Re: Hot Weather and JRA/Ank Spon

[Guest guest]

,

It just might play a part in it. Heat and humidity will tire you out.

Humidity is water. I would think it's about like rain coming in and acts up on

the joints. so far has complained about how HOT it has been here. In

the 90's already here. She has been tired out to. I do know that the weather

in the north is different than down here in the South. Here it can get so

humid they put a warning out on the News to stay inside. Do not get out in the

heat if you have any Health problems. The way it looks here right now we are

in for a heck of a HOTTTTTTTTTTTTTTTTTTTTTTTT summer. Unless a cold front

comes through. So each be prepared if your coming to Atlanta bring cooooool

clothes. Yesterday was 94 during the day and it was only 74 at night. But to

help

with keeping cool you can always walk across from the Omni and run into the

fountain lolol. Heat itself will drain the energy.

Robbin

[Guest guest]

,

lolol. Your right. lolol I was watching the weather last week. It was HOT

here and dang it was snowing somewhere in the West. I looked at and

said Ok, now this is weird.

The Bible is coming true. said what? I said well in the Bible it

say's you will not know the seasons cause it could be summer but having winter

conditions. She thought a minute and said dang your right lolol

Robbin

[Guest guest]

In a message dated 5/30/2006 12:34:44 P.M. Eastern Daylight Time,

sonia1md@... writes:

You can visit www.accuweather.com type it your zipcode and then

scroll down and it will show you your daily temp and the impact it

has on arthritis...it will show up as a color bar graph ranging from

mild to severe...If you click on today it will give you two graphs

that show both morning and night...I noticed here in Az the impact

tends to be more severe at nighttime than during the day...

For our daughter it seems to be the thunderstorms and changes in

barometric pressure that caused her to flare, although humidity

certainly was a factor when we lived in Illinois.

Hope this helps a bit.

Thank you soooo much! It was very helpful. I shared it with a few family

members also that have " regular " arthritis.

The humidity here is horrible! Right now it's 88* with a 55% humidity.. They

just put our town under a heat advisory, because of the humidity rates

rising.

(

( , 5 ,JRA, AkSp)

[Guest guest]

Hey Robin,

Beat YA!

We had weather in COLD Minnesota at 97 this weekend! It was wonderful,

we spent our days floating on the lake up north! (Don't be alarmed,

next week it could snow!)

________________________________

From: [mailto: ] On

Behalf Of Robbin40@...

Sent: Tuesday, May 30, 2006 9:22 AM

Subject: Re: Hot Weather and JRA/Ank Spon

,

It just might play a part in it. Heat and humidity will tire you

out.

Humidity is water. I would think it's about like rain coming in and

acts up on

the joints. so far has complained about how HOT it has been

here. In

the 90's already here. She has been tired out to. I do know that the

weather

in the north is different than down here in the South. Here it can get

so

humid they put a warning out on the News to stay inside. Do not get out

in the

heat if you have any Health problems. The way it looks here right now we

are

in for a heck of a HOTTTTTTTTTTTTTTTTTTTTTTTT summer. Unless a cold

front

comes through. So each be prepared if your coming to Atlanta bring

cooooool

clothes. Yesterday was 94 during the day and it was only 74 at night.

But to help

with keeping cool you can always walk across from the Omni and run into

the

fountain lolol. Heat itself will drain the energy.

Robbin

[Guest guest]

In a message dated 5/30/2006 2:41:59 P.M. Eastern Daylight Time,

sonia1md@... writes:

55% humidity now that is bad...what did the bar graph show for the

impact on arthiritis today in your home town?

moderate.. Poor came home from school, hopped in the pool(fully

clothed..walked right off the bus, across the yard, and jumped right in the

pool!) and then climbed out came inside and fell asleep!

I did try the rheumy to see if there was anything to make her more

comfortable, but he's not in til tomorrow and I didn't feel it warranted a call

to his

answering service.

So, I'm just letting her sleep for now.

Her teacher did call me and tell me that she didn't play much today...Said

that told her that her legs were " too heavy " today to run.

I don't know..maybe I'm wrong...should I call into the service and have him

paged to call me?

I have no experience with this, and am afraid that I might be making a wrong

decision.

(

[Guest guest]

There are some kids (grown-ups too) that seem to be more " weather

sensitive " than others. There has been quite a bit of study on the

area of weather and its impact on arthritis.

You can visit www.accuweather.com type it your zipcode and then

scroll down and it will show you your daily temp and the impact it

has on arthritis...it will show up as a color bar graph ranging from

mild to severe...If you click on today it will give you two graphs

that show both morning and night...I noticed here in Az the impact

tends to be more severe at nighttime than during the day...

For our daughter it seems to be the thunderstorms and changes in

barometric pressure that caused her to flare, although humidity

certainly was a factor when we lived in Illinois.

Hope this helps a bit.

sonia (aundrea 10 systemic jra)-

-- In , naturesnotionsnj@... wrote:

>

> Hi. I have a question ))

> Does the hot weather seem to affect children with JRA or

Anklosing

> Spondylitis more than other children?

> The last few days in NJ have been brutal heat-wise( summer just

decided to

> pop in without a warning!)and the humidity is horrible.

>

> I've noticed that seems very " worn-out " looking and her

knees have

> been achy. Thankfully she's not complaining of any pain in her

lower back or

> hips(this is where it usually bothers her)

> Her knees aren't swollen or puffy, and I'm hoping that they don't

become so,

> because that entails a visit that includes a needle( her knees

swell to the

> point where she can't bend them and walks like a penguin..poor

thing looks

> like someone stuck an adult size knee on her 37 lb body! and

draining is the

> only thing that seems to offer any relief)

>

> I'm going to call the rheumy today and see what he suggests to do,

but was

> just wondering if any one else experiences this with their kids.

>

> Thanks

> ( , 5 ,JRA, AkSp)

>

>

>

[Guest guest]

michelle,

55% humidity now that is bad...what did the bar graph show for the

impact on arthiritis today in your home town?

sonia (Aundrea 10 systemic jra)

>

>

> In a message dated 5/30/2006 12:34:44 P.M. Eastern Daylight Time,

> sonia1md@... writes:

>

> You can visit www.accuweather.com type it your zipcode and then

> scroll down and it will show you your daily temp and the impact

it

> has on arthritis...it will show up as a color bar graph ranging

from

> mild to severe...If you click on today it will give you two

graphs

> that show both morning and night...I noticed here in Az the

impact

> tends to be more severe at nighttime than during the day...

>

> For our daughter it seems to be the thunderstorms and changes in

> barometric pressure that caused her to flare, although humidity

> certainly was a factor when we lived in Illinois.

>

> Hope this helps a bit.

>

>

>

> Thank you soooo much! It was very helpful. I shared it with a few

family

> members also that have " regular " arthritis.

> The humidity here is horrible! Right now it's 88* with a 55%

humidity.. They

> just put our town under a heat advisory, because of the humidity

rates

> rising.

> (

> ( , 5 ,JRA, AkSp)

>

>

>

[Guest guest]

,

My experience with has been. Get a Pool and let them enjoy it.

was in the pool everyday in the Summer. She also felt better. Aqua

Therapy helps alot. Just keep your eye on her. No 2 kids are alike though so

call

the Dr and ask what to do. did what would make her feel better. If it

was being in that water that's where she would be. If she felt better sitting

in the swing propped up reading a book or listening to the radio. You could

find her enjoying what she did. Tell to make sure she puts on a swim

suit before going in next time lolol. Your doing good though . Your

learning and you make good Judgements. HECK jump in the pool with her lolol.

Robbin

[Guest guest]

Hmmmm,

I guess I would say to call his office first thing in the morning

and let him know how she is doing.

Aundrea also complains of heavy legs...Says that her muscles just

feel so weak...it's always worse when she has been outside...Like

she is just completely drained...reminds me of how I feel when I

have the achey flu.

Just after I wrote you I went home for lunch and Aundrea's face was

as red as a tomatoe...Seems inflamed and warm to the touch. she was

suppose to go the pool this afternoon with a friend but we had to

cancel. I am perplexed. I guess its the sun causing this. Just

not sure what else we can do about it. UGH!

Sure hope Miss is feeling better when she wakes up...I

laughed when I pictured her jumping in the pool..clothes and all.

What joy to be a kid!

(Aundrea 10 systemic jra)---

In , naturesnotionsnj@... wrote:

>

>

> In a message dated 5/30/2006 2:41:59 P.M. Eastern Daylight Time,

> sonia1md@... writes:

>

> 55% humidity now that is bad...what did the bar graph show for

the

> impact on arthiritis today in your home town?

>

>

>

> moderate.. Poor came home from school, hopped in the pool

(fully

> clothed..walked right off the bus, across the yard, and jumped

right in the

> pool!) and then climbed out came inside and fell asleep!

> I did try the rheumy to see if there was anything to make her

more

> comfortable, but he's not in til tomorrow and I didn't feel it

warranted a call to his

> answering service.

> So, I'm just letting her sleep for now.

> Her teacher did call me and tell me that she didn't play much

today...Said

> that told her that her legs were " too heavy " today to run.

> I don't know..maybe I'm wrong...should I call into the service and

have him

> paged to call me?

> I have no experience with this, and am afraid that I might be

making a wrong

> decision.

> (

>

>

>

>

[Guest guest]

:

Your post made me smile. I can picture your little girl jumping in...clothes

and all. I normally share e-mails with Hannah, but I think I'll keep this one

to myself. We just opened our pool yesterday (we live in WI) and I don't wan't

to give her any ideas. LOL.

Beth

Happy thoughs..Be Well

naturesnotionsnj@... wrote:

In a message dated 5/30/2006 2:41:59 P.M. Eastern Daylight Time,

sonia1md@... writes:

55% humidity now that is bad...what did the bar graph show for the

impact on arthiritis today in your home town?

moderate.. Poor came home from school, hopped in the pool(fully

clothed..walked right off the bus, across the yard, and jumped right in the

pool!) and then climbed out came inside and fell asleep!

I did try the rheumy to see if there was anything to make her more

comfortable, but he's not in til tomorrow and I didn't feel it warranted a call

to his

answering service.

So, I'm just letting her sleep for now.

Her teacher did call me and tell me that she didn't play much today...Said

that told her that her legs were " too heavy " today to run.

I don't know..maybe I'm wrong...should I call into the service and have him

paged to call me?

I have no experience with this, and am afraid that I might be making a wrong

decision.

(

[Guest guest]

,

I know this is late but my hard drive killed itself around the 12th of May

and trying to play catch up without reading all 600+ e-mails.

Hot and cold haven't been a proven culprit but the rise and fall in

barometric pressure has been.

I can't remember which is which but can only assume when the pressure rises

the pressure inside the joints rises and when the pressure falls the pressure

inside the joints fall.

I haven't read your intro yet and I would remember a princess with JRA and

spondy but just know it can take quite a while to the find the right med/meds

and dosages to bring consistant long lasting relief.

I know all to well that with young ones you worry more then if they were

older but the harder and quicker you attack Arthur the less likely Arthur will

permenately attack you child.

My warrior will be 8 July 24th and has been sick now for 5 yrs with a

tentitive diagnosis June 22nd 2001 after only 21 days from onset,it took another

3

weeks to make it official.

His miricle coctail was 25mg MTX subq,200mg Plaquenil daily,300mg Ibuprofin

3xdaily,pred dose ranging from 30mg to 6mg and 25mg Enbrel subq 1xweekly.

He now and has been for ages takes 12.5mg MTX oral,after coming completely

off and having troubles, and 25mg Enbrel subq and thats it.He gets shin pain at

night quite often but a 200mg Motrin knocks it right out and if I don't give

he still wakes up just fine.

I wish you and your little JRA/Spondy child some much welcome relief.

Hugs

Becki and 7 systemic