Jump to content
RemedySpot.com
Sign in to follow this  
Guest guest

Remicade

Rate this topic

Recommended Posts

Guest guest

I don't know a, I feel like so much is wrong. School is going well. I am

having a hard time with the ceramics class but I am doing it. My friend and I

start

laughing and can't stop. I think the entire class is laughing at us, but we are

having fun. It is just everything else all I seem to do is worry. I will have

to

wait and see what the insurance company says. I ask the doctor because I read

that

remicade can cause cancer. He told me that is false it is just a report the

news

put out. The problem is people with ra are more prone to lynphoma spelling,

and

the fda wanted that on remicade. Sometimes you just have to do what you have to

do,

to be able to function. I'll let you know what happens. I have decided if it

is

approved God wanted me to have it. If not it wasn't in his will and I will go

from

there.

I hope you are okay. At least you won't have to deal with the snow this year.

Enjoy Halloween

Lynn

a54 wrote:

> Lynn,

> I¹m sorry you¹re still flaring. You¹ve been flaring way to long, so I hope

> your insurance will approve the Remicade without and problems. I hope it is

> as helpful as it was before and you have no side effects. Do you think

> stress is causing the flare?

> a

>

> > I have been in such a terrible flare that yesterday the Rheumy decided

> > maybe it is time for remicade. I have held off doing this for a long

> > time. But the last couple of month have been terrible. I think it

> > started when I went back to school. I have to wait and see if my

> > insurance will pay for it. When I called they told me no. However, the

> > Rheumy says they will pay for it. I tried remicade four years ago and

> > it was great. I had to stop because of stomach problems. Right now the

> > worse is I wake up in pain. So I will have to wait and see.

> > Hope everyone is doing okay and will be able to enjoy Halloween.

> > Lynn (MeMom)

> >

> >

> >

> >

Share this post


Link to post
Share on other sites
Guest guest

Lynn, have you considered Enbrel or Humira instead of Remicade? Your

going back on Remicade worries me a little because (1) it was never

determined exactly why you had the troubles with your pancreas and liver

in the first place and (2) should you have a problem when you go back on

Remicade, you have to wait for the last infusion to wear off - which

could be a period of weeks rather than days.

I know a lot of this depends on what your insurance will cover, but you

might ask your rheumatologist if Enbrel or Humira would possibly be

better options.

So sorry about your flare!

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] REMICADE

>

> I have been in such a terrible flare that yesterday the Rheumy decided

> maybe it is time for remicade. I have held off doing this for a long

> time. But the last couple of month have been terrible. I think it

> started when I went back to school. I have to wait and see if my

> insurance will pay for it. When I called they told me no. However,

the

> Rheumy says they will pay for it. I tried remicade four years ago and

> it was great. I had to stop because of stomach problems. Right now

the

> worse is I wake up in pain. So I will have to wait and see.

> Hope everyone is doing okay and will be able to enjoy Halloween.

> Lynn (MeMom)

Share this post


Link to post
Share on other sites
Guest guest

Polly, I was on remicade, max. dose every 4 weeks. In my

insurance EOB it showed that the remicade cost $7000+. It's not

cheap by any means!! And this was having it done at my rheumy's

office!! Marina in Ohio

Share this post


Link to post
Share on other sites
Guest guest

My insurance pays for most of my Remicade bill, but I understand that there are

patient assistance programs for those who don't get help from an insurance

company. I have been on Methotrexate for a while now, it really isn't doing

much, but I understand it helps the remicade, so I stay on it. I take Bextra.

I was taking 20 mg twice a day and it was helping out quite a bit, but my

insurance will only pay for 10 mg one time a day, and my rheumy supplements my

supply with samples. The only thing that has seemed to make a difference so far

is the Remicade. I have been on Vioxx, Naproxen, and Ibuprophen also. Hope

that helps. You can go to http://www.remicade.com and get some more info.

Semalee

[ ] Remicade

In a message dated 11/5/04 9:20:38 AM, Semalee@... writes:

>

>

I noticed your reference toi Remicade, Semalee. I have heard that it is as

expensive as $1,500 a month. There is no way I could afford that and not

loose my house. My question to you: is the drug that costly, and is there

anything else that you have taken that has helped?

Thank you, Polly from Ohio

Share this post


Link to post
Share on other sites
Guest guest

i have only been on methotrexate and now that my live is not so good... i had to

stop that... does remicade affect the liver??? and vioxx did absolutely nothing

for me... PREDNISONE is the only thing that took the pain away for me! guess

you can not stay on that for a long time! and besides, i would become about 600

pounds if i stayed on that too long.. ha ha ha hah ah a

rae

[ ] Remicade

In a message dated 11/5/04 9:20:38 AM, Semalee@... writes:

>

>

I noticed your reference toi Remicade, Semalee. I have heard that it is as

expensive as $1,500 a month. There is no way I could afford that and not

loose my house. My question to you: is the drug that costly, and is

there

anything else that you have taken that has helped?

Thank you, Polly from Ohio

Share this post


Link to post
Share on other sites
Guest guest

In a message dated 11/11/04 10:33:16 AM, Raes_Yorkies@... writes:

> PREDNISONE is the only thing that took the pain away from me.

>

Me too! I looked at the side effects when I got my first Rx and none of

them were as bad as how I feel when I don't take it. I started out at 60 mgs

and now am down to 25. If I go below that things start to really hurt.

Share this post


Link to post
Share on other sites
Guest guest

Althea - Your experience with Remicade sounds very much like mine. I read with

interest the article the other day that says TNF s help fatigue. I am so tired

for the day or two after my infusion- that has not been my experience. I have

also been on Remicade for two years (with MTX - although I am not fond of taking

it either).It has not been a miracle for me - but has helped keep my fingers,

hands, wrists and shoulders better.

Hugs,

-------------- Original message ----------------------

From: " blueroses11 " <bluerose11@...>

>

>

> I have been on Remicade for 2 years now. My insurance pays for all

> but my co-pay but it is quite expensive if you don't have

> insurance. They do not have a plan like Humira for people who don't

> have insurance as yet.

>

> I take MTX with it but...

>

> My doctor told me " Remicade works by itself but the FDA will only

> allow a person to be on it if they are on MTX with it "

>

> Now, MTX is the drug that CAN affect your liver and you need to be

> tested every 60 days to make sure your levels are staying constant

> or below the danger level.

>

> I don't take my MTX every week. I didn't take it at one time for

> almost 8 months. During that time, I ached terribly and talked with

> my doctor about it. I am supposed to take my MTX once a week now

> but still find myself forgetting it but when I get seriously achey I

> remember that I haven't taken it.

>

> The Remicade surrounds the cells and does not let them form the bad

> RA cells so that you " hopefully " won't develop any crippling. Since

> starting it, my joints in everything but my feet have been fine. My

> feet have developed metatarsil something or other and I am scheduled

> to see a podiatrist for them.

>

> The MTX takes care of the inflammation that causes you to feel achey

> and sore. For me, sometimes it works and sometimes it doesn't. It

> does help and I am very grateful for it but sometimes even though I

> take it religiously it doesn't help at all.

>

> Remicade does have different side effects though that you may

> suffer...for me I am extremely tired after the infusion and will

> sleep more during the next 48 hours quite a bit. One of people that

> has there infusion the same day I do has to have a shot of benedryl

> before having his infusion. He shook terribly one day for quite a

> while but hasn't had any problems since. Some people get headaches

> but they are supposedly go away after a day or two.

>

> I know that I have a chance to prolong my time without any crippling

> deformities if I stay on it - although it doesn't completely help me.

> I wish anyone good luck who has this crippling disease and is able

> to slow it down in any way.

>

> God bless,

> Althea

>

>

>

>

>

>

>

Share this post


Link to post
Share on other sites
Guest guest

Congratulations, Trudy, on quitting smoking. That is such an important thing

to do, especially if you have RA.

It is true that if you've been off of the Remicade for an extended period

that you might have trouble resuming it. How long has it been? Did you take

methotrexate, too?

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Remicade

>I have a qestion I was on Remicde for 1 and 1/2 years and did great. I

> lost my Ins scince I cant work any more. I now have Medicade through

> the state. My Doctor's office has made me an appointment to start

> again, but the said I might have severe reactions to the drug the

> second time arround. I never had any problems with it except being

> tired afterwards. So what am i looking for I go Thursday at 9am. Also

> Today is 2 months scince I have Quit smoking and Yesterday was very

> very very hard for me I wanted a smoke so bad I could taste it. It was

> the worst day in a long time. But I made it thru. Please keep me in

> your prayers thats how i made it yesterday by Prayer I finally Just

> Prayed God, give me the strenghth to not have a ciggarette. I dont

> want one but I know my body does. I leave this in your hands.Amen Then

> i popped a nicoten lozenger. I made it.

>

> Trudy

>

Share this post


Link to post
Share on other sites
Guest guest

I went off all meds in Feb. Last Remicade was feb 4th and i do take methtrexate

now that i have ins again. Trudy

<Matsumura_Clan@...> wrote:Congratulations, Trudy, on quitting

smoking. That is such an important thing

to do, especially if you have RA.

It is true that if you've been off of the Remicade for an extended period

that you might have trouble resuming it. How long has it been? Did you take

methotrexate, too?

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Remicade

>I have a qestion I was on Remicde for 1 and 1/2 years and did great. I

> lost my Ins scince I cant work any more. I now have Medicade through

> the state. My Doctor's office has made me an appointment to start

> again, but the said I might have severe reactions to the drug the

> second time arround. I never had any problems with it except being

> tired afterwards. So what am i looking for I go Thursday at 9am. Also

> Today is 2 months scince I have Quit smoking and Yesterday was very

> very very hard for me I wanted a smoke so bad I could taste it. It was

> the worst day in a long time. But I made it thru. Please keep me in

> your prayers thats how i made it yesterday by Prayer I finally Just

> Prayed God, give me the strenghth to not have a ciggarette. I dont

> want one but I know my body does. I leave this in your hands.Amen Then

> i popped a nicoten lozenger. I made it.

>

> Trudy

>

Share this post


Link to post
Share on other sites
Guest guest

I didn't really ask the right question, Trudy. Did you take MTX (or another

DMARD) while you were taking Remicade?

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

Re: [ ] Remicade

>I went off all meds in Feb. Last Remicade was feb 4th and i do take

>methtrexate now that i have ins again. Trudy

Share this post


Link to post
Share on other sites
Guest guest

yes I took 20 md of mtx.

<Matsumura_Clan@...> wrote:I didn't really ask the right

question, Trudy. Did you take MTX (or another

DMARD) while you were taking Remicade?

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

Re: [ ] Remicade

>I went off all meds in Feb. Last Remicade was feb 4th and i do take

>methtrexate now that i have ins again. Trudy

Share this post


Link to post
Share on other sites
Guest guest

It took me until my second infusion to have a bad reaction. The first one I had

breathing issues but thought it was anxiety because the stuff, quite frankly,

scared me. After the first infusion I had a spring in my step...it was

wonderful stuff.

I go in for the second infusion and still have some breathing issues. Like last

time, they were mild, but still there. Woke up the following morning and could

not move! I was carried into the doctor office to get some steroid injections.

The shot, chased with loads of pred and I got moving after about a week.

Shandi

[ ] Remicade

Hi all,

I went for my 8 week Remicade infusion yesterday. I was fine til about

2/3rds through when I became nauseated...the nurse noticed that my drip was

clogged up or something, it just wasn't dripping like it was supposed to. So, we

continued on and I finished up the drip, the nausea eased up then went for blood

tests...the nurse couldn't find a vein and I became extremely nauseated and this

time I had a horrible headache to go with it and I felt extremely hot and

flushed and a bit disoriented...I thought the room was going to fall out from

under me... another nurse finally got the blood from the other arm and they gave

me a shot of phenargen in the butt...

I had no idea that stuff hurt SO BAD going in!!!!!!!

They called my husband to come and take me home, but we had to wait another

hour or two to make sure I didn't die on them.

That shot put me out like a light and I didn't wake up til 7 this morning,

then went back to sleep for another 2 hours and I'm still drowsy at 3 in the

afternoon...

The doc thinks I may be building up an allergic reaction to

Remicade...yeasterday was my 6th Remicade infusion.

A few months ago I was on the MTX dose once a week but it made me extremely

sick also, so they took me off it...I have what they think is poison oak/ivy on

my arm but the rhuemy doc wanted to go ahead with the Remicade anyway-she

thought I might have shingles but this stuff doesn't hurt, just itches now and

then, so she said let's go ahead...I'm so embarrassed about being sick(at least

I didn't throw up) in front of all the other patients because I know it scared

them to death too...thanks for listening to me and has anyone else had this kind

of reaction and what did they do for you?? ' in SC

---------------------------------

New Messenger with Voice. Call regular phones from your PC and save

big.

Share this post


Link to post
Share on other sites
Guest guest

Renne', I'm sorry that you had such a bad experience. You shouldn't feel at

all embarrassed by it.

In Remicade patients who aren't on MTX or another DMARD, infusion reactions

are more likely. Are you on another DMARD?

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Remicade

> Hi all,

> I went for my 8 week Remicade infusion yesterday. I was fine til about

> 2/3rds through when I became nauseated...the nurse noticed that my drip

> was clogged up or something, it just wasn't dripping like it was supposed

> to. So, we continued on and I finished up the drip, the nausea eased up

> then went for blood tests...the nurse couldn't find a vein and I became

> extremely nauseated and this time I had a horrible headache to go with it

> and I felt extremely hot and flushed and a bit disoriented...I thought the

> room was going to fall out from under me... another nurse finally got the

> blood from the other arm and they gave me a shot of phenargen in the

> butt...

> I had no idea that stuff hurt SO BAD going in!!!!!!!

> They called my husband to come and take me home, but we had to wait

> another hour or two to make sure I didn't die on them.

> That shot put me out like a light and I didn't wake up til 7 this

> morning, then went back to sleep for another 2 hours and I'm still drowsy

> at 3 in the afternoon...

> The doc thinks I may be building up an allergic reaction to

> Remicade...yeasterday was my 6th Remicade infusion.

> A few months ago I was on the MTX dose once a week but it made me

> extremely sick also, so they took me off it...I have what they think is

> poison oak/ivy on my arm but the rhuemy doc wanted to go ahead with the

> Remicade anyway-she thought I might have shingles but this stuff doesn't

> hurt, just itches now and then, so she said let's go ahead...I'm so

> embarrassed about being sick(at least I didn't throw up) in front of all

> the other patients because I know it scared them to death too...thanks for

> listening to me and has anyone else had this kind of reaction and what did

> they do for you?? ' in SC

Share this post


Link to post
Share on other sites
Guest guest

:

You have my prayers that the Remicade infusion goes

without a hitch this time around! Let us know, okay?

Kathe in CA

--- renee' kirby <dakirb1@...> wrote:

> Friday I have my next Remicade infusion-the doc says

> they are going to do a slow drip which might take

> most of the day. Wish me luck, last time I became

> very sick about halfway through. '

>

> ---------------------------------

> How low will we go? Check out Messenger’s low

> PC-to-Phone call rates.

>

> [Non-text portions of this message have been

> removed]

>

>

>

>

Kathe

" To ride a horse is to borrow freedom. "

__________________________________________________

Share this post


Link to post
Share on other sites
Guest guest

>

> Friday I have my next Remicade infusion-the doc says they are going to

do a slow drip which might take most of the day. Wish me luck, last time

I became very sick about halfway through. '

>

> ---------------------------------

> How low will we go? Check out Messenger's low PC-to-Phone

call rates.

>

>

Share this post


Link to post
Share on other sites
Guest guest

,

I hope it goes well on your next visit. Try taking a good book along,

it helps take your mind of what's going on. Good luck, Tawny

>

> Friday I have my next Remicade infusion-the doc says they are going

to do a slow drip which might take most of the day. Wish me luck, last

time I became very sick about halfway through. '

>

> ---------------------------------

> How low will we go? Check out Messenger's low PC-to-Phone

call rates.

>

>

Share this post


Link to post
Share on other sites
Guest guest

Hi ,

I have been on Remicade since Nov of 2004. Been on Methotrexate for a couple of

years or so before that. Stopped the prednisone a couple of yrs ago because I

didn't like how it was blowing me up. But, to your ?, yes, still in alot of

pain! Go see my RA DR today and Remicade tomorrow. Sure don't like being on

this stuff if its not going to help. Don't know if pain is suppose to be

normal, along w/pain meds thou. My insurance only covers Vicodin, and I can't

take that because it causes me hallucinations really bad. Going to have a chat

w/Doc today about that. Will let you know.

Kathy

[ ] Remicade

Is anyone on Remicade and still experiencing painful joints? I have

been on Remicade for over a year and I am taking 1200 mg every 4

weeks, the max dose. My ankles knees and hands still throb. Is it

" normal " to be taking pain meds every day while on MTX, prednisone

and Remicade? The only big change has been my form of exercise, I

used to do all my exercise in the water but do to chronic ear

infections since August (9 rounds of antibiotics) I am walking

instead....

Thanks for the input,

Share this post


Link to post
Share on other sites
Guest guest

Hi, . Just letting you know that when I went to my RA app't, the dr

told me that all the pain is from inflammation and also diagnosed me with

Fibromyagia at the same time. He put me on Prednisone for the inflammation, and

said that Fibromyalgia is what causes the constant pain. 1200mg, wow. And he

just increased mine to only 600 for thursday infusion, and I only get to go

every 8 wks; no wonder I hurt. Sorry I don't have more info for you. How much

MTX are you on, and Prednisone? Sounds like you might want to see your dr and

have a chat with him; or get a second opinion about the problem! He won't give

no pain med. Good luck in your search for more help. See if this pertains to

you and check out Fibromyalgia: www.fmnetnews.com

Kathy

[ ] Remicade

Is anyone on Remicade and still experiencing painful joints? I have

been on Remicade for over a year and I am taking 1200 mg every 4

weeks, the max dose. My ankles knees and hands still throb. Is it

" normal " to be taking pain meds every day while on MTX, prednisone

and Remicade? The only big change has been my form of exercise, I

used to do all my exercise in the water but do to chronic ear

infections since August (9 rounds of antibiotics) I am walking

instead....

Thanks for the input,

Share this post


Link to post
Share on other sites
Guest guest

Dear Deborah,

I just started Remicade and after my 2 nd infusion haven't had any

luck yet. How many vials are you getting? I get 3. Do you still

take MTX and how much? I only take 3 pills weekly which is 7 1/2 mg.

Do you have hair loss from the MTX? I also tried Sulfasalazine for 11

days and blew up like a balloon. Had to stop it. That was the only

side affect I got from that which was enough.

Do you take folic acid and Calcium with vitamin D. I take these daily.

I still am in severe pain even though I take 2 Ceoebrex 200 mg. each

day. I took a short course of Prednisone but am really scared to take

too much as I have a stomach problem (Gerd) and the Prednisone is

known to cause ulcers after 3 days as my Doctor told me.

Please answer.

Bunny

Share this post


Link to post
Share on other sites
Guest guest

Dear Bunny- I saw amazing improvement after my first infusion. I was put on arava and MTX after the cyclosporine quit in 2000. I was in amazing pain. Then I was numb for two days and have to say it was nothing short of a miracle. I am on low dose prednisone. 6mg am and 1mg pm. Plaquenil 200 mg am /pm. 600 ibuprofen x2 or 3. I take a small amount of darvocet as well as soma for muscle pain and trazadone for sleep. I take the lowest possible doses I can and only at night for these. I was once on 25mg of MTX before Remicade. I didnt take it for the longest time then started again. I am on 5mg once a week. Two pills. I am so wiped out the next day. You might try cyclosporine or imuran instead. I do have hair loss and fine/thin hair also. I am given a Remicade dose based on body weight. I think 3mg. I take a chewable multivitamin 3 times a day and a hair and nail supplement as well.I am allergic to sulfa. I would try taking a low dose prednisone. One milligram a day for a week and then up another milligram and so on. You gain weight because you knock off your metabolism with anything higher and then you get weight gain. Prednisone works on the hypothalimus gland and can actually change your fat/water ratio dramatically. It does help when you are in pain. Give the remicade time to work. Always take MTX before bed with milk or a little cheese to coat your stomach. Eat light small meals. You need to be on something better for pain. A little darvocet with food will help. Talk to your Dr about slowly introducing prednisone and darvocet if your tummy can handle it. I take nulev. Its heavy duty but it does work. I also take a digestive enzyme which helps. Have you taken any other TNF biologics? Get back to me and let me know. Yours, Deborah

On 11/19/06, ninebunnyathome <Eightbunny@...> wrote:

Dear Deborah,I just started Remicade and after my 2 nd infusion haven't had anyluck yet. How many vials are you getting? I get 3. Do you stilltake MTX and how much? I only take 3 pills weekly which is 7 1/2 mg.

Do you have hair loss from the MTX? I also tried Sulfasalazine for 11days and blew up like a balloon. Had to stop it. That was the onlyside affect I got from that which was enough.Do you take folic acid and Calcium with vitamin D. I take these daily.

I still am in severe pain even though I take 2 Ceoebrex 200 mg. eachday. I took a short course of Prednisone but am really scared to taketoo much as I have a stomach problem (Gerd) and the Prednisone is

known to cause ulcers after 3 days as my Doctor told me.Please answer.Bunny

Share this post


Link to post
Share on other sites
Guest guest

Thank you Joanne. It certainly does help. I will let my mother know about

your experience, and I am sure it will make her feel much better.

Sonya

************************************** See what's free at http://www.aol.com.

Share this post


Link to post
Share on other sites
Guest guest

Sonya,

I have been on Remicaid for over a year and the

process is not bad. The first time was the worst

because I didn't know what to expect or how the

process took place. But after the first time, it was a

piece of cake. As my elbows do not unbend, I have to

have any infusions or blood work taken from the hands

so the infusion is place there and I just lean back

and watch tv or listen to others talk. For me, the

second time was either two or four weeks later, then

up to eight weeks after that. I, personally, have not

had any side effects.

I hope this helps.

Joanne

--- MissRugby@... wrote:

> I was just wondering if someone could tell me a

> little bit about this. My mom is going to be

> starting this on Monday, and she just found out that

> it is not a pill but rather IV Infusion, and she is

> a little worried about it. I know she will be okay,

> but does it hurt? She said that they told her it

> takes two hours, and it will be every 8 weeks. We

> are just so new to RA and not sure what to expect.

>

> Thank you,

>

> Sonya

>

________________________________________________________________________

> AOL now offers free email to everyone. Find out

> more about what's free from AOL at AOL.com.

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

>

Share this post


Link to post
Share on other sites
Guest guest

I am going to be starting Remicaid soon as the methotrexate is not stopping

the progression of my RA. I hope I am like you and have no side effects. I

saw the DVD and there sure is a lot of possible problems that could happen.

I was told to take a zytrec or something similair the day before and morning

before. Do you get any more energy from being on it?

Laurie

On 5/10/07, Joanne Dubnicka <windey99@...> wrote:

>

> Sonya,

>

> I have been on Remicaid for over a year and the

> process is not bad. The first time was the worst

> because I didn't know what to expect or how the

> process took place. But after the first time, it was a

> piece of cake. As my elbows do not unbend, I have to

> have any infusions or blood work taken from the hands

> so the infusion is place there and I just lean back

> and watch tv or listen to others talk. For me, the

> second time was either two or four weeks later, then

> up to eight weeks after that. I, personally, have not

> had any side effects.

>

> I hope this helps.

>

> Joanne

>

> --- MissRugby@... <MissRugby%40aol.com> wrote:

>

> > I was just wondering if someone could tell me a

> > little bit about this. My mom is going to be

> > starting this on Monday, and she just found out that

> > it is not a pill but rather IV Infusion, and she is

> > a little worried about it. I know she will be okay,

> > but does it hurt? She said that they told her it

> > takes two hours, and it will be every 8 weeks. We

> > are just so new to RA and not sure what to expect.

> >

> > Thank you,

> >

> > Sonya

> >

> __________________________________________________________

> > AOL now offers free email to everyone. Find out

> > more about what's free from AOL at AOL.com.

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

> >

> >

Share this post


Link to post
Share on other sites
Guest guest

I am having difficulty right now with my RA. My doctor

stated that the people who benefit most on this

treatment are those on a set schedule of:

wake up at 8:00

breakfast

exercise

nap

lunch at 12:00

nap

supper at 5:00

movie/tv

sleep at 8:00

If I could just stay on that schedule, that would be

great; however, I am having to work part time until I

see if I am approved for SS Disability. In addition, I

try to exercise in the pool in the afternoon. But

everything takes so much longer to do now with the RA

that by the time I get home, it is 5:00 pm. It is like

I have put in an 8 hour day when I should be resting

more. So, the Remicaid/methotrexate is not working as

well as it should be.

Good luck to you!! Let me know how it does for you.

Joanne

--- Laurie Randall <dlriowa@...> wrote:

> I am going to be starting Remicaid soon as the

> methotrexate is not stopping

> the progression of my RA. I hope I am like you and

> have no side effects. I

> saw the DVD and there sure is a lot of possible

> problems that could happen.

> I was told to take a zytrec or something similair

> the day before and morning

> before. Do you get any more energy from being on

> it?

> Laurie

>

>

> On 5/10/07, Joanne Dubnicka <windey99@...>

> wrote:

> >

> > Sonya,

> >

> > I have been on Remicaid for over a year and the

> > process is not bad. The first time was the worst

> > because I didn't know what to expect or how the

> > process took place. But after the first time, it

> was a

> > piece of cake. As my elbows do not unbend, I have

> to

> > have any infusions or blood work taken from the

> hands

> > so the infusion is place there and I just lean

> back

> > and watch tv or listen to others talk. For me, the

> > second time was either two or four weeks later,

> then

> > up to eight weeks after that. I, personally, have

> not

> > had any side effects.

> >

> > I hope this helps.

> >

> > Joanne

> >

> > --- MissRugby@... <MissRugby%40aol.com> wrote:

> >

> > > I was just wondering if someone could tell me a

> > > little bit about this. My mom is going to be

> > > starting this on Monday, and she just found out

> that

> > > it is not a pill but rather IV Infusion, and she

> is

> > > a little worried about it. I know she will be

> okay,

> > > but does it hurt? She said that they told her it

> > > takes two hours, and it will be every 8 weeks.

> We

> > > are just so new to RA and not sure what to

> expect.

> > >

> > > Thank you,

> > >

> > > Sonya

> > >

> >

>

__________________________________________________________

> > > AOL now offers free email to everyone. Find out

> > > more about what's free from AOL at AOL.com.

> > >

> > >

> > > [Non-text portions of this message have been

> > > removed]

> > >

> > >

> > >

> > >

Share this post


Link to post
Share on other sites
Guest guest

OMG!!! Most people with chronic pain can't stay on a schedule like

that! I don't get to bed until 2-3 in the morning. It would be nice

to go to bed at 8:00, not sure what planet he fell off,lol I wouldn't

worry about it too much. It is good for us too get a lot of sleep,

but unfortunately we live in the real world. Take care, and have a

bless day, Tawny

Share this post


Link to post
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
Sign in to follow this  

×
×
  • Create New...