Re: I'm the one needing modifications

[Guest guest]

Hi Candida and welcome. Gang this a dear, dear friend of mine from our local

group. I have advised her you are the best folks on the planet and have more

knowledge that the so called professionals. In this group you find so much

help, friends you never knew you had and may never even meet but the most

supportive, knowledgeable, compassionate folks ever! Welcome aboard!

Donna

[Guest guest]

First I want to let you know that you can legally requested a team

meeting to review/revise the IEP when ever you feel like it.

Secondly, she does not need to qualify for other heath impaired if

she is already on and IEP but I can assure that she would.

Thirdly, the IEP is a binding legal contract which is confidential

and can only be reviewed by teachers/personal that have a reason to

review, i.e. teachers that work with your daughter, or other

personnel that works with your daughter. It is require to be in a

secure place where it can be access when needed by special

education. If the school has misplaced it they have violate the law.

Every state has an office to file an official complaint. If they

can find it and refuse to have a meeting the first thing I would do

s contact that office. If you can find the information on where to

call I am sure I can help you find out. It should be in your parent

rights brochure, which the school in legally obligated to give you

at each meeting.

As for accommodation and modifications you can have many things done

and yes you should spell them all out. I feel it is better to have

an accommodation in the IEP and never use it than not have it and

need it.

Some of the things you can have are:

Excused from PE, modified PE or flexibility to attend PE as she feel

up to it or on a limited basis as well as having the program more

catered to her needs.

You can have it so someone needs to be available to assist her

during lunch and/or other times when she may need help with tasks

that require fine motor skills which would be difficult due to her

arthritis.

Homebound

In school resource room time as needed to keep her up to date.

additional time on work and tests

a scribe

abbreviate assignments

excused absences, tardies and dismissals

free use of clinic/nurse office to rest as needed

preferential seating

occupational therapy and physical therapy if disability is affected

her fine or gross motor skills

oral testing/assignment instead of writing

sunglasses worn inside and outside if eyes have inflammation -

photophobia

special care taken for cuts and scrapes and/or injuries .. specific

instruction according to child's needs

precaution taken for child when other children are in ill in class

such as calling parents regarding their child and remove the ill

child from the classroom

notified of any contagious illness going through the school

take extra precaution such as extra hand washing with children in

classroom to avoid illness

the list can go on and on but I can't at this moment because I have

to get to a doctors appointment. If I can be of any assistance at

all please feel free to post on this board or email me privately at

darksun1889@...

Val

>

> Hello gang.

> I apologize if my story appears more than once. I posted once and

it

> didn't seem to appear. I have a daughter, age seven. She is on

> homebound at this point only after me feeling be-littled. There

was

> a confirmed case of the flu in my daughters room, The little boy

was

> left in the room about four or so hours running a high fever. They

> couldn't reach his parents until later in the day. I was not

> notified until the next day. I called her ped. and she recomended

> homebound until the flu season pasted. When I went to pick her up

I

> was threatened with social services, and DPP. Mind you my child

has

> no unexcused abscenses and only two parent notes (grandparent

death

> and dad having surgery). I was told to read a article in the

local

> paper about attendance and state funding. It was then recommended

by

> the ped. to revise IEP to accomodate JRA and homebound, so that I

> would not be treated this way anymore. They can't find her IEP at

> this point I have a copy. So I called and got the meeting

scheduled

> for Thursday and now there telling me that they do not know if she

> will be covered by IEP under OHI. The only thing that is on there

now

> is speech therapy and to accomodate the JRA as needed. But now

that

> all the topic has come up and I just had general conversation with

my

> daughter. She was stuffed under he rdesk dearing a earthquake

drill

> after she told them it hurt, It hurts to color, she can't open her

> milk and if a friend isn't close by that she feels comfortable

with

> she just don't drink at lunch, it hurts to sit in the floor for

> testing, reading, etc. It hurts to sit on scooters during gym. I

was

> told today that she functioned fine at school. That's what they

see

> because she won't complain and the don't want to deal with it. Am

I

> overreacting??????? Mind you these are the same people that will

not

> excuse her from PE one day with a parent note, and sent her to the

> playground after extract and inject on both knees against doctors

> orders. And I met and explained everything three different times

on

> this. Before during and after. ANY AND ALL HELP WILL BE

APPRECIATED

> AND I THANK YOU UP FRONT. ANY IDEAS ON WHAT TO LIST IN

IPE?????????

> THANKS

>

[Guest guest]

On the nurses office we opted the guidance counselors room. Most kids with Jra

have immune-suppression and that is the worst place to go if you ask me. Terri

Re: I'm the one needing modifications

First I want to let you know that you can legally requested a team

meeting to review/revise the IEP when ever you feel like it.

Secondly, she does not need to qualify for other heath impaired if

she is already on and IEP but I can assure that she would.

Thirdly, the IEP is a binding legal contract which is confidential

and can only be reviewed by teachers/personal that have a reason to

review, i.e. teachers that work with your daughter, or other

personnel that works with your daughter. It is require to be in a

secure place where it can be access when needed by special

education. If the school has misplaced it they have violate the law.

Every state has an office to file an official complaint. If they

can find it and refuse to have a meeting the first thing I would do

s contact that office. If you can find the information on where to

call I am sure I can help you find out. It should be in your parent

rights brochure, which the school in legally obligated to give you

at each meeting.

As for accommodation and modifications you can have many things done

and yes you should spell them all out. I feel it is better to have

an accommodation in the IEP and never use it than not have it and

need it.

Some of the things you can have are:

Excused from PE, modified PE or flexibility to attend PE as she feel

up to it or on a limited basis as well as having the program more

catered to her needs.

You can have it so someone needs to be available to assist her

during lunch and/or other times when she may need help with tasks

that require fine motor skills which would be difficult due to her

arthritis.

Homebound

In school resource room time as needed to keep her up to date.

additional time on work and tests

a scribe

abbreviate assignments

excused absences, tardies and dismissals

free use of clinic/nurse office to rest as needed

preferential seating

occupational therapy and physical therapy if disability is affected

her fine or gross motor skills

oral testing/assignment instead of writing

sunglasses worn inside and outside if eyes have inflammation -

photophobia

special care taken for cuts and scrapes and/or injuries .. specific

instruction according to child's needs

precaution taken for child when other children are in ill in class

such as calling parents regarding their child and remove the ill

child from the classroom

notified of any contagious illness going through the school

take extra precaution such as extra hand washing with children in

classroom to avoid illness

the list can go on and on but I can't at this moment because I have

to get to a doctors appointment. If I can be of any assistance at

all please feel free to post on this board or email me privately at

darksun1889@...

Val

>

> Hello gang.

> I apologize if my story appears more than once. I posted once and

it

> didn't seem to appear. I have a daughter, age seven. She is on

> homebound at this point only after me feeling be-littled. There

was

> a confirmed case of the flu in my daughters room, The little boy

was

> left in the room about four or so hours running a high fever. They

> couldn't reach his parents until later in the day. I was not

> notified until the next day. I called her ped. and she recomended

> homebound until the flu season pasted. When I went to pick her up

I

> was threatened with social services, and DPP. Mind you my child

has

> no unexcused abscenses and only two parent notes (grandparent

death

> and dad having surgery). I was told to read a article in the

local

> paper about attendance and state funding. It was then recommended

by

> the ped. to revise IEP to accomodate JRA and homebound, so that I

> would not be treated this way anymore. They can't find her IEP at

> this point I have a copy. So I called and got the meeting

scheduled

> for Thursday and now there telling me that they do not know if she

> will be covered by IEP under OHI. The only thing that is on there

now

> is speech therapy and to accomodate the JRA as needed. But now

that

> all the topic has come up and I just had general conversation with

my

> daughter. She was stuffed under he rdesk dearing a earthquake

drill

> after she told them it hurt, It hurts to color, she can't open her

> milk and if a friend isn't close by that she feels comfortable

with

> she just don't drink at lunch, it hurts to sit in the floor for

> testing, reading, etc. It hurts to sit on scooters during gym. I

was

> told today that she functioned fine at school. That's what they

see

> because she won't complain and the don't want to deal with it. Am

I

> overreacting??????? Mind you these are the same people that will

not

> excuse her from PE one day with a parent note, and sent her to the

> playground after extract and inject on both knees against doctors

> orders. And I met and explained everything three different times

on

> this. Before during and after. ANY AND ALL HELP WILL BE

APPRECIATED

> AND I THANK YOU UP FRONT. ANY IDEAS ON WHAT TO LIST IN

IPE?????????

> THANKS

>

[Guest guest]

Request a 504 meeting. Children hospital set us up with a advocate to help get

us through the process. Our school was not disability friendly we spent most of

the year trying to get the 504 after an advocate helped us we were able to get

it. This may help you too. Terri

Re: I'm the one needing modifications

First I want to let you know that you can legally requested a team

meeting to review/revise the IEP when ever you feel like it.

Secondly, she does not need to qualify for other heath impaired if

she is already on and IEP but I can assure that she would.

Thirdly, the IEP is a binding legal contract which is confidential

and can only be reviewed by teachers/personal that have a reason to

review, i.e. teachers that work with your daughter, or other

personnel that works with your daughter. It is require to be in a

secure place where it can be access when needed by special

education. If the school has misplaced it they have violate the law.

Every state has an office to file an official complaint. If they

can find it and refuse to have a meeting the first thing I would do

s contact that office. If you can find the information on where to

call I am sure I can help you find out. It should be in your parent

rights brochure, which the school in legally obligated to give you

at each meeting.

As for accommodation and modifications you can have many things done

and yes you should spell them all out. I feel it is better to have

an accommodation in the IEP and never use it than not have it and

need it.

Some of the things you can have are:

Excused from PE, modified PE or flexibility to attend PE as she feel

up to it or on a limited basis as well as having the program more

catered to her needs.

You can have it so someone needs to be available to assist her

during lunch and/or other times when she may need help with tasks

that require fine motor skills which would be difficult due to her

arthritis.

Homebound

In school resource room time as needed to keep her up to date.

additional time on work and tests

a scribe

abbreviate assignments

excused absences, tardies and dismissals

free use of clinic/nurse office to rest as needed

preferential seating

occupational therapy and physical therapy if disability is affected

her fine or gross motor skills

oral testing/assignment instead of writing

sunglasses worn inside and outside if eyes have inflammation -

photophobia

special care taken for cuts and scrapes and/or injuries .. specific

instruction according to child's needs

precaution taken for child when other children are in ill in class

such as calling parents regarding their child and remove the ill

child from the classroom

notified of any contagious illness going through the school

take extra precaution such as extra hand washing with children in

classroom to avoid illness

the list can go on and on but I can't at this moment because I have

to get to a doctors appointment. If I can be of any assistance at

all please feel free to post on this board or email me privately at

darksun1889@...

Val

>

> Hello gang.

> I apologize if my story appears more than once. I posted once and

it

> didn't seem to appear. I have a daughter, age seven. She is on

> homebound at this point only after me feeling be-littled. There

was

> a confirmed case of the flu in my daughters room, The little boy

was

> left in the room about four or so hours running a high fever. They

> couldn't reach his parents until later in the day. I was not

> notified until the next day. I called her ped. and she recomended

> homebound until the flu season pasted. When I went to pick her up

I

> was threatened with social services, and DPP. Mind you my child

has

> no unexcused abscenses and only two parent notes (grandparent

death

> and dad having surgery). I was told to read a article in the

local

> paper about attendance and state funding. It was then recommended

by

> the ped. to revise IEP to accomodate JRA and homebound, so that I

> would not be treated this way anymore. They can't find her IEP at

> this point I have a copy. So I called and got the meeting

scheduled

> for Thursday and now there telling me that they do not know if she

> will be covered by IEP under OHI. The only thing that is on there

now

> is speech therapy and to accomodate the JRA as needed. But now

that

> all the topic has come up and I just had general conversation with

my

> daughter. She was stuffed under he rdesk dearing a earthquake

drill

> after she told them it hurt, It hurts to color, she can't open her

> milk and if a friend isn't close by that she feels comfortable

with

> she just don't drink at lunch, it hurts to sit in the floor for

> testing, reading, etc. It hurts to sit on scooters during gym. I

was

> told today that she functioned fine at school. That's what they

see

> because she won't complain and the don't want to deal with it. Am

I

> overreacting??????? Mind you these are the same people that will

not

> excuse her from PE one day with a parent note, and sent her to the

> playground after extract and inject on both knees against doctors

> orders. And I met and explained everything three different times

on

> this. Before during and after. ANY AND ALL HELP WILL BE

APPRECIATED

> AND I THANK YOU UP FRONT. ANY IDEAS ON WHAT TO LIST IN

IPE?????????

> THANKS

>

[Guest guest]

If you already ahve an IEP you automactically qualifify for all 504

plan modifications but the reverese is not true. If you already

have an IEP you just have to get it more specific for your needs.

You can not get a 504 instead nor would it be helpful to go

backwards.

I am not trying to be negative and I hope it is not taking that

way. I am just trying to help clarify things. I do help advocatie

for children with special needs for IEPs and 504s so I need to need

the laws.

Val

> >

> > Hello gang.

> > I apologize if my story appears more than once. I posted once

and

> it

> > didn't seem to appear. I have a daughter, age seven. She is

on

> > homebound at this point only after me feeling be-littled.

There

> was

> > a confirmed case of the flu in my daughters room, The little

boy

> was

> > left in the room about four or so hours running a high fever.

They

> > couldn't reach his parents until later in the day. I was not

> > notified until the next day. I called her ped. and she

recomended

> > homebound until the flu season pasted. When I went to pick

her up

> I

> > was threatened with social services, and DPP. Mind you my

child

> has

> > no unexcused abscenses and only two parent notes (grandparent

> death

> > and dad having surgery). I was told to read a article in the

> local

> > paper about attendance and state funding. It was then

recommended

> by

> > the ped. to revise IEP to accomodate JRA and homebound, so

that I

> > would not be treated this way anymore. They can't find her

IEP at

> > this point I have a copy. So I called and got the meeting

> scheduled

> > for Thursday and now there telling me that they do not know if

she

> > will be covered by IEP under OHI. The only thing that is on

there

> now

> > is speech therapy and to accomodate the JRA as needed. But

now

> that

> > all the topic has come up and I just had general conversation

with

> my

> > daughter. She was stuffed under he rdesk dearing a earthquake

> drill

> > after she told them it hurt, It hurts to color, she can't open

her

> > milk and if a friend isn't close by that she feels comfortable

> with

> > she just don't drink at lunch, it hurts to sit in the floor

for

> > testing, reading, etc. It hurts to sit on scooters during gym.

I

> was

> > told today that she functioned fine at school. That's what

they

> see

> > because she won't complain and the don't want to deal with it.

Am

> I

> > overreacting??????? Mind you these are the same people that

will

> not

> > excuse her from PE one day with a parent note, and sent her to

the

> > playground after extract and inject on both knees against

doctors

> > orders. And I met and explained everything three different

times

> on

> > this. Before during and after. ANY AND ALL HELP WILL BE

> APPRECIATED

> > AND I THANK YOU UP FRONT. ANY IDEAS ON WHAT TO LIST IN

> IPE?????????

> > THANKS

> >

>

>

>

>

>

>

>

[Guest guest]

Val,

I think we need to clarify.

Accommodations that are often in 504s can be written into an IEP. However,

having an IEP does not mean that one qualifies for all accommodations.

Accommodations are based on the needs of the child.

Also, the IDEA laws have recently been changed. IDEA 2004 is now the law.

There are some changes in the new laws so we all need to do our homework.

The regs are not yet finalized; that should happen in the next few months.

An excellent website is www.wrightslaw.com <http://www.wrightslaw.com/> .

You can sign up there for an online newsletter. They provide all kinds of

info and training. Definitely worth looking into.

Liz

_____

From: [mailto: ] On Behalf

Of darksun1889

Sent: Wednesday, March 29, 2006 6:29 PM

Subject: Re: I'm the one needing modifications

If you already ahve an IEP you automactically qualifify for all 504

plan modifications but the reverese is not true. If you already

have an IEP you just have to get it more specific for your needs.

You can not get a 504 instead nor would it be helpful to go

backwards.

I am not trying to be negative and I hope it is not taking that

way. I am just trying to help clarify things. I do help advocatie

for children with special needs for IEPs and 504s so I need to need

the laws.

Val

> >

> > Hello gang.

> > I apologize if my story appears more than once. I posted once

and

> it

> > didn't seem to appear. I have a daughter, age seven. She is

on

> > homebound at this point only after me feeling be-littled.

There

> was

> > a confirmed case of the flu in my daughters room, The little

boy

> was

> > left in the room about four or so hours running a high fever.

They

> > couldn't reach his parents until later in the day. I was not

> > notified until the next day. I called her ped. and she

recomended

> > homebound until the flu season pasted. When I went to pick

her up

> I

> > was threatened with social services, and DPP. Mind you my

child

> has

> > no unexcused abscenses and only two parent notes (grandparent

> death

> > and dad having surgery). I was told to read a article in the

> local

> > paper about attendance and state funding. It was then

recommended

> by

> > the ped. to revise IEP to accomodate JRA and homebound, so

that I

> > would not be treated this way anymore. They can't find her

IEP at

> > this point I have a copy. So I called and got the meeting

> scheduled

> > for Thursday and now there telling me that they do not know if

she

> > will be covered by IEP under OHI. The only thing that is on

there

> now

> > is speech therapy and to accomodate the JRA as needed. But

now

> that

> > all the topic has come up and I just had general conversation

with

> my

> > daughter. She was stuffed under he rdesk dearing a earthquake

> drill

> > after she told them it hurt, It hurts to color, she can't open

her

> > milk and if a friend isn't close by that she feels comfortable

> with

> > she just don't drink at lunch, it hurts to sit in the floor

for

> > testing, reading, etc. It hurts to sit on scooters during gym.

I

> was

> > told today that she functioned fine at school. That's what

they

> see

> > because she won't complain and the don't want to deal with it.

Am

> I

> > overreacting??????? Mind you these are the same people that

will

> not

> > excuse her from PE one day with a parent note, and sent her to

the

> > playground after extract and inject on both knees against

doctors

> > orders. And I met and explained everything three different

times

> on

> > this. Before during and after. ANY AND ALL HELP WILL BE

> APPRECIATED

> > AND I THANK YOU UP FRONT. ANY IDEAS ON WHAT TO LIST IN

> IPE?????????

> > THANKS

> >

>

>

>

>

>

>

>

[Guest guest]

If the school really thinks that leaving an obviously ill child in the

classroom makes sense then I have to wonder what kind of folks are being

hired to run the schools!! Of course the kid couldn't go home when nobody

could be reached and I don't know if your school has a full time nurse or

clinic aide. Surely, though, someone could have found a better place for

that child than in the classroom. It's not fair to the child, the teacher or

any of the other kids for the sick one to be left in there.

For gym class your daughter should be able to self limit if that's what her

rheumatologist has suggested. If coloring is an issue then there should be a

way to pick and choose what she colors. Sometimes coloring is necessary for

academics but at other times it is more for appearance and/or fine motor

practice. Fine motor skills are important, but your daughter's joint

problems do need to be taken into consideration. Sitting on the floor during

class is a no brainer~~ she should be provided a chair on which to sit. Has

your rheumatologist written a letter detailing what should and should not be

done? If not, please request one ASAP. That letter can make all the

difference in the world. Do you have anyone going to your meeting with you?

If not, please find a trusted friend or relative and ask that person to join

you. You are legally permitted to bring anyone you choose to the meeting.

Most importantly, DO NOT sign the papers if you do not understand or do not

agree with them. Tell the school that you will review them with _____ and

will bring your copies back in a day or two. You do not have to sign

anything right then and there.

Good luck tomorrow,

Liz

_____

From: [mailto: ] On Behalf

Of keepinfaithe

Sent: Wednesday, March 29, 2006 12:12 AM

Subject: I'm the one needing modifications

Hello gang.

I apologize if my story appears more than once. I posted once and it

didn't seem to appear. I have a daughter, age seven. She is on

homebound at this point only after me feeling be-littled. There was

a confirmed case of the flu in my daughters room, The little boy was

left in the room about four or so hours running a high fever. They

couldn't reach his parents until later in the day. I was not

notified until the next day. I called her ped. and she recomended

homebound until the flu season pasted. When I went to pick her up I

was threatened with social services, and DPP. Mind you my child has

no unexcused abscenses and only two parent notes (grandparent death

and dad having surgery). I was told to read a article in the local

paper about attendance and state funding. It was then recommended by

the ped. to revise IEP to accomodate JRA and homebound, so that I

would not be treated this way anymore. They can't find her IEP at

this point I have a copy. So I called and got the meeting scheduled

for Thursday and now there telling me that they do not know if she

will be covered by IEP under OHI. The only thing that is on there now

is speech therapy and to accomodate the JRA as needed. But now that

all the topic has come up and I just had general conversation with my

daughter. She was stuffed under he rdesk dearing a earthquake drill

after she told them it hurt, It hurts to color, she can't open her

milk and if a friend isn't close by that she feels comfortable with

she just don't drink at lunch, it hurts to sit in the floor for

testing, reading, etc. It hurts to sit on scooters during gym. I was

told today that she functioned fine at school. That's what they see

because she won't complain and the don't want to deal with it. Am I

overreacting??????? Mind you these are the same people that will not

excuse her from PE one day with a parent note, and sent her to the

playground after extract and inject on both knees against doctors

orders. And I met and explained everything three different times on

this. Before during and after. ANY AND ALL HELP WILL BE APPRECIATED

AND I THANK YOU UP FRONT. ANY IDEAS ON WHAT TO LIST IN IPE?????????

THANKS

[Guest guest]

Of course I meant, the child would be able to get on an IEP any

accomation that they qualify for due to their disabilities. You

would be surprise how many different things that can be. Once you

qualify for an IEP you can get any REASONABLE accomodation or

modifications, meaning if their is a rasonable need for a certain

modification or accomodation for the child to be successful in

school.

Val

>

> If the school really thinks that leaving an obviously ill child in

the

> classroom makes sense then I have to wonder what kind of folks are

being

> hired to run the schools!! Of course the kid couldn't go home when

nobody

> could be reached and I don't know if your school has a full time

nurse or

> clinic aide. Surely, though, someone could have found a better

place for

> that child than in the classroom. It's not fair to the child, the

teacher or

> any of the other kids for the sick one to be left in there.

>

>

>

> For gym class your daughter should be able to self limit if that's

what her

> rheumatologist has suggested. If coloring is an issue then there

should be a

> way to pick and choose what she colors. Sometimes coloring is

necessary for

> academics but at other times it is more for appearance and/or fine

motor

> practice. Fine motor skills are important, but your daughter's

joint

> problems do need to be taken into consideration. Sitting on the

floor during

> class is a no brainer~~ she should be provided a chair on which to

sit. Has

> your rheumatologist written a letter detailing what should and

should not be

> done? If not, please request one ASAP. That letter can make all the

> difference in the world. Do you have anyone going to your meeting

with you?

> If not, please find a trusted friend or relative and ask that

person to join

> you. You are legally permitted to bring anyone you choose to the

meeting.

> Most importantly, DO NOT sign the papers if you do not understand

or do not

> agree with them. Tell the school that you will review them with

_____ and

> will bring your copies back in a day or two. You do not have to

sign

> anything right then and there.

>

>

>

> Good luck tomorrow,

>

>

>

> Liz

>

>

>

> _____

>

> From: [mailto: ]

On Behalf

> Of keepinfaithe

> Sent: Wednesday, March 29, 2006 12:12 AM

>

> Subject: I'm the one needing modifications

>

>

>

> Hello gang.

> I apologize if my story appears more than once. I posted once and

it

> didn't seem to appear. I have a daughter, age seven. She is on

> homebound at this point only after me feeling be-littled. There

was

> a confirmed case of the flu in my daughters room, The little boy

was

> left in the room about four or so hours running a high fever. They

> couldn't reach his parents until later in the day. I was not

> notified until the next day. I called her ped. and she recomended

> homebound until the flu season pasted. When I went to pick her up

I

> was threatened with social services, and DPP. Mind you my child

has

> no unexcused abscenses and only two parent notes (grandparent

death

> and dad having surgery). I was told to read a article in the

local

> paper about attendance and state funding. It was then recommended

by

> the ped. to revise IEP to accomodate JRA and homebound, so that I

> would not be treated this way anymore. They can't find her IEP at

> this point I have a copy. So I called and got the meeting

scheduled

> for Thursday and now there telling me that they do not know if she

> will be covered by IEP under OHI. The only thing that is on there

now

> is speech therapy and to accomodate the JRA as needed. But now

that

> all the topic has come up and I just had general conversation with

my

> daughter. She was stuffed under he rdesk dearing a earthquake

drill

> after she told them it hurt, It hurts to color, she can't open her

> milk and if a friend isn't close by that she feels comfortable

with

> she just don't drink at lunch, it hurts to sit in the floor for

> testing, reading, etc. It hurts to sit on scooters during gym. I

was

> told today that she functioned fine at school. That's what they

see

> because she won't complain and the don't want to deal with it. Am

I

> overreacting??????? Mind you these are the same people that will

not

> excuse her from PE one day with a parent note, and sent her to the

> playground after extract and inject on both knees against doctors

> orders. And I met and explained everything three different times

on

> this. Before during and after. ANY AND ALL HELP WILL BE

APPRECIATED

> AND I THANK YOU UP FRONT. ANY IDEAS ON WHAT TO LIST IN

IPE?????????

> THANKS

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Liz, I so badly wanted to attend the meeting with Candida but it is about a

2 and half hour drive, my back is flaring and gas is 2.60 a gallon. I feel

absolutely horrible that I could not be there for her. I have since asked my

local AF office, where I do all our AJAO work, if they could do a gas

reimbursement if I attend with families as an advocate at such meetings. I have

not

heard back but hope they agree. All my work is volunteer but living on my small

check and a roofers pay I am not a wealthy person and this would help in my

advocacy work with the AJAO families.

Also, I wanted to let all know, and I will be visiting Indiana

Congressman Mike Sodrel on April 8th while they are on break and I am confident

we

will get him to co-sponsor the APCCA. Its not too late folks call your

congressmen and get an appointment now for when they are home!!!!

~ Hang Tight & Hang Tough ~

Donna