Guest guest Posted July 15, 2006 Report Share Posted July 15, 2006 Debby my sons labs are ok but he has cirrhosis I am just praying for regeneration of the liver sherry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2006 Report Share Posted July 15, 2006 Hi, I just had my gastro/hepatologist appointment and all liver function labs were normal except for 1:140 for AMA (a lot better than 1:1280). It took 6 months on THREE Urso Forte to do this. However I still have muscle cramps--I can't believe it but the soap under my fitted sheet near my feet must be doing something because I didn't suffer from cramps in my feet at night this week! So YES, you can have muscle cramps with normal liver function labs. Nina in Spokane, DX PBC 4/05, PMR 4/06 Leave your organs here on earth, HEAVEN knows we need them! SUPPORT ORGAN DONATION Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2006 Report Share Posted July 15, 2006 That is interesting...did the find the cirrhosis from a biopsy? I don't want to have another one. The last one kept me in the hosptial overnight...I don't want that again! Thank you for letting me know. Debby SOWeepee@... wrote: Debby my sons labs are ok but he has cirrhosis I am just praying for regeneration of the liver sherry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2006 Report Share Posted July 15, 2006 I am going to the store right now to get some! Debby ninashecter@... wrote: Hi, I just had my gastro/hepatologist appointment and all liver function labs were normal except for 1:140 for AMA (a lot better than 1:1280). It took 6 months on THREE Urso Forte to do this. However I still have muscle cramps--I can't believe it but the soap under my fitted sheet near my feet must be doing something because I didn't suffer from cramps in my feet at night this week! So YES, you can have muscle cramps with normal liver function labs. Nina in Spokane, DX PBC 4/05, PMR 4/06 Leave your organs here on earth, HEAVEN knows we need them! SUPPORT ORGAN DONATION Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2006 Report Share Posted July 15, 2006 > OK...have a question here. I am not quite certain what is going on, > but I spoke to the GI about the muscle cramping and she said that this > generally doesn't happen until you develop cirrhosis of the liver. She > was shocked that I am having as many muscle cramps as I am. Debbie, Sounds like another idiot doctor response. Muscle cramping can be caused LOTS of different things. If everyone who gets night cramps have cirrhosis..........................????? etc. Low magnesium levels, low calcium levels, low potassium levels all can lead to cramps. Sure would like to see your numbers lower than they are, but that can come with time and continued use of proper meds. I'll try to remember to send you a reminder about the chat, but no promises, heehee. Jeannette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2006 Report Share Posted July 15, 2006 I don't know how they found it. he was in the hospital and they did not tell me just said he had the cirrhosis sherry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2006 Report Share Posted July 15, 2006 I have cirrhosis and have NO cramping. Kathy, WV dx 6/01 stage 3/4 PBC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2006 Report Share Posted July 15, 2006 This is VERY reassuring! Thank you for sharing! Debby mom2you2@... wrote: I have cirrhosis and have NO cramping. Kathy, WV dx 6/01 stage 3/4 PBC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2006 Report Share Posted July 16, 2006 My son has no cramping and he has cirrhosis He does have extreme body pain I think it is because he is so thin sherry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2006 Report Share Posted July 16, 2006 Do you take prednisone? I do and it can cause muscle cramps. Cheryl > > OK...have a question here. I am not quite certain what is going on, but I spoke to the GI about the muscle cramping and she said that this generally doesn't happen until you develop cirrhosis of the liver. She was shocked that I am having as many muscle cramps as I am. > > My question here...can the labs be " OK " for me that is 2-3 times normal) but STILL have cirrhosis? > > Debby > > [Non-text portions of this message have been removed] > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2006 Report Share Posted July 16, 2006 My liver is cirrhotic and I've never had a biopsy. The doctors were able to confirm this through an abdominal MRI, CT Scan and sonogram. My labs have been in the normal range for 2 1/2 years. I didn't have muscle cramping until this summer when I started to wear sandals that were more stylish than comfortable. Sadly, the damaged tissue cannot regenerate but the remaining healthy tissue can remain that way for many, many years. NY dx PBC/AIH 2/2003 --------------------------------- See the all-new, redesigned .com. Check it out. Quote Link to comment Share on other sites More sharing options...
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