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From: qxci-scio-epfx-english [mailto:qxci-scio-epfx-english ] On Behalf Of dave@...Sent: 09 March 2009 14:53qxci-scio-epfx-english Subject: Re: Celiac Disease

Hello all...Where do we find Dr Allistair's protocol. I have Celiac myself.Kind regards Dave

Sent from my Verizon Wireless BlackBerry

From: "Dr Renier du Toit" Date: Sat, 7 Mar 2009 17:09:28 +0200<qxci-scio-epfx-english >Subject: Re: Celiac Disease

See Dr Alistair's protocols.

Regards,

Renier du Toit

MA(Clin.Psych.),PsyD,ND,DIHom.www.collegenaturalmedicine.co.za

Celiac Disease

Hello everyone, I am new with the SCIO and I have a friend with Celiac Disease. She is 64yr. Has anyone ever worked with someone with this disease? Could you give me some ideas where to start with her? Any protocols? She has no peristaltic action in her bowels. She takes Cassacara and Slippery Elm every couple of day to help her go.She also has other issues. She has MAJOR allergies to scents,florecent lighting,etc...(She used to do furniture stripping and was chemically poisened.) She also has migraines.And Post Tramatic Stress...she was also told by someone that she has Epstein-Barr.Could all these things be related in some way?Any help would be GREATLY appreciated!

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Sounds like allergies play a prominent role in her issues. I just found this info..

Celiac disease is treated by eliminating all gluten from the diet. The gluten-free diet is a lifetime requirement.

http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/

Best of luck to you, Joni

>> Hello everyone, I am new with the SCIO and I have a friend with Celiac Disease. She is 64yr. Has anyone ever worked with someone with this disease? Could you give me some ideas where to start with her? Any protocols? She has no peristaltic action in her bowels. She takes Cassacara and Slippery Elm every couple of day to help her go.> > She also has other issues. She has MAJOR allergies to scents,florecent lighting,etc...> (She used to do furniture stripping and was chemically poisened.) > She also has migraines.> And Post Tramatic Stress...she was also told by someone that she has Epstein-Barr.> Could all these things be related in some way?> > Any help would be GREATLY appreciated!>

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Biopsy is the gold standard for ruling in/out celiac. (If IgA is low or

dysfunctional the blood tests aren't accurate.) I'm not sure that I have answers

to your other Qs but CVID and GI issues do go together for many.

Mom to CVIDer

Sent on the Now Network™ from my Sprint® BlackBerry

Celiac disease

Hi all. My 12 year old CVID son is being biopsied tomorrow for possible Celiac

Disease. I have been doing a bit of research and am confused. Does anyone in

the group have this condition as well? I am reading that CVID kids can have a

Celiac Sprue " like " condition??? What is that? Is it the same? It says the

intestine damage is similar, but the Gluten Free diet doesn't seem to work? If

anyone has any insight on this, it would be greatly appreciated....

Thanks a bunch!

Kim, Mom to 12-CVID

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Mollie (age 6, mild pid but unknown) had had 2 biopsies done but she was already

gluten free prior to the testing, so they were not accurate. A gluten free diet

certainly helps her (and our 4 year old also). Mollie did have a positive

allergy test to wheat as an infant, but tested negative for an allergy just a

few weeks ago. She was glutened by accident at a restaurant on Tuesday and it

is not a good few days for her. So even without a celiac dx, she is on a gluten

free diet.

Good luck with testing!

Rita

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Hi all. My 12 year old CVID son is being biopsied tomorrow for possible Celiac

Disease. I have been doing a bit of research and am confused. Does anyone in the

group have this condition as well? I am reading that CVID kids can have a Celiac

Sprue " like " condition??? What is that? Is it the same? It says the intestine

damage is similar, but the Gluten Free diet doesn't seem to work? If anyone has

any insight on this, it would be greatly appreciated....

Thanks a bunch!

Kim, Mom to 12-CVID

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Apart from the various protocols on the SCIO, one also when on the move and eating out, can use the zeropoint laser to treat food and drinks prior to cooking and ingestion. As a bonus the laser also improves the taste of food stuffs all.

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qxci-scio-epfx-english From: joni_job@...Date: Tue, 17 Mar 2009 16:07:10 +0000Subject: Re: Celiac Disease

Sounds like allergies play a prominent role in her issues. I just found this info..

Celiac disease is treated by eliminating all gluten from the diet. The gluten-free diet is a lifetime requirement.

http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/

Best of luck to you, Joni

>> Hello everyone, I am new with the SCIO and I have a friend with Celiac Disease. She is 64yr. Has anyone ever worked with someone with this disease? Could you give me some ideas where to start with her? Any protocols? She has no peristaltic action in her bowels. She takes Cassacara and Slippery Elm every couple of day to help her go.> > She also has other issues. She has MAJOR allergies to scents,florecent lighting,etc...> (She used to do furniture stripping and was chemically poisened.) > She also has migraines.> And Post Tramatic Stress...she was also told by someone that she has Epstein-Barr.> Could all these things be related in some way?> > Any help would be GREATLY appreciated!>

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I'd like to make some small clarifications to this material.

One can have celiac disease (CD) with no overt symptoms at all. About half those

with CD are symptom-free at the time of diagnosis. In these cases, CD was

suspected because of nutritional deficiencies and confirmed (usually) through a

blood test followed by a biopsy. Obesity definitely doesn't rule out CD, as

doctors used to think. About 1% of the overall population in the U.S. has CD.

It's more common among those who already have an AD. Ethnicity is a factor, too.

Any untreated AD can trigger others.

Oats:

Oats often are contaminated with gluten grains, particularly in the U.S.

Gluten-free oats now are on the market; several brands are available. However,

some people with CD can't tolerate even pure oats. Oat intolerance seems to have

a genetic basis. (Note: Bob's Red Mill sells both gluten-free and non-GF oats.

Make sure you get the GF version!)

Harper

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Hi Kristi,

Trent who is 26 has just recently been diagnosed with Coeliacs disease, as

was his older brother.

The first thing I did was go through our pantry and labelled the food items

we had - Smiley face for foods which are okay and a red cross for foods he

cannot eat. You will be surprised at what actually contains

wheat/oats/barley/rye.

My eldest son, joined the coeliacs society - I haven't as yet not sure that

it is really worth it. I did download an app for iphone which has been

great, we have probably learnt more from that than going to a dietician.

It lists all foods and indicates whether it is 'friendly' or not. Handy

when reading labels and not sure if xyz ingredient is okay or not.

Fast food treats - Mcs sundaes and chips are okay, as are Hungry

Jacks - KFC is a big no no.

Tomato Sauce - some brands are okay some are not. For us Heinz is the

better brand, as Trent is covered in spots again I think the tomato sauce

he has been drinking of late has something in it he can't have.

Trent loves his rice which fortunately isn't a problem but the pasta he also

loves now costs about 10 times more than the cheap brand I use to get.

During the school/work term I cook up a large amount of pasta and freeze

into small bags for his lunch. I haven't done this as yet, but have been

told to mix a small amount of oil with it which helps with separation when

thawing.

It sounds all rather daunting but if you keep to fresh foods it isn't too

bad. For us the biggest problem has been eating out, gf food to many is

salad, which can be boring for a night out. At our local cafe, where Trent

likes to eat regularly I either take my own bread/wrap or which I have been

finding easier of late, order a hamburger without the roll, with chips on

the side (which replaces the roll). Have heard conflicting thoughts on

chips - some say the oil is hot enough to kill off any cross contamination

others say no, in this instance I take the risk as it isn't often and only a

few.

Here our supermarkets have an area in their Healthy food section dedicated

to gluten free food - items are more expensive but you can still get

biscuits and chips etc. Have also found in the freezer section pastry and

some frozen food items, though the meatballs I purchased recently where like

eating sawdust.

Gluten free bread is one of the most horrible foods out and it is expensive

(as all gf stuff is). You may find it easier to bake your own or just keep

shopping around until you find a baker who makes a nice one.

All the best, I'm sure you will manage and will find that it isn't that big

a change to your life.

Keep smiling

Jan mother of Trent 26yo w/DS from the LandDownUnder

From: [mailto: ] On Behalf

Of KristiD

Sent: Wednesday, 19 January 2011 2:57 AM

Subject: Celiac Disease

Hi everyone!

I haven't commented in a while, but I need some advice now. is almost

2 and a half and has had diarrhea for about 3 months. He had an endoscopy a

week and a half ago because none of his other tests had been positive for

anything. His GI doctor just called me and said the biopsy results were

positive for celiac disease and lactose deficiency.

I had done a lot of research beforehand and was fully expecting this

diagnosis. It's stressful because it adds just one more thing to our laundry

list of medical problems but I know we'll manage okay.

I know celiac disease is fairly common in people with DS, so I just wanted

to see if any of you have experience with it. If you have any tips for me as

a complete newbie to this or if you know of any DS/Celiac groups out there?

As far as the lactose deficiency, he already drinks soy milk because he's

never been able to tolerate dairy very well. So that's not such a dramatic

finding. Thanks everyone!

Kristi

Mom to (6) and (2 - DS and a whole list of other things which

now includes celiac disease)

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The classic GF diet is loaded with additives and white processed foods that

can cause even more problems. We use the SCD(it's GF too) which can be found

at pecanbread.com. They also have a listserv that is AWESOME.

Carol in IL

Mom to , 10!!!!

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On Tue, Jan 18, 2011 at 9:56 AM, KristiD <kristiduda@...> wrote:

>

>

> Hi everyone!

> I haven't commented in a while, but I need some advice now. is almost

> 2 and a half and has had diarrhea for about 3 months. He had an endoscopy a

> week and a half ago because none of his other tests had been positive for

> anything. His GI doctor just called me and said the biopsy results were

> positive for celiac disease and lactose deficiency.

>

> I had done a lot of research beforehand and was fully expecting this

> diagnosis. It's stressful because it adds just one more thing to our laundry

> list of medical problems but I know we'll manage okay.

>

> I know celiac disease is fairly common in people with DS, so I just wanted

> to see if any of you have experience with it. If you have any tips for me as

> a complete newbie to this or if you know of any DS/Celiac groups out there?

>

> As far as the lactose deficiency, he already drinks soy milk because he's

> never been able to tolerate dairy very well. So that's not such a dramatic

> finding. Thanks everyone!

>

> Kristi

> Mom to (6) and (2 - DS and a whole list of other things which

> now includes celiac disease)

>

>

>

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