Guest guest Posted December 30, 2002 Report Share Posted December 30, 2002 Hi Gee, I am glad your test results were good. I too have lived with chronic pain for a long time. I have a very bad back and colitis. I also lost my son 7 years ago. The headache pain is like the straw that broke the camel's back. I asked the doctor to change my meds today. Maybe this will help. Meghan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2002 Report Share Posted December 30, 2002 Hi Gee, I am glad your test results were good. I too have lived with chronic pain for a long time. I have a very bad back and colitis. I also lost my son 7 years ago. The headache pain is like the straw that broke the camel's back. I asked the doctor to change my meds today. Maybe this will help. Meghan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2002 Report Share Posted December 30, 2002 Hi Gee, I am glad your test results were good. I too have lived with chronic pain for a long time. I have a very bad back and colitis. I also lost my son 7 years ago. The headache pain is like the straw that broke the camel's back. I asked the doctor to change my meds today. Maybe this will help. Meghan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2002 Report Share Posted December 30, 2002 Hi Gee, I am glad your test results were good. I too have lived with chronic pain for a long time. I have a very bad back and colitis. I also lost my son 7 years ago. The headache pain is like the straw that broke the camel's back. I asked the doctor to change my meds today. Maybe this will help. Meghan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2002 Report Share Posted December 30, 2002 HI.Just like that.I did the Peg and after six months I had my PCR which was sustained reponse.Two more months and I hve my second one if that.s negative again I know I hve beaten the virus.The Peg has less side-effects then the combo,you.ll be helding the soap instead of a razor in the bathroom.My Doc would.nt give me any drugs for the side-effects.In a way I.am gratefull for that now because I learned to cope with my depressions,anxiety etc. in a natural way.He.s a wise old man,he also knew that I could cope.Became a friend almost who also helps people to get treatment , the uninsured,foreigners.A good connection.Willem. Re: post treatment blues In a message dated 12/29/02 12:19:58 AM !!!First Boot!!!, alleypat@... writes: > www.hepatitisneighborhood.com I searched for cryo and couldn't find anything. I guess you need the whole word to locate the meaning. Just tell me in your own words what it is. Thank you, Meghan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2002 Report Share Posted December 30, 2002 HI.Just like that.I did the Peg and after six months I had my PCR which was sustained reponse.Two more months and I hve my second one if that.s negative again I know I hve beaten the virus.The Peg has less side-effects then the combo,you.ll be helding the soap instead of a razor in the bathroom.My Doc would.nt give me any drugs for the side-effects.In a way I.am gratefull for that now because I learned to cope with my depressions,anxiety etc. in a natural way.He.s a wise old man,he also knew that I could cope.Became a friend almost who also helps people to get treatment , the uninsured,foreigners.A good connection.Willem. Re: post treatment blues In a message dated 12/29/02 12:19:58 AM !!!First Boot!!!, alleypat@... writes: > www.hepatitisneighborhood.com I searched for cryo and couldn't find anything. I guess you need the whole word to locate the meaning. Just tell me in your own words what it is. Thank you, Meghan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2002 Report Share Posted December 30, 2002 HI.Just like that.I did the Peg and after six months I had my PCR which was sustained reponse.Two more months and I hve my second one if that.s negative again I know I hve beaten the virus.The Peg has less side-effects then the combo,you.ll be helding the soap instead of a razor in the bathroom.My Doc would.nt give me any drugs for the side-effects.In a way I.am gratefull for that now because I learned to cope with my depressions,anxiety etc. in a natural way.He.s a wise old man,he also knew that I could cope.Became a friend almost who also helps people to get treatment , the uninsured,foreigners.A good connection.Willem. Re: post treatment blues In a message dated 12/29/02 12:19:58 AM !!!First Boot!!!, alleypat@... writes: > www.hepatitisneighborhood.com I searched for cryo and couldn't find anything. I guess you need the whole word to locate the meaning. Just tell me in your own words what it is. Thank you, Meghan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2002 Report Share Posted December 30, 2002 HI.Just like that.I did the Peg and after six months I had my PCR which was sustained reponse.Two more months and I hve my second one if that.s negative again I know I hve beaten the virus.The Peg has less side-effects then the combo,you.ll be helding the soap instead of a razor in the bathroom.My Doc would.nt give me any drugs for the side-effects.In a way I.am gratefull for that now because I learned to cope with my depressions,anxiety etc. in a natural way.He.s a wise old man,he also knew that I could cope.Became a friend almost who also helps people to get treatment , the uninsured,foreigners.A good connection.Willem. Re: post treatment blues In a message dated 12/29/02 12:19:58 AM !!!First Boot!!!, alleypat@... writes: > www.hepatitisneighborhood.com I searched for cryo and couldn't find anything. I guess you need the whole word to locate the meaning. Just tell me in your own words what it is. Thank you, Meghan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2003 Report Share Posted January 1, 2003 Gail, What side effects did you have from neurontin? I took the first one last night and slept like I was unconsious. When I woke up I was really foggy, a drugged feeling I don't like. It is getting a little better but still far from normal, and I only took 300 mg. My vision is a little blurry at times. I am supposed to take twice that much each day. My doctor doesn't know much about the different meds. I have a friend who takes neurontin, and I asked the druggest about it. Then I asked the doctor. I believe he would give me anything. I have had headaches so long. The cryo info is very interesting. Even if you are undetectable, it is not much of a trade-off, one disease for another. All we can do is keep putting one foot in front of the other and keep going. Hope the New Year is filled with good things, peace and good health. Meghan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2003 Report Share Posted January 1, 2003 Gail, What side effects did you have from neurontin? I took the first one last night and slept like I was unconsious. When I woke up I was really foggy, a drugged feeling I don't like. It is getting a little better but still far from normal, and I only took 300 mg. My vision is a little blurry at times. I am supposed to take twice that much each day. My doctor doesn't know much about the different meds. I have a friend who takes neurontin, and I asked the druggest about it. Then I asked the doctor. I believe he would give me anything. I have had headaches so long. The cryo info is very interesting. Even if you are undetectable, it is not much of a trade-off, one disease for another. All we can do is keep putting one foot in front of the other and keep going. Hope the New Year is filled with good things, peace and good health. Meghan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2003 Report Share Posted January 1, 2003 Gail, What side effects did you have from neurontin? I took the first one last night and slept like I was unconsious. When I woke up I was really foggy, a drugged feeling I don't like. It is getting a little better but still far from normal, and I only took 300 mg. My vision is a little blurry at times. I am supposed to take twice that much each day. My doctor doesn't know much about the different meds. I have a friend who takes neurontin, and I asked the druggest about it. Then I asked the doctor. I believe he would give me anything. I have had headaches so long. The cryo info is very interesting. Even if you are undetectable, it is not much of a trade-off, one disease for another. All we can do is keep putting one foot in front of the other and keep going. Hope the New Year is filled with good things, peace and good health. Meghan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2003 Report Share Posted January 1, 2003 Gail, What side effects did you have from neurontin? I took the first one last night and slept like I was unconsious. When I woke up I was really foggy, a drugged feeling I don't like. It is getting a little better but still far from normal, and I only took 300 mg. My vision is a little blurry at times. I am supposed to take twice that much each day. My doctor doesn't know much about the different meds. I have a friend who takes neurontin, and I asked the druggest about it. Then I asked the doctor. I believe he would give me anything. I have had headaches so long. The cryo info is very interesting. Even if you are undetectable, it is not much of a trade-off, one disease for another. All we can do is keep putting one foot in front of the other and keep going. Hope the New Year is filled with good things, peace and good health. Meghan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2003 Report Share Posted January 1, 2003 Yeah I ried Neurontin several times too. The sides were not good...sigh. It is funny-some people strive to be debt free, others look for the perfect mate-we strive to be pain-free. The last round of Neurontin, I joined a Neurontin group. Sheesh, those people were taking up to 6 grams a day of the stuff-plus other meds-opoids, Klonopin, etc. I am trying to update my paper on understanding cryo-what actually happens in the body, why I take the supplements that I do, etc. Hopefully, soon I will get it out to you guys. I believe that to understand the enemy is to be able to defeat the enemy. I never could take Ibu-I stopped peeing right away! I think I remember you from Hepatitis Central when I used to go there regularly whilst on treatment. Good luck getting the patch-it sounds like your doc is decent about pain relief-in my area they don't like to prescribe anything stronger than Darvocet, Tyl-3 (which you can buy over the counter in the Bahamas as 2-2-2s), Percocet, etc. There have been several deaths due to dummies ODing on Oxycontin, lots of break-ins, etc. gail From: Mzgee1@... Reply-Hepatitis C Date: Sun, 29 Dec 2002 19:24:46 EST Hepatitis C Subject: Re: post treatment blues Dear Gail, thanks! Appreciate the info. Bextra is an NSAID. I used to take up to 3000mgs of Ibuprofen daily and my doc would cringe, crossing his fingers that my kidneys wouldn't blow or my stomach. They didn't...but when I started to see the Rheumatologist, she first tried me on Plaquenil, but I got a body rash from it so I had to stop. We moved on to Bextra ( a new med). It doesn't take the pain away, but gives me as much relief as all the Ibuprofen did (which is miraculous!) Instead of taking 10 Ibus a day, I take 1 Bextra in the a.m and it lasts all day. Unfortunately, she will not let me increase it. So I can only take 20 mgs a day. But like I said, I still take Demerol during the day (usually in the a.m.) and Oxycontin before bed. I can pretty much deal with the residual pain. I had taken Neurontin for quite a while before treatment for the nerve pain, but I never did get over the sides (nausea & dizziness). I really would like to switch to one of the new patches that are out. I read about one recently that is being touted as a better way to deal with pain than using opoids. It (if I remember right..)is like oxycontin..but works better(no breakthru pain) and has been found not to be addicting. At this point I NEVER worry about that....but the docs do. Phyisical dependence is one thing and ADDICTION is a whole nother story! But that's just my opinion! Anyway, I don't know HOW I got into all of this...sheesh! Sorry..love, gee (P.S. I'm a Gail too!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2003 Report Share Posted January 1, 2003 Yeah I ried Neurontin several times too. The sides were not good...sigh. It is funny-some people strive to be debt free, others look for the perfect mate-we strive to be pain-free. The last round of Neurontin, I joined a Neurontin group. Sheesh, those people were taking up to 6 grams a day of the stuff-plus other meds-opoids, Klonopin, etc. I am trying to update my paper on understanding cryo-what actually happens in the body, why I take the supplements that I do, etc. Hopefully, soon I will get it out to you guys. I believe that to understand the enemy is to be able to defeat the enemy. I never could take Ibu-I stopped peeing right away! I think I remember you from Hepatitis Central when I used to go there regularly whilst on treatment. Good luck getting the patch-it sounds like your doc is decent about pain relief-in my area they don't like to prescribe anything stronger than Darvocet, Tyl-3 (which you can buy over the counter in the Bahamas as 2-2-2s), Percocet, etc. There have been several deaths due to dummies ODing on Oxycontin, lots of break-ins, etc. gail From: Mzgee1@... Reply-Hepatitis C Date: Sun, 29 Dec 2002 19:24:46 EST Hepatitis C Subject: Re: post treatment blues Dear Gail, thanks! Appreciate the info. Bextra is an NSAID. I used to take up to 3000mgs of Ibuprofen daily and my doc would cringe, crossing his fingers that my kidneys wouldn't blow or my stomach. They didn't...but when I started to see the Rheumatologist, she first tried me on Plaquenil, but I got a body rash from it so I had to stop. We moved on to Bextra ( a new med). It doesn't take the pain away, but gives me as much relief as all the Ibuprofen did (which is miraculous!) Instead of taking 10 Ibus a day, I take 1 Bextra in the a.m and it lasts all day. Unfortunately, she will not let me increase it. So I can only take 20 mgs a day. But like I said, I still take Demerol during the day (usually in the a.m.) and Oxycontin before bed. I can pretty much deal with the residual pain. I had taken Neurontin for quite a while before treatment for the nerve pain, but I never did get over the sides (nausea & dizziness). I really would like to switch to one of the new patches that are out. I read about one recently that is being touted as a better way to deal with pain than using opoids. It (if I remember right..)is like oxycontin..but works better(no breakthru pain) and has been found not to be addicting. At this point I NEVER worry about that....but the docs do. Phyisical dependence is one thing and ADDICTION is a whole nother story! But that's just my opinion! Anyway, I don't know HOW I got into all of this...sheesh! Sorry..love, gee (P.S. I'm a Gail too!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2003 Report Share Posted January 1, 2003 Yeah I ried Neurontin several times too. The sides were not good...sigh. It is funny-some people strive to be debt free, others look for the perfect mate-we strive to be pain-free. The last round of Neurontin, I joined a Neurontin group. Sheesh, those people were taking up to 6 grams a day of the stuff-plus other meds-opoids, Klonopin, etc. I am trying to update my paper on understanding cryo-what actually happens in the body, why I take the supplements that I do, etc. Hopefully, soon I will get it out to you guys. I believe that to understand the enemy is to be able to defeat the enemy. I never could take Ibu-I stopped peeing right away! I think I remember you from Hepatitis Central when I used to go there regularly whilst on treatment. Good luck getting the patch-it sounds like your doc is decent about pain relief-in my area they don't like to prescribe anything stronger than Darvocet, Tyl-3 (which you can buy over the counter in the Bahamas as 2-2-2s), Percocet, etc. There have been several deaths due to dummies ODing on Oxycontin, lots of break-ins, etc. gail From: Mzgee1@... Reply-Hepatitis C Date: Sun, 29 Dec 2002 19:24:46 EST Hepatitis C Subject: Re: post treatment blues Dear Gail, thanks! Appreciate the info. Bextra is an NSAID. I used to take up to 3000mgs of Ibuprofen daily and my doc would cringe, crossing his fingers that my kidneys wouldn't blow or my stomach. They didn't...but when I started to see the Rheumatologist, she first tried me on Plaquenil, but I got a body rash from it so I had to stop. We moved on to Bextra ( a new med). It doesn't take the pain away, but gives me as much relief as all the Ibuprofen did (which is miraculous!) Instead of taking 10 Ibus a day, I take 1 Bextra in the a.m and it lasts all day. Unfortunately, she will not let me increase it. So I can only take 20 mgs a day. But like I said, I still take Demerol during the day (usually in the a.m.) and Oxycontin before bed. I can pretty much deal with the residual pain. I had taken Neurontin for quite a while before treatment for the nerve pain, but I never did get over the sides (nausea & dizziness). I really would like to switch to one of the new patches that are out. I read about one recently that is being touted as a better way to deal with pain than using opoids. It (if I remember right..)is like oxycontin..but works better(no breakthru pain) and has been found not to be addicting. At this point I NEVER worry about that....but the docs do. Phyisical dependence is one thing and ADDICTION is a whole nother story! But that's just my opinion! Anyway, I don't know HOW I got into all of this...sheesh! Sorry..love, gee (P.S. I'm a Gail too!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2003 Report Share Posted January 1, 2003 Yeah I ried Neurontin several times too. The sides were not good...sigh. It is funny-some people strive to be debt free, others look for the perfect mate-we strive to be pain-free. The last round of Neurontin, I joined a Neurontin group. Sheesh, those people were taking up to 6 grams a day of the stuff-plus other meds-opoids, Klonopin, etc. I am trying to update my paper on understanding cryo-what actually happens in the body, why I take the supplements that I do, etc. Hopefully, soon I will get it out to you guys. I believe that to understand the enemy is to be able to defeat the enemy. I never could take Ibu-I stopped peeing right away! I think I remember you from Hepatitis Central when I used to go there regularly whilst on treatment. Good luck getting the patch-it sounds like your doc is decent about pain relief-in my area they don't like to prescribe anything stronger than Darvocet, Tyl-3 (which you can buy over the counter in the Bahamas as 2-2-2s), Percocet, etc. There have been several deaths due to dummies ODing on Oxycontin, lots of break-ins, etc. gail From: Mzgee1@... Reply-Hepatitis C Date: Sun, 29 Dec 2002 19:24:46 EST Hepatitis C Subject: Re: post treatment blues Dear Gail, thanks! Appreciate the info. Bextra is an NSAID. I used to take up to 3000mgs of Ibuprofen daily and my doc would cringe, crossing his fingers that my kidneys wouldn't blow or my stomach. They didn't...but when I started to see the Rheumatologist, she first tried me on Plaquenil, but I got a body rash from it so I had to stop. We moved on to Bextra ( a new med). It doesn't take the pain away, but gives me as much relief as all the Ibuprofen did (which is miraculous!) Instead of taking 10 Ibus a day, I take 1 Bextra in the a.m and it lasts all day. Unfortunately, she will not let me increase it. So I can only take 20 mgs a day. But like I said, I still take Demerol during the day (usually in the a.m.) and Oxycontin before bed. I can pretty much deal with the residual pain. I had taken Neurontin for quite a while before treatment for the nerve pain, but I never did get over the sides (nausea & dizziness). I really would like to switch to one of the new patches that are out. I read about one recently that is being touted as a better way to deal with pain than using opoids. It (if I remember right..)is like oxycontin..but works better(no breakthru pain) and has been found not to be addicting. At this point I NEVER worry about that....but the docs do. Phyisical dependence is one thing and ADDICTION is a whole nother story! But that's just my opinion! Anyway, I don't know HOW I got into all of this...sheesh! Sorry..love, gee (P.S. I'm a Gail too!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2003 Report Share Posted January 20, 2003 Tat said <<Alley had a terrible time with migraines during treatment too. >> I sure did! And when I was on the high dose interferon for the melanoma, my migraines were even worse. My oncologist gave me Maxalt, Zomig & Imitrex. These meds help relieve the constricted blood vessels that can cause or happen during a migraine (I think that's how they work) (they are not pain pills). Most people don't need all of them, but I liked switching them each time so I wouldn't get used to them and not work. My favorite one is the Maxalt that melts under my tongue. Works very fast. http://www.maxalt.com/ The Maxalt site says it works by... Treatment with MAXALT: 1.. Reduces swelling of blood vessels surrounding the brain. This swelling results in the headache pain of a migraine attack. 2.. Blocks the release of substances from nerve endings that cause more pain and other symptoms of migraine. 3.. Interrupts the sending of specific pain signals to your brain. Then for pain he gave me Fioricet & Oxycodone. If 2 Fioricet didn't help, I did the oxy, but I didn't use or need the oxy very often. No reason to suffer needlessly. Alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2003 Report Share Posted January 20, 2003 Tat said <<Alley had a terrible time with migraines during treatment too. >> I sure did! And when I was on the high dose interferon for the melanoma, my migraines were even worse. My oncologist gave me Maxalt, Zomig & Imitrex. These meds help relieve the constricted blood vessels that can cause or happen during a migraine (I think that's how they work) (they are not pain pills). Most people don't need all of them, but I liked switching them each time so I wouldn't get used to them and not work. My favorite one is the Maxalt that melts under my tongue. Works very fast. http://www.maxalt.com/ The Maxalt site says it works by... Treatment with MAXALT: 1.. Reduces swelling of blood vessels surrounding the brain. This swelling results in the headache pain of a migraine attack. 2.. Blocks the release of substances from nerve endings that cause more pain and other symptoms of migraine. 3.. Interrupts the sending of specific pain signals to your brain. Then for pain he gave me Fioricet & Oxycodone. If 2 Fioricet didn't help, I did the oxy, but I didn't use or need the oxy very often. No reason to suffer needlessly. Alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2003 Report Share Posted January 20, 2003 Tat said <<Alley had a terrible time with migraines during treatment too. >> I sure did! And when I was on the high dose interferon for the melanoma, my migraines were even worse. My oncologist gave me Maxalt, Zomig & Imitrex. These meds help relieve the constricted blood vessels that can cause or happen during a migraine (I think that's how they work) (they are not pain pills). Most people don't need all of them, but I liked switching them each time so I wouldn't get used to them and not work. My favorite one is the Maxalt that melts under my tongue. Works very fast. http://www.maxalt.com/ The Maxalt site says it works by... Treatment with MAXALT: 1.. Reduces swelling of blood vessels surrounding the brain. This swelling results in the headache pain of a migraine attack. 2.. Blocks the release of substances from nerve endings that cause more pain and other symptoms of migraine. 3.. Interrupts the sending of specific pain signals to your brain. Then for pain he gave me Fioricet & Oxycodone. If 2 Fioricet didn't help, I did the oxy, but I didn't use or need the oxy very often. No reason to suffer needlessly. Alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2003 Report Share Posted January 20, 2003 Tat said <<Alley had a terrible time with migraines during treatment too. >> I sure did! And when I was on the high dose interferon for the melanoma, my migraines were even worse. My oncologist gave me Maxalt, Zomig & Imitrex. These meds help relieve the constricted blood vessels that can cause or happen during a migraine (I think that's how they work) (they are not pain pills). Most people don't need all of them, but I liked switching them each time so I wouldn't get used to them and not work. My favorite one is the Maxalt that melts under my tongue. Works very fast. http://www.maxalt.com/ The Maxalt site says it works by... Treatment with MAXALT: 1.. Reduces swelling of blood vessels surrounding the brain. This swelling results in the headache pain of a migraine attack. 2.. Blocks the release of substances from nerve endings that cause more pain and other symptoms of migraine. 3.. Interrupts the sending of specific pain signals to your brain. Then for pain he gave me Fioricet & Oxycodone. If 2 Fioricet didn't help, I did the oxy, but I didn't use or need the oxy very often. No reason to suffer needlessly. Alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2003 Report Share Posted February 15, 2003 Hi all, I posted a message a few days ago, but I don't think it got to the list. I had an MRI last week, because of the constant headaches. Everything was fine. I went to the neurologist yesterday and he said he thinks the headaches are as a result of the treatment, but doesn't know why they haven't stopped after 6 1/2 months off treatment. He thinks he can help me with medication to prevent rather than treat the headaches with painkillers. He thinks an antipressant, an antiseizure, or blood pressure medication, even though I don't have high blood pressure, will work. I am hopeful. In a post, DB wrote about ACV and honey. What is ACV? What is TMTD? I also have back pain and sinus problems, and would like to find your solution. Thanks, Meghan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2003 Report Share Posted February 15, 2003 Hi all, I posted a message a few days ago, but I don't think it got to the list. I had an MRI last week, because of the constant headaches. Everything was fine. I went to the neurologist yesterday and he said he thinks the headaches are as a result of the treatment, but doesn't know why they haven't stopped after 6 1/2 months off treatment. He thinks he can help me with medication to prevent rather than treat the headaches with painkillers. He thinks an antipressant, an antiseizure, or blood pressure medication, even though I don't have high blood pressure, will work. I am hopeful. In a post, DB wrote about ACV and honey. What is ACV? What is TMTD? I also have back pain and sinus problems, and would like to find your solution. Thanks, Meghan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2003 Report Share Posted February 15, 2003 Hi all, I posted a message a few days ago, but I don't think it got to the list. I had an MRI last week, because of the constant headaches. Everything was fine. I went to the neurologist yesterday and he said he thinks the headaches are as a result of the treatment, but doesn't know why they haven't stopped after 6 1/2 months off treatment. He thinks he can help me with medication to prevent rather than treat the headaches with painkillers. He thinks an antipressant, an antiseizure, or blood pressure medication, even though I don't have high blood pressure, will work. I am hopeful. In a post, DB wrote about ACV and honey. What is ACV? What is TMTD? I also have back pain and sinus problems, and would like to find your solution. Thanks, Meghan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2003 Report Share Posted February 15, 2003 Hi all, I posted a message a few days ago, but I don't think it got to the list. I had an MRI last week, because of the constant headaches. Everything was fine. I went to the neurologist yesterday and he said he thinks the headaches are as a result of the treatment, but doesn't know why they haven't stopped after 6 1/2 months off treatment. He thinks he can help me with medication to prevent rather than treat the headaches with painkillers. He thinks an antipressant, an antiseizure, or blood pressure medication, even though I don't have high blood pressure, will work. I am hopeful. In a post, DB wrote about ACV and honey. What is ACV? What is TMTD? I also have back pain and sinus problems, and would like to find your solution. Thanks, Meghan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2003 Report Share Posted February 16, 2003 Hi Meghan... I'm not sure I have any answers for you but wanted to acknowledge your post. I fought cluster headaches and migraines for 30+ years and interestingly enough, when I was in treatment my headaches went away and haven't returned 1-1/2 years after finishing treatment...I am a 1b non-responder. However I made some lifestyle changes after being diagnosed that may contribute to my not having headaches any more. I changed my diet to a liver healthy diet, learned to relax and breathe properly to control my stress level and started accupuncture (I'm fortunate to be a big city with two oriental schools of medicine with free clinics). I think (these are only my thoughts and not fact to my knowledge) that tx changes something in our physiological structure and ofcourse the virus itself affects who knows what besides our livers. It is after all a systemic virus and not a liver disease. In chinese medicine the liver holds our anger and controls the sinews...muscles, tendons, ligaments, etc...so that we become inflexible. People with dis-eased livers often deal with muscoskelatal (sp?) issues. Maybe your headaches are a result of a neck problem...have you thought about seeing a chiropractor? If you go to a chiro and they don't want xrays done before working on you, find another chiro. A lot of people swear by their chiros and most insurance plans cover chiros. Personally I would take a shot with a chiro before I started pumping more drugs into my body. If you can afford accupuncture or have access to an oriental school of medicine where they have a free clinic, accupuncture is very successful with a multitude of ailments. For years I have been controlling my lower back and hip pain with accupuncture along with any other ailments that pop up including liver tonifying treatments. If you want to read about the theories behind chinese medicine and accupuncture in layman's terms, the best book I've found is " Between Heaven and Earth, A Guide to Chinese Medicine. " If you are interesting I can post the author's names. Good luck Meghan. It's always a challenge to find the causes of our discomfort. I once read a book, " Feelings Buried Never Die " that concludes all dis-eases are caused by unresolved emotional issues. I found that it ran pretty parallel to the theories of chinese medicine. Tatezi post treatment blues Hi all, I posted a message a few days ago, but I don't think it got to the list. I had an MRI last week, because of the constant headaches. Everything was fine. I went to the neurologist yesterday and he said he thinks the headaches are as a result of the treatment, but doesn't know why they haven't stopped after 6 1/2 months off treatment. He thinks he can help me with medication to prevent rather than treat the headaches with painkillers. He thinks an antipressant, an antiseizure, or blood pressure medication, even though I don't have high blood pressure, will work. I am hopeful. In a post, DB wrote about ACV and honey. What is ACV? What is TMTD? I also have back pain and sinus problems, and would like to find your solution. Thanks, Meghan Quote Link to comment Share on other sites More sharing options...
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