seizures

[Guest guest]

There is a child on the Vagus Nerve stimulator here at the center, ( by the

way it can go under pressure) he has had it for two years and has had no

improvement.

However now that the HBOT has been added, the child is out of diapers, is

starting to talk, Smiles and SZ 's have lessen greatly.

The child was slowly taken off the Keto diet, f all SZ meds.

the dramatic improvement can only be the introduction of HBOT.

and agrees the relatives and MDS

[Guest guest]

what to see a baby in the chamber?

go to

www.babiesonline.com,

type in the name Felder

Re: [ ] SEIZURES

>

>Generic Name: Vagus nerve stimulator

>Trade Name: NeuroCybernetic Prosthesis System

>Use: Reduction of seizures in people who remain refractory despite optimal

>drug therapy

>On January 27, 1997, the U.S. Food and Drug Administration (FDA) received

an

>application for marketing of a device that would help reduce seizures in

>people who remain refractory despite the utilization of optimal drug

therapy.

>This device is called the NeuroCybernetic Prosthesis System and is

>manufactured by Cyberonics, a company based in Houston. The process of

>approval was expedited by the favorable recommendation of the Neurological

>Devices Panel of FDA's Medical Devices Advisory Committee. This device was

>approved as an adjunct to drug or surgery in patients with partial-onset

>seizures.

>

>How It Works

>Vagus nerve stimulation was first tried in 1988 as a treatment for

seizures.

>This idea was proposed by Zabarra, who believed that stimulation of

the

>vagus nerve might disrupt or prevent a seizure. Through animal studies, he

>was able to show that brain wave patterns can be changed via vagus nerve

>stimulation. This proposed theory serves as the backbone for the modern-day

>vagus nerve stimulator (VNS).

>

>The NeuroCybernetic Prosthesis System is a vagus nerve stimulator . A

>generator is implanted under the collarbone, much like a pacemaker. This

>generator is then connected to the vagus nerve in the neck. At this site,

the

>generator regularly releases electrical signals 24 hours a day, regardless

of

>seizure activity. These signals are relayed to the brain and are

responsible

>for maintaining control of any seizure activity. This device includes an

>external programming system, which is used by physicians to control

>stimulation settings. Patients can also turn this device on or off by

placing

>a magnet directly over it.

>

>The exact mechanism of action of this device is not fully understood.

>However, there are two hypotheses. The first theory states that the

>anticonvulsant activity of the VNS is caused by an increased threshold of

the

>connections to the nucleus. The second theory states that the continuous

>electrical stimulation of the vagus nerve increases the number of

inhibitory

>neurotransmitters and decreases the number of stimulatory

neurotransmitters.

>

>Clinical Tips

>In one study, the safety and effectiveness of this device were tested. The

>majority of patients showed some improvement while using the VNS. Fifty

>percent of those enrolled in this study showed at least a 20% reduction in

>the number of seizures per day, and 25% of patients reported a 50%

reduction

>in the frequency of seizures. In contrast, 20% of patients demonstrated

>increased seizure activity. Treatment with the vagus nerve stimulator was

not

>free of side effects. Patients experienced cough, hoarseness, alterations

in

>their voice, and shortness of breath.

>

>Another study tested the safety and tolerability of this device by

monitoring

>patients for changes in vital signs and electrocardiographic activity, and

>for the occurrence of adverse events. The authors concluded that the lack

of

>change in both vital signs and electrocardiographic activity dictates that

>this device can be safely implanted for use as an anticonvulsant.

>

>Approximately 1.7 million Americans suffer from epilepsy. The vast majority

>of these patients can be controlled by conventional drug therapy. However,

>more than 200,000 people remain refractory to pharmacologic intervention.

>This device may serve an essential function in their lives.

>

>

>

[Guest guest]

Generic Name: Vagus nerve stimulator

Trade Name: NeuroCybernetic Prosthesis System

Use: Reduction of seizures in people who remain refractory despite optimal

drug therapy

On January 27, 1997, the U.S. Food and Drug Administration (FDA) received an

application for marketing of a device that would help reduce seizures in

people who remain refractory despite the utilization of optimal drug therapy.

This device is called the NeuroCybernetic Prosthesis System and is

manufactured by Cyberonics, a company based in Houston. The process of

approval was expedited by the favorable recommendation of the Neurological

Devices Panel of FDA's Medical Devices Advisory Committee. This device was

approved as an adjunct to drug or surgery in patients with partial-onset

seizures.

How It Works

Vagus nerve stimulation was first tried in 1988 as a treatment for seizures.

This idea was proposed by Zabarra, who believed that stimulation of the

vagus nerve might disrupt or prevent a seizure. Through animal studies, he

was able to show that brain wave patterns can be changed via vagus nerve

stimulation. This proposed theory serves as the backbone for the modern-day

vagus nerve stimulator (VNS).

The NeuroCybernetic Prosthesis System is a vagus nerve stimulator . A

generator is implanted under the collarbone, much like a pacemaker. This

generator is then connected to the vagus nerve in the neck. At this site, the

generator regularly releases electrical signals 24 hours a day, regardless of

seizure activity. These signals are relayed to the brain and are responsible

for maintaining control of any seizure activity. This device includes an

external programming system, which is used by physicians to control

stimulation settings. Patients can also turn this device on or off by placing

a magnet directly over it.

The exact mechanism of action of this device is not fully understood.

However, there are two hypotheses. The first theory states that the

anticonvulsant activity of the VNS is caused by an increased threshold of the

connections to the nucleus. The second theory states that the continuous

electrical stimulation of the vagus nerve increases the number of inhibitory

neurotransmitters and decreases the number of stimulatory neurotransmitters.

Clinical Tips

In one study, the safety and effectiveness of this device were tested. The

majority of patients showed some improvement while using the VNS. Fifty

percent of those enrolled in this study showed at least a 20% reduction in

the number of seizures per day, and 25% of patients reported a 50% reduction

in the frequency of seizures. In contrast, 20% of patients demonstrated

increased seizure activity. Treatment with the vagus nerve stimulator was not

free of side effects. Patients experienced cough, hoarseness, alterations in

their voice, and shortness of breath.

Another study tested the safety and tolerability of this device by monitoring

patients for changes in vital signs and electrocardiographic activity, and

for the occurrence of adverse events. The authors concluded that the lack of

change in both vital signs and electrocardiographic activity dictates that

this device can be safely implanted for use as an anticonvulsant.

Approximately 1.7 million Americans suffer from epilepsy. The vast majority

of these patients can be controlled by conventional drug therapy. However,

more than 200,000 people remain refractory to pharmacologic intervention.

This device may serve an essential function in their lives.

[Guest guest]

If a child has seizure disorder along with it they will continually

have set backs.

Lynette

Lots of studies and clinical experience discussed at

the Pfeiffer and Vitamin Research News sites say epilepsy and seizures

are caused mostly by mineral deficiencies and can be controlled by

proper supplementation.

I've posted info on this from those sites before. They cite a lot of

clinical cases treated sucessfully.

Bernie

[Guest guest]

HELLO,thanks to everyone who responded to seizures/pro efa.I was just confused

because i hear different stories about the omega 6(borage/primrose oil) that

they can sometimes trigger seizures.Although he was pretty sick when he had the

seizures,i just want to be sure because that was the awefullest thing i had ever

witnessed in my life and never want to see it again(seizures).I guess if his

condition was considered a seizure disorder,i would really be sceptical,but i

would think he would of had more by now(its been 1 1/2 yrs ago).he is currently

on coromega for about 3 weeks now,so we will give it more time.In the mean

time,if there is anymore info anyone can share on this subject,please do.I just

want to do what is right for my little boy. thanks again,brian

[Guest guest]

,

I would still check with your doctor. Every child is different and

your doctor will give you better insight to your child's issues.

Just my opinion.

denise

[Guest guest]

-- my son did start having seizures several times a week after

starting the ProEFA. He had not previously had seizures that we know

about. They were not febrile seizures -- he was not sick and did not

have a fever. We switched to an Omega-3-only product (without the

Omega 6) and have had good results, although probably not as amazing as

what you read here about ProEFA. I have read warnings about the

negative effect of evening primrose oil in children who are already

seizure prone. I believe Efalex has evening primrose oil. ProEFA does

not have evening primrose oil -- it uses borage oil instead as the

source of Omega 6. There is no research on the effects of borage oil

on seizure prone children. However, in our case, the seizures stopped

when we switched. We have used Coromega, and also some other Nordic

Naturals products -- ProEPA and PRoDHA. One advantage is that they

taste better than the ProEFA and he takes them more willingly -- the

Coromega is a strong orange flavor and the ProDHA is a strawberry

flavor.

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[Guest guest]

I WOULD BE CURIOUS WHAT YOUR CHILD'S NEUOR.HAS TO SAY ABOUT EFA'S.KEEP ME

POSTED.MINE DOESNT BELIEVE IN THEM BRIAN

[Guest guest]

NEITHER DOES WILL'S BUT THE ONLY THING HE DID SAY THAT IF I WAS GOING TO USE

THEM, THEN USE OMEGA 3.

TAKE CARE

LORI

[Guest guest]

I wanted to add, I think my son may have had a seizure a couple of weeks ago when he managed to get his hands on a 3mg Melatonin pill. I wasn't there, but his sitter said he just shivered for over 2 minutes. He hasn't had one since, though.

I hope your little guy gets diagnosed and feels better soon!

Jill Ramos, Las Vegas, NV

[Guest guest]

Jill,

Holy cow!! How scary!! Hope he is OK now!

Marci

[Guest guest]

OMG! Jill! Is he ok? I hope so! I am sorry that happened.

[Guest guest]

These could be seizure but what came to mind to me when you described this is

the horrible periods of narcoleptic-type of sleepiness I'd suddenly get

throughout the day when I was really ill several years ago. Allergies to

certain foods would make it occur more often. Perhaps keeping a log of what

he eats and is exposed to when he has these may give you another angle to

look at? If it's allergy for me, it occurs 1-2 hours after eating.

Gaylen

[Guest guest]

I am by no means a dr, but the ER dr described the temporal lobe seizures as

" absent, " , being out of it and sweaty. What happened with my daughter was

that all of a sudden she was looking up at the sky and to the right. she

collapsed, could not walk, would not respond to her name. Sweat beads

formed above her top lip and I maybe a little twitching, but I'm not for

sure. The worst thing was that her eyes were frozen in that upward position

and she would not respond to her name. then she fell asleep. She seems to

be back to normal, but is going to bed earlier, drowsy from the dilantin

anticonvulsant they gave her at the hospital. I was scared of regression,

but the ER doctor said there would be no intellectual regression involved.

courtney

seizures

> I would really like to know what these seizures some of you have seen look

like. My son has had 3 episodes since May (two after increasing Zoloft and

1 before even starting Zoloft, on paxil). We are trying to decide if they

were seizures or drop in blood sugar. A finger prick showed no

hypoglycemia, although he could still have a sudden drop in blood sugar.

Our doc at home and Dr. G both suggested an eeg but I don't know how

reliable those are if an episode doesn't happen during the eeg ( even a 24

hour eeg).

>

> The episodes look like he is suddenly falling asleep but when I touch him

he is all sweaty and clammy. One time he came to right away, another

happened in the car with my husband, and another I was splashing water on

his face and he didn't respond, but then when my husband called his name he

looked at him and he was then able to sing his abc's even though he was

still really out of it- he went right to sleep for the night.

>

> Any thoughts?

>

> -Noelle

>

>

[Guest guest]

Just remember that tests indicate the range for average people, not

necessarily the range your child needs.

mjh

In a message dated 9/4/02 10:01:30 AM Eastern Daylight Time,

dmccreary@... writes:

> You mentioned low blood sugar, that's interesting because we have noticed

> that since being on the protocol his appetite has increased (it was always

> good), but sometimes now when he doesn't get to eat right on time he gets

> really cranky, and he never used to. We felt that maybe it was low blood

> sugar, but tests have never indicated that.

>

>

[Guest guest]

In a message dated 9/4/02 9:01:15 AM Central Daylight Time,

dmccreary@... writes:

> You mentioned low blood sugar, that's interesting because we have noticed

> that since being on the protocol his appetite has increased (it was always

> good), but sometimes now when he doesn't get to eat right on time he gets

> really cranky, and he never used to

That happened to me as I began to heal. There was a period where I'd have to

eat at least a little every 2-3 hours or feel really off. Testing never

showed hypoglycemia or diabetes but I'd really noticed a difference if I

waited too long before eating. That lasted about a year and then, as I was

healthier, I could space out snacks more and now have no problem with it. I

think that once you start stirring things up, you body goes a little out of

balance before healing and you are more sensative to things for a little

while.

Gaylen

[Guest guest]

I could be wrong, but I believe there is supposed to

be a blood test that can measure what the glucose

levels have been over a period of time. My diabetic

mother-in-law has one done periodically that shows her

highs and lows. Might want to ask about that lab? I'm

not sure how it works.

--- & Noelle Bender <faijcb@...> wrote:

> I would really like to know what these seizures some

> of you have seen look like. My son has had 3

> episodes since May (two after increasing Zoloft and

> 1 before even starting Zoloft, on paxil). We are

> trying to decide if they were seizures or drop in

> blood sugar. A finger prick showed no hypoglycemia,

> although he could still have a sudden drop in blood

> sugar. Our doc at home and Dr. G both suggested an

> eeg but I don't know how reliable those are if an

> episode doesn't happen during the eeg ( even a 24

> hour eeg).

>

> The episodes look like he is suddenly falling asleep

> but when I touch him he is all sweaty and clammy.

> One time he came to right away, another happened in

> the car with my husband, and another I was splashing

> water on his face and he didn't respond, but then

> when my husband called his name he looked at him and

> he was then able to sing his abc's even though he

> was still really out of it- he went right to sleep

> for the night.

>

> Any thoughts?

>

> -Noelle

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

In our case the seizures were obvious. The two our son had just recently

involved convulsions and vomitting. The ones that he had before starting the

protocol (this was over a year ago) were more severe. We are getting an eeg

done, but I agree with you that unless something is happening right at that

moment it might not tell you much. Especially in our case now as we have him

on antiseizure meds (we did this as the two seizures happened within a 24

hour period. We get to discuss it with the neurologist tomorrow.

You mentioned low blood sugar, that's interesting because we have noticed

that since being on the protocol his appetite has increased (it was always

good), but sometimes now when he doesn't get to eat right on time he gets

really cranky, and he never used to. We felt that maybe it was low blood

sugar, but tests have never indicated that.

seizures

> I would really like to know what these seizures some of you have seen look

like. My son has had 3 episodes since May (two after increasing Zoloft and

1 before even starting Zoloft, on paxil). We are trying to decide if they

were seizures or drop in blood sugar. A finger prick showed no

hypoglycemia, although he could still have a sudden drop in blood sugar.

Our doc at home and Dr. G both suggested an eeg but I don't know how

reliable those are if an episode doesn't happen during the eeg ( even a 24

hour eeg).

>

> The episodes look like he is suddenly falling asleep but when I touch him

he is all sweaty and clammy. One time he came to right away, another

happened in the car with my husband, and another I was splashing water on

his face and he didn't respond, but then when my husband called his name he

looked at him and he was then able to sing his abc's even though he was

still really out of it- he went right to sleep for the night.

>

> Any thoughts?

>

> -Noelle

>

>

[Guest guest]

we have had no regression. :-)

seizures

>

>

> > I would really like to know what these seizures some of you have seen

look

> like. My son has had 3 episodes since May (two after increasing Zoloft

and

> 1 before even starting Zoloft, on paxil). We are trying to decide if they

> were seizures or drop in blood sugar. A finger prick showed no

> hypoglycemia, although he could still have a sudden drop in blood sugar.

> Our doc at home and Dr. G both suggested an eeg but I don't know how

> reliable those are if an episode doesn't happen during the eeg ( even a 24

> hour eeg).

> >

> > The episodes look like he is suddenly falling asleep but when I touch

him

> he is all sweaty and clammy. One time he came to right away, another

> happened in the car with my husband, and another I was splashing water on

> his face and he didn't respond, but then when my husband called his name

he

> looked at him and he was then able to sing his abc's even though he was

> still really out of it- he went right to sleep for the night.

> >

> > Any thoughts?

> >

> > -Noelle

> >

> >

[Guest guest]

My son is ravenous all the time. We have been on the protocol for six years

which has helped but not healed him. He also has extremely " hypoglycemic "

behavior and his obsession with food is one of our most persistent problems. He

is fifteen years old and eats like a horse. He now weighs about 135 pounds and

is 5'10 " . He just lost fifteen pounds after a month of steroids to treat poison

ivy - which still isn't gone..... -- Original Message -----

From: Barb Katsaros

Sent: Wednesday, September 04, 2002 11:36 AM

Subject: Re: seizures

Gaylen, What was identified as being your health

problem? I've had some really weird things happen

with my health also and wonder if whatever my kids

have is a genetic tendency that they have inherited

from me. Are you planning on seeing dr. g for

yourself also? I have thought of it, but then i hold

back. Maybe later... Barb

--- googahly@... wrote:

> In a message dated 9/4/02 9:01:15 AM Central

> Daylight Time,

> dmccreary@... writes:

>

>

> > You mentioned low blood sugar, that's interesting

> because we have noticed

> > that since being on the protocol his appetite has

> increased (it was always

> > good), but sometimes now when he doesn't get to

> eat right on time he gets

> > really cranky, and he never used to

>

> That happened to me as I began to heal. There was a

> period where I'd have to

> eat at least a little every 2-3 hours or feel really

> off. Testing never

> showed hypoglycemia or diabetes but I'd really

> noticed a difference if I

> waited too long before eating. That lasted about a

> year and then, as I was

> healthier, I could space out snacks more and now

> have no problem with it. I

> think that once you start stirring things up, you

> body goes a little out of

> balance before healing and you are more sensative to

> things for a little

> while.

> Gaylen

>

>

> [Non-text portions of this message have been

> removed]

>

>

=====

Barb Katsaros

barbkatsaros@...

__________________________________________________

[Guest guest]

Gaylen, What was identified as being your health

problem? I've had some really weird things happen

with my health also and wonder if whatever my kids

have is a genetic tendency that they have inherited

from me. Are you planning on seeing dr. g for

yourself also? I have thought of it, but then i hold

back. Maybe later... Barb

--- googahly@... wrote:

> In a message dated 9/4/02 9:01:15 AM Central

> Daylight Time,

> dmccreary@... writes:

>

>

> > You mentioned low blood sugar, that's interesting

> because we have noticed

> > that since being on the protocol his appetite has

> increased (it was always

> > good), but sometimes now when he doesn't get to

> eat right on time he gets

> > really cranky, and he never used to

>

> That happened to me as I began to heal. There was a

> period where I'd have to

> eat at least a little every 2-3 hours or feel really

> off. Testing never

> showed hypoglycemia or diabetes but I'd really

> noticed a difference if I

> waited too long before eating. That lasted about a

> year and then, as I was

> healthier, I could space out snacks more and now

> have no problem with it. I

> think that once you start stirring things up, you

> body goes a little out of

> balance before healing and you are more sensative to

> things for a little

> while.

> Gaylen

>

>

> [Non-text portions of this message have been

> removed]

>

>

=====

Barb Katsaros

barbkatsaros@...

__________________________________________________

[Guest guest]

In a message dated 9/4/02 10:40:01 AM Central Daylight Time,

barbkatsaros@... writes:

> Gaylen, What was identified as being your health problem?

I was arsenic poisoned from over-spraying in our old neighborhood. I also

had a candida infestation and multiple allergies/intolerances.

> Are you planning on seeing dr. g for yourself also?

Probably not unless Dr. G feels it's a good idea. I'm pretty healthy now and

rarely have the problems I used to have.

Gaylen

[Guest guest]

Oral, he has been on six weeks of them

Re: seizures

>

>

> Gaylen, What was identified as being your health

> problem? I've had some really weird things happen

> with my health also and wonder if whatever my kids

> have is a genetic tendency that they have inherited

> from me. Are you planning on seeing dr. g for

> yourself also? I have thought of it, but then i hold

> back. Maybe later... Barb

> --- googahly@... wrote:

> > In a message dated 9/4/02 9:01:15 AM Central

> > Daylight Time,

> > dmccreary@... writes:

> >

> >

> > > You mentioned low blood sugar, that's interesting

> > because we have noticed

> > > that since being on the protocol his appetite has

> > increased (it was always

> > > good), but sometimes now when he doesn't get to

> > eat right on time he gets

> > > really cranky, and he never used to

> >

> > That happened to me as I began to heal. There was a

> > period where I'd have to

> > eat at least a little every 2-3 hours or feel really

> > off. Testing never

> > showed hypoglycemia or diabetes but I'd really

> > noticed a difference if I

> > waited too long before eating. That lasted about a

> > year and then, as I was

> > healthier, I could space out snacks more and now

> > have no problem with it. I

> > think that once you start stirring things up, you

> > body goes a little out of

> > balance before healing and you are more sensative to

> > things for a little

> > while.

> > Gaylen

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

> =====

> Barb Katsaros

> barbkatsaros@...

>

> __________________________________________________

>

[Guest guest]

Were the steroids topical?

Re: seizures

>

>

> Gaylen, What was identified as being your health

> problem? I've had some really weird things happen

> with my health also and wonder if whatever my kids

> have is a genetic tendency that they have inherited

> from me. Are you planning on seeing dr. g for

> yourself also? I have thought of it, but then i hold

> back. Maybe later... Barb

> --- googahly@... wrote:

> > In a message dated 9/4/02 9:01:15 AM Central

> > Daylight Time,

> > dmccreary@... writes:

> >

> >

> > > You mentioned low blood sugar, that's interesting

> > because we have noticed

> > > that since being on the protocol his appetite has

> > increased (it was always

> > > good), but sometimes now when he doesn't get to

> > eat right on time he gets

> > > really cranky, and he never used to

> >

> > That happened to me as I began to heal. There was a

> > period where I'd have to

> > eat at least a little every 2-3 hours or feel really

> > off. Testing never

> > showed hypoglycemia or diabetes but I'd really

> > noticed a difference if I

> > waited too long before eating. That lasted about a

> > year and then, as I was

> > healthier, I could space out snacks more and now

> > have no problem with it. I

> > think that once you start stirring things up, you

> > body goes a little out of

> > balance before healing and you are more sensative to

> > things for a little

> > while.

> > Gaylen

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

> =====

> Barb Katsaros

> barbkatsaros@...

>

> __________________________________________________

>

[Guest guest]

My son was diagnosed with absence-type seizures that do not show up on an

EEG. He does not collapse or twitch, just stares for 10-15 secs and is

nonresponsive till he abruptly " snaps " out of it and is completely normal.

Since putting him on an elimination/rotation diet they have greatly

decreased in frequency and severity.

Becky

Re: seizures

These could be seizure but what came to mind to me when you described this is

the horrible periods of narcoleptic-type of sleepiness I'd suddenly get

throughout the day when I was really ill several years ago. Allergies to

certain foods would make it occur more often. Perhaps keeping a log of what

he eats and is exposed to when he has these may give you another angle to

look at? If it's allergy for me, it occurs 1-2 hours after eating.

Gaylen