a multitude of ailments. For years I have been controlling my lower back and hip pain with accupuncture along with any other ailments that pop up including liver tonifying treatments. If you want to read about the theories behind chinese medicine and accupuncture in layman's terms, the best book I've found is " Between Heaven and Earth, A Guide to Chinese Medicine. " If you are interesting I can post the author's names. Good luck Meghan. It's always a challenge to find the causes of our discomfort. I once read a book, " Feelings Buried Never Die " that concludes all dis-eases are caused by unresolved emotional issues. I found that it ran pretty parallel to the theories of chinese medicine. Tatezi post treatment blues Hi all, I posted a message a few days ago, but I don't think it got to the list. I had an MRI last week, because of the constant headaches. Everything was fine. I went to the neurologist yesterday and he said he thinks the headaches are as a result of the treatment, but doesn't know why they haven't stopped after 6 1/2 months off treatment. He thinks he can help me with medication to prevent rather than treat the headaches with painkillers. He thinks an antipressant, an antiseizure, or blood pressure medication, even though I don't have high blood pressure, will work. I am hopeful. In a post, DB wrote about ACV and honey. What is ACV? What is TMTD? I also have back pain and sinus problems, and would like to find your solution. Thanks, Meghan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2003 Report Share Posted February 16, 2003 Hi Meghan... I'm not sure I have any answers for you but wanted to acknowledge your post. I fought cluster headaches and migraines for 30+ years and interestingly enough, when I was in treatment my headaches went away and haven't returned 1-1/2 years after finishing treatment...I am a 1b non-responder. However I made some lifestyle changes after being diagnosed that may contribute to my not having headaches any more. I changed my diet to a liver healthy diet, learned to relax and breathe properly to control my stress level and started accupuncture (I'm fortunate to be a big city with two oriental schools of medicine with free clinics). I think (these are only my thoughts and not fact to my knowledge) that tx changes something in our physiological structure and ofcourse the virus itself affects who knows what besides our livers. It is after all a systemic virus and not a liver disease. In chinese medicine the liver holds our anger and controls the sinews...muscles, tendons, ligaments, etc...so that we become inflexible. People with dis-eased livers often deal with muscoskelatal (sp?) issues. Maybe your headaches are a result of a neck problem...have you thought about seeing a chiropractor? If you go to a chiro and they don't want xrays done before working on you, find another chiro. A lot of people swear by their chiros and most insurance plans cover chiros. Personally I would take a shot with a chiro before I started pumping more drugs into my body. If you can afford accupuncture or have access to an oriental school of medicine where they have a free clinic, accupuncture is very successful with a multitude of ailments. For years I have been controlling my lower back and hip pain with accupuncture along with any other ailments that pop up including liver tonifying treatments. If you want to read about the theories behind chinese medicine and accupuncture in layman's terms, the best book I've found is " Between Heaven and Earth, A Guide to Chinese Medicine. " If you are interesting I can post the author's names. Good luck Meghan. It's always a challenge to find the causes of our discomfort. I once read a book, " Feelings Buried Never Die " that concludes all dis-eases are caused by unresolved emotional issues. I found that it ran pretty parallel to the theories of chinese medicine. Tatezi post treatment blues Hi all, I posted a message a few days ago, but I don't think it got to the list. I had an MRI last week, because of the constant headaches. Everything was fine. I went to the neurologist yesterday and he said he thinks the headaches are as a result of the treatment, but doesn't know why they haven't stopped after 6 1/2 months off treatment. He thinks he can help me with medication to prevent rather than treat the headaches with painkillers. He thinks an antipressant, an antiseizure, or blood pressure medication, even though I don't have high blood pressure, will work. I am hopeful. In a post, DB wrote about ACV and honey. What is ACV? What is TMTD? I also have back pain and sinus problems, and would like to find your solution. Thanks, Meghan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2003 Report Share Posted February 16, 2003 Hi Meghan... I'm not sure I have any answers for you but wanted to acknowledge your post. I fought cluster headaches and migraines for 30+ years and interestingly enough, when I was in treatment my headaches went away and haven't returned 1-1/2 years after finishing treatment...I am a 1b non-responder. However I made some lifestyle changes after being diagnosed that may contribute to my not having headaches any more. I changed my diet to a liver healthy diet, learned to relax and breathe properly to control my stress level and started accupuncture (I'm fortunate to be a big city with two oriental schools of medicine with free clinics). I think (these are only my thoughts and not fact to my knowledge) that tx changes something in our physiological structure and ofcourse the virus itself affects who knows what besides our livers. It is after all a systemic virus and not a liver disease. In chinese medicine the liver holds our anger and controls the sinews...muscles, tendons, ligaments, etc...so that we become inflexible. People with dis-eased livers often deal with muscoskelatal (sp?) issues. Maybe your headaches are a result of a neck problem...have you thought about seeing a chiropractor? If you go to a chiro and they don't want xrays done before working on you, find another chiro. A lot of people swear by their chiros and most insurance plans cover chiros. Personally I would take a shot with a chiro before I started pumping more drugs into my body. If you can afford accupuncture or have access to an oriental school of medicine where they have a free clinic, accupuncture is very successful with a multitude of ailments. For years I have been controlling my lower back and hip pain with accupuncture along with any other ailments that pop up including liver tonifying treatments. If you want to read about the theories behind chinese medicine and accupuncture in layman's terms, the best book I've found is " Between Heaven and Earth, A Guide to Chinese Medicine. " If you are interesting I can post the author's names. Good luck Meghan. It's always a challenge to find the causes of our discomfort. I once read a book, " Feelings Buried Never Die " that concludes all dis-eases are caused by unresolved emotional issues. I found that it ran pretty parallel to the theories of chinese medicine. Tatezi post treatment blues Hi all, I posted a message a few days ago, but I don't think it got to the list. I had an MRI last week, because of the constant headaches. Everything was fine. I went to the neurologist yesterday and he said he thinks the headaches are as a result of the treatment, but doesn't know why they haven't stopped after 6 1/2 months off treatment. He thinks he can help me with medication to prevent rather than treat the headaches with painkillers. He thinks an antipressant, an antiseizure, or blood pressure medication, even though I don't have high blood pressure, will work. I am hopeful. In a post, DB wrote about ACV and honey. What is ACV? What is TMTD? I also have back pain and sinus problems, and would like to find your solution. Thanks, Meghan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2003 Report Share Posted February 16, 2003 Sorry I couldn't help, Meghan. I'm shocked that accupucture hasn't help at all...the only time it hasn't helped me is when I had severe sciatica pain and lower back pain. Turned out to be spinal stenosis that had gotten so bad it was compressing my spinal cord and that meant surgery and surgery right away. And you are so right about physical therapists. Their schooling is as tough as a physician's. And PT sometimes is the only answer for some things. I learned to walk again after my surgery because of outstanding PT. Maybe DB is behind in mail and hasn't learned that you are trying to get information from shim (that's my non gender term for she/he). And maybe someone else will know something. Maybe you might post a message to DB's attention in the subject line. Hang in there and remember we are here to help if we can. There is nothing worse than living with headaches and I sure wish I could have helped. Blessings Tatezi Re: post treatment blues Hi Tatezi, Thanks for trying to help. I have been to accupuncture for eight weeks straight. My daughter is a physical therapist, and has more knowledge than a chiropractor. Nothing helped. I would think you were right about buried feelings, if I was a headache sufferer before treatment, but I wasn't, inspite of burying a son and nearly burying a husband. My diet is fairly healthy, lots a fruits and some vegetables. Sugar, however is my downfall, and I know that is bad. I am trying to cut back in that area. I am 1 b and was negative at 3 months, but positive at 6 months post treatment. I still have no strength to speak of. I wish I would hear from DB. He wrote about changes he made and I didn't understand what he meant, which helped him with his back and sinus problems. It is so frustrating after so long, my life is still so messed up. The new drugs , whatever they are will be better than the narcotics I am taking, and not getting much help from. Eventually, maybe they will stop and I can get back to normal, whatever that is. Thanks, Meghan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2003 Report Share Posted February 16, 2003 Sorry I couldn't help, Meghan. I'm shocked that accupucture hasn't help at all...the only time it hasn't helped me is when I had severe sciatica pain and lower back pain. Turned out to be spinal stenosis that had gotten so bad it was compressing my spinal cord and that meant surgery and surgery right away. And you are so right about physical therapists. Their schooling is as tough as a physician's. And PT sometimes is the only answer for some things. I learned to walk again after my surgery because of outstanding PT. Maybe DB is behind in mail and hasn't learned that you are trying to get information from shim (that's my non gender term for she/he). And maybe someone else will know something. Maybe you might post a message to DB's attention in the subject line. Hang in there and remember we are here to help if we can. There is nothing worse than living with headaches and I sure wish I could have helped. Blessings Tatezi Re: post treatment blues Hi Tatezi, Thanks for trying to help. I have been to accupuncture for eight weeks straight. My daughter is a physical therapist, and has more knowledge than a chiropractor. Nothing helped. I would think you were right about buried feelings, if I was a headache sufferer before treatment, but I wasn't, inspite of burying a son and nearly burying a husband. My diet is fairly healthy, lots a fruits and some vegetables. Sugar, however is my downfall, and I know that is bad. I am trying to cut back in that area. I am 1 b and was negative at 3 months, but positive at 6 months post treatment. I still have no strength to speak of. I wish I would hear from DB. He wrote about changes he made and I didn't understand what he meant, which helped him with his back and sinus problems. It is so frustrating after so long, my life is still so messed up. The new drugs , whatever they are will be better than the narcotics I am taking, and not getting much help from. Eventually, maybe they will stop and I can get back to normal, whatever that is. Thanks, Meghan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2003 Report Share Posted February 16, 2003 Sorry I couldn't help, Meghan. I'm shocked that accupucture hasn't help at all...the only time it hasn't helped me is when I had severe sciatica pain and lower back pain. Turned out to be spinal stenosis that had gotten so bad it was compressing my spinal cord and that meant surgery and surgery right away. And you are so right about physical therapists. Their schooling is as tough as a physician's. And PT sometimes is the only answer for some things. I learned to walk again after my surgery because of outstanding PT. Maybe DB is behind in mail and hasn't learned that you are trying to get information from shim (that's my non gender term for she/he). And maybe someone else will know something. Maybe you might post a message to DB's attention in the subject line. Hang in there and remember we are here to help if we can. There is nothing worse than living with headaches and I sure wish I could have helped. Blessings Tatezi Re: post treatment blues Hi Tatezi, Thanks for trying to help. I have been to accupuncture for eight weeks straight. My daughter is a physical therapist, and has more knowledge than a chiropractor. Nothing helped. I would think you were right about buried feelings, if I was a headache sufferer before treatment, but I wasn't, inspite of burying a son and nearly burying a husband. My diet is fairly healthy, lots a fruits and some vegetables. Sugar, however is my downfall, and I know that is bad. I am trying to cut back in that area. I am 1 b and was negative at 3 months, but positive at 6 months post treatment. I still have no strength to speak of. I wish I would hear from DB. He wrote about changes he made and I didn't understand what he meant, which helped him with his back and sinus problems. It is so frustrating after so long, my life is still so messed up. The new drugs , whatever they are will be better than the narcotics I am taking, and not getting much help from. Eventually, maybe they will stop and I can get back to normal, whatever that is. Thanks, Meghan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2003 Report Share Posted February 16, 2003 Sorry I couldn't help, Meghan. I'm shocked that accupucture hasn't help at all...the only time it hasn't helped me is when I had severe sciatica pain and lower back pain. Turned out to be spinal stenosis that had gotten so bad it was compressing my spinal cord and that meant surgery and surgery right away. And you are so right about physical therapists. Their schooling is as tough as a physician's. And PT sometimes is the only answer for some things. I learned to walk again after my surgery because of outstanding PT. Maybe DB is behind in mail and hasn't learned that you are trying to get information from shim (that's my non gender term for she/he). And maybe someone else will know something. Maybe you might post a message to DB's attention in the subject line. Hang in there and remember we are here to help if we can. There is nothing worse than living with headaches and I sure wish I could have helped. Blessings Tatezi Re: post treatment blues Hi Tatezi, Thanks for trying to help. I have been to accupuncture for eight weeks straight. My daughter is a physical therapist, and has more knowledge than a chiropractor. Nothing helped. I would think you were right about buried feelings, if I was a headache sufferer before treatment, but I wasn't, inspite of burying a son and nearly burying a husband. My diet is fairly healthy, lots a fruits and some vegetables. Sugar, however is my downfall, and I know that is bad. I am trying to cut back in that area. I am 1 b and was negative at 3 months, but positive at 6 months post treatment. I still have no strength to speak of. I wish I would hear from DB. He wrote about changes he made and I didn't understand what he meant, which helped him with his back and sinus problems. It is so frustrating after so long, my life is still so messed up. The new drugs , whatever they are will be better than the narcotics I am taking, and not getting much help from. Eventually, maybe they will stop and I can get back to normal, whatever that is. Thanks, Meghan Quote Link to comment Share on other sites More sharing options...
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