Good thoughts

January 20, 2006

hello,

I pretty much can't work anymore, so I stay at home with my 1 1/2 yr old

while my other son is in kindergarden. I am really blessed with two of the

happiest toddler/boys in the world. they make my day brighter. I

ignore/put up with so much pain for them and honestly i can get so involved

in our activities that i even forget for a moment that i'm broken. So, I am

really greateful for my sons (and very supportive wife)

Really, I guess I have to leave it with my family in general. They make

it possible for me to feel like a good husband and a good father. My son is

doing so well in school despite a speech problem. My youngest is so smart

and growing so fast. I'm very blessed to have this time with him. I got to

spend a year with my oldest when he was about the same age, and I love it.

robb

>From: " darkstarzz1019 " <darkstarzz1019@...>

>Reply-neck pain

>neck pain

>Subject: good thoughts

>Date: Fri, 20 Jan 2006 12:56:11 -0000

>

>hi everyone, Most of the time we share problems and pain so I

>thought it would be nice for a change to share things that we can do

>or things that are good in our lives. So for a minute think of the

>good things you can do that make

>you feel good about yourself or things that are good in your life

>and lets share them with others here.

>

>I'll start by saying my son is graduation from college (finally

>next month and I am very proud of him. He has already gotten a job

>in his field so he is really happy about that.

>

>Also my daughter is doing better since she had chrons surgery (the

>dr removed a foot of her small intestine ewww) a few months back and

>we are hoping she will continue to do well and the problems will not

>come back for a long time. Also she is up for a promotion at work

>and maybe changing the place she works at to be closer to home.

>

>For me those are two very positive things in my life. I am happy I

>can be there for his graduation and I was glad to make it to her

>surgery ( both things I couldn't have done a year ago) so I feel

>positive about my improvement in some ways at least.

>

>that that thats all for now folks sharon Group Owner

>

_________________________________________________________________

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January 20, 2006

They sound like wonderful kids Rob. Does your oldest take speech

therapy? My son was in that before kindergarden till 2nd grade and

they really helped him a lot. He has a really hard time because of

so many ear infections I think. If he isn't in any classes I'd ask

the school if they had a therapist they should have one and she can

probably help him. Its tough for kids I know when they have trouble

like that. I was really glad the therapist we had made my son feel

like he got to leave class for special time. She was wonderful.

Enjoy your kids you get to do something most dads never get too, see

your kids grow each day. Have fun. Sharon Group Owner

>

> hello,

>

> I pretty much can't work anymore, so I stay at home with my 1

1/2 yr old

> while my other son is in kindergarden. I am really blessed with

two of the

> happiest toddler/boys in the world. they make my day brighter. I

> ignore/put up with so much pain for them and honestly i can get so

involved

> in our activities that i even forget for a moment that i'm

broken. So, I am

> really greateful for my sons (and very supportive wife)

> Really, I guess I have to leave it with my family in general.

They make

> it possible for me to feel like a good husband and a good father.

My son is

> doing so well in school despite a speech problem. My youngest is

so smart

> and growing so fast. I'm very blessed to have this time with

him. I got to

> spend a year with my oldest when he was about the same age, and I

love it.

>

> robb

>

> >From: " darkstarzz1019 " <darkstarzz1019@y...>

> >Reply-neck pain

> >neck pain

> >Subject: good thoughts

> >Date: Fri, 20 Jan 2006 12:56:11 -0000

> >

> >hi everyone, Most of the time we share problems and pain so I

> >thought it would be nice for a change to share things that we can

do

> >or things that are good in our lives. So for a minute think of

the

> >good things you can do that make

> >you feel good about yourself or things that are good in your life

> >and lets share them with others here.

> >

> >I'll start by saying my son is graduation from college (finally

> >next month and I am very proud of him. He has already gotten a job

> >in his field so he is really happy about that.

> >

> >Also my daughter is doing better since she had chrons surgery (the

> >dr removed a foot of her small intestine ewww) a few months back

and

> >we are hoping she will continue to do well and the problems will

not

> >come back for a long time. Also she is up for a promotion at work

> >and maybe changing the place she works at to be closer to home.

> >

> >For me those are two very positive things in my life. I am happy I

> >can be there for his graduation and I was glad to make it to her

> >surgery ( both things I couldn't have done a year ago) so I feel

> >positive about my improvement in some ways at least.

> >

> >that that thats all for now folks sharon Group Owner

> >

>

> _________________________________________________________________

> Don't just search. Find. Check out the new MSN Search!

> http://search.msn.click-url.com/go/onm00200636ave/direct/01/

>

January 21, 2006

Yeah, I love my boys. Gavin started speech last summer before school

started. He gets pulled from class three times a week for speech therapy.

He wouldn't actually need it so much, but he was tongue tied (literally) and

no one said anything and not until a few months ago did we know. So, we

took him in and the doctor snipped that piece of skin under his tongue. He

still has problems though because that's how he's been for so long, but he

is improving.

I really am taking it all in in as positive a manner as i can, if it

wasnt for the money it would be perfect for me. I love spending time with

them. It's a bad time as my career was just taking off, and my wife's is

just starting, she can make a lot of money but it will be several years,

years we've already delt with with my job. I hate starting over, and Im

getting too old to keep going backwards.

its a blessing, its a blessing, its a blessing, its a blessing. its a

blessing..........

robb

>From: " darkstarzz1019 " <darkstarzz1019@...>

>Reply-neck pain

>neck pain

>Subject: Re: good thoughts

>Date: Sat, 21 Jan 2006 01:23:59 -0000

>

>They sound like wonderful kids Rob. Does your oldest take speech

>therapy? My son was in that before kindergarden till 2nd grade and

>they really helped him a lot. He has a really hard time because of

>so many ear infections I think. If he isn't in any classes I'd ask

>the school if they had a therapist they should have one and she can

>probably help him. Its tough for kids I know when they have trouble

>like that. I was really glad the therapist we had made my son feel

>like he got to leave class for special time. She was wonderful.

>Enjoy your kids you get to do something most dads never get too, see

>your kids grow each day. Have fun. Sharon Group Owner

>

> >

> > hello,

> >

> > I pretty much can't work anymore, so I stay at home with my 1

>1/2 yr old

> > while my other son is in kindergarden. I am really blessed with

>two of the

> > happiest toddler/boys in the world. they make my day brighter. I

> > ignore/put up with so much pain for them and honestly i can get so

>involved

> > in our activities that i even forget for a moment that i'm

>broken. So, I am

> > really greateful for my sons (and very supportive wife)

> > Really, I guess I have to leave it with my family in general.

>They make

> > it possible for me to feel like a good husband and a good father.

>My son is

> > doing so well in school despite a speech problem. My youngest is

>so smart

> > and growing so fast. I'm very blessed to have this time with

>him. I got to

> > spend a year with my oldest when he was about the same age, and I

>love it.

> >

> > robb

> >

> > >From: " darkstarzz1019 " <darkstarzz1019@y...>

> > >Reply-neck pain

> > >neck pain

> > >Subject: good thoughts

> > >Date: Fri, 20 Jan 2006 12:56:11 -0000

> > >

> > >hi everyone, Most of the time we share problems and pain so I

> > >thought it would be nice for a change to share things that we can

>do

> > >or things that are good in our lives. So for a minute think of

>the

> > >good things you can do that make

> > >you feel good about yourself or things that are good in your life

> > >and lets share them with others here.

> > >

> > >I'll start by saying my son is graduation from college (finally

> > >next month and I am very proud of him. He has already gotten a job

> > >in his field so he is really happy about that.

> > >

> > >Also my daughter is doing better since she had chrons surgery (the

> > >dr removed a foot of her small intestine ewww) a few months back

>and

> > >we are hoping she will continue to do well and the problems will

>not

> > >come back for a long time. Also she is up for a promotion at work

> > >and maybe changing the place she works at to be closer to home.

> > >

> > >For me those are two very positive things in my life. I am happy I

> > >can be there for his graduation and I was glad to make it to her

> > >surgery ( both things I couldn't have done a year ago) so I feel

> > >positive about my improvement in some ways at least.

> > >

> > >that that thats all for now folks sharon Group Owner

> > >

> >

> > _________________________________________________________________

> > Don't just search. Find. Check out the new MSN Search!

> > http://search.msn.click-url.com/go/onm00200636ave/direct/01/

> >

>

_________________________________________________________________

Don’t just search. Find. Check out the new MSN Search!

http://search.msn.click-url.com/go/onm00200636ave/direct/01/

January 22, 2006

This is such a good idea. I spend so much time dwelling on the things

that I should not. I expected things to be so much different. It is

good to put my thoughts here.

I am still able to home educate my 2 youngest. I love being a part of

their learning. It is so fun to watch as they learn to read or

discover something new and different.

I am also able to be a good friend. I am able to watch one of my

friend's or my sister's kids while they get out for an afternoon or

do what they need to. Especially since they are watching my kids so

much during all my appointments. It is nice to give back.

I can do my own laundry and dishes now. Granted the dishes are

getting done only once a day, but at least they are getting done. I

couldn't walk up and down my stairs for a long time. And now it is

still a struggle, but I have figured out how to get myself and a

basket of laundry up and down the stairs. So I am not completely

dependant on others.My hubby was getting tired of running or driving

me to all my errands so now we have as much as we can delivered i.e.

milk.

I hope to ragain more back, but I am grateful for what I do have.

March 19, 2009

Hey All,

I know I have been a little MIA, this program is slightly killing me, but I have

eight weeks left and then I will be done. I had sent my seminar teacher a link

about MCTD after a couple nights of me coming to class completely zonked. I

didn't want her to feel like I was just blowing off her class but instead wanted

her to understand why I was as tired as I was. She read all about it and after

class on Tuesday said she was sorry to hear that I had to deal with all that and

she was impressed by my attitude even more now knowing what a struggle everyday

life can be for me. I thought it was unbelievably sweet of her to not only read

it but to talk to me about it.

Tomorrow I have an appointment with my immunologist/rheumatologist. I am

slightly worried and I am not sure why. I have been suffering from a chronic

sinus infection since December. I am on Bacterium, an increased dose of

prednisone (blah!!) and several nasal rinses. It's definitely not working and I

know the next step is surgery which I don't want to do because I feel like my

arthritis is finally getting back in control and I just cannot fathom having to

start all over again. I also have a lot of bruising since the increase in pred.

I feel like as I am getting older there are now other concerns that are crossing

my mind. Since I got engaged in December my fiance and I have talked a lot about

our plans for the future. We both want kids (not right now the wedding wont

even be until the summer of 2010) and he knows that because of the autoimmune

stuff it might get complicated. I guess I just need to hear from my doctor what

my future looks like. Can I get pregnant, what complications will I face, is

this going to cut my life short, is there an increased risk of me having cancer

from previous treatments, and is there a possibility I am going to pass this on

to my kids? I have never worried about this stuff before but now that I am

getting older and my life is moving forward I want to know all this. So I am

just asking for some good thoughts for me tomorrow as I go to my appointment and

ask some of the " tough " questions we have to come to face as we get older.

In my heart I feel that my future is bright. I have fought too long and too hard

and have refused to give up. I am engaged to a man I absolutely adore and who

loves me stiff joints and all. I am almost finished with my teaching credential

and my future is looking good, but that what if.. that scares me.

With Love,

(MCTD, 24)

March 20, 2009

:

How did the appointment go?

Beth

" We can't direct the wind, but we can adjust our sails " -author unknown

________________________________

From: Salvucci <lsalvucci42@...>

Sent: Wednesday, March 18, 2009 11:21:40 PM

Subject: Good thoughts