Re: Cognitive deficits and IV rocephin

[Guest guest]

I had long term Lyme and went through two Rocephin (Ceftriaxone)

treatments about a year apart. I still had neuro symptoms, most

bothersome were balance and stamina problems. When I finally saw an

LLMD, he diagnosed the residual problems as being Bartonella, for which

I was successfully treated. Just thought you may want to have this checked.

W

Baltimore

mboyerphd wrote:

>

> Hi, everyone

>

> For those who have been treated with IV rocephin, what improvements

> (if any) did you notice?

>

> Were the improvements cognitive? Neurological? Pain-related? Other?

>

> I am getting extremely concerned about the effect this is having on

> me, cognitively speaking. I am in the midst of working on my

> dissertation, and find myself struggling to find SIMPLE words at times.

>

> That scares the crap out of me.

>

> Does anyone else struggle with cognitve deficits?

>

> Thanks,

> Michele

>

>

[Guest guest]

Hi, ,

I suspect I may have Bartonella. I am on doxycycline, which I know is used to

treat bartonella in cats, and I do feel a whole lot better. But I think usually

Levaquin is used for people? Can I ask what treatment you used, for how long?

Many Thanks,

D.

avalonf@... wrote:

I had long term Lyme and went through two Rocephin (Ceftriaxone)

treatments about a year apart. I still had neuro symptoms, most

bothersome were balance and stamina problems. When I finally saw an

LLMD, he diagnosed the residual problems as being Bartonella, for which

I was successfully treated. Just thought you may want to have this checked.

W

Baltimore

---------------------------------

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[Guest guest]

Hi Michele

I did 2 months of rocephin after 3 on doxy. I didn't really notice much

improvement from the rocephin. I still had symptoms but lessened ones

from when I started. I think my cognitive functionning improved a tad.

I am back on abx after a month break because I started to really go

downhill again. not sure of the reason even though I was bitten again

but after a week on doxy, I'm feeling the best I ever felt in the last 8

months. Not sure where I'm going from here but am enjoying the

experience of feeling better. as to my cognition or fognition, it seems

to come and go. It is definitely very distressing in the mix symptoms. I

try to work on it, to exercise my brain, in effect. I have started to

learn touch typing after a lifetime of 2 fingers. I stress myself to

come up with mental minutae on a pretty regular basis and I try to read

and write regularly and extensively in an attempt to keep my verbal

wheels greased.Remember that with aging, all functions decline. all we

have is exercise and luck to keep ourselves in the game maximally.

keep rowing, Michele !

mike

>

> Hi, everyone

>

> For those who have been treated with IV rocephin, what improvements

> (if any) did you notice?

>

> Were the improvements cognitive? Neurological? Pain-related? Other?

>

> I am getting extremely concerned about the effect this is having on

> me, cognitively speaking. I am in the midst of working on my

> dissertation, and find myself struggling to find SIMPLE words at

times.

>

> That scares the crap out of me.

>

> Does anyone else struggle with cognitve deficits?

>

> Thanks,

> Michele

>

[Guest guest]

Michele,

Rest assured many of us suffer cognitive deficits, though I can only

speak for myself. My treatment was cefriaxone, not rocephin, but

they're both frequent treatment choices.

I did notice about 1/2-way through my 33 days that I had fewer

headaches and that my inexplicable mood swings did seem to be

better. However, my memory (especially verbal) and my ability to see

an extremely obvious answer to a problem are seriously impaired. (If

I walk away from a task, I often cannot figure out how I was doing

it; people have to repeat phone numbers, etc. to me three or four

times before I can write them down accurately; forgetting my

shopping list, I go home to retrieve it rather than realize I could

call and have my husband read it to me.)

I am 6 years post-treatment. Though my swollen joints are no longer

a problem I'm in moderately severe pain constantly. Where I used to

be amongst the top 3% of students (and a pioneer TAG student), I am

now considered by many to be an airhead or " ditzy " .

There are many more problems I have, many cognitive, but I'm sure

you didn't want a book for a response. Also, it's important to

remember that like the length of time you have went untreated

strongly affects the severity of your symptoms, it can also affect

how fully or partially you can expect to recover. After this long,

I'm pretty sure I'm as good as I'm going to get. If you talk to

enough of us Lymies, you'll find that our recovery's " completeness "

runs from one end of the spectrum to the other.

Good luck to you, and never lose hope!

- Oregon

>

> Hi, everyone

>

> For those who have been treated with IV rocephin, what improvements

> (if any) did you notice?

>

> Were the improvements cognitive? Neurological? Pain-related? Other?

>

> I am getting extremely concerned about the effect this is having on

> me, cognitively speaking. I am in the midst of working on my

> dissertation, and find myself struggling to find SIMPLE words at

times.

>

> That scares the crap out of me.

>

> Does anyone else struggle with cognitve deficits?

>

> Thanks,

> Michele

>

[Guest guest]

It was indeed Levaquin for two months.

DeMarco wrote:

>

> Hi, ,

>

> I suspect I may have Bartonella. I am on doxycycline, which I know is

> used to treat bartonella in cats, and I do feel a whole lot better.

> But I think usually Levaquin is used for people? Can I ask what

> treatment you used, for how long?

>

> Many Thanks,

>

> D.

>

> avalonf@... <mailto:avalonf%40bcpl.net> wrote:

>

> I had long term Lyme and went through two Rocephin (Ceftriaxone)

> treatments about a year apart. I still had neuro symptoms, most

> bothersome were balance and stamina problems. When I finally saw an

> LLMD, he diagnosed the residual problems as being Bartonella, for which

> I was successfully treated. Just thought you may want to have this

> checked.

>

> W

> Baltimore

>

> ---------------------------------

> Access over 1 million songs - Music Unlimited.

>

>

[Guest guest]

My mother has great difficulties with cognitive defects. She struggles to

have a normal conversation, and cannot remember very simple words. She was

treated with IV Abx 7 years ago, and her cognitive problems have worsened

gradually. She will be seeing an LLMD for the first time in April who I hope

can

help her.

Patti

[Guest guest]

Thank you, .

D.

avalonf@... wrote:

It was indeed Levaquin for two months.

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[Guest guest]

_Re: Cognitive deficits and IV rocephin _

( /message/73395;_ylc=X3oDMTJvMTZzNmJ2BF9TA\

zk3MzU5NzE1BGdycElkAzczODQEZ3Jwc3B

JZAMxNzA1MTA2MDEyBG1zZ0lkAzczMzk1BHNlYwNkbXNnBHNsawN2bXNnBHN0aW1lAzExNjQ4ODU5O

Tc-)

I suggest that if you have residual symptoms, you might look into the

Marshall Protocol to get rid of the intracellular " cyst " of CWD bacterial

forms. I

don't plan to settle for partial recovery myself and this approach is really

helping me after unsuccessful use of other approaches.

(see _http://members.aol.com/synergyhn/transcript_

(http://members.aol.com/synergyhn/transcript) for overview for laymen or go to

_http://marshallprotocol.com_ (http://marshallprotocol.com) for free

information and help with the

protocol)

Joyce

In a message dated 11/30/2006 3:28:43 A.M. Pacific Standard Time,

writes:

If you talk to

enough of us Lymies, you'll find that our recovery's " completeness "

runs from one end of the spectrum to the other.

Good luck to you, and never lose hope!

- Oregon