Guest guest Posted September 8, 2002 Report Share Posted September 8, 2002 Hi Laurie, I'm glad to read that the SP is willing to try the food allergy route. What other areas is she planning to determine of the underlying causes? This leaves me wondering as your child has limited eating habits. Example did she mentioned maybe with the trial of the food elimination diet/ milk reduction that there might be some changes to some improvements or any supplements added? Any type of blood work? Urine analysis? I do agree with, why diet is important for our children? Many scientific studies have shown the direction of the normal spectrum, less psyhotic, more communicative, and less bizarre behavior. Other areas were changes have ocurred included improved attention, social integration, improved motor ability and skills, and a decrease in irrational emotional outbursts. As symptoms improve, each food is introduced back from their diets one at a time. Some studies have also shown on the elimination diet that some became more alert, less hyperactive, and more sociable after wheat, sugar, corn and eggs were removed from their diets. I remember when my son was 3, ADHD was mentioned and I ended up taking him to another doc for a second opinion and that doc disagreed with the other docs dx fo the ADHD. I needed to prove to myself that there was some other areas that some professionals and I were not noticing and my son was missing out tremendously in many areas needed. Do follow your heart and some trials. At least you're aware of the " AUTISTIC " behavior. Ok, label or no label of the ASD, start jotting down your child's strength's and weaknessess, questions you would like answered. Don't be afraid to disagree, many only see one side of your child. When you don't understand, ask any questions until you get some type of answers. Many of our kids are over or under eating could be a sensory problem, request for an OT to look into that. So oversensitive or under sensitive could be one of the causes. Another is having the same food all the time is more of a reliance on a routine basis. These were some of the trials of food elmination diet that my son had experienced and still is, as improvements have shown. I would consider this as one of the first routes to take, along with the appropriate education and therapy for ST, OT, PT, & Sensory Integration. I hope I made some sense, as I could go on and on and I TRY not to dwell of not following my instincts of my son being different back in his younger days. Remember its all for your son on not missing out and throw in what YOU would like for your son. You'll prove everyone wrong when you take some action for your sons talents and needs, which will show some improvements for a better journey. If you do not agree with this doc, seek another for an appropriate trained and credentialed health professional which should take place before any decision is made. You see, I better stop and give others on this list the opportunity of their experiences or opinions as we all can relate. Just knowing what we all can share makes it a better road as we are in this together. Thanks for listening as this turned into a novel. Irma,14,DS/ASD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2002 Report Share Posted September 8, 2002 Irma Mic only eats ice cream, he gets formula to sustain him,I eliminated all dairy for a few weeks seemed to make no difference,Mic has lost so many skills he once had I will keep digging in hopes.I did have Mic on NVD for a few months but when he stopped eating he would no longer tolerate it.I saw alot of improvement when he was on it.This has been happening for a few months things are going down hill no progress except that hes walking .Thanks for all your expertise love that Laurie mum592001 wrote:Hi Laurie, I'm glad to read that the SP is willing to try the food allergy route. What other areas is she planning to determine of the underlying causes? This leaves me wondering as your child has limited eating habits. Example did she mentioned maybe with the trial of the food elimination diet/ milk reduction that there might be some changes to some improvements or any supplements added? Any type of blood work? Urine analysis? I do agree with, why diet is important for our children? Many scientific studies have shown the direction of the normal spectrum, less psyhotic, more communicative, and less bizarre behavior. Other areas were changes have ocurred included improved attention, social integration, improved motor ability and skills, and a decrease in irrational emotional outbursts. As symptoms improve, each food is introduced back from their diets one at a time. Some studies have also shown on the elimination diet that some became more alert, less hyperactive, and more sociable after wheat, sugar, corn and eggs were removed from their diets. I remember when my son was 3, ADHD was mentioned and I ended up taking him to another doc for a second opinion and that doc disagreed with the other docs dx fo the ADHD. I needed to prove to myself that there was some other areas that some professionals and I were not noticing and my son was missing out tremendously in many areas needed. Do follow your heart and some trials. At least you're aware of the " AUTISTIC " behavior. Ok, label or no label of the ASD, start jotting down your child's strength's and weaknessess, questions you would like answered. Don't be afraid to disagree, many only see one side of your child. When you don't understand, ask any questions until you get some type of answers. Many of our kids are over or under eating could be a sensory problem, request for an OT to look into that. So oversensitive or under sensitive could be one of the causes. Another is having the same food all the time is more of a reliance on a routine basis. These were some of the trials of food elmination diet that my son had experienced and still is, as improvements have shown. I would consider this as one of the first routes to take, along with the appropriate education and therapy for ST, OT, PT, & Sensory Integration. I hope I made some sense, as I could go on and on and I TRY not to dwell of not following my instincts of my son being different back in his younger days. Remember its all for your son on not missing out and throw in what YOU would like for your son. You'll prove everyone wrong when you take some action for your sons talents and needs, which will show some improvements for a better journey. If you do not agree with this doc, seek another for an appropriate trained and credentialed health professional which should take place before any decision is made. You see, I better stop and give others on this list the opportunity of their experiences or opinions as we all can relate. Just knowing what we all can share makes it a better road as we are in this together. Thanks for listening as this turned into a novel. Irma,14,DS/ASD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2002 Report Share Posted September 8, 2002 Hi Laurie, It did leave me wondering as I thought he only ate ice cream. I remember from another list this autistic boy had written how he only loved eating ice cream due to his teeth feeling sensitive to cold or hot, etc. He had perferred cold food and it took a long time for him to eat the ice cream. Glad to hear about the improvement with the NVD, how I wish it had continued as many of our kids suffer from malabsorption of both vitamins and food. In his formula is there any way you could add some other type of supplement? What type of ice cream are you giving him? This might be another area to consider if not tried. Have you tried a sub ice cream to rule out the possiblity of the other hidden culprits? Like does the ice cream contain preservatives, food additives, and sugar? I'm glad you will not give up HOPE and may the best treatment plan be found. Keep us posted when Mic is seen by a food allergist. This will be a good start to see if there is any problems with the digestive system or the immune system. If all fails, at least you could rule it out and you had the opportunity to have tried the alternative route before the usage of the meds. Ok, rolling over into another issue, I shall stop here. WALKING, I say this is good news! My son started walking about 2 1/2. Take care and hugs. Irma,14,DS/ASD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2002 Report Share Posted September 9, 2002 > Can anyone give me a short summary of toddler behavior in the asd area, Our sp does not see what I am seeing in Mic and I just want to keep checking..... Hi Laurie, I don't think this pertains to a toddler, but maybe a visual pic of it for the sp. This was sent by Kathy awhile back and I say, it says it all, if left untreated. Well, to a certain point, no cure, but a reminder of the behavior. http://www.autism-biomed.org/poster.html Did you have a chance to glance at these sites? http://www.disabilitysolutions.org/news.htm (don't forget to glance at the database here on the list.) http://www.bbbautism.com/beginners_warning_speech.htm http://www.autism.com/ari/ http://autism.com/atec/ http://www.autism.com/atec2.html http://www.isn.net/~jypsy/comorbidity.htm http://www.netfeed.com/ccdsf/autism.html http://www.bhare.org/what_is_autism.html I'm pretty sure you've had a chance to glance at these, but I went ahead and posted them as its time to review. Irma,14,DS/ASD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2002 Report Share Posted December 20, 2002 Hi Mic my name is Sandy. Everyone is different regarding the shots but I can tell you that after the first shot for me, I had an enormous amount of energy for about 2 days. I dont take the rebetrol pills cause I had kidney infections often as a child. Now after 6 shots the only sides I get are slight headaches...which I had before..and lots of nausea. I have lost around 6lbs, which is a good thing for me and my viral lode has dropped by one million after three shots. As someone from this group told me...if you had a child and the doctor told you a treatment that would make them really sick for a while was the only way to save their life, what would you do? It helped me to take that first shot. I havent regretted it. My prayers are with you. By the way, I am 53 and female. Good luck and God bless and have a great Christmas Sandy " Mic <phoenixmic@...> " <phoenixmic@...> wrote:I got the results of my biopsy Tuesday. { I had biopsy with no sedatives at all. They just did it.] Anyways I start Peg in 2-3 weeks. I have Geno- 3. I am quite nervous about how I'll feel after that first shot. How will I feel? Be honest now. Mic-female- age 48. Hi! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2002 Report Share Posted December 21, 2002 Thanx Sandy! That gives me hope!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2002 Report Share Posted December 27, 2002 doing fine here Judy and keeping warm. I'm going to start peg in a couple weeks finally. The VA is so slow. Mic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 You were!! wow so was I!! I was in A-18-5. I began September 15, 1974 and was there also for AIT. I left for Germany in February 75. Mic is this also your risk factor? LeighAnn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 I WAS IN A -18 -5!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 We probably know each other!!! Mic {I have many other risk factors} Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 I was Squad leader Mallory. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 I was in the 3rd Platoon!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 You are the first person I have ever found in my unit!! Did you know what we could file for VA Disability and have a greater chance of getting it because we BOTH were in the same place and the same time and got the SAME shots?? My last name at the time was Reuter. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 I'm gonna go get my Army book and look for your picture. Be right back. Mic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 oh darn, I had the dates wrong. I was there right after you but same Company and platoon. I guess we did get the Hep c there. Mic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 What were your dates in Basic? When did you start? Our run was from the middle of September thru November. This could really help in my fight for VA disability! Do you know anyone else who was there when we were who also have HepC? LeighAnn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 I joined up in September 74 but took basic from April 11, 75- May 28,75. A-18-5 Mic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 At least we know we were both there within a 6 month period and both of us have hepc. I wonder how many others who were there have it as well. LeighAnn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 Probably everyone we knew then Leighann. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2003 Report Share Posted January 20, 2003 Thanx for reply da yooper. I did my second injection last night with the help of Phenergan and tylenol. I went to bed and slept straight through. I slept right through the side effects!!! Now if the rest of my treatment is like this it's not to bad at all. Happy Mic!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2003 Report Share Posted January 20, 2003 Thanx Marie. I'm lactose intolerant also but the pills don't seem to be bothering me. Phenergan would be a vey good idea!! I wish you the best of luck!! Mic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2003 Report Share Posted January 20, 2003 Hi Mic, Glad to hear that your second injection was better than the first. I think I'll get some Phenergan or something else for nausea before tomorrow night just in case. My doctor just gave me a prescription for Wellbutrin SR, in case I need it for depression. I needed it when I was on the regular interferon 5 years ago. Boy, there are so many kinds of meds to keep up with. I'm glad I've got a large pill dispenser. I even need the Lactaid pills, since the Rebetol is lactose based and I'm lactose intolerant. Keep up the good work. Tomorrow night it's my turn to start slaying the dragon. Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2003 Report Share Posted January 21, 2003 yes it is for nausea and it helps ya sleep. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2003 Report Share Posted January 21, 2003 Okay Marie- Did ya get the anti-nausea meds? Mic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2003 Report Share Posted January 21, 2003 well it should help. Good luck there Marie!! Quote Link to comment Share on other sites More sharing options...
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