Here we go

[Guest guest]

,

It doesn't seem like all that much written down? YES IT DOES!!!!!!! I've

been there w/ all the meds and infections etc. w/ two kids at one time and

it's awful. My situation was not nearly as hard as yours and I felt

overwhelmed. I know it's hard, but try to take even just a few minutes

every day to relax yourself and have some time to regroup. (((HUGS))) I

hope the kids are feeling better soon. Sounds like they are having a really

rough time.

[Guest guest]

,

I have to say this! If I had to deal with a quarter of what you listed, I

would collapse. I don't know HOW you can deal with all of this and the fact

that you feel overwhelmed, I think, is that the situation IS overwhelming.

I wish I was close enough to give you the big HUG and break that you need.

Is there ANYONE who can give you some relief from all of this? Even for an

hour a day?? A relative, home nurse, close friend, respite care worker??

Can the school send a home tutor for ? {{{HUGS}}} to you. I'll put you

on my prayer list. When you feel rotten, try to remember that a lot of us

are praying for you and yours.

Pam

wife to (15 years)

mother to , 8, Hannah, 6, Rebekah, 2, and Leah, 1

Here we go

I dont know why I'm having trouble dealing-- it doesnt seem all that much

once its written down. I guess its just the extra news of new diagnoses and

getting into a routine with the additional treatments too. It helps put

things into perspective by writing it down. Where I'd be but for this group

I dont know!

mum to two munchkins-- (6) functional antibody deficiency, low

complement, selective IgA deficiency, asthma, chronic GI dismotility, and

(4) functional antibody deficiency, low complement, Selective IgA

deficiency, asthma, chronic GI dismotility, CPH (chronic paroxysmal

hemicrania), bilateral PUJ obstruction (renal), GERD, hiatus hernia,

chronic pancreatitis, chronic mouth ulcers, anorexia, sensory processing

disorder

[Guest guest]

,

Hang in there. Sometimes taking care of sick kids just becomes

overwhelming. It's not necessary to have a reason--it just happens. It's

good that you wrote to us, there is something so healing in doing that.

Meanwhile, just one day at a time. That's how I do it. I can't think about

everything or it would drive me crazy, so I just muddle through one day at a

time!!

Do something nice for yourself. Take care of yourself. Remember that you

count also.

Sandi, 's Mom

[Guest guest]

,

I was just reading Pam's response to you. Getting a tutor for is an

excellent idea. Can you do that? I find that since I'm a single parent, I

have to draw a line as to how much I am willing to teach my son. He is

always at home, and if the school district had their way, I would be teaching

him almost full time as well as being his caregiver. That's an awful lot for

one person. And right now you might not want to ask for help from your DH.

Having a tutor come to the house really takes the edge off. I don't think I

would be sane without one. Okay, not that I'm exactly sane, but close!!!

One more thing, have they decided which course of action to take with your

PE?

Sandi

[Guest guest]

,

I think you need to reread what you just wrote--I'd be just as frazzled as

you! 15 different doses of meds! How do you keep them straights?! I ask

this, knowing that I've been there at least once before.

Do you have anyone who can come in just for a an hour and give you some

respite? Even if it's just so you can take a nap. I think it's extremely

important that you find time to refresh and renew your mind so you can

continue caring for your children. It's tough to ask for mommy time, but

it's vital. Does you insurance provide this through a nursing service? I

would certainly ask.

I know it's hard to think of someone caring for your children besides

yourself, but I think if you allowed yourself a little break in there, you'd

be able to process information a little better.

I'd be upset about the new diagnosis information, the sick child in the next

town, plus having to time meds, tend to sick kids, and care for yourself.

You need a break & I hope you get one. You definitely deserve it!

I'll be praying for you.

Ray, mother to Tabitha (age 6), Autumn, age 4 (IgG def., asthma,

chronic sinusitis, and allergies), and Duncan (13 months)

Here we go

> Am I allowed to say I am completely OVERWHELMED at the moment? Theres

the 15 daily doses of meds for , s 4, the asthma regime of

steroid inhaler, nebuliser and treatment puffer throughout the day and

night, at different intervals, now adding in the chest percussion therapy,

the news of early bronciectasis, then theres nursing the children through

the current bout of infections which just keep evolving into new infections.

The terrible pain is in curently with another flare of pancreatitis,

dealing with a depressed dh, coping with my recent PE, attempting to

complement s schooling while she is home ill (she has been home this

term more than she has been at school), now timing in the CPT between the

pediasure feeds, and topping it all at the OT appt today was so

obliging as to give his therapist a full on sample of his SID , leaving her

looking completely shocked--welcome to my world!-- and out the window goes

the work on holding pencils and finger exercises--now shes talking intensive

treatment for sensory PROCESSING disorder. And now, news to make me more

terrified than almost anything else, a child living in a suburb closeby has

been admitted to hospital with meningococcal disease. There have been

outbreaks this week in the East but this is the first case in my state, so

far. With my two so low as they are from these infections, they are ripe

for any infection let alone meningococcal. finished his course of

Rulide tonghtt and we are back to his dr tomorrow for a review. Of course

he woke in the early hours thismorning croaking of a sore throat and while

the other infection seems to have flown with the med treatment (leaving

behind all that muck in his lungs) by tonight he was truly dragging his butt

once more with what looks to be s current infection. I am frazzled up

to my teeth.

>

> I dont know why I'm having trouble dealing-- it doesnt seem all that much

once its written down. I guess its just the extra news of new diagnoses and

getting into a routine with the additional treatments too. It helps put

things into perspective by writing it down. Where I'd be but for this group

I dont know!

>

>

> mum to two munchkins-- (6) functional antibody deficiency, low

complement, selective IgA deficiency, asthma, chronic GI dismotility, and

> (4) functional antibody deficiency, low complement, Selective

IgA deficiency, asthma, chronic GI dismotility, CPH (chronic paroxysmal

hemicrania), bilateral PUJ obstruction (renal), GERD, hiatus hernia,

chronic pancreatitis, chronic mouth ulcers, anorexia, sensory processing

disorder

>

>

>

[Guest guest]

{{{HUGS}}} ...we all get overwhelmed from time to time.

Praying for you,

pattie

-- Here we go

Am I allowed to say I am completely OVERWHELMED at the moment? Theres the

15 daily doses of meds for , s 4, the asthma regime of steroid

inhaler, nebuliser and treatment puffer throughout the day and night, at

different intervals, now adding in the chest percussion therapy, the news of

early bronciectasis, then theres nursing the children through the current

bout of infections which just keep evolving into new infections. The

terrible pain is in curently with another flare of pancreatitis,

dealing with a depressed dh, coping with my recent PE, attempting to

complement s schooling while she is home ill (she has been home this

term more than she has been at school), now timing in the CPT between the

pediasure feeds, and topping it all at the OT appt today was so

obliging as to give his therapist a full on sample of his SID , leaving her

looking completely shocked--welcome to my world!-- and out the window goes

the work on holding pencils and finger exercises--now shes talking intensive

treatment for sensory PROCESSING disorder. And now, news to make me

more terrified than almost anything else, a child living in a suburb

closeby has been admitted to hospital with meningococcal disease. There

have been outbreaks this week in the East but this is the first case in my

state, so far. With my two so low as they are from these infections, they

are ripe for any infection let alone meningococcal. finished his

course of Rulide tonghtt and we are back to his dr tomorrow for a review.

Of course he woke in the early hours thismorning croaking of a sore throat

and while the other infection seems to have flown with the med treatment

(leaving behind all that muck in his lungs) by tonight he was truly dragging

his butt once more with what looks to be s current infection. I am

frazzled up to my teeth.

I dont know why I'm having trouble dealing-- it doesnt seem all that much

once its written down. I guess its just the extra news of new diagnoses and

getting into a routine with the additional treatments too. It helps put

things into perspective by writing it down. Where I'd be but for this group

I dont know!

mum to two munchkins-- (6) functional antibody deficiency, low

complement, selective IgA deficiency, asthma, chronic GI dismotility, and

(4) functional antibody deficiency, low complement, Selective IgA

deficiency, asthma, chronic GI dismotility, CPH (chronic paroxysmal

hemicrania), bilateral PUJ obstruction (renal), GERD, hiatus hernia,

chronic pancreatitis, chronic mouth ulcers, anorexia, sensory processing

disorder

[Guest guest]

Ray,

Here in Oregon, that is what the tutors do. They come to the house and

teach the child the same curriculum that they would learn in school. This is

beneficial because they can " tailor " the studies for the child. They can

make them work harder in certain areas they are good at, and help them

through the areas they may struggle in. That certainly doesn't happen a lot

in the classroom!!

All takes is a note from the child's Ped. Am I missing something? Is

there a difference between the homebound teacher and the tutor? Does the

homebound teacher stay for longer hours? A tutor is only here for a total of

five hours per week.

Sandi, 's Mom

[Guest guest]

,

Instead of a tutor, do you have the option to ask for a homebound teacher?

I don't know if Australia has that option, but in the states we do. If my

child cannot attend school & I work through the district, I can get a

homebound teacher.

Where I work, one of the staff members was homebound in high school because

of a kidney rejection. She had a teacher come to the house every day of the

week & go through lessons with her. She graduated on time too!

It's definitely worth asking if you can do it.

Ray, mother to Tabitha (age 6), Autumn, age 4 (IgG def., asthma,

chronic sinusitis, and allergies), and Duncan (13 months)

[Guest guest]

>

> It is 6:11 I will be leaving in about 20 minutes for the hospital.I

> just wanted to thank everyone for your advice support and words of

> wisdom and encouragement.I do not have a laptop so as soon as I am

> able to sit at my desk I will let everyone know how it went. This

> group has been amazing such good info. Take Care, Sherrie aka (Not

as

> nervours nellie)

>

This is Sherrie's husband (blake). I am supposed to tell you all she

is alive! The surgery went well. She should be home in 4 - 5 days.

[Guest guest]

Great news!! Good luck Sherrie.

Joy

-- Re: HERE WE GO

>> It is 6:11 I will be leaving in about 20 minutes for the hospital.I > just wanted to thank everyone for your advice support and words of > wisdom and encouragement.I do not have a laptop so as soon as I am > able to sit at my desk I will let everyone know how it went. This > group has been amazing such good info. Take Care, Sherrie aka (Not as > nervours nellie)>This is Sherrie's husband (blake). I am supposed to tell you all she is alive! The surgery went well. She should be home in 4 - 5 days.

[Guest guest]

Hi Blake.

Thanks for letting us know how Sherrie's doing and tell her each day she will feel better and tell her to take the pain pills as much as she can they will help her move better .Well you take care and have a nice day.

Susie

Re: HERE WE GO

>> It is 6:11 I will be leaving in about 20 minutes for the hospital.I > just wanted to thank everyone for your advice support and words of > wisdom and encouragement. I do not have a laptop so as soon as I am > able to sit at my desk I will let everyone know how it went. This > group has been amazing such good info. Take Care, Sherrie aka (Not as > nervours nellie)>This is Sherrie's husband (blake). I am supposed to tell you all she is alive! The surgery went well. She should be home in 4 - 5 days.

[Guest guest]

Blake,

How is she feeling? I have my TKR tomorrow.

I am so worried about waking up in awful pain.....

Thanks for giving us and update. She has been in my thoughts.

Kim Re: HERE WE GO

>> It is 6:11 I will be leaving in about 20 minutes for the hospital.I > just wanted to thank everyone for your advice support and words of > wisdom and encouragement.I do not have a laptop so as soon as I am > able to sit at my desk I will let everyone know how it went. This > group has been amazing such good info. Take Care, Sherrie aka (Not as > nervours nellie)>This is Sherrie's husband (blake). I am supposed to tell you all she is alive! The surgery went well. She should be home in 4 - 5 days.

Check out AOL.com today. Breaking news, video search, pictures, email and IM. All on demand. Always Free.

[Guest guest]

In a message dated 6/14/2006 9:58:18 P.M. Central Standard Time, sweetpea37814@... writes:

>> It is 6:11 I will be leaving in about 20 minutes for the hospital.I > just wanted to thank everyone for your advice support and words of > wisdom and encouragement.I do not have a laptop so as soon as I am > able to sit at my desk I will let everyone know how it went. This > group has been amazing such good info. Take Care, Sherrie aka (Not as > nervours nellie)>This is Sherrie's husband (blake). I am supposed to tell you all she is alive! The surgery went well. She should be home in 4 - 5 days.

Hi Sherrie and Sherrie's husband. That's great! Take care of her when she gets home .

[Guest guest]

So, my health had gotten much better over the past year. I have been eating

healthy low carb and doing much better than during and after my pregnancy. Now

as I am working through the yeast elimination diet with my son...all of the

aches, pains, vision problems, fatigue, ear ringing, pounding heart, neck and

back problems are all coming back...ahhh! I thought this was over and I had

healed past it....ohhh you retracing! I feel the migranes coming back...and the

computer time is a total drain on my eyes....but I have to edit weddings...I am

a photographer.

Is it possible to feel so much better for months and then retrace years back

onto such worse times? I read but just can't believe it could get this much

worse. It doesn't feel like die-off, or any that I have had anyway. Although I

have that white splotchy film on my tongue again...it was gone for a while.

What about my son, he is just 3.5, so would he really only have 4 months of

retracing to go through if we are really good?

I don't know if I can manage my families regimen, work, AND feel like this

again. Once I finish up the clients I am working on now I will definitely have

to take a break.

Breath In Breath Out

Anne G