hereditary motor sensory neuropathy Type 5.CMT type 5

[Guest guest]

I am happy to have the opportunity to contact all of you. First I would like to

apologise for my English.

My son is suffering from hmsntype 5. HE is14 years old and when he was 7 doctors

discover this condition. He was suffering from cramps before but no know. He

isvery weak, and have a funny walk. droping hes feed that is why he used

orthotics.

I would like to know if there is any one in the group who suffer from

this.Please anwer and let me know how you feel and how is progresing. I saw that

this progress stop but know I see him a bit more weak and some time having

difficulties with the balance.

Thank you

cristina