I only get a cold or the flu every 3 years on average. This is not normal
and is indicative of an immune system that is not in balance (probably RNASE
L upregulation). The fact that you don't catch any viruses, etc. may not be
a good sign. Steve B.
PS: If and when gene therapy becomes available and is proven and effective
treatment or cure for CFS, I believe it will become available to everyone in
the US and will be paid for by private insurers or medicare.
> Hi! Steve B
> Thanks for your explanation. It sounds like what is happening.
> I should have added that I spent the first two years on a major, major
antioxidant program. If it said anti-oxidant I took it, and that cleared up
my dizziness and balance problems. I'm assuming
> that it was enough to overcome the TH1/TH2 imbalance because I just don't
catch any viruses/bacteria/skin disorders etc. that I should be if my immune
system wasn't functioning.
> After I was diagnosed in 1997 and kept getting progressively worse, I
decided it was 'do or die', I didn't want to live like this. I took up to 20
grams of Vitamin C a day and with it between 20 -
> 60 anti-oxidant/vitamins/magnesium and malic acid/latest CFS fad
supplements and anything else I could think of. I haven't noticed any ill
effects. Now, I just take a few supplements every second
> or third day, using the sway test to determine whether or not I need it.
> I checked out a couple of stores and they both had chaste tree tincture,
so I am going to try it and see if it has the same effect as the tonic.
> As a thought, even if gene therapy is going to be the answer, there are
just too many of us to make gene therapy available to all, considering the
cost, availability, expertise, etc. CFS isn't
> just a disease of the rich, it's a disease of the industrious people that
make the world go 'round, we just wore out a little sooner than the general
population. I wouldn't hang my hat on waiting
> for gene therapy as the answer.
> Wishing us all well,
> Bullock wrote:
> > Merle,
> > The TH1/TH2 imbalance is not secondary to the HGH depletion. The HGH
> > problem is caused by our lack of dynamic hormone response. A portion of
> > hypothalamus is damaged and the HPA-axis is not functioning properly.
> > can raise the HGH levels to normal or above normal (by injections) and
> > will at best keep the TH1/TH2 imbalance at it's current deranged state
> > more likely the imbalance will worsen.
> This list is intended for patients to share personal experiences with each
other, not to give medical advice. If you are interested in any treatment
discussed here, please consult your doctor.