Guest guest Posted July 30, 2003 Report Share Posted July 30, 2003 I was wrong...they are 200mg. But I did start my folic acid when I went back on treatment. > > Tat- > > > > Glad the first shot went well, hopefully it will stay that way. > How much > > Ribavirin are you taking? > > > > gail > > > > My first Pegasys shot > > > > > > Did my first Pegasys shot last night at 10 along with my first > ribavarinn > > dose and have taken this morning's ribavarinn. > > > > Was all prepared for any potential side effects. Took my > amitriptyline and > > ribavarinn, did my shot, drank a couple cups of chamomile tea, gave > my cat > > her insulin and crawled into my nice clean sheets. > > > > LOL, same as when I did rebetron...I woke up almost to the minute 3 > hours > > after my shot and did a body inventory...nothing different, woke up > every > > hour for a couple more hours and did the body inventory and no > sides. Went > > to breakfast this morning and started cleaning house and setting up > an area > > to take my computer apart in. > > > > I've isolated my computer problem to the motherboard. Since I don't > have the > > $$ for a new one, a friend is bring in his " spare " computer and > we'll move > > my drives etc. over to that computer until I can afford a new > motherboard. > > > > But the best news of all is that I don't feel any different today > than I did > > yesterday. Now I know as times goes on, I'll get the crankiness, > etc. but at > > least I'm not going to have to deal with some of the sides that so > many > > people experience with treatment. > > > > Alley, I read your note about waiting a year but with Pegasys being > offered > > to me at no charge, I am not going to turn it down. In the last 4 > months, > > all the pieces of my life have been falling into place. Who am I to > question > > how the universe works. > > > > Yes, my lab was 44,606,000 international units. If that translates > into > > copies than that is what it is because he emphasized that this was > the > > internation unit determination. > > > > Work...well, as long as I handle this treatment as well as I handled > > rebetron, I'm not concerned. The only lasting sides I've had from > rebetron > > are the lack of a functioning thyroid and dry eyes. Four years > again my > > liver was stage two for both fibrosis and disease (is that > right...both > > rates were a stage 2). By the time I reach the cranky stage, I will > have > > worked through my probabtion period and it won't be so easy to fire > me > > because of health issues. And even though I love the people on this > job, I > > don't like the job. PR work is extremely fast paced and I've not > had a lunch > > or gotten out of the office before 5:30 since I started the job. > This is not > > the way I want to spend the rest of my life. > > > > And remember, I have another job waiting on the sidelines. The > grassroots > > organization that I was temping with gave me a counter offer and > each week > > they call and ask me if I'm ready to come back yet. I was a perfect > fit at > > that job and only insurance and treatment convinced me to take this > job. But > > since I'm being treated by county and the the grassroots exective > directory > > made a deal that they would not dock me for any time I had to be > out of the > > office and at county that is better than this job that docks me for > time out > > of the office. Their insurance is marginal because they are a not > for profit > > organization but that is the only thing that kept me from taking > their > > counter offer. I'm still doing work for them on the side. I am a > much better > > fit in a lower paying grassroots organization that fights for > fairness to > > all in all aspects of life than I am in a high profile PR firm. > > > > So I have no doubt that I made the right decision in going on > Pegasys now. > > And with the virus being systemic and not just a liver disease, I'm > not > > considering my liver's condition as the most important > consideration. > > > > Life deals it's cards and we have the choice to go with them or > not. My > > choice is to go for it. There is some reason why after all this > time my life > > has fallen into place again...and to be handed Pegasys which was the > > treatment of choice if I were to do treatment again shouldn't be > passed by. > > > > One thing I've learned about life is that it can knock me down > sometimes, > > but never in my 53 years has it been able to keep me down! > > > > Blessings > > Tatezi > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2003 Report Share Posted July 30, 2003 I was wrong...they are 200mg. But I did start my folic acid when I went back on treatment. > > Tat- > > > > Glad the first shot went well, hopefully it will stay that way. > How much > > Ribavirin are you taking? > > > > gail > > > > My first Pegasys shot > > > > > > Did my first Pegasys shot last night at 10 along with my first > ribavarinn > > dose and have taken this morning's ribavarinn. > > > > Was all prepared for any potential side effects. Took my > amitriptyline and > > ribavarinn, did my shot, drank a couple cups of chamomile tea, gave > my cat > > her insulin and crawled into my nice clean sheets. > > > > LOL, same as when I did rebetron...I woke up almost to the minute 3 > hours > > after my shot and did a body inventory...nothing different, woke up > every > > hour for a couple more hours and did the body inventory and no > sides. Went > > to breakfast this morning and started cleaning house and setting up > an area > > to take my computer apart in. > > > > I've isolated my computer problem to the motherboard. Since I don't > have the > > $$ for a new one, a friend is bring in his " spare " computer and > we'll move > > my drives etc. over to that computer until I can afford a new > motherboard. > > > > But the best news of all is that I don't feel any different today > than I did > > yesterday. Now I know as times goes on, I'll get the crankiness, > etc. but at > > least I'm not going to have to deal with some of the sides that so > many > > people experience with treatment. > > > > Alley, I read your note about waiting a year but with Pegasys being > offered > > to me at no charge, I am not going to turn it down. In the last 4 > months, > > all the pieces of my life have been falling into place. Who am I to > question > > how the universe works. > > > > Yes, my lab was 44,606,000 international units. If that translates > into > > copies than that is what it is because he emphasized that this was > the > > internation unit determination. > > > > Work...well, as long as I handle this treatment as well as I handled > > rebetron, I'm not concerned. The only lasting sides I've had from > rebetron > > are the lack of a functioning thyroid and dry eyes. Four years > again my > > liver was stage two for both fibrosis and disease (is that > right...both > > rates were a stage 2). By the time I reach the cranky stage, I will > have > > worked through my probabtion period and it won't be so easy to fire > me > > because of health issues. And even though I love the people on this > job, I > > don't like the job. PR work is extremely fast paced and I've not > had a lunch > > or gotten out of the office before 5:30 since I started the job. > This is not > > the way I want to spend the rest of my life. > > > > And remember, I have another job waiting on the sidelines. The > grassroots > > organization that I was temping with gave me a counter offer and > each week > > they call and ask me if I'm ready to come back yet. I was a perfect > fit at > > that job and only insurance and treatment convinced me to take this > job. But > > since I'm being treated by county and the the grassroots exective > directory > > made a deal that they would not dock me for any time I had to be > out of the > > office and at county that is better than this job that docks me for > time out > > of the office. Their insurance is marginal because they are a not > for profit > > organization but that is the only thing that kept me from taking > their > > counter offer. I'm still doing work for them on the side. I am a > much better > > fit in a lower paying grassroots organization that fights for > fairness to > > all in all aspects of life than I am in a high profile PR firm. > > > > So I have no doubt that I made the right decision in going on > Pegasys now. > > And with the virus being systemic and not just a liver disease, I'm > not > > considering my liver's condition as the most important > consideration. > > > > Life deals it's cards and we have the choice to go with them or > not. My > > choice is to go for it. There is some reason why after all this > time my life > > has fallen into place again...and to be handed Pegasys which was the > > treatment of choice if I were to do treatment again shouldn't be > passed by. > > > > One thing I've learned about life is that it can knock me down > sometimes, > > but never in my 53 years has it been able to keep me down! > > > > Blessings > > Tatezi > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2003 Report Share Posted July 30, 2003 I was wrong...they are 200mg. But I did start my folic acid when I went back on treatment. > > Tat- > > > > Glad the first shot went well, hopefully it will stay that way. > How much > > Ribavirin are you taking? > > > > gail > > > > My first Pegasys shot > > > > > > Did my first Pegasys shot last night at 10 along with my first > ribavarinn > > dose and have taken this morning's ribavarinn. > > > > Was all prepared for any potential side effects. Took my > amitriptyline and > > ribavarinn, did my shot, drank a couple cups of chamomile tea, gave > my cat > > her insulin and crawled into my nice clean sheets. > > > > LOL, same as when I did rebetron...I woke up almost to the minute 3 > hours > > after my shot and did a body inventory...nothing different, woke up > every > > hour for a couple more hours and did the body inventory and no > sides. Went > > to breakfast this morning and started cleaning house and setting up > an area > > to take my computer apart in. > > > > I've isolated my computer problem to the motherboard. Since I don't > have the > > $$ for a new one, a friend is bring in his " spare " computer and > we'll move > > my drives etc. over to that computer until I can afford a new > motherboard. > > > > But the best news of all is that I don't feel any different today > than I did > > yesterday. Now I know as times goes on, I'll get the crankiness, > etc. but at > > least I'm not going to have to deal with some of the sides that so > many > > people experience with treatment. > > > > Alley, I read your note about waiting a year but with Pegasys being > offered > > to me at no charge, I am not going to turn it down. In the last 4 > months, > > all the pieces of my life have been falling into place. Who am I to > question > > how the universe works. > > > > Yes, my lab was 44,606,000 international units. If that translates > into > > copies than that is what it is because he emphasized that this was > the > > internation unit determination. > > > > Work...well, as long as I handle this treatment as well as I handled > > rebetron, I'm not concerned. The only lasting sides I've had from > rebetron > > are the lack of a functioning thyroid and dry eyes. Four years > again my > > liver was stage two for both fibrosis and disease (is that > right...both > > rates were a stage 2). By the time I reach the cranky stage, I will > have > > worked through my probabtion period and it won't be so easy to fire > me > > because of health issues. And even though I love the people on this > job, I > > don't like the job. PR work is extremely fast paced and I've not > had a lunch > > or gotten out of the office before 5:30 since I started the job. > This is not > > the way I want to spend the rest of my life. > > > > And remember, I have another job waiting on the sidelines. The > grassroots > > organization that I was temping with gave me a counter offer and > each week > > they call and ask me if I'm ready to come back yet. I was a perfect > fit at > > that job and only insurance and treatment convinced me to take this > job. But > > since I'm being treated by county and the the grassroots exective > directory > > made a deal that they would not dock me for any time I had to be > out of the > > office and at county that is better than this job that docks me for > time out > > of the office. Their insurance is marginal because they are a not > for profit > > organization but that is the only thing that kept me from taking > their > > counter offer. I'm still doing work for them on the side. I am a > much better > > fit in a lower paying grassroots organization that fights for > fairness to > > all in all aspects of life than I am in a high profile PR firm. > > > > So I have no doubt that I made the right decision in going on > Pegasys now. > > And with the virus being systemic and not just a liver disease, I'm > not > > considering my liver's condition as the most important > consideration. > > > > Life deals it's cards and we have the choice to go with them or > not. My > > choice is to go for it. There is some reason why after all this > time my life > > has fallen into place again...and to be handed Pegasys which was the > > treatment of choice if I were to do treatment again shouldn't be > passed by. > > > > One thing I've learned about life is that it can knock me down > sometimes, > > but never in my 53 years has it been able to keep me down! > > > > Blessings > > Tatezi > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2003 Report Share Posted July 30, 2003 This guy, errr doctor, told me that weight is not a consideration with Pegasys, that everyone gets the same dosage. I don't know is that is correct or not...he is a doctor at the county hospital so I don't know if that makes his credentials any less that anyone else who " practices " medicine. But I didn't have any problems with rebetron...and I kept taking folic acid all through treatment to keep my red blood cell count up. Tatezi > > Tat- > > > > Glad the first shot went well, hopefully it will stay that way. > How much > > Ribavirin are you taking? > > > > gail > > > > My first Pegasys shot > > > > > > Did my first Pegasys shot last night at 10 along with my first > ribavarinn > > dose and have taken this morning's ribavarinn. > > > > Was all prepared for any potential side effects. Took my > amitriptyline and > > ribavarinn, did my shot, drank a couple cups of chamomile tea, gave > my cat > > her insulin and crawled into my nice clean sheets. > > > > LOL, same as when I did rebetron...I woke up almost to the minute 3 > hours > > after my shot and did a body inventory...nothing different, woke up > every > > hour for a couple more hours and did the body inventory and no > sides. Went > > to breakfast this morning and started cleaning house and setting up > an area > > to take my computer apart in. > > > > I've isolated my computer problem to the motherboard. Since I don't > have the > > $$ for a new one, a friend is bring in his " spare " computer and > we'll move > > my drives etc. over to that computer until I can afford a new > motherboard. > > > > But the best news of all is that I don't feel any different today > than I did > > yesterday. Now I know as times goes on, I'll get the crankiness, > etc. but at > > least I'm not going to have to deal with some of the sides that so > many > > people experience with treatment. > > > > Alley, I read your note about waiting a year but with Pegasys being > offered > > to me at no charge, I am not going to turn it down. In the last 4 > months, > > all the pieces of my life have been falling into place. Who am I to > question > > how the universe works. > > > > Yes, my lab was 44,606,000 international units. If that translates > into > > copies than that is what it is because he emphasized that this was > the > > internation unit determination. > > > > Work...well, as long as I handle this treatment as well as I handled > > rebetron, I'm not concerned. The only lasting sides I've had from > rebetron > > are the lack of a functioning thyroid and dry eyes. Four years > again my > > liver was stage two for both fibrosis and disease (is that > right...both > > rates were a stage 2). By the time I reach the cranky stage, I will > have > > worked through my probabtion period and it won't be so easy to fire > me > > because of health issues. And even though I love the people on this > job, I > > don't like the job. PR work is extremely fast paced and I've not > had a lunch > > or gotten out of the office before 5:30 since I started the job. > This is not > > the way I want to spend the rest of my life. > > > > And remember, I have another job waiting on the sidelines. The > grassroots > > organization that I was temping with gave me a counter offer and > each week > > they call and ask me if I'm ready to come back yet. I was a perfect > fit at > > that job and only insurance and treatment convinced me to take this > job. But > > since I'm being treated by county and the the grassroots exective > directory > > made a deal that they would not dock me for any time I had to be > out of the > > office and at county that is better than this job that docks me for > time out > > of the office. Their insurance is marginal because they are a not > for profit > > organization but that is the only thing that kept me from taking > their > > counter offer. I'm still doing work for them on the side. I am a > much better > > fit in a lower paying grassroots organization that fights for > fairness to > > all in all aspects of life than I am in a high profile PR firm. > > > > So I have no doubt that I made the right decision in going on > Pegasys now. > > And with the virus being systemic and not just a liver disease, I'm > not > > considering my liver's condition as the most important > consideration. > > > > Life deals it's cards and we have the choice to go with them or > not. My > > choice is to go for it. There is some reason why after all this > time my life > > has fallen into place again...and to be handed Pegasys which was the > > treatment of choice if I were to do treatment again shouldn't be > passed by. > > > > One thing I've learned about life is that it can knock me down > sometimes, > > but never in my 53 years has it been able to keep me down! > > > > Blessings > > Tatezi > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2003 Report Share Posted July 30, 2003 See the Himalayas and then come back to us....pass on the dying part! > HI.Yes yre right but Tat wrote that she thought that a capsule is 600mg instead of 200mg.If the dose is based on bodyweight she has to take 12 a day.Oh boy I did it again.I finally starting to believe that I have a sustained response.(the PCR say so but my mind had it.s doubts).The faint feeling I always had around the liver area has gone.I think the liver has tremendous power of healing itself once the virus is gone.I think that even a failed treatment,relapse,has it.s benefits because during treatment the liver will heal to a certain extend-.I.am thinking of going on a holiday,the last one I took seven yrs ago.I met a nice Nepalese guy and he invited me to come to Nepal. He is a distant member of the royal family.See the Himalayas and then die.Willem.---- Original Message ----- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2003 Report Share Posted July 30, 2003 Helps create red blood cells. Normally I have too many red blood cells and there have been times when they have actually taken blood from me because my count was too high. But when I was in treatment I took folic acid to prevent any anemia. I'm not sure it's a good thing to take all the time with hep c because as I recall iron is contained in red blood cells. We need Claudine or Doc to confirm that. > What does folic acid help with Tat ? Quote Link to comment Share on other sites More sharing options...
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