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Hi Laurie,

I'm glad to read that the SP is willing to try the food allergy

route. What other areas is she planning to determine of the

underlying causes? This leaves me wondering as your child has limited

eating habits. Example did she mentioned maybe with the trial of the

food elimination diet/ milk reduction that there might be some

changes to some improvements or any supplements added? Any type of

blood work? Urine analysis? I do agree with, why diet is important

for our children? Many scientific studies have shown the direction of

the normal spectrum, less psyhotic, more communicative, and less

bizarre behavior. Other areas were changes have ocurred included

improved attention, social integration, improved motor ability and

skills, and a decrease in irrational emotional outbursts.

As symptoms improve, each food is introduced back from their diets

one at a time. Some studies have also shown on the elimination diet

that some became more alert, less hyperactive, and more sociable

after wheat, sugar, corn and eggs were removed from their diets. I

remember when my son was 3, ADHD was mentioned and I ended up taking

him to another doc for a second opinion and that doc disagreed with

the other docs dx fo the ADHD. I needed to prove to myself that there

was some other areas that some professionals and I were not noticing

and my son was missing out tremendously in many areas needed. Do

follow your heart and some trials. At least you're aware of

the " AUTISTIC " behavior. Ok, label or no label of the ASD, start

jotting down your child's strength's and weaknessess, questions you

would like answered. Don't be afraid to disagree, many only see one

side of your child. When you don't understand, ask any questions

until you get some type of answers. Many of our kids are over or

under eating could be a sensory problem, request for an OT to look

into that. So oversensitive or under sensitive could be one of the

causes. Another is having the same food all the time is more of a

reliance on a routine basis. These were some of the trials of food

elmination diet that my son had experienced and still is, as

improvements have shown. I would consider this as one of the first

routes to take, along with the appropriate education and therapy for

ST, OT, PT, & Sensory Integration. I hope I made some sense, as I

could go on and on and I TRY not to dwell of not following my

instincts of my son being different back in his younger days.

Remember its all for your son on not missing out and throw in what

YOU would like for your son. You'll prove everyone wrong when you

take some action for your sons talents and needs, which will show

some improvements for a better journey. If you do not agree with this

doc, seek another for an appropriate trained and credentialed health

professional which should take place before any decision is made. You

see, I better stop and give others on this list the opportunity of

their experiences or opinions as we all can relate. Just knowing what

we all can share makes it a better road as we are in this together.

Thanks for listening as this turned into a novel. :)

Irma,14,DS/ASD

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Irma Mic only eats ice cream, he gets formula to sustain him,I eliminated all

dairy for a few weeks seemed to make no difference,Mic has lost so many skills

he once had I will keep digging in hopes.I did have Mic on NVD for a few months

but when he stopped eating he would no longer tolerate it.I saw alot of

improvement when he was on it.This has been happening for a few months things

are going down hill no progress except that hes walking .Thanks for all your

expertise love that Laurie mum592001 wrote:Hi Laurie,

I'm glad to read that the SP is willing to try the food allergy

route. What other areas is she planning to determine of the

underlying causes? This leaves me wondering as your child has limited

eating habits. Example did she mentioned maybe with the trial of the

food elimination diet/ milk reduction that there might be some

changes to some improvements or any supplements added? Any type of

blood work? Urine analysis? I do agree with, why diet is important

for our children? Many scientific studies have shown the direction of

the normal spectrum, less psyhotic, more communicative, and less

bizarre behavior. Other areas were changes have ocurred included

improved attention, social integration, improved motor ability and

skills, and a decrease in irrational emotional outbursts.

As symptoms improve, each food is introduced back from their diets

one at a time. Some studies have also shown on the elimination diet

that some became more alert, less hyperactive, and more sociable

after wheat, sugar, corn and eggs were removed from their diets. I

remember when my son was 3, ADHD was mentioned and I ended up taking

him to another doc for a second opinion and that doc disagreed with

the other docs dx fo the ADHD. I needed to prove to myself that there

was some other areas that some professionals and I were not noticing

and my son was missing out tremendously in many areas needed. Do

follow your heart and some trials. At least you're aware of

the " AUTISTIC " behavior. Ok, label or no label of the ASD, start

jotting down your child's strength's and weaknessess, questions you

would like answered. Don't be afraid to disagree, many only see one

side of your child. When you don't understand, ask any questions

until you get some type of answers. Many of our kids are over or

under eating could be a sensory problem, request for an OT to look

into that. So oversensitive or under sensitive could be one of the

causes. Another is having the same food all the time is more of a

reliance on a routine basis. These were some of the trials of food

elmination diet that my son had experienced and still is, as

improvements have shown. I would consider this as one of the first

routes to take, along with the appropriate education and therapy for

ST, OT, PT, & Sensory Integration. I hope I made some sense, as I

could go on and on and I TRY not to dwell of not following my

instincts of my son being different back in his younger days.

Remember its all for your son on not missing out and throw in what

YOU would like for your son. You'll prove everyone wrong when you

take some action for your sons talents and needs, which will show

some improvements for a better journey. If you do not agree with this

doc, seek another for an appropriate trained and credentialed health

professional which should take place before any decision is made. You

see, I better stop and give others on this list the opportunity of

their experiences or opinions as we all can relate. Just knowing what

we all can share makes it a better road as we are in this together.

Thanks for listening as this turned into a novel. :)

Irma,14,DS/ASD

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Hi Laurie,

It did leave me wondering as I thought he only ate ice cream. I

remember from another list this autistic boy had written how he only

loved eating ice cream due to his teeth feeling sensitive to cold or

hot, etc. He had perferred cold food and it took a long time for him

to eat the ice cream.

Glad to hear about the improvement with the NVD, how I wish it had

continued as many of our kids suffer from malabsorption of both

vitamins and food. In his formula is there any way you could add some

other type of supplement? What type of ice cream are you giving him?

This might be another area to consider if not tried. Have you tried a

sub ice cream to rule out the possiblity of the other hidden

culprits? Like does the ice cream contain preservatives, food

additives, and sugar?

I'm glad you will not give up HOPE and may the best treatment plan be

found. Keep us posted when Mic is seen by a food allergist. This will

be a good start to see if there is any problems with the digestive

system or the immune system. If all fails, at least you could rule it

out and you had the opportunity to have tried the alternative route

before the usage of the meds. Ok, rolling over into another issue, I

shall stop here.

WALKING, I say this is good news! My son started walking about 2 1/2.

Take care and hugs.

Irma,14,DS/ASD

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> Can anyone give me a short summary of toddler behavior in the asd

area, Our sp does not see what I am seeing in Mic and I just want to

keep checking.....

Hi Laurie,

I don't think this pertains to a toddler, but maybe a visual pic of

it for the sp. This was sent by Kathy awhile back and I say, it says

it all, if left untreated. Well, to a certain point, no cure, but a

reminder of the behavior.

http://www.autism-biomed.org/poster.html

Did you have a chance to glance at these sites?

http://www.disabilitysolutions.org/news.htm (don't forget to glance

at the database here on the list.)

http://www.bbbautism.com/beginners_warning_speech.htm

http://www.autism.com/ari/

http://autism.com/atec/

http://www.autism.com/atec2.html

http://www.isn.net/~jypsy/comorbidity.htm

http://www.netfeed.com/ccdsf/autism.html

http://www.bhare.org/what_is_autism.html

I'm pretty sure you've had a chance to glance at these, but I went

ahead and posted them as its time to review.

Irma,14,DS/ASD

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  • 3 months later...

Hi Mic my name is Sandy. Everyone is different regarding the shots but I can

tell you that after the first shot for me, I had an enormous amount of energy

for about 2 days. I dont take the rebetrol pills cause I had kidney infections

often as a child. Now after 6 shots the only sides I get are slight

headaches...which I had before..and lots of nausea. I have lost around 6lbs,

which is a good thing for me and my viral lode has dropped by one million after

three shots. As someone from this group told me...if you had a child and the

doctor told you a treatment that would make them really sick for a while was

the only way to save their life, what would you do? It helped me to take that

first shot. I havent regretted it. My prayers are with you. By the way, I am

53 and female.

Good luck and God bless and have a great Christmas

Sandy

" Mic <phoenixmic@...> " <phoenixmic@...> wrote:I got the results of

my biopsy Tuesday. { I had biopsy with no sedatives at all. They just did it.]

Anyways I start Peg in 2-3 weeks. I have Geno- 3. I am quite nervous about how

I'll feel after that first shot. How will I feel? Be honest now. Mic-female- age

48. Hi!

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  • 4 weeks later...

You were!! wow so was I!! I was in A-18-5. I began September 15, 1974

and was there also for AIT. I left for Germany in February 75.

Mic is this also your risk factor?

LeighAnn

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You are the first person I have ever found in my unit!! Did you know

what we could file for VA Disability and have a greater chance of

getting it because we BOTH were in the same place and the same time

and got the SAME shots??

My last name at the time was Reuter.

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What were your dates in Basic? When did you start? Our run was from

the middle of September thru November. This could really help in my

fight for VA disability! Do you know anyone else who was there when

we were who also have HepC?

LeighAnn

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Thanx for reply da yooper. I did my second injection last night with the

help of Phenergan and tylenol. I went to bed and slept straight

through. I slept right through the side effects!!! Now if the rest of

my treatment is like this it's not to bad at all. :) Happy Mic!!

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Hi Mic,

Glad to hear that your second injection was better than the first. I think

I'll get some Phenergan or something else for nausea before tomorrow night

just in case.

My doctor just gave me a prescription for Wellbutrin SR, in case I need it

for depression. I needed it when I was on the regular interferon 5 years

ago. Boy, there are so many kinds of meds to keep up with. I'm glad I've

got a large pill dispenser. I even need the Lactaid pills, since the

Rebetol is lactose based and I'm lactose intolerant.

Keep up the good work. Tomorrow night it's my turn to start slaying the dragon.

Marie

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