Guest guest Posted July 2, 2002 Report Share Posted July 2, 2002 Soili, Hi I don't think we've met. My son is almost 5 and has arthritis (we aren't sure what kind yet) I was just curious,,what kind of surgery your son had,,is he playing soccer,,and what is Pauci extended? We had Logan in soccer back in Feb and it was a real nightmare. He was in so much pain then. He is doing better now,and only having pain every once in a while,,,so I was wondering about doing soccer in the fall.Its good to meet you, Kim and Logan 4 & 1/2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2002 Report Share Posted July 3, 2002 Welcome back Soili, I hope your trip was enjoyable! I am pleased that the little girl's grandmother let you know what your presence at the funeral meant to the child's parents. Bless you for being there. I hope Juho does well with his soccer and continues to do well. Val Rob's Mom (4,systemic) In a message dated Wed, 3 Jul 2002 1:46:24 AM Eastern Standard Time, soilimar@... writes: > > > We are back from our Cyprus holidays, Juho's crutches are off and his > football (soccer) course started yesterday... he had surgery in June > and is now fine. Had no trouble whatsoever during the trip... only it > was a bit difficult to get the crutches to fit in the aeroplane as it > was fully booked. > I don't have time to read everything that happened here when I was > away but now I'm following again... hope everyone had a nice week. > And to those of you who are interested, the funeral I attended with > my husband (a little girl with jra) was heartbreaking but > beautiful... the parents were calm but I think rather " numb " as in > shock. I'm glad we had the courage to go as the grandparents told us > it ment a lot to them. > Have a nice day everyone, > Soili and Juho 7(pauci extended) > > > To unsubscribe, please send a message to: > -unsubscribe > > To change your email delivery options, please visit: > / > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2002 Report Share Posted July 3, 2002 Soili, glad your vacation went well and Juho is doing great again playing soccer.Now that your back I want to thank you for explaining ankle injections to me. is systemic on alot of meds but has 1 active joint,his lft ankle.He sees the ortho on the 11th about doing the injections.Our rheumy said that the ortho would use ultra sound to find all the pockets because if you miss just one it wont work.Does that sound about right to you?Glad to have you back. Becki and 3systemic soilimar2000 wrote: > We are back from our Cyprus holidays, Juho's crutches are off and his > football (soccer) course started yesterday... he had surgery in June > and is now fine. Had no trouble whatsoever during the trip... only it > was a bit difficult to get the crutches to fit in the aeroplane as it > was fully booked. > I don't have time to read everything that happened here when I was > away but now I'm following again... hope everyone had a nice week. > And to those of you who are interested, the funeral I attended with > my husband (a little girl with jra) was heartbreaking but > beautiful... the parents were calm but I think rather " numb " as in > shock. I'm glad we had the courage to go as the grandparents told us > it ment a lot to them. > Have a nice day everyone, > Soili and Juho 7(pauci extended) > > To unsubscribe, please send a message to: > -unsubscribe > > To change your email delivery options, please visit: > / > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2002 Report Share Posted July 3, 2002 Welcome back Soili and Juho. Hope you had a lovely vacation. We missed you! Ellie and Riley 4 poly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2003 Report Share Posted March 18, 2003 <lol> Just wait until it's a 50 pound sack of dog food and then multiply that by 2! I don't consider myself a weakling, but those 50 pound bags are heavy! And to think I carried WAY more than that around just floors me! No wonder I felt like crap all the time. Congrats on your weight loss! in OK MGB 3/29/2001 303/145 In a message dated 3/17/2003 11:46:05 PM Eastern Standard Time, rkeckhardt@... writes: > > > Hello everybody, > > It has been quite a while since I posted. I am post op two months and so far > have lost 43 pounds. I went yesterday to buy dog food, and I bought a 40 > pound bag. It amazed me to realize I had been carrying around all that > weight. I feel so great. I can tolerate just about everything. One bite of > doughnut made me sick,and a nibble of General's chicken sent me into orbit. > But, those are the only things. I feel pretty lucky. I had surgery in my > hometown of Joplin, Mo with Dr. H and Dr. R. They were fantastic. The > hospital was amazing too. I would be more than happy to be a contact for > anyone. I hope to talk to you all soon. > > Eckhardt > Pre-op 306 > Post-op 263 > Danced on 1-09-03 > rkeckhardt@... > > > > > > _________________________________________________________________ > The new MSN 8: smart spam protection and 2 months FREE* > http://join.msn.com/?page=features/junkmail > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2005 Report Share Posted July 3, 2005 Well ,, it is nice to hear from you again! I hope you will have better luck this time around. lee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2005 Report Share Posted July 3, 2005 , Welcome back! I'm so glad you never gave up on this. You should have no problem picking which CI center you want and which implant. Good luck and keep posting. Alice --nmgram Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2005 Report Share Posted July 3, 2005 Hi , Nice to have you back with us and to know that you seem to be getting closer in your quest for getting the CI. I'd check with your ci center of choice and see if they accept your Medicare and Medicaid.. My guess is yes, you will be able to choose the one you want, but best to be sure. With Medicaid, it might be a little different and you might have to go with an approved provider in your state, but I can't say this for sure as each state differs. I hope everything goes smoothly for you and that soon we'll be reading of a surgery date for you. Wishing you all the best. Keep us updated as you can.. when the kids give you a break<smile>.. maybe by the time they're 40..LOL Hugs, Silly MI In , Robb <TazLovesTweety99@y...> wrote: > Sorry, I havent chimed in for a long time.... Ive been busy with four kids running me ragged. smile.... I just wanted to drop a note that Im still pursuing a CI at the time... I just started medicare part a and B july 1st and receiving SSA and SSI as well. So I need to ask those who are on medicare and medicaid, do i have a choice in which CI center I want to go for my CI?? or am I still stuck in the state of WA or can I go to Portland, OR which is the closest CI center for me? > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2005 Report Share Posted July 3, 2005 Hi , You may want to call the CI centers in your area to find out what insurance coverage they accept. I have Medicaid and Medicare -- and was lucky that my CI center accepted both. Here's wishing you all the best on your CI journey!! <smile> Implanted: 12/22/04 Activated: 1/18/05 Deafblind/Postlingual BTE hearing aid user 20 years Severe-profound hearing loss 10 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2005 Report Share Posted July 3, 2005 , I dont think you will have a problem, at least with Medicare. Contact OSHU and find out. *---* *---* *---* *---* *---* Youth and skill are no match for experience and treachery. & Gimlet (Guide Dawggie) Newport, Oregon N24C 3G 8/2000 Hookup rclark0276@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2005 Report Share Posted July 3, 2005 yes, I have the information ready to call after the 4th of July. hopefully I get an answer soon. Meanwhile, I have sent email to the contact person in Spokane, WA where I had the testing done. I hope they can re submit my appeal, with the Medicare this time. <rclark0276@...> wrote: , I dont think you will have a problem, at least with Medicare. Contact OSHU and find out. *---* *---* *---* *---* *---* Youth and skill are no match for experience and treachery. & Gimlet (Guide Dawggie) Newport, Oregon N24C 3G 8/2000 Hookup rclark0276@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2005 Report Share Posted July 3, 2005 , Gotta kick some behinds, so put on the combat boots. LOL *---* *---* *---* *---* *---* " The early worm, on the other hand... gets eaten. " --Anonymous & Gimlet (Guide Dawggie) Newport, Oregon N24C 3G 8/2000 Hookup rclark0276@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2006 Report Share Posted March 24, 2006 Hi Michele, I Had gall stones about 4 years ago. I havent been banded yet (4/28) but I did talk to Nina about it. I was wondering if the scar tissue was going to be a problem with me getting banded and she said no because it is in two different areas. So I dont think they will go in the same place Dr. A did. So I think we will be dot to dots!! Are you having alot of pain? When I had them I could not believe the pain I was in. I finally had my Husband rush me to emergency and they tried to tell me it was indigestion. (Kaiser for you) I told them there was no way I was leaving this hospital until some tests are done. And sure enough I had Gall Stones. They gave me them to take home and I am not kidding 2 of them were the size of a ping pong ball. Then I had about 15 more in various sizes. But they did remove my gall bladder at this time. I will compare it to being in labor, dialated at about an 8 with no pain medication. Good Luck and hopefully you dont have them. Tammy Irish Michele <sleepytay2@...> wrote: Well I get to go have an ultra sound at kaiser tomorrow for gall stones. I have a question has any of you had these removed then was banded was there any problems with your incesion and did they use the same scares or do you now look like a dot to dot..lol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2007 Report Share Posted October 12, 2007 Hey Sue Great to have you back with us again. I was wondering how you were getting along and am so glad to find that your treatment with Thyroxine seems to be working for you, even if you still feel it is not quite the right dose yet. Take your time, and if your next blood results are 'normal' (how I hate that word - Ha!) then try to persuade your GP that you would still like to raise your dose by another 25 mcgs to see if you can get even better. I doubt you would have any trouble, as the average dose is around 150mcgs. Some people need more, some a bit less. BTW - DON'T FORGET that you should NOT take any thyroid hormone replacement for at least 24 hours before you have the blood test to get a true reading. Luv - Sheila I saw an endocrinology registrarwho decided that my adreals needed to be tested. I then wrote to theconsultant and amazingly got an appt. He said that my adrenals were OKand that I should make sure my ferritin (which was only 8!!!) washigher before I was started a trial of treatment. Soooo...I startedtaking iron tablets...! I managed to raise my ferritin to 40 somethingwithin 3 months and so they agreed to start the trial of treatment(which they said wouldn't work as my body would 'compensate').Weeell...I've been on levothyroxine for about 5 weeks now. I startedon 25mcgs and am now on 50mcgs. I haven't had my blood tested yet(that's next week), but I'm feeling better already. My skin isn't asdry, my periods are lighter (not, much, but very noticeablydifferent), my hair is growing back (my hairdresser told me today -it's still shedding a little though), the bags around my eyes aredisappearing, the jowls are going, my tongue doesn't look like a paperdoily as much, I have more energy, I've lost some weight and my sleepis absolutely AMAZING!!! :-)I know I need a higher dose, but I can't wait to see if my blood testagrees with how I feel. I would be very surprised if it didn't.I'm quite sensitive to my body and how it changes & something I'venoticed is that the levothyroxine feels very rigid (I know this is astrange thing to say). I feel much better on it, but sometimes itfeels as though I could do with having more thyroxine. Perhaps it'sbecause I'm not taking enough yet? I am very pleased I made a fuss though!Sue x No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.488 / Virus Database: 269.14.6/1061 - Release Date: 10/10/2007 08:43 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2007 Report Share Posted October 12, 2007 > > I'm quite sensitive to my body and how it changes & something I've > noticed is that the levothyroxine feels very rigid (I know this is a > strange thing to say). I feel much better on it, but sometimes it > feels as though I could do with having more thyroxine. Perhaps it's > because I'm not taking enough yet? > > I am very pleased I made a fuss though! > > > Sue x Well this is going to sound just as strange; but I know what you mean about thyroxine feeling rigid (even though I probably can't explain it any better myself). To me it felt odd; kind of flat and inflexible and I realise how peculiar that sounds so I was surprised when you said it made you feel similar too! I am now taking Armour and HC by the way. I,m not sure how to describe the difference in how I feel yet, but it is definately different. Louise. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2007 Report Share Posted October 12, 2007 How much Armour are you taking now Louise and when was the last time you increased it? Luv - Sheila Well this is going to sound just as strange; but I know what you mean about thyroxine feeling rigid (even though I probably can't explain it any better myself). To me it felt odd; kind of flat and inflexible and I realise how peculiar that sounds so I was surprised when you said it made you feel similar too!I am now taking Armour and HC by the way. I,m not sure how to describe the difference in how I feel yet, but it is definately different.Louise. No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.488 / Virus Database: 269.14.6/1061 - Release Date: 10/10/2007 08:43 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2007 Report Share Posted October 12, 2007 > > How much Armour are you taking now Louise and when was the last time you increased it? > > Luv - Sheila > > > I'm taking one and a half grains Sheila, I increased it yesterday after talking to Dr.P.;0) Louise. > > > > > > > > > -------------------------------------------------------------------- ---------- > > > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.5.488 / Virus Database: 269.14.6/1061 - Release Date: 10/10/2007 08:43 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2007 Report Share Posted October 13, 2007 Good - that should help Louise. We usually recommend increasing by half a grain every 4 weeks until you find the dose that works best for you. Any time you feel you are experiencing palpitations, sweating, dizziness or generally just feeling spaced out, that is the time you stolp your last increase and settle on the dosage you were on before. Luv - Sheila >> How much Armour are you taking now Louise and when was the last time you increased it?> > Luv - Sheila> > > I'm taking one and a half grains Sheila, I increased it yesterday after talking to Dr.P.;0)Louise.> >> > > > > > > --------------------------------------------------------------------> > > No virus found in this incoming message.> Checked by AVG Free Edition. > Version: 7.5.488 / Virus Database: 269.14.6/1061 - Release Date: 10/10/2007 08:43> No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.488 / Virus Database: 269.14.6/1061 - Release Date: 10/10/2007 08:43 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2007 Report Share Posted October 13, 2007 > > > > > > I'm quite sensitive to my body and how it changes & something I've > > noticed is that the levothyroxine feels very rigid (I know this is a > > strange thing to say). I feel much better on it, but sometimes it > > feels as though I could do with having more thyroxine. Perhaps it's > > because I'm not taking enough yet? > > > > I am very pleased I made a fuss though! > > > > > > Sue x > > Well this is going to sound just as strange; but I know what you mean > about thyroxine feeling rigid (even though I probably can't explain > it any better myself). To me it felt odd; kind of flat and inflexible > and I realise how peculiar that sounds so I was surprised when you > said it made you feel similar too! > I am now taking Armour and HC by the way. I,m not sure how to > describe the difference in how I feel yet, but it is definately > different. > > Louise. It's interesting that you noticed the same. I'm quite used to working with things and adapting my body and my activity, so I'll just stick with the levothyroxine for now, Louise...you never know, it might be OK for me. Anyway, I did very well to actually get the Levothyroxine trial - my endo is 'old school' and I had to do some fast talking. Sue > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2009 Report Share Posted January 7, 2009 Hello again to Joanne, Harper, Cheryl and those that I haven't seen for so long. I've just rejoined after being absent for a few years. You all knew me then as Seattle Kathy, but we've moved to central NY in 2007, so I've had to change my signature. I'm an AIH'er who was first diagnosed in 1995 and have been in prednisone induced remission since 1998. I developed sarcoidosis around 2000 and years of prednisone have caused a lot of problems for me, but I'm still hanging in there. I hope that all of you are doing the same. It's been too long. I'm happy to be back... -NY AIH/Sarcoidosis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2009 Report Share Posted January 8, 2009 Hi again from me too! Good for you Kay for becoming a moderator for this group, maybe that will keep you out of trouble, LOL!!!! I'm and I used to belong to this group back in 1999 before my PBC diagnosis, they originally told me I had AIH, then they changed it.. I've thought about so many of you older members and wondered how you were doing, so now I can finally catch up! I was so happy to see your latest post Cheryl, I was just looking at and old picture of you and Randy pre-transplant and wondered how you were! Ya'll made a big impact on me with your wonderful selfless love for each other. Can't wait to hear how you both are! Hi Joanne!!!!!!!! Can't wait to hear how you are too!!! I don't know who all else is still here, but I look forward to catching up with one and all and also meeting many new friends! This group was my lifeline upon diagnosis and I'm glad to be back. **************New year...new news. Be the first to know what is making headlines. (http://www.aol.com/?ncid=emlcntaolcom00000026) Quote Link to comment Share on other sites More sharing options...
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