Guest guest Posted July 2, 2002 Report Share Posted July 2, 2002 Zoe For your information, there was some research released a few months ago that indicated that the sublingual form of B12 is as effective as the injected version. That's what I use as I avoid injections where ever possible. mjh In a message dated 7/2/02 1:32:28 AM Eastern Daylight Time, Zll51@... writes: > How did you manage to get B12 shots for yourself? I'm interested > in exploring this option for myself. Do you get tested periodically > to be sure you aren't getting an excess? > Zoe > > http://www.medhelp.org/forums/neuro/messages/30766a.html > > http://my.webmd.com/encyclopedia/article/1823.50524 > > http://www.fbr.org/publications/rdlnewsletters/rdlnewslet-v11n1.html > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2002 Report Share Posted July 3, 2002 Carrol Do you take supplemental Magnesium, at least 700 mg a day? mjh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2002 Report Share Posted July 3, 2002 Dear Zoe, Thank you so much for the web sites. I plan to go through them later today. You've brought up some interesting thoughts -- thoughts that seem to confirm much of my thinking. I've been on a gluten-free diet for almost two years now. One doctor did a blood test to see if I was " gluten intolerant, " but it came back negative. Since then, however, I've learned that blood tests are not always accurate for diagnosing gluten intolerance. Great Smokies has a saliva test which is more helpful. Whenever I eat anything with gluten in it, I become violently ill for several days. I wonder if the ANA Titer has anything to do with this, even though I've totally eliminated gluten. My diet is pretty restricted now. I seldom eat anything with dairy products in it, and I avoid sugar carefully. There are also some vegetables that seem to bother me, so I stay away from them, too. My meat and produce are organic, and I take great pains to keep my blood sugar balanced. In many ways, I'm more healthy and careful than ever. But in other ways, I'm not getting ahead. There must be some key I'm missing, though I'm continuing to work through it. I have been to many rheumatologists who have told me that I have an auto-immune disorder which, as yet, has not been identified. One specialist told me that I had ankylosing spondilitis, another rheumatoid arthritis, and another that I will most likely be diagnosed with Lupus in the future. Another rheumatologist did say that I had fibromyalgia, though he said that was not my major problem. He tests me for Lupus every time he sees me. (I don't see him very often . . .) I'm not on any medications now, and haven't been since mid-April. Though it may take awhile for drugs to clear my system, despite the half-life predictions of the medical field, I think that my ANA Titer is not related to medication because it was out of the normal range before medications were prescribed. I am forwarding my records to a new neurologist and will be asking her what she thinks about the tests. Hopefully, she will be able to help me sort out the problem and rectify it. I just didn't want to continue to overlook it if it was a problem. My OB/GYN prescribes the B-12 shots. She takes my blood regularly and doesn't hesitate to give me the prescription, even if I am in the low part of the acceptable range. Since she has been prescribing this, (for 1 1/2 years) there has only been one three month period in which I didn't need the shots. My B-12 was well within the normal range when I was tested. We both wonder now, however, if that was because I had been using the shots up to a week before the blood test. Thanks for the great advice and web sites. I really appreciate you! Best wishes, Carrol zoe88025 <Zll51@...> wrote: Hi Carrol, I wasn't sure about the ANA titer, so did a search on the web. Below are a couple of links that will give you some information. The test is used to help make a diagnosis of lupus and\or other autoimmune diseases (Lupus can be drug induced). I hope you will keep a skeptical eye on this, as with seizures, because " false positives, " are not uncommon, and some drugs, including dilantin, can cause a high ANA titer, which makes you wonder what the drugs are doing to the immune system. In 1994 I was diagnosed with fibromyalgia and rheumatoid arthritis. At that time, my blood test came back positive for rhreumatiod arthritis--high level of the antibodies. When I began changing my diet and getting healthy I asked to be retested and did not then test positive. I was told that false positives are common. Since you saw that yours are " significant, " are you looking for another doctor who will take it seriously? In the links you will find reference to another test that is less likely to give a false positive. If you are producing antibodies suggesting an autoimmune disorder, do you think working with your diet, might help bring things back into balance? None of the various autoimmune disorders happen all at once, the degeneration takes place over time, as when it develops as a side effect of drugs such as dilantin. If we can find what it is our bodies are reacting to adversely, it may be possible to stop or reverse the process as is sometimes done with seizures and MS. Do you have symptoms, or were you diagnosed with fibromyalgia also? I hope you find these links helpful. The last one looks especially interesting as it notes that gluten intolerance can result in high ANA titer (is this not an autoimmune reaction?). Gluten intolerance can be acquired, is not always inborn as with allergies to gluten. Could this be the body's immune system fighting off an overload of gluten? I got on a gluten and dairy free diet to try and control my seizures which helped. I also found that my rheumatiod and fibromyalgia symptoms went away after I'd been on the diet for a while. I've tried reintroducing gluten several times in the past four years. It always results in joint inflammation and a return of other fibromyalgia symptoms. How did you manage to get B12 shots for yourself? I'm interested in exploring this option for myself. Do you get tested periodically to be sure you aren't getting an excess? Zoe http://www.medhelp.org/forums/neuro/messages/30766a.html http://my.webmd.com/encyclopedia/article/1823.50524 http://www.fbr.org/publications/rdlnewsletters/rdlnewslet-v11n1.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2002 Report Share Posted July 4, 2002 Dear mjh, Yes, I take Mag Glycinate from Metagenics, and I take three times the recommended amount. My last blood test still showed me in the lower range for magnesium. Thanks for asking! Best wishes, Carrol foxhillers@... wrote: Carrol Do you take supplemental Magnesium, at least 700 mg a day? mjh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2002 Report Share Posted July 5, 2002 Carrol I suggest you increase the Mg more..... with me some days I need over 2000 mg to function and have good symptomactic relief. By the way, some folks metabolise Mg so poorly that their doctors prescribe Mg by injection (I don't, however, do needles). mjh n a message dated 7/4/02 12:44:44 PM Eastern Daylight Time, ColoradoCarrol@... writes: > Dear mjh, > Yes, I take Mag Glycinate from Metagenics, and I take three times the > recommended amount. My last blood test still showed me in the lower range > for magnesium. Thanks for asking! > > Best wishes, > Carrol > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2002 Report Share Posted July 5, 2002 One of the premier docs treating CFIDS and FMS, Cheney, MD, uses injections of MgSO4 and also B12 if warranted. I take small doses of MgHydroixde and Citrate several times daily to get the desired effect without the other side effects. mjh In a message dated 7/5/02 5:34:15 PM Eastern Daylight Time, ColoradoCarrol@... writes: > Dear mjh, > My GI tract is awfully touchy. I've taken up to 25% more, but find that my > stomach gets upset if I'm not careful. I've tried several magnesium > formulas, but this one seems to work the best. I wonder if my doctor(s) > would consider magnesium injections -- maybe they could combine them with > the B-12 shots I already give myself . . . I'll have to find out! Thank > you for the suggestions! > > Best wishes, > Carrol > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2002 Report Share Posted July 5, 2002 Carrol I do not have seizure disorder, my son does. I deal with fibromyalgia and chronic fatigue syndromes and am remarkably better with adequare intake of Magnesium. Charlie also has fewer seizures with adequate Mg.... and what may be 'normal' for others, may not be what is normal for you. mjh In a message dated 7/5/02 7:07:58 PM Eastern Daylight Time, ColoradoCarrol@... writes: > Dear mjh, > Does this control your seizures? I'm very interested! > > Best wishes, > Carrol > > > foxhillers@... wrote: One of the premier docs treating CFIDS and FMS, > Cheney, MD, uses > injections of MgSO4 and also B12 if warranted. I take small doses of > MgHydroixde and Citrate several times daily to get the desired effect > without > the other side effects. > mjh > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2002 Report Share Posted July 5, 2002 Dear mjh, My GI tract is awfully touchy. I've taken up to 25% more, but find that my stomach gets upset if I'm not careful. I've tried several magnesium formulas, but this one seems to work the best. I wonder if my doctor(s) would consider magnesium injections -- maybe they could combine them with the B-12 shots I already give myself . . . I'll have to find out! Thank you for the suggestions! Best wishes, Carrol foxhillers@... wrote: Carrol I suggest you increase the Mg more..... with me some days I need over 2000 mg to function and have good symptomactic relief. By the way, some folks metabolise Mg so poorly that their doctors prescribe Mg by injection (I don't, however, do needles). mjh n a message dated 7/4/02 12:44:44 PM Eastern Daylight Time, ColoradoCarrol@... writes: > Dear mjh, > Yes, I take Mag Glycinate from Metagenics, and I take three times the > recommended amount. My last blood test still showed me in the lower range > for magnesium. Thanks for asking! > > Best wishes, > Carrol > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2002 Report Share Posted July 5, 2002 Dear mjh, Does this control your seizures? I'm very interested! Best wishes, Carrol foxhillers@... wrote: One of the premier docs treating CFIDS and FMS, Cheney, MD, uses injections of MgSO4 and also B12 if warranted. I take small doses of MgHydroixde and Citrate several times daily to get the desired effect without the other side effects. mjh In a message dated 7/5/02 5:34:15 PM Eastern Daylight Time, ColoradoCarrol@... writes: > Dear mjh, > My GI tract is awfully touchy. I've taken up to 25% more, but find that my > stomach gets upset if I'm not careful. I've tried several magnesium > formulas, but this one seems to work the best. I wonder if my doctor(s) > would consider magnesium injections -- maybe they could combine them with > the B-12 shots I already give myself . . . I'll have to find out! Thank > you for the suggestions! > > Best wishes, > Carrol > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2002 Report Share Posted July 8, 2002 Dear mjh, Thank you for writing. I do remember Charlie, but I wasn't sure if you were struggling with the same conditions. CFS and Fibromyalgia can be their own particular types of struggles. I've been diagnosed with both at different times in my life, but I wasn't aware that magnesium would help both conditions. I appreciate the " heads up! " Best wishes, Carrol foxhillers@... wrote: Carrol I do not have seizure disorder, my son does. I deal with fibromyalgia and chronic fatigue syndromes and am remarkably better with adequare intake of Magnesium. Charlie also has fewer seizures with adequate Mg.... and what may be 'normal' for others, may not be what is normal for you. mjh In a message dated 7/5/02 7:07:58 PM Eastern Daylight Time, ColoradoCarrol@... writes: > Dear mjh, > Does this control your seizures? I'm very interested! > > Best wishes, > Carrol > > > foxhillers@... wrote: One of the premier docs treating CFIDS and FMS, > Cheney, MD, uses > injections of MgSO4 and also B12 if warranted. I take small doses of > MgHydroixde and Citrate several times daily to get the desired effect > without > the other side effects. > mjh > Quote Link to comment Share on other sites More sharing options...
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