Re: Celiac disease and Autoimmune Hepatitis

[Guest guest]

Thanks Ellie. My sister has ciliac sprue and has had a hard time with it.

Instead of the anemia I am the opposite with to much iron. They actually

checked me for hemochromotosis when I first found out about my liver problems.

I hope you were or are able to get all the info on foods and such. If you

have any problems let me know and I will get info from my sister for you.

the WV hillbilly

[Guest guest]

This is subject that has been brought up, but unfortunately most doctors will

NOT even think of testing for CD...especially if one is overweight. I was dx

with CI in 1999 ONLY after being subjected to humiliation by I believe 4 doctors

who laughed hysterically when I told them I had CD. Now, mind you, I had

already been dx with Dermatitis Herpitiformis (the skin component of CD) 22

years earlier, BUT the doctors took one look at my obese body and literally

laughed their heads off.

It was not until I had the endoscopy in October of 1999 that the GI believed

that I actually COULD have Cd and be fat. It is sad to say that there are many

doctors who are so ignorant and arrogant that they misdiagnose many many people

and so much damage is done to the small intestine that may not be able to repair

itself.

Our bodies have an incredible way to heal itself, but unless we are vigilant and

proactive and believe in our selves, we will continue to believe that doctors

are infallible....but by that time, we could be dead.

I don't always post, but it is important that we stick up for ourselves. WE are

consumers, and can pick and chose doctors as we wish for the most part. There

is also the Medical Board where you can report doctors who are not up to par. I

am just so angry that I had to fight so hard to " prove " that I actually did have

some horrible disease.

Oh, by the way, I had a hematologist who actually had the labs drawn that showed

I had " lupoid hepatitis " (what AIH used to be called), but when I asked him what

it was, he turned to me and said, " No one ever gets that. " Those labs were

drawn in 1997, but it was not until October of 2000 that I had the biopsy that

showed I had AIH...

Just be certain that you all are your best advocate.

Debby

[ ] Celiac disease and Autoimmune Hepatitis

In 1994, I was diagnosed with AIH. It took pretty heavy doses of

Prednisone, supplemented with Imuran to knock it down. My last

liver biopsy, in 1998, showed that I was no longer afflicted.

This month, I was diagnosed with celiac disease. Celiac disease or

sprue is a sensitivity to gluten which is found in many foods. It

is genetic. I tested positive for the gene and for elevated

gliadin. A biopsy of my small intestine came back today -

" consistent with celiac sprue " .

The reason I am posting this message is to inform all you with AIH

that in recent years, a definite connection has been found between

celiac and some autoimmune diseases, such as lupus and AIH.

Statistics are: 1 in 133 people in the U.S. has celiac. It mostly

affects people of Northern European ancestry. There is a lot of

information on celiac and the multitude of symptoms it produces. I

had no intestinal problems or heartburn or indigestion. I was

originally being tested for low red and white blood counts. The

tests showed that I had anemia, iron deficiency, and folate

deficiency. These are indicative of celiac. I believe that my gene

came down through my mother, who was anemic, unable to gain weight,

and was diagnosed in later years with irritable bowel syndrome.

These are also symptoms consistent with celiac.

So I suggest to those of you with AIH, do some research on the

internet (put celiac and autoimmune hepatitis in your search engine)

and if you think you fit the profile for celiac, INSIST that your

doctor test you for it.

I hope that this information will help someone here.

Elly Bergquist

[Guest guest]

Sherry, are you asking what foods to avoid for Celiac? In order to be gluten

free, one must avoid ALL wheat, oats, barley and rye....which just about

includes about everything....BUT fear not! There are just as many good foods

out there that are healthy and those that are NOT so healthy!

Debby

Re: [ ] Celiac disease and Autoimmune Hepatitis

I want the information on foods also if no one minds

sherry

[Guest guest]

, I didn't realize you too had Celiac! This is getting to be

interesting....now there are 3 of us who have CD and AIH!

Debby

Re: [ ] Celiac disease and Autoimmune Hepatitis

Please email me privately so we don't bother anyone not interested in the

gluten wheat free foods.

If it is all right to post on the site I will be glad to.

bsmyers3999@...

[Guest guest]

Make that 5... I am currently being tested for Celiac. I have AIH and Lupus

also. Interesting.

Kathy in CA

[Guest guest]

Hi Everyone, There are several different sites on the Internet that have

great information regarding Celiac disease..such as:

http://glutensolutions.com/medial.htm;

http://www.celiac.org/about.htm ;

http://www.nlm.nih.gov/medlineplus/ency/article/000233.htm;

http://www.gluten.net/diagnosis.asp;

http://www.nlm.nih.gov/medlineplus/news/fullstory_11630.html

I was also diagnosed with Celiac after being diagnosed with AIH. I believe

there are several of us with AIH that also have Celiac and other autoimmune

disorders. Going on the gluten free diet really helped me!!

Take Care,

Shirlee

Re: [ ] Celiac disease and Autoimmune Hepatitis

> Make that four people with Celiac and AIH ...I was diagnosed with Celiac

> 2

> years ago, while I was in the hospital with unexplained elevated liver

> enzymes. I was just diagnosed with AIH in November 2005.

>

> Deb

>

>

>

[Guest guest]

Yes, this is VERY interesting....it is more common than one suspects AND more

common than doctors are willing to check....very very sad.

Debby

itsukat@... wrote:

Make that 5... I am currently being tested for Celiac. I have AIH and Lupus

also. Interesting.

Kathy in CA

[Guest guest]

Scarey, isn't it? I truly believe that the CD irritated the liver...and that

had the CD been dx earlier, that no liver problem would have developed.

debismashni@... wrote: Make that four people with Celiac and AIH ...I was

diagnosed with Celiac 2

years ago, while I was in the hospital with unexplained elevated liver

enzymes. I was just diagnosed with AIH in November 2005.

Deb

[Guest guest]

Hi ...I am doing OK for the most part. I am still trying to completely

heal from the back surgery. I still have kept off the 75 pounds and am happy

about that. The bad thing is that it hurts sometimes badly...so badly that I

have been back on the oxycontin for the pain at night. My feet are numb, and I

really think that part of the problem is that I have been working out with

higher weights and that could be putting pressure on my back. The surgeon told

me that it owuld take one year for the muscles to completely heal. So, if it

continues next week, I think that I will call the surgeon's office and see if I

can get in...oh well...but at least I am still working and that is importnat to

me.

Thanks for asking.

Debby

bsmyers3999@... wrote:

My sister has it not me but I have learned a lot about it because of her.

How are you doing?

[Guest guest]

Sorry you are still having problems but am real glad that you continue to

lose weight. The heavier weights could be the problem, maybe you should go back

to lower ones for awhile.

Happy you are continuieng to keep working. I haven't worked for awhile and I

miss it.

Have a good day