RE: Question regarding lymph nodes

[Guest guest]

Val,

Aundrea often suffers with swollen lymph nodes in her neck whenever

she is having a jra flare. She describs the pain as " spikey " and

not the same as a sorethroat. In the beginning of her disease I

would often run her to the ped thinking she had strep. they would

run tests and nothing would show up. She wouldn't have other

symptoms other than her jra issues.

I know 's dtr. n also had the sorethroat issues and when

she explained this to me I was finally able to realize what was

going on. If it is jra related then no amount of antibiotics is

likely to help. (at least it didn't in our case)

We just did lots of popsicles, soup, smoothies...until the flare

passed.

I believe that the swollen lymph nodes/sorethroats is more often

associated with adult onset stills disease (systemic) but obviously

it can happen in kids as well.

Sure hope she gets to feeling better soon.

(aundrea 10 systemic jra)--

- In , " darksun1889 " <darksun1889@...> wrote:

>

> Marissa has been home from school this week with swollen lymph

nodes

> in her neck. This is the thrid time that this has happened in as

> many months. She does have pain, well more tingling and strange

> feeling, when swallowing but different than a sore throat and in a

> different place, more to the front. She tests negative each time

for

> strep and her pedi says her throat looks fine and that she must

have

> a sinus infection. He has treated her for a sinus infection each

> time and each time the antibiotic didnt' work and we needs to do a

> second course before it got better. Another words it took about

15-

> 20 to get better. I am not sure if it was the antibiotics or just

> time since it is popping up again jsut a fee weeks later. We are

> experienceing the same thing this time. We are 5 days into the

> antibiotic with no change. She has no other symptoms that

correlate

> to sinus infection, generally, although this time she has a slight

> cold but she didnt the other times. At this point her lymph nodes

> towrads the back are swollen too. It seems to be getting worse.

> And strangely enough, her eyes (she has keratitis, joints, and

belly

> seemed to be bothering her as well.

>

> Marissa rheumotolgy diagnosis at this point is Arthropathy

> undefined. Could this be something to do with arthritis? I did

> read on one website that swollen lymph nodes in the neck could be

a

> symptoms of JRA. Then again the ped rheum didn't think this was

JRA

> at least the last time we saw him.

>

> Do you things this is something worse watching and mentioning to

the

> rheum or do you think this is just a sinus infection or some

another

> childhood virus?

>

> Any advice or information would be appreciated.

>

> Thanks, Val

>

[Guest guest]

In reading these posts, I have a question too. Kaylee has been hoarse over a

week now. She says her throat doesn't hurt. Could this be JRA related? She

hasn't had a cold or anything, just hoarse. I appreciate all replies.

Thanks

and Kaylee, 3 1/2 poly

Re: Question regarding lymph nodes

Val,

Aundrea often suffers with swollen lymph nodes in her neck whenever

she is having a jra flare. She describs the pain as " spikey " and

not the same as a sorethroat. In the beginning of her disease I

would often run her to the ped thinking she had strep. they would

run tests and nothing would show up. She wouldn't have other

symptoms other than her jra issues.

I know 's dtr. n also had the sorethroat issues and when

she explained this to me I was finally able to realize what was

going on. If it is jra related then no amount of antibiotics is

likely to help. (at least it didn't in our case)

We just did lots of popsicles, soup, smoothies...until the flare

passed.

I believe that the swollen lymph nodes/sorethroats is more often

associated with adult onset stills disease (systemic) but obviously

it can happen in kids as well.

Sure hope she gets to feeling better soon.

(aundrea 10 systemic jra)--

- In , " darksun1889 " <darksun1889@...> wrote:

>

> Marissa has been home from school this week with swollen lymph

nodes

> in her neck. This is the thrid time that this has happened in as

> many months. She does have pain, well more tingling and strange

> feeling, when swallowing but different than a sore throat and in a

> different place, more to the front. She tests negative each time

for

> strep and her pedi says her throat looks fine and that she must

have

> a sinus infection. He has treated her for a sinus infection each

> time and each time the antibiotic didnt' work and we needs to do a

> second course before it got better. Another words it took about

15-

> 20 to get better. I am not sure if it was the antibiotics or just

> time since it is popping up again jsut a fee weeks later. We are

> experienceing the same thing this time. We are 5 days into the

> antibiotic with no change. She has no other symptoms that

correlate

> to sinus infection, generally, although this time she has a slight

> cold but she didnt the other times. At this point her lymph nodes

> towrads the back are swollen too. It seems to be getting worse.

> And strangely enough, her eyes (she has keratitis, joints, and

belly

> seemed to be bothering her as well.

>

> Marissa rheumotolgy diagnosis at this point is Arthropathy

> undefined. Could this be something to do with arthritis? I did

> read on one website that swollen lymph nodes in the neck could be

a

> symptoms of JRA. Then again the ped rheum didn't think this was

JRA

> at least the last time we saw him.

>

> Do you things this is something worse watching and mentioning to

the

> rheum or do you think this is just a sinus infection or some

another

> childhood virus?

>

> Any advice or information would be appreciated.

>

> Thanks, Val

>

[Guest guest]

,

When Aundrea has swollen lymphnodes and sore throat pain she will

often whisper. She said that its more painful when she uses her

voice. I don't think she is technically " hoarse " but just

compensating for the pain of speaking.

Hopefully you will get to the bottom of this soon!

(Aundrea 10 systemic jra)-

-- In , maydo65@... wrote:

>

> In reading these posts, I have a question too. Kaylee has been

hoarse over a week now. She says her throat doesn't hurt. Could this

be JRA related? She hasn't had a cold or anything, just hoarse. I

appreciate all replies.

> Thanks

> and Kaylee, 3 1/2 poly

>

> Re: Question regarding lymph nodes

>

>

> Val,

>

> Aundrea often suffers with swollen lymph nodes in her neck

whenever

> she is having a jra flare. She describs the pain as " spikey " and

> not the same as a sorethroat. In the beginning of her disease I

> would often run her to the ped thinking she had strep. they would

> run tests and nothing would show up. She wouldn't have other

> symptoms other than her jra issues.

>

> I know 's dtr. n also had the sorethroat issues and when

> she explained this to me I was finally able to realize what was

> going on. If it is jra related then no amount of antibiotics is

> likely to help. (at least it didn't in our case)

>

> We just did lots of popsicles, soup, smoothies...until the flare

> passed.

>

> I believe that the swollen lymph nodes/sorethroats is more often

> associated with adult onset stills disease (systemic) but

obviously

> it can happen in kids as well.

>

> Sure hope she gets to feeling better soon.

>

> (aundrea 10 systemic jra)--

>

>

> - In , " darksun1889 " <darksun1889@> wrote:

> >

> > Marissa has been home from school this week with swollen lymph

> nodes

> > in her neck. This is the thrid time that this has happened in

as

> > many months. She does have pain, well more tingling and strange

> > feeling, when swallowing but different than a sore throat and in

a

> > different place, more to the front. She tests negative each time

> for

> > strep and her pedi says her throat looks fine and that she must

> have

> > a sinus infection. He has treated her for a sinus infection

each

> > time and each time the antibiotic didnt' work and we needs to do

a

> > second course before it got better. Another words it took about

> 15-

> > 20 to get better. I am not sure if it was the antibiotics or

just

> > time since it is popping up again jsut a fee weeks later. We

are

> > experienceing the same thing this time. We are 5 days into the

> > antibiotic with no change. She has no other symptoms that

> correlate

> > to sinus infection, generally, although this time she has a

slight

> > cold but she didnt the other times. At this point her lymph

nodes

> > towrads the back are swollen too. It seems to be getting

worse.

> > And strangely enough, her eyes (she has keratitis, joints, and

> belly

> > seemed to be bothering her as well.

> >

> > Marissa rheumotolgy diagnosis at this point is Arthropathy

> > undefined. Could this be something to do with arthritis? I did

> > read on one website that swollen lymph nodes in the neck could

be

> a

> > symptoms of JRA. Then again the ped rheum didn't think this was

> JRA

> > at least the last time we saw him.

> >

> > Do you things this is something worse watching and mentioning to

> the

> > rheum or do you think this is just a sinus infection or some

> another

> > childhood virus?

> >

> > Any advice or information would be appreciated.

> >

> > Thanks, Val

> >

>

>

>

>

>

>

>

>

[Guest guest]

What medication is she on?

Question regarding lymph nodes

Marissa has been home from school this week with swollen lymph nodes

in her neck. This is the thrid time that this has happened in as

many months. She does have pain, well more tingling and strange

feeling, when swallowing but different than a sore throat and in a

different place, more to the front. She tests negative each time for

strep and her pedi says her throat looks fine and that she must have

a sinus infection. He has treated her for a sinus infection each

time and each time the antibiotic didnt' work and we needs to do a

second course before it got better. Another words it took about 15-

20 to get better. I am not sure if it was the antibiotics or just

time since it is popping up again jsut a fee weeks later. We are

experienceing the same thing this time. We are 5 days into the

antibiotic with no change. She has no other symptoms that correlate

to sinus infection, generally, although this time she has a slight

cold but she didnt the other times. At this point her lymph nodes

towrads the back are swollen too. It seems to be getting worse.

And strangely enough, her eyes (she has keratitis, joints, and belly

seemed to be bothering her as well.

Marissa rheumotolgy diagnosis at this point is Arthropathy

undefined. Could this be something to do with arthritis? I did

read on one website that swollen lymph nodes in the neck could be a

symptoms of JRA. Then again the ped rheum didn't think this was JRA

at least the last time we saw him.

Do you things this is something worse watching and mentioning to the

rheum or do you think this is just a sinus infection or some another

childhood virus?

Any advice or information would be appreciated.

Thanks, Val

[Guest guest]

She is on Celebrex. She is on a lot of other medicaitons but she

has been on them for a long time.

Val

>

> What medication is she on?

>

> Question regarding lymph nodes

>

>

> Marissa has been home from school this week with swollen lymph

nodes

> in her neck. This is the thrid time that this has happened in as

> many months. She does have pain, well more tingling and strange

> feeling, when swallowing but different than a sore throat and in a

> different place, more to the front. She tests negative each time

for

> strep and her pedi says her throat looks fine and that she must

have

> a sinus infection. He has treated her for a sinus infection each

> time and each time the antibiotic didnt' work and we needs to do a

> second course before it got better. Another words it took about

15-

> 20 to get better. I am not sure if it was the antibiotics or just

> time since it is popping up again jsut a fee weeks later. We are

> experienceing the same thing this time. We are 5 days into the

> antibiotic with no change. She has no other symptoms that

correlate

> to sinus infection, generally, although this time she has a slight

> cold but she didnt the other times. At this point her lymph nodes

> towrads the back are swollen too. It seems to be getting worse.

> And strangely enough, her eyes (she has keratitis, joints, and

belly

> seemed to be bothering her as well.

>

> Marissa rheumotolgy diagnosis at this point is Arthropathy

> undefined. Could this be something to do with arthritis? I did

> read on one website that swollen lymph nodes in the neck could be

a

> symptoms of JRA. Then again the ped rheum didn't think this was

JRA

> at least the last time we saw him.

>

> Do you things this is something worse watching and mentioning to

the

> rheum or do you think this is just a sinus infection or some

another

> childhood virus?

>

> Any advice or information would be appreciated.

>

> Thanks, Val

>

>

>

>

>

>

>

>

[Guest guest]

What type of arthritis does your daughter have? With my psoriatic

arthritis I get painful swollen lymph nodes in the back of my neck. My

doc said this is the area where the head drains and with the psoriasis

on my scalp, it doesn't do it's job properly. I have a medicine

(Lidex) that tends to help. Hope this helps! 's MOM

[Guest guest]

Hi All,

On the lymph nodes. had swollen nodes under her arms and at the

neck. I never knew just how many a body has. still has the swelling

nodes from time to time. She's given antibotic's and this helps.

Robbin

[Guest guest]

We don't have a specific diagnosis. She ahs been diagnosed with

arthritis but the type is undefine. Dr. Passo fels that it is

enteropathic arthitis which is arthritis that is seen in pateitns with

Inflammatory Bowel Diseases. My children have Eosinophilic Enteropathy

which is an inflammatory disease but not classified as an IBD and

studies have not links arthritis with eosinophilic disorders.

Val

>

> What type of arthritis does your daughter have? With my psoriatic

> arthritis I get painful swollen lymph nodes in the back of my neck.

My

> doc said this is the area where the head drains and with the

psoriasis

> on my scalp, it doesn't do it's job properly. I have a medicine

> (Lidex) that tends to help. Hope this helps! 's MOM

>

[Guest guest]

Val,

I just met with a lady this week whose daughter was likely to be

diagnosed with some type of jra and she also recently found out that

her dtr has IBD. She was meeting with the rheumy for the first time

today. Her daughter is 10 and just recently began to have problems

with joint pain etc....I have invited her to this board and maybe

the two of you could connect. Her name is .

(Aundrea 10 systemic jra)-

-- In , " darksun1889 " <darksun1889@...>

wrote:

>

> We don't have a specific diagnosis. She ahs been diagnosed with

> arthritis but the type is undefine. Dr. Passo fels that it is

> enteropathic arthitis which is arthritis that is seen in pateitns

with

> Inflammatory Bowel Diseases. My children have Eosinophilic

Enteropathy

> which is an inflammatory disease but not classified as an IBD and

> studies have not links arthritis with eosinophilic disorders.

>

>

> Val

>

> >

> > What type of arthritis does your daughter have? With my

psoriatic

> > arthritis I get painful swollen lymph nodes in the back of my

neck.

> My

> > doc said this is the area where the head drains and with the

> psoriasis

> > on my scalp, it doesn't do it's job properly. I have a medicine

> > (Lidex) that tends to help. Hope this helps! 's MOM

> >

>

[Guest guest]

Thanks, that would be great.

Val

> > >

> > > What type of arthritis does your daughter have? With my

> psoriatic

> > > arthritis I get painful swollen lymph nodes in the back of my

> neck.

> > My

> > > doc said this is the area where the head drains and with the

> > psoriasis

> > > on my scalp, it doesn't do it's job properly. I have a

medicine

> > > (Lidex) that tends to help. Hope this helps! 's MOM

> > >

> >

>