breathing

[Guest guest]

> I haven't posted for quite awhile. Looks like you

> have a nice group

> going now.

Hi Marti, Yes, we have a 'nice group going now', and

you're a part of it! I've been wondering if you've

been dealing with more health issues as I haven't seen

you here for a while.

I know very little about thyroid issues, but surely

they're going to get to the bottom of this, aren't

they? Worrying about being able to breathe seems

rather critical to your existence I would think!

Best of luck to you, I've missed your input

warm blessings,

jane

________________________________________________________________________________\

____

Access over 1 million songs - Music Unlimited

(http://music./unlimited)

[Guest guest]

i have a friend who had difficulty breathing lke that with a thyroid issie

.. It was not asthma but a large tumor on her thyroid . The tumor was

successfully treated and removed and now she is doing well . Ask the doctor to

do an

xray . There may be something other than asthma. did you say your tsh was

9.2?? cathy from ma

[Guest guest]

my friend had a long thin tumor which grew down the lenghth of her thyroid

.. not a nodule . she has a large surgical scar she showed this to me .

whether she needs and xray or ultrasound is up to the doctor . she no longer

has

to take thyroid medications . she was choking because of the tumor. cathy

from ma

[Guest guest]

Marti!!

Your doctor is using outdated ranges. The TSH ranges are .3-3.0, it was

updated in November of 2002, labs do not have to change it. Your thyroid

regulates so much! I wish you luck in being properly treated.

Here is a website with very good info.

http://www.stopthethyroidmadness.com/

You can also get good info from this website. But I don't like her top docs.

http://www.thyroid-info.com

Kate

At 10:03 PM 11/2/2006, you wrote:

>Hi all,

>

> I haven't posted for quite awhile. Looks like you have a nice group

>going now.

>

> I'll just throw out what is going on with me and see if anyone has

>comments that are helpful.

>

> I have had syptoms of low thryoid for years. My thryoid anitibodies

>tested high 5 years ago but the actual tsh reading was sort of normal

>with conservative doctors.

>

> So i can't breathe lately....like really can't breathe. I get

>referred to a pulmonologist and he diagnoses allergic asthma but

>tells me my main problem is thyroid.......turns out my latest tsh

>reading is 92...supposed to be between 1-5.

>

> Anyone else been through this? also just to let people know...if you

>have problems breathing it might not hurt to ask to have your thyroid

>checked.

>

> good Luck to you all....navigating life with p and pa has it's

>challenges but I have found boards like these can be so very helpful

>and the people we meet can become life long friends.

>

> best wishes,

>marti

[Guest guest]

She would need an ultra sound not an xray. It was probably a nodule not a

tumor. I have 4 nodules. Once they are over 1 cm they can do an FNA, in

most cases they are not cancer. However, my sister is a ThyCa

survivor. My largest one is 7mm. But I use Armour thyroid replacement and

it is helping to suppress the growth and give me thyroid hormones that my

body won't produce. However with an autoimmune disease, it's always up to

your body!

Kate

At 12:40 PM 11/3/2006, you wrote:

>i have a friend who had difficulty breathing lke that with a thyroid issie

>. It was not asthma but a large tumor on her thyroid . The tumor was

>successfully treated and removed and now she is doing well . Ask the

>doctor to do an

>xray . There may be something other than asthma. did you say your tsh was

>9.2?? cathy from ma

[Guest guest]

Did they remove the thyroid?

Kate

At 06:48 PM 11/3/2006, you wrote:

>my friend had a long thin tumor which grew down the lenghth of her thyroid

>. not a nodule . she has a large surgical scar she showed this to me .

>whether she needs and xray or ultrasound is up to the doctor . she

>no longer has

>to take thyroid medications . she was choking because of the tumor. cathy

>from ma

[Guest guest]

no

[Guest guest]

Marti,

Yes, I have been having breathing problems. They keep telling me I'm

getting all the oxygen I need but I'm still wanting more air.

Thanks for the thyroid hint. About 3-6 months ago the doctor raised my

thyroid meds. You've got me wondering. I'm seeing him this week I'll have it

checked.

Sandy swOhio

[Guest guest]

>

worrying about being able to breathe seems

> rather critical to your existence I would think!

>

> Best of luck to you, I've missed your input

>

> warm blessings,

> jane

>

>Hi Jane,

hey...good to see you thanks...yes I have been having

additional health problems which makes it hard to be online for long.

I think this pulmonologist will stay with me. He scheduled a return

visit. In the mean time I hate to say it but I'll need to be

assertive to help the docs get to the bottom of things!!!

>

> How are you doing?

marti

>

______________________________________________________________________

______________

> Access over 1 million songs - Music Unlimited

> (http://music./unlimited)

>

[Guest guest]

Hi ,

yes...92. Both the doc and I double checked the decimal point. thanks

for your input. I'll ask for the xray.

best,

marti

>

> i have a friend who had difficulty breathing lke that with a

thyroid issie

> . It was not asthma but a large tumor on her thyroid . The tumor was

> successfully treated and removed and now she is doing well . Ask the

doctor to do an

> xray . There may be something other than asthma. did you say your tsh

was

> 9.2?? cathy from ma

>

>

>

[Guest guest]

Bless you Kate!!

please pray(for those of you that believe in it) that I will somehow

get an endocrinologist or another doc that believes this. I have

struggled with all the symptoms of low thyroid for years and even

took literature into my docs about the newer standards. I do not know

what to say except I guess we are more than old fashioned in this

midwest city. Sorry to say I am even looking at moving to another

city to find better docs but in the meantime I have to work with who

I have.

I'll check out the websites and print them for my doc

again...perhaps I have his attention now!!

thanks again!!!

marti

> >Hi all,

> >

> > I haven't posted for quite awhile. Looks like you have a nice

group

> >going now.

> >

> > I'll just throw out what is going on with me and see if anyone

has

> >comments that are helpful.

> >

> > I have had syptoms of low thryoid for years. My thryoid

anitibodies

> >tested high 5 years ago but the actual tsh reading was sort of

normal

> >with conservative doctors.

> >

> > So i can't breathe lately....like really can't breathe. I get

> >referred to a pulmonologist and he diagnoses allergic asthma but

> >tells me my main problem is thyroid.......turns out my latest tsh

> >reading is 92...supposed to be between 1-5.

> >

> > Anyone else been through this? also just to let people know...if

you

> >have problems breathing it might not hurt to ask to have your

thyroid

> >checked.

> >

> > good Luck to you all....navigating life with p and pa has it's

> >challenges but I have found boards like these can be so very

helpful

> >and the people we meet can become life long friends.

> >

> > best wishes,

> >marti

>

[Guest guest]

Marti,

Stay away from Endos!!!! They are the worst to treat thyroid. They are

trained in diabetes. The normal only look at the TSH. Free T3 and Free T4

are very important, that is the unbound thyroid hormone in your blood

stream. I pray you get a doctor that will get you proper treatment. An

ultrasound is another useful tool for checking nodules.

Kate

At 09:56 PM 11/4/2006, you wrote:

>Bless you Kate!!

>

> please pray(for those of you that believe in it) that I will somehow

>get an endocrinologist or another doc that believes this. I have

>struggled with all the symptoms of low thyroid for years and even

>took literature into my docs about the newer standards. I do not know

>what to say except I guess we are more than old fashioned in this

>midwest city. Sorry to say I am even looking at moving to another

>city to find better docs but in the meantime I have to work with who

>I have.

>

> I'll check out the websites and print them for my doc

>again...perhaps I have his attention now!!

>

> thanks again!!!

>

> marti

>

[Guest guest]

I was having breathing problems too, only it was that my lungs were not

releasing the air, enough. It was like I couldn't breath though, then they put

me on Advir, singular and an inhaler, and it worked. Then I got pregnant and I

went off all the meds. Later I found out that I have PA and RA and my rheumy

tells me that the pain and breathing problems I have are from the PA and RA

affecting my lungs. I believe him because if I am on the humira I am fine, if I

stop, I can't breath. Just for an idea.

[Guest guest]

Welcome Back...

Love And Peace

Always, Shaun And Barb

[Guest guest]

Welcome back...

Love And Peace

Always, Shaun And Barb

[Guest guest]

hi marti

I'll be praying that you get some help with your

health issues. Keep fighting the good fight

I'm doing rather well. Got really worn out after doing

some shopping with the family last weekend - too many

hours on my feet. But, I handled it better than I

would have a year ago, and without using the electric

scooter.

My main issue right now is the jaw pain. Eating is

painful, so I only do that when necessary. It's

getting more difficult to open my mouth and chew as

each day passes. I don't know how I'd rest in the

evening if I didn't use an ice bag. Oh well....

warm blessings,

jane

[Guest guest]

Jane...anything they can do for the jaw pain? I know that when the jaw

starts hurting, we naturally tense it up. I often find myself having to

remind myself to relzx my jaw. The nights I have woke up and found

myself sleeping with my jaw hanging open have been heaven. My jaw does

not trouble me now but I had trouble with it about 15 years ago so I'm

familiar with this. Even though it's not technically TMJ when it's PA,

I found that a splint gave me great relief because it allowed me to

have my jaw open and more relaxed...less stress on it when it's not in

use is a great way to baby it. So now when I feel it creeping back in,

I try to get myself in this " dumb " mode where I hang my jaw open with

a " duh " look on my face and it feels good. I hope you get some relief

from this. Love Betz

[Guest guest]

>

> warm blessings,

> jane

>

Thanks Jane!

What good news you are able to get around without the scooter these

days! yeah...I think that jaw one can be hard...well...guess they are

all actually hard...news flash huh?

I used my scooter today. and got my endocrinologist appointment moved

up to this Wednesday. Thanks so very much for the prayers.

best,

Marti

[Guest guest]

--- Betsy Jack <itsbetsy@...> wrote:

> Jane...anything they can do for the jaw pain?

Hi again Betsy,

According to my doctors, they've done what can be

done. Panoramic xrays show arthritis throughout my jaw

and cheek bones. I've been using a bite splint for

years. I've had cortisone shots, physical therapy, but

still have to really on pain meds and ice/heat every

evening. My mouth won't open very far any more, can't

even eat something like a sandwich or steak, so I eat

a lot of chicken, fruits and vegetables cooked and cut

into small bites. I also do the exercises daily,

trying not to lose the movement I have left. My

doctors say that surgery is not an option.

Fortunately my jaw has only locked shut once, and that

was many years ago when I was at summer camp. But

since then, I had whiplash after two rear-end

collisions and an incident where my brother dropped a

60 pound bale of hay on my head from about 20 feet

above me (actually saw stars like they do in

cartoons!). But since we didn't have health insurance,

it was years before anyone ever x-rayed my neck. I

also had back injuries/problems since I was a child,

so maybe there is some connection between damaging a

joint only to have PA discover it years later. I've

been having some ankle pain and swelling, but I've

sprained my left one twice, and the right four times,

so again they've had some trauma. Believe it or not, I

once sprained both of my ankles in a fall down some

icy steps...my family calls me " calamity jane " and

rightly so I'm afraid

warm blessings,

jane

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[Guest guest]

Jane....my family was always one to get a chuckle at my expense too. I

laughed along with them. Even when my sister brought me a hamburger

from s. I was surprised because they all KNEW that I could not eat

anything that " tall " at the time due to my jaw. But she calmly opened

it up for me and sat it on a plate in front of me and then took her

fist and smashed it. All with a straight face. That's my family. I got

a laugh out of it. Never thought of putting it in a blender....thinking

of you. -Betz

[Guest guest]

betz . this is too funny . sounds like my family .

[Guest guest]

Last night I was singing, and I noticed that my breathing was a lot stronger.  This is day 3 of ldn, but, I did not have breathing problems before taking ldn (at least none that I knew of).  Is this something I should ascrible to the medication?  I've also been following a low carb diet for the past few weeks so I'm not sure which is more likely to be causing this.Jill

[Guest guest]

Jill,

People take LDN for COPD where they need oxygen and it seems to help.

So, I am not surprised to hear that you may have had some help with breathing strength.

My best, Aletha

[Guest guest]

Funny that you should bring that up...I played in bands for decades

until the MS took all that away. At times, I barely had the energy to

move my lips to talk, let alone sing.

I gave up my guitar and singing for years and thought that part of my

life was over. I started LDN 8 months ago and recently began playing

and singing in my husbands band (at age 61). He and I just had the

conversation last week that my singing has never been better than it

is right now, so we attributed that to LDN. Rock on Jill!

>

>

>

> Last night I was singing, and I noticed that my breathing was a lot

stronger.  This is day 3 of ldn, but, I did not have breathing

problems before taking ldn (at least none that I knew of).  Is this

something I should ascrible to the medication?  I've also been

following a low carb diet for the past few weeks so I'm not sure

which is more likely to be causing this.Jill

>

[Guest guest]

I have Hashimotos.

> From: zahavi <zahavi100@...>

> Subject: [low dose naltrexone] Re: breathing

> low dose naltrexone

> Date: Sunday, January 11, 2009, 7:10 AM

> you must write for which disease you take yhe ldn

>

>

>

> >

> >

> >

> > Last night I was singing, and I noticed that my

> breathing was a lot

> stronger.  This is day 3 of ldn, but, I did not have

> breathing