Re: S.

[Guest guest]

SO VERY WELL SAID VINCENT!!!

DITTO DITTO TO JSR!

[Guest guest]

,

Has it ever occurred to you that you could be wrong? Literally hundreds of thousands of compounds have activity against cancer and are quite safe. This activity is against certain cell lines or perhaps animal models under controlled circumstances, but these things rarely work that well in people.

These compounds are screened all the time. The vast majority are rejected even though they may appear promising to an unschooled outsider. Those compounds that do pass muster are patiently developed over years.

Your letters come across like the work of a madman. You stumble over the smallest piece of information and you think you've discovered the holy grail. You mindlessly advise cancer patients to take enormous amounts of an excitotoxin (Aspartame) that is believed to cause brain tumors in children. The reason you recommend this is based on specious chemistry -- a chemistry that would never work in a test tube, much less in the human body. Now after you recommend your toxins you demand your Nobel prize. You even had a couple of people trying your idiotic formulations, but they have not yet had a chance to suffer the full consequences. You plaster the planet with your tedious e-mails and refuse to consider that you may have a mental disorder. When educated people ignore your ravings, you scream all the louder.

Sir, you are a public menace. The fact that you are insane and live in a fantasy world is no excuse. If I had my way I'd hold you down and make you take the witches brew you try to tempt others with.

A note to the list:

The authorities are not in the least interested in stopping a person like this. If he cured people and thus destroyed an industry, he would be stopped post haste. But it is idiots like this who end up killing people that the authorities love to point to and exclaim, "Our hands are tied. The laws are so weak we can't do anything. Please, please help us pass more laws against alternative and natural medicine!"

, you seem to think that there is no cure for cancer, but you rediscovered this one. Well, not only is there a cure but there are many cures. They are typically not publicized for a variety of reasons and I don't know of any that work on every kind of cancer. Thioproline, d-penicillamine, and the other things that you recommend are really not very effective. They have been tried. Researchers aren't stupid. If something looks really good and seems safe, don't you think we'd drop a few quiet words to family and friends? Well, we do. We know what works, but we also know the politics and the economics. We know that if cancer is easily curable then, lo and behold, we find ourselves having to deal with many new "emerging viruses" that have no apparent cure. We live in a cruel world.

, please stop your spamming.

[Guest guest]

Dear ,

I'm sorry you 're having so much trouble with the school. It sounds

to me like you are very close to getting through to them. Insist on them

not using time outs or removing recess for inappropriate behaviours. It's

great that you have legal IEP's in the U.S. Here in Canada, we don't. So,

get it into the IEP that these forms of treatment are forbidden! I loved

hearing about the way you wrestled with Matt & how calm he was afterwards.

We've just finished having a private O.T. assessment & it's really wonderful

to get all these Sensory Integration ideas on paper. We will definitely

share these with the school & hope they will at least try to do some of it.

I remembered back in March that Beth posted a wonderful letter to our

List about redirecting the blame for our children's behaviours at school.

I've looked it up & am sending it along to you. I hope it helps. It sure

has helped me to get things into a better perspective, although I have to

admit that I'm not brave enough to actually do what she suggests. One day I

hope I will have the strength & courage to SPEAK UP! Thank you, Beth &

good luck, .

Here's Beth's letter from March:

<<Message: 14

Date: Fri, 23 Mar 2001 17:16:14 -0500

From: Beth <paul.3@...>

Subject: Those " bearers of bad news " folks!

Dear Friends,

One of the things I realized that I learned how to do this school year was

to turn around school staff's blaming Ben for his " unacceptable "

behaviors. I find the more that I rephrase what they tell me, the better I

am getting at reframing the problem to them so that is is not my son's

fault.

First of all, I remind them that the reason that he exhibits XYZ behavior

is that he is communicating something important; it is part of their job to

help him communicate differently via working with the SLP; use of his

communication system (pic-syms, words, ec.). Next, I remind them that one

aspect of his disability is that he has majory sensory integration

problems; the team had agreed to implement a sensory diet- perhaps it was

time to do some fine tuning?? I also suggested that they look at what all

is going on during 10-10:30 every day- somewhere in there lies a clue as to

why he is having some aggressive behaviors during that time slot. Then I

remind them that now that he has been really good and on task for a while,

he needs to have the ante upped- he is likely getting bored or is getting

better at predicting what all they are going to do and he is reinventing

the rules so as to keep things more interesting for him. Etc. etc.

We even figured out a physical problem- he wasn't drinking enough

throughout the day and was getting dehydrated, practically. Getting a plan

for more fluids in action has made a huge difference in his affect.

When he started throwing his shoes at the bus driver, I gave the report to

the team and asked them to find out what this woman was doing to get him

upset. I am getting *much* better at reminding them that " we are the

adults. It is our job to figure out what he needs, and then teach him how

to access it. If there is a major temptation in the room (and he can be

very compulsive) how can the adults change things so it won't be staring

him in the face all the time? " Etc. etc.

I do not absolve my son of all responsibility for his actions; far from it.

I remind him frequently what is expected behavior; he does get privileges

suspended as appropriate. However, when the school expends so much energy

blaming the kid- reframing to ask them how things can be changed to help

him do better has become a very helpful way to change the language about

this.

It had occurred to me that so many of us get negative reports all the time;

it makes me crazy, too. But even though I used get upset about this, I

never felt I could say much because his behavior WAS difficult. But now I

say, " No, this is YOUR job- it's up to you to help him learn new ways of

reacting. " Wheeee! It is very powerful to reframe the blame. BTW, I also

remind myself this when he does things that get him into trouble at home-

usually there is something that I should have done that would have

prevented the behavior. One example is he likes to throw a toy into the

toilet almost every day- just a quick dunk- and then he takes it out and

puts it in the sink. DH and I have become more proactive, either having

him give us the toy before going into the BR, or telling him to put it on

the floor, because toys have to stay dry. Anyway, I have a kind of rule for

myself, that things that he does that are in my realm of prevention, I am

not allowed to get angry at him for doing- it is my problem. (Well, if

works most of the time.) There are some things that are all in his court,

such as some impulsive behaviors such as taking off someone's glasses.

BTW, I do remind them of people that they can call for extra help, or give

them articles, or copies of relevant Disability Solutions. I also ask them

to do a Functional Behavior Analysis, and to look at the behaviors that are

appropriate as well as the tough ones. My hope is that school folks will

began to think " how can I help this kid get to XYZ " instead of " this kid is

such a problem- here's what he did wrong again today. "

This is a huge difference in language. And it makes ALL the difference.

Well, now let me ask you all- do you see cyclical changes in your kids'

behaviors? Do you think there are seasonal differences? I think my kid

gets Spring fever at the stroke of March 20. But then if he is starting to

get squirrely , I also ask around to see if typical kids are also getting

antsy, finding it hard to concentrate, etc.

Anyway, just my musings. Welcome all new members! Wow, our numbers keep

growing. All of you in periods of trial and tribulation right now, know

that I keep all of the list members in my prayers. I also will be glad to

send a virtual massage, a good night's sleep, and a gallon of your favorite

chocolate ice cream. Or maybe what you need are those cleaning fairies.

They need to be kept busy!

Love,

Beth Mum to Ben, age 10- who said his first swear words this

month EEEK>>

[Guest guest]

Hi Kathy. Great info here. When was your child diagnosed? Do you

ever plan get togethers in MN for us parents to just " shat " ?

Feel free to e-mail me at gjspah@...

Spah

Mom to Corey (4 yr old - IgG Deficiency)

> Hi, .

>

> I'm glad you found the group. As you have already noticed, there

is lots of

> support and knowledge from the parents here. Keep in touch, and

let me know

> if you need anything in MN.

>

> Kathy, mom to Isaac, 10, CVID & IDF-MN program leader

[Guest guest]

Hi

I have sent an invitation to your friend Doreen. Please let me know if she has any problems joining the group.

Joan Claffey

Our best dial-up offer is back. Get MSN Dial-up Internet Service for 6 months @ $9.95/month now!

I am pretty much a lurker here but am now in need of some assistance.

A member of the Canadian PBCers site is dealing with a new diagnosis

of AIH and I have offered to connect her here in the hopes she will

find a connection with others. She has given me permission to give

her email address out here: DoreenPBC@...

I do not know how to get her into the site so if someone would be so

kind as to look after her that would be much appreciated. Thanks.

Be well....... S (BC)

[Guest guest]

HI !

Cameron had his tethered cord released when he was 22 mo. His

neuro.said at the time his syrinx weren't an issue. I'm going to ask

for an mri so he can check and check on the tethered cord. His neuro-

said its very rare but can happen. Come to think of it, everything

that happens they tell me is kinda rare. Rare doesn't mean anything

to me anymore! They will probably do an mri on Dylan also to check

for a tethered cord. I can't believe I'm having such a hard time

making a decision, there are only 2 choices!! What is Gabi's curve

at now? How often does her syrinx fill up? I go to see the ortho.

on Thurs. for Dylan, I'll ask him about the growth rod blocking the

syrinx. He seems to know a lot about the rod.

Since you know that the cranial procedure(sorry, I don't remember

what it was called, or how to check w/out earasing this post)seems to

work for her, could her ped. maybe give her something to help her

relax and sleep at night until the sleepy effect wears off? Does

benadryl make her sleepy? I'll let ya go now! Take care!

S.

-- In infantile scoliosis treatment , " ansiosamjm "

<usameza@c...> wrote:

> Hi ,

> I was just wondering what they are saying about Camerons's spinal

> cord. Did you say that he has syrinxes? How are they looking

now?

> Do they think that the cord retethered? I did read about that

> happening to someone. Did your son have the surgery to release the

> cord and have the decompression at the same time? The neurosurgeon

> we saw was saying that the growth rod worried him a little, because

> it may block the view of the spinal cord to check the area where my

> dd tends to collect fluid. He did not seem to have a whole lot of

> experience with the growth rod, he was just throwing that out there

> as something to possibly consider. Gabi's cord is looking good

right

> now. At 6 mos she had a syrinx, but now it has gone way down and

> the cord is just dialated. We had no idea she had the syrinx, so

we

> had been doing cranial sacral therapy on her. (The PT was) I

don't

> know if it could have helped the fluid to go down, but it

definately

> helped the ball of fluid get out of her head. I also took her to a

> cranial sacral therapist who was supposed to help with the speech.

> By the next day, she was saying so many new words. It sounds too

> way out, but it really seemed to help. The BAD thing is, when we

> left she said that Gabi would be sleeping a lot for a few days---

NOT-

> -she could not sleep and I thought I would die of exhaustion. IT

> lasted for weeks! I am too scared to bring her back. I don't know

> if I can go through that again!She is finally sleeping normally

> again.

> Anyway, rather long winded, but just wondering.

>

[Guest guest]

-

Hi ,

When I look at Cameron without a shirt, I can definately tell the

ribs are uneven. He walks with his stomache pushed out from the

scoli. Like yours, he runs, jumps, terrorises, anything any other 4

year old would do. After his cord release and the neuro. saw his

back straighten from 85 degrees to 63 degrees, she agreed with us

that a brace wouldn't be needed unless it started going up again.

Since a brace would only stop it from getting worse, not correct it,

We couldn't see making such an active little guy wear one at the time.

It really helped that the neuro. agreed. His back stayed the same

for 2 1/2 years. Since it seems all doctors measurements come out a

little different, who knows, maybe it didn't go up that much. He

just had a growth spurt of an inch, right before his x-ray, maybe

that made it worse. Anyway, we are also thinking of the rib. I know

what you mean by hard, they have to live with our decision! I'm

going to ask for another x-ray, I strongly believe in the power of

prayer, and maybe, just maybe, it would have caught up with his

growth spurt! Talk to ya later.

S.

-- In infantile scoliosis treatment , " ansiosamjm "

<usameza@c...> wrote:

> Hi ,

> I had read that the syrinx can cause a scoliosis curve. For Gabi,

I

> am sure that the fluid she had , caused her to grow the extra thumb

> and also have the right arm and hand weakness. my goddaughter

> called me in the hospital to say congratulations when she was born

> and said matter of factly does she have 10 fingers and 10 toes? I

> had to answer that she had 11 fingers and 10 toes. I always knew I

> had the right baby when they brought her back in to me too, I just

> had to check her right hand for the 2 thumbs. Strange right? The

> first MRI person did not notice the syrinx or the hemivertabrae she

> had. So it went undetected for more than a year. Now she does not

> have much fluid, the cord is just dialated. The area where she has

> the problem is right where her curve is the worst, and where the

> hemivertabrae is. HEr curve was 43 in January. She has a little

> curve in her neck ( only like 12) bc of a hemivertabrae there too.

> I want to leave her neck alone for now. They had wanted to fuse

it.

> We have changed dr.s now. We are planning to do the TR but, now we

> are freaking out big time. We think she looks better than ever

> now. This could be bc she is developing a lower compensatory

> curve. Most of the stories we have read about the TR seem to

> involve bigger curves. We are worried and are thinking we should

> wait until her curve is over 50, probably like in a year. But then

> I keep thinking, what if she gets better and really does not need

> this? Of course it would not be good to let it go so long that it

> becomes dangerous. 2 weeks ago I was telling someone about her

> surgery plans, and then I had to run full speed to catch Gabi from

> jumping in to the swimming pool. I was thinking now if I have to

> run that fast to catch her, how can she need back surgery? It is

> just so bizarre. The way I understand it, they used to think that

> the one part of the curve did not have any growth potential anyway,

> so they would do a fusion, But this would make the spine shorter

> which for a very young person could interfere with the growth of

the

> alveoli of the lungs. With the TR, it allows the parts of the

spine

> that are not quite perfect, to grow and give more height to the

> thoracic spine to give room for the lungs. At least that is what I

> got out of it.

> Gabi has fused ribs too, so they would seperate those too. It is

so

> hard to decide what to do. Does your son's chest any different?

> Gabi has this ridge sticking out of her chest. It is called pectus

> carinatum. It has gotten better lately. Wouldn't it be nice to

> have a village wise man to go to and ask for help with these

> decisions?

> mary

[Guest guest]

-

Hi ,

Dylan turned one in April. The neuro. mentioned that Cams syrinx and

his spina-bifita colta(sp?) were clues when looking for a tethered

cord. For some reason she had no way of knowing if his cord was

tethered until the surgery. She went by clues they look for. What

all will they be able to tell you about the genetic testing? Can

they tell if your child is more likely to get something later?

Or is it so they know as adults what they're kids could have?

Sorry for all the questions! Take care!

S.

-- In infantile scoliosis treatment , " ansiosamjm "

<usameza@c...> wrote:

> Sorry to hear that Dylan's curve has also increased. How old is

> he? It seems that ia was worried about her kids having a

> similar problem. I wonder how MIa is doing? I think she was

having

> similar issues with Mia. I thought I read about Spina Bifida being

> hereditary, like if you have one baby with it, you would have a

> higher chance of having another baby with it than someone in the

> general population. A geneticist was telling me about a telomere

> test, to really test the chromosomes. I am planning on getting

that

> test done. My uncle had spina bifida, and I thought the Dr. said

> that the syrinx can be considered related to Spina Bifida. Did

they

> tell you that too? Do they have any kind of markings on their

> backs? I know I read about the patches of hair and stuff. we will

> be praying for you and your family.

>

[Guest guest]

Jen,

Our Neuro. said that tthere wasn't a test to check for Idiopathic. I asked the same question although I am not having anymore kids. I had 2 ultrasounds with and our Dr. that did them even went back after was diagnosed to recheck the pics and his spine was perfect!

Have a great Mothers Day. We keep missing each other!

Crista

[Guest guest]

Hi ,

Thanks for your response. I look forward

to seeing Dr. kson especially if I don’t have to wait for 2 hrs….

Hopefully there is a positive thing comes

up from this appointment. I’ll let you know.

Thanks

Meg

[Guest guest]

Thanks , I’ll let you know

for sure.

Meg

Re: Re: Meg

and S.

>

> Oops!

> Meg and S.,

> I saw Shellie and Moriah yesterday, and the

best days for us to have

> lunch are tomorrow or thursday. Shellie

informed me that she would

have

> to leave for lunch no later than 11:30, so she could be back by

12:45

> for Mo's p.t.

> I can find us a cheap/good restaurant near

the hospital, so let me

know

> what you guys like to eat.

> Looking forward to it!

>

> HRH

>

> *Meg I am thinking about the e-mail you just

sent. Somehow we will

come

> up with a strategic plan...Lets talk about it

at lunch..

>

>

>

>

[Guest guest]

,

I don’t think his release helps his

scoliosis. His curve is still growing from +/- 47 to +/- 55.

Good luck for the MRI procedure. Let us

know how it goes.

Meg

Meg

>

> Hi,

>

> Sorry its taken me so long to get back to

ya! 2 hours!!! You go

to

> childrens to see him, right? I take my

boys to his satalite office

> off of Broadway and C-470. He's only

there once a week, maybe

thats

> why we never have to wait long, no other

distractions. Isn't

> Littleton closer to Aurora than

Childrens? Anyway, I went through

a

> list of ideas like you did.( isn't he

patient!) Stapling was ruled

> out because his curve is over 45 degrees( I

think that was the

magic

> number?) When I asked about casting for

Cameron he looked at me and

> said, " Honestly, if it were my own son,

I would not cast him " (he

> also has a 4 1/2 yr. old. Although he

did say casting was an

option

> for my one yr. old, Dylan. He's worried

about the rib because Cams

> ribs are fine. He said with the rib he

would have a stiff rib cage

> witch, since the lungs are our mechenism for

breathing, a stiff rib

> cage could make him short of breath in the

long run. The rod would

> make his back stiff, but he says it will be

still anyway. I'm

making

> a question list, for after the MRI in

June. He's checking for a re-

> tethered cord or syrinx. He's also checking

Dylan for a tethered

cord

> or syrinx.(Dyls curve went from 26 to 40

degrees in 2 1/2 mo.)

Since

> Dyl is so young he would wait on surgery and

brace or cast until he

> is older. Cams curve was at thoractic

curve was at 85 degrees at

the

> time of his release, the next day it went

down 13 degrees( all the

> doctors told me it probably wouldn't

straighten much if at all)

after

> a couple months if settled at 55. They

were amazed!!

> When they would tell me it will probably

never be straighter, I

would

> say " You also said it wouldn't straighten

much! " Take Care!

>

> S.

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Hi ,

Thank you the info. Thats funny you mentioned the saucer, my one yr.

old likes to go in there also! We just set it in front of the t.v.

and he's set!

thanks!

S.-

-- In infantile scoliosis treatment , " ansiosamjm "

<usameza@c...> wrote:

> Hi ,

> I did read about this problem with a boy with tethered cord type

> problems. do you know Carmell? Her son has had this problem and

it

> seems to be related to the spinal cord problem - from what I

> understood. She really knows a lot her son is now like 7 or 8. I

> know he gets impacted from time to time. I think that there are

> some dietary things one can do..not sure what. If you want to ask

> her you could either go to her son's site - Braydon Burns -type in

> his name on a search and you should be able to find it. or else

you

> could to the veptr site and ask her there. She has been very

> helpful to me. My dd had a lot of constipation as an infant,

though

> I never had to take her to the ER - that sounds awful. I know that

> someone has told me that kids with low tone tend to get

> constipated. Gabi has lone tone and some kind of weird plus one

> thing with her reflexes. Gabi was cured by the exersaucer. I had

> to put her in it every day and that is how she pooped before she

> could stand up by herself. Good luck I know I tried every food and

> drink when she was a baby, even Karo syrup in the bottle.

>

[Guest guest]

Hi S.,

I have been out of the loop for a few days, and wanted to make sure that you narrow down what type of cast kson applies, before its applied. Please clarify that he will apply a serial corrective plaster cast. I would suggest that you copy pics of little Nick and Evan from the CAST support group, and show him what you want the cast to be.

Believe it or not, this has happened to a few moms. They are under the impresion that theyre getting a serial corrective plaster jacket, and when their babe is rolled out of the OR, its just a body cast or Rissser cast.

I just dont want this to happen to you, if you decide that this is the course of treatment you are going to pursue!

talk soon,

HRH

[Guest guest]

Hi H.

How do I email the photos to kson?- Is there a way to email from

the photo page? Take care!

S.

-- In infantile scoliosis treatment , HRHandCO@a... wrote:

> Hi S.,

> I have been out of the loop for a few days, and wanted to make sure

that you

> narrow down what type of cast kson applies, before its

applied. Please

> clarify that he will apply a serial corrective plaster cast. I

would suggest

> that you copy pics of little Nick and Evan from the CAST support

group, and show

> him what you want the cast to be.

> Believe it or not, this has happened to a few moms. They are under

the

> impresion that theyre getting a serial corrective plaster jacket,

and when their

> babe is rolled out of the OR, its just a body cast or Rissser cast.

>

> I just dont want this to happen to you, if you decide that this is

the course

> of treatment you are going to pursue!

>

> talk soon,

>

> HRH

[Guest guest]

S.,

Sorry, for the delayed reponse. I havent been able to answer my mail on a regular basis due to my grandmas health. Although, they took her out of ICU today, and I think she is on the mend.

About the risser cast. Can you please remind me of where and to what degree your son's curve has progressed.?

My mind has not been focused on the group for a few days, and I may have misinformed you. Please forgive me if thats the case..

If his curve is significant (over 50), and high (thoracic), a risser wouldnt be out of the question.

Im really glad he is willing to apply a series of plaster casts.

Do you have a date, yet?

Please keep us posted.

Oh, and about the pictures...I think you can just copy them from the photo section of the group...(?) I'll try it later.

talk soon,

HRH

[Guest guest]

S.,

I just wanted to say "Thanks" for being so persistent with kson. Who knows, you may have just opened the door for serial corrective plaster casts in Denver, and that would be a huge accomplishment!

When I was trying to get Olivia casted 5 yrs ago, I was laughed out the door! So your success in getting him to say he'll do it, is wonderful!!

Please copy pictures from CAST to show him, in case he needs them.

If he has questions, please have him contact D'Astous or Mehta. I can provide you with contact info, if needed.

Heath, this could be the beginning of serial corrective plaster jackets in Denver. If so, pat youself on the back. You have just accomplished something so very important! If not, atleast you have put another bug in their ear.

I appreciate your hard work!

and so will many other moms in this area.

talk soon,

HRH

[Guest guest]

,

Did Dyl's curve worsen in the time he was without a cast?? If so how much?

Crista

[Guest guest]

Thanks . I feel a little better after hearing that.

Crista

[Guest guest]

Christa,

Dyl's curve improved 5 degrees! He must have had a growth spurt or

something during his brief casting. I was really surprised, I thought

it looked like it was getting worse.

Take Care,

S.--

- In infantile scoliosis treatment , cristab@a... wrote:

>

>

> ,

> Did Dyl's curve worsen in the time he was without a cast?? If so

how much?

>

> Crista

[Guest guest]

Welcome back !!

Cant wait to catch up!

Do you work today?

talk soon,

HRH

(btw, slept great last night...)

Re: bert and smells from the cast-skin problems

Hi Bert,I haven't been on the group for a while, but we met at the ETP in SLC. I'm Cam and Dyls mom. Anyway, we also were sent home with a tight and extremely thick cast. Nothing like Miss Mehta's. We have had to do a lot of adjustments to Dyls. We will be making it very clear to Mike Pond that are here for the Mehta cast, not the Pond cast. Please make sure he, and Dr. Santora, know what you expect! I will be bringing thier Mehta cast with us, so there is no confusion to what we are asking for. Hope this helps! When will you be there?Take Care! S.> > Deshea,> > > > I read that your son was first diagnosed at 18 months and now he > is > > alomost 4 years old. How many casts has he had? > > > > Is the casting procedure used mainly for helping our little ones > to > > grow and have room internally?? Then at 12 or 13 get surgery > after > > growth has stopped. Does the casting ever correct children so > they > > never have to have surgery or even another cast?? It seems once > you > > start casting several may be needed. My daughter is 19 months old > and > > they want to cast this month. Does that mean casting will > continue > > through her whole childhood?? > > > > Thanks > > Sue> > (2-23-04)> > > > > > > > > > > >

[Guest guest]

Hi!

Nope, I don't work today! I should be home.

Is the sleep helping with your migraines?

Call me!

S.--

- In infantile scoliosis treatment , " heather hyatt "

<heather@i...> wrote:

>

> Welcome back !!

> Cant wait to catch up!

>

> Do you work today?

>

> talk soon,

>

> HRH

> (btw, slept great last night...)

> Re: bert and smells from the cast-

skin problems

>

>

> Hi Bert,

>

> I haven't been on the group for a while, but we met at the ETP

in

> SLC. I'm Cam and Dyls mom. Anyway, we also were sent home with

a

> tight and extremely thick cast. Nothing like Miss Mehta's. We

have

> had to do a lot of adjustments to Dyls. We will be making it

very

> clear to Mike Pond that are here for the Mehta cast, not the

Pond

> cast. Please make sure he, and Dr. Santora, know what you

expect!

> I will be bringing thier Mehta cast with us, so there is no

> confusion to what we are asking for. Hope this helps! When will

you

> be there?

>

> Take Care!

> S.-

>

>

>

>

>

> -- In infantile scoliosis treatment , bert lehane

> <bert_lehane@y...> wrote:

> >

> > Oh my god that is heavy. I certainly hope Dr Santora doesn't

let

> Mike Pond put a heavy cast on Bridget as we are going into 6

months

> of Summer and that's enough to put up with. Our cast hasn't had

any

> break down at all, I am really happy with the lightweight MIss

Mehta

> model.

> >

> > i hope Adan copes with it OK.

> >

> > Well I suppose you will know what to do if ever anyone comes

into

> your pharmacy with a coin in their cast.!!

> >

> > Bert and Bridget

> >

> > <christinehrph@y...> wrote:

> > Mike and Dr D put this cast on we were in on Dr D's last day

> > The last cast was really light and broke down pretty fast I

think

> this was a mike thing because the 1 st cast was really thick and

> heavy also the the only one that was not was the 2nd and he was

not

> there..I am going to Post his updates tonight ( i hope) i keep

> getting behind on all the emails

> >

> > His cast is like 6 and 1/2 pounds..........and he is only 27

pounds

> >

> > I am Pharmacist and I have had some funny things happen to me

at

> my shop but none like that before ( i guess that is why we are

the

> most trusted profession they say)

> >

> > I met Dr Santora briefly seems really nice.

> >

> >

> >

> > bert lehane <bert_lehane@y...> wrote:

> > Great idea ,

> >

> > I think some cast bloopers would be great. Yes, " chemist " is

Aus

> Speak for pharmacist though we also call the " shop " a chemist or

a

> pharmacy. Translate to American " Drug Store. "

> >

> > And yes I think the milk will definately stink. Why is Adan's

> cast heavier and tighter? Was that Dr D'Astous or Mike Pond or

was

> it Dr Santora?

> >

> > I am going to ask them to cut this one down lower around her

belly

> button as we have had some rubbing issues with it being under

the

> cast and our summer is cruel.

> >

> > Bert

> >

> > <christinehrph@y...> wrote:

> > I think we need to keep a record of these " bloopers " on the

web

> site so it can have some fun stories also.When you say Chemist

is

> that a pharmacist in Australia?

> >

> > Glad to here things are good over there.

> >

> > and Adan

> >

> > bert lehane <bert_lehane@y...> wrote:

> > Hi ,

> >

> > Here is a cast story. Bridget posted a dollar coin down the

back

> of her cast yesterday. I fished around for it making her roll

one

> way and another trying to find where it was for about 15

stressful

> minutes. I had this picture of us being detained in every

airport

> as she would set off the metal detector, that is if it didn't

become

> so uncomfortable she couldn't sleep!! I ended up at the chemist

with

> the assitants helping me turn her upside down. It came out

> eventually and fell into her undies. She thought that was

> hilarious. I have had easier trips to the supermarket.

> >

> > Happy days

> > Bert and Bridget

> >

> > <christinehrph@y...> wrote:

> > Hey Bert

> >

> > I think I may have a funny issue Adan just had a cast change

ans 3

> days ago he split a mixture of pedisure/milk into his

cast...that

> is going to stink and I hope I do not miss it for a cast

sore I

> hope I am only kidding this cast is really tight and heavy..

> > I will give you guys the update tight go to run to work

> >

> > hope all is well

> >

> >

> > jimsuec <cappelli5@c...> wrote:

> >

> > > Deshea,

> > >

> > > I read that your son was first diagnosed at 18 months and

now he

> > is

> > > alomost 4 years old. How many casts has he had?

> > >

> > > Is the casting procedure used mainly for helping our little

ones

> > to

> > > grow and have room internally?? Then at 12 or 13 get

surgery

> > after

> > > growth has stopped. Does the casting ever correct children

so

> > they

> > > never have to have surgery or even another cast?? It seems

once

> > you

> > > start casting several may be needed. My daughter is 19

months

> old

> > and

> > > they want to cast this month. Does that mean casting will

> > continue

> > > through her whole childhood??

> > >

> > > Thanks

> > > Sue

> > > (2-23-04)

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

,

I don't mean to be nosy, but did they do the big incision for Evan's

appendix?? POOR BOY!!!!! Please give him a big, but gentle, hug

from us. It stinks to have one of these issues at at time, but to

be coughing after surgery is rotten!

Hang in there!!!!!

Meg, mom to

, 15, asthma, allergies, growth hormone def

, 10, asthma, allergies, gut issues

Annie, 7, asthma, allergies, and hopefully hanging on to those

pneumo

antibodies!!!

>

> Yep, we saw a different Ped on call and he said there were

definite

> " crackles " going on in there. And he said that the color was

relevant.

> These were two docs in the same practice, how frustrating!

Anyway,

the Ped

> was the one who put him on Augmentin, our infectious disease doc

also added

> Zithromax, just in case it was a mycobacteria. Evan seems to be

making a

> turn for the better, but he's having lots of incision pain, thanks

to the

> coughing.

>

> Thanks for asking!

>

>

[Guest guest]

Yep, we saw a different Ped on call and he said there were definite

" crackles " going on in there. And he said that the color was relevant.

These were two docs in the same practice, how frustrating! Anyway, the Ped

was the one who put him on Augmentin, our infectious disease doc also added

Zithromax, just in case it was a mycobacteria. Evan seems to be making a

turn for the better, but he's having lots of incision pain, thanks to the

coughing.

Thanks for asking!

[Guest guest]

I really hope he feels better soon! A 2 inch incision is nothing to

sneeze at----OUCH!!!!!! I hope that all the antibiotics help him

and ALL of you can get a good night's sleep! I love Valarie's idea

of the Nebbing Nanny!!!!

We'll be praying for you guys!

Meg

>

> Meg,

> Evan has a small incision, it's about 2 inches long. Part of the

problem

> hasn't only been the incision, it's been abdominal pain, in

general. It

> turns out that the pathology report showed he did not have an

appendicitis,

> it showed lymphoid hyperplasia (which doesn't tell us much), but

it turns

> out that the appendectomy wasn't necessary! So basically they

have no idea

> why he was in so much pain. They assumed appendix when he tested

negative

> for pancreatitis (we made them check for that since Conner had it

last

> year). I'm praying it doesn't turn out to be anything else! I

spoke to the

> surgeon today and he said that he sure hoped we weren't missing

anything,

> between the sudden pneumonia and abdominal pain. I wasn't

thrilled with

> that thought!

>

> Anyway, thanks for thinking of us!

>

> Take care,

>

> Mom to Conner (12, unknown combined immune deficiency,

lymphadenopathy,

> asthma,

> Hashimoto's disease and resolved adrenal insufficiency),

> Hayden (12, unknown immune deficiency, IBS and moderate hearing

loss/aided),

> Evan (12, unknown immune deficiency, asthma and mild hearing

loss/unaided),

> and Kelsey - (10, unknown immune deficiency and asthma)

> Please visit us at www.caringbridge.org/in/connersmith

>