RE: Treatment options for JRA and effects

[Guest guest]

Hello. I wanted to shoot a quick response to you. My daughter has

pauci JRA and is currently taking the liquid form of mtx. However,

she takes it orally instead of it being injected. She takes a

vitamin with folic acid to combat the negative side effects. It

seems to do the trick. She had worse side effects from the Naproxen

(mostly stomach stuff). Her liver count did go up when we tried to

increase her dose from .3cc to .4cc which persuaded us to bring it

back down to .3 again. Sophie also had PT for a while which did

help her regain some range of motion in her affected joints.

I'm sure others here will have much more to share in response to

your post. Let us know how it goes!

Weber

Professional Mom to:

Sophie 4 - pauci/panuveitis

Charlie 31 weeks - fussy but oh-so-lovable

>

> My daughter (3 yr.old) was just diagnosed with JRA - polyarticular

> form. We did seek a second opinion. Both doctors concurred with

the

> diagnosis and treatment - which will be physical therapy and

> methotraxate. I have read a couple of books now about JRA and its

> treatment options. I am looking for parents of children and what

they

> have experienced after thier child was on the drug as well as the

side

> effects that you have seen. I am somewhat still in AWH over this

> problem and want to make sure that I am making the right decisions.

>

[Guest guest]

Hi,

My son was diagnosed at 2 with systemic onset and at 3 he was taking 25mg MTX

sub q each week.

He never had any side effects with the MTX and his liver enzymes have always

been normal.

What this disease can do to our children is much more scarier then the drugs

we treat them with.

With routine lab work any serious problems can be found long before symptoms

apear.

You want to slam the arthritis hard and heavy to get it under control as soon

as possible.

Hugs

Becki and 7 systemic

[Guest guest]

Aubrey has allot of Nausea which we now take a medication to help with that and

she sick allot from the medication because it weaken the immune system she is a

very high dosage. 20mg oral metx. But it made a huge difference in her recovery

of JRA and UVIETIS......................TERRI AND AUBREY.

Treatment options for JRA and effects

My daughter (3 yr.old) was just diagnosed with JRA - polyarticular

form. We did seek a second opinion. Both doctors concurred with the

diagnosis and treatment - which will be physical therapy and

methotraxate. I have read a couple of books now about JRA and its

treatment options. I am looking for parents of children and what they

have experienced after thier child was on the drug as well as the side

effects that you have seen. I am somewhat still in AWH over this

problem and want to make sure that I am making the right decisions.

[Guest guest]

Thank you for your response I am glad that this med has helped and no side

effects. It is a relief to finally hear from real people other than doctors in

books whom probably do not have children with JRA.

Arthurnator@... wrote: Hi,

My son was diagnosed at 2 with systemic onset and at 3 he was taking 25mg MTX

sub q each week.

He never had any side effects with the MTX and his liver enzymes have always

been normal.

What this disease can do to our children is much more scarier then the drugs

we treat them with.

With routine lab work any serious problems can be found long before symptoms

apear.

You want to slam the arthritis hard and heavy to get it under control as soon

as possible.

Hugs

Becki and 7 systemic

[Guest guest]

Is the 20 mg a normal amount of dosage. Also, the nausea mediation is this an

everyday thing. And what type of illnesses is she getting - just viruses??

Terri Berube <TerriBer@...> wrote: Aubrey has allot of Nausea which we now

take a medication to help with that and she sick allot from the medication

because it weaken the immune system she is a very high dosage. 20mg oral metx.

But it made a huge difference in her recovery of JRA and

UVIETIS......................TERRI AND AUBREY.

Treatment options for JRA and effects

My daughter (3 yr.old) was just diagnosed with JRA - polyarticular

form. We did seek a second opinion. Both doctors concurred with the

diagnosis and treatment - which will be physical therapy and

methotraxate. I have read a couple of books now about JRA and its

treatment options. I am looking for parents of children and what they

have experienced after thier child was on the drug as well as the side

effects that you have seen. I am somewhat still in AWH over this

problem and want to make sure that I am making the right decisions.

[Guest guest]

Luckily my daughter has had no side affects of the Methotrexate. I think she

has a stomach of steel!!! I hope your daughter doesn't have any problems!

Madison has been on Methotrexate for over a year now. She takes the injectable

form by mouth.

Good Luck!

Ashlee (Madison, 3 ½, poly & iritis)

Re: Treatment options for JRA and effects

Aubrey has allot of Nausea which we now take a medication to help with that and

she sick allot from the medication because it weaken the immune system she is a

very high dosage. 20mg oral metx. But it made a huge difference in her recovery

of JRA and UVIETIS......................TERRI AND AUBREY.

Treatment options for JRA and effects

My daughter (3 yr.old) was just diagnosed with JRA - polyarticular

form. We did seek a second opinion. Both doctors concurred with the

diagnosis and treatment - which will be physical therapy and

methotraxate. I have read a couple of books now about JRA and its

treatment options. I am looking for parents of children and what they

have experienced after thier child was on the drug as well as the side

effects that you have seen. I am somewhat still in AWH over this

problem and want to make sure that I am making the right decisions.

[Guest guest]

WOW _ I hope that we are that lucky.

Ashlee Blair <ablair@...> wrote: Luckily my daughter has had no

side affects of the Methotrexate. I think she has a stomach of steel!!! I hope

your daughter doesn't have any problems! Madison has been on Methotrexate for

over a year now. She takes the injectable form by mouth.

Good Luck!

Ashlee (Madison, 3 ½, poly & iritis)

Re: Treatment options for JRA and effects

Aubrey has allot of Nausea which we now take a medication to help with that and

she sick allot from the medication because it weaken the immune system she is a

very high dosage. 20mg oral metx. But it made a huge difference in her recovery

of JRA and UVIETIS......................TERRI AND AUBREY.

Treatment options for JRA and effects

My daughter (3 yr.old) was just diagnosed with JRA - polyarticular

form. We did seek a second opinion. Both doctors concurred with the

diagnosis and treatment - which will be physical therapy and

methotraxate. I have read a couple of books now about JRA and its

treatment options. I am looking for parents of children and what they

have experienced after thier child was on the drug as well as the side

effects that you have seen. I am somewhat still in AWH over this

problem and want to make sure that I am making the right decisions.

[Guest guest]

I have been treated with Sulindac, Naprosyn, Celebrex, Vioxx, Mobic, Lodine,

Prednisone, Methotrexate, Plaqunil, Baclofan, Sulfasalasine, Arava, Enbrel, and

Remicade.. and two years of physical therapy. Of course I did not take all those

medications at the same time.. they were in different cocktails.. currently I'm

on Arava, Lodine, and Remicade. I did physical therapy for two years straight so

that I could relearn to walk, when I was 16 I had a major flare that left me not

only painful and stiff but fatigued but physical sick (increased heart rate,

abdominal swelling, kidney problems) (they said it was almost as if I was having

a systemic flare but I am not systemic) becuase of it I was in bed recovering

from everything that I ended up atrophying most of my muscles so I had to work

for two very hard years to get that all back... An NSAID, a DMARD, and Physical

thereapy are a really great start for treatment. Its treating it aggressively

but not overly aggressively. Also if that

doesnt work there is another kind of medication they can move on to which is

the biological response modifiers such Enbrel Remicade and Humira..

Lots of Love

(JAS, 21)

Ashlee Blair <ablair@...> wrote:

Luckily my daughter has had no side affects of the Methotrexate. I think she

has a stomach of steel!!! I hope your daughter doesn't have any problems!

Madison has been on Methotrexate for over a year now. She takes the injectable

form by mouth.

Good Luck!

Ashlee (Madison, 3 ½, poly & iritis)

Re: Treatment options for JRA and effects

Aubrey has allot of Nausea which we now take a medication to help with that and

she sick allot from the medication because it weaken the immune system she is a

very high dosage. 20mg oral metx. But it made a huge difference in her recovery

of JRA and UVIETIS......................TERRI AND AUBREY.

Treatment options for JRA and effects

My daughter (3 yr.old) was just diagnosed with JRA - polyarticular

form. We did seek a second opinion. Both doctors concurred with the

diagnosis and treatment - which will be physical therapy and

methotraxate. I have read a couple of books now about JRA and its

treatment options. I am looking for parents of children and what they

have experienced after thier child was on the drug as well as the side

effects that you have seen. I am somewhat still in AWH over this

problem and want to make sure that I am making the right decisions.

[Guest guest]

Wow that seems like a lot of different meds. I hope that you are will now..

Salvucci <lisa_salvucci@...> wrote: I have been treated with

Sulindac, Naprosyn, Celebrex, Vioxx, Mobic, Lodine, Prednisone, Methotrexate,

Plaqunil, Baclofan, Sulfasalasine, Arava, Enbrel, and Remicade.. and two years

of physical therapy. Of course I did not take all those medications at the same

time.. they were in different cocktails.. currently I'm on Arava, Lodine, and

Remicade. I did physical therapy for two years straight so that I could relearn

to walk, when I was 16 I had a major flare that left me not only painful and

stiff but fatigued but physical sick (increased heart rate, abdominal swelling,

kidney problems) (they said it was almost as if I was having a systemic flare

but I am not systemic) becuase of it I was in bed recovering from everything

that I ended up atrophying most of my muscles so I had to work for two very hard

years to get that all back... An NSAID, a DMARD, and Physical thereapy are a

really great start for treatment. Its treating it

aggressively but not overly aggressively. Also if that

doesnt work there is another kind of medication they can move on to which is the

biological response modifiers such Enbrel Remicade and Humira..

Lots of Love

(JAS, 21)

Ashlee Blair <ablair@...> wrote:

Luckily my daughter has had no side affects of the Methotrexate. I think she

has a stomach of steel!!! I hope your daughter doesn't have any problems!

Madison has been on Methotrexate for over a year now. She takes the injectable

form by mouth.

Good Luck!

Ashlee (Madison, 3 ½, poly & iritis)

Re: Treatment options for JRA and effects

Aubrey has allot of Nausea which we now take a medication to help with that and

she sick allot from the medication because it weaken the immune system she is a

very high dosage. 20mg oral metx. But it made a huge difference in her recovery

of JRA and UVIETIS......................TERRI AND AUBREY.

Treatment options for JRA and effects

My daughter (3 yr.old) was just diagnosed with JRA - polyarticular

form. We did seek a second opinion. Both doctors concurred with the

diagnosis and treatment - which will be physical therapy and

methotraxate. I have read a couple of books now about JRA and its

treatment options. I am looking for parents of children and what they

have experienced after thier child was on the drug as well as the side

effects that you have seen. I am somewhat still in AWH over this

problem and want to make sure that I am making the right decisions.