face pain

[Guest guest]

Hi Fran,

One of the ladies here has trigeminal neuralgia. It is a triangle of

pain on the trigeminal nerve. Her whole head hurts from it. When she herxes

it is worse.

She went to Branson and is getting prolotherapy for it. she says it helps a

lot. She has had that pain for 8 or more years. There was nothing wrong

with her teeth.

Connie, MI

[Guest guest]

I've seen many post lately on ear pain and was wondering if anyone

has any numbness or tingling around the cheekbone area. I've seen my

dentist, allergist, neurologist and ENT and no one can find

anything. It comes and goes so I just put up with it. Any one else

have this problem?

[Guest guest]

I am awaiting my Lyme test results from Igenex. However, assuming that

they are positive, I thought I'd respond. I, too, have horrible,

horrible pain behind my left eye. It sometimes extends all the way to

the back of my skull. Nothing but sleep relieves it, but - like you - I

will get them several days in a row before getting any relief. Like

every other one of my symptoms, it comes in waves. I would be

interested to see what others say.

>

> I just wondered if anyone experienced face pain/headache. I've had a

> terrible pain behind and around my left eye off and on for the last 4

> weeks. Excedrin or other pain killers do not make it go away. When

I

> go to sleep, it goes away, but returns the next morning. Do you

think

> it's related to my lyme? Thanks. Judy

>

[Guest guest]

i used to get those on a daily basis. havent had 1 in 6 months since starting

treatmen! how nice.

Whitney Koski <whitkoski@...> wrote: I am awaiting my Lyme test

results from Igenex. However, assuming that

they are positive, I thought I'd respond. I, too, have horrible,

horrible pain behind my left eye. It sometimes extends all the way to

the back of my skull. Nothing but sleep relieves it, but - like you - I

will get them several days in a row before getting any relief. Like

every other one of my symptoms, it comes in waves. I would be

interested to see what others say.

>

> I just wondered if anyone experienced face pain/headache. I've had a

> terrible pain behind and around my left eye off and on for the last 4

> weeks. Excedrin or other pain killers do not make it go away. When

I

> go to sleep, it goes away, but returns the next morning. Do you

think

> it's related to my lyme? Thanks. Judy

>

[Guest guest]

Hi Judy,

I used to get a lot of pain as you have described and

found that they were tied in with the barometric

pressure (i.e. if the pressure has a sudden drop or

increase) changes.

Something showed on my MRI and after several months of

re-reading my Lyme Log to my LLMD (showing

headaches/pain that started several days before the

weather changed) he reviewed my MRI.

I use Flonase sparingly (i.e. one or two times a week)

to help work on the sinus'... and so far its been

helping.

Other thing to be careful of is your diet... make sure

that everything is logges so that you might see any

patterns (i.e. sensitivies) that might develop.

/ Charolette :-)

__________________________________________________

[Guest guest]

hi Judy,

I do not (as yet) have a Dx. of lyme, altho I believe I have battled a tick

disease for years and was re-infected last year.

I have this same eye & face pain that you speak of along with what feels

like electric shocks in my face/skull.....a couple of things that has been

brought to my attention are trigeminal neuralgia & myasthenia gravis.

some info here: http://www.tna-support.org

http://www.myasthenia.org

http://www.ninds.nih.gov/disorders/myasthenia_gravis/detail_myasthenia_gravis.ht\

m

I am told that the pain can also be caused by TMJ/TMD issues as well. I was

Dx'd with TMD years ago and wear a mouth splint to help, but sometimes it

makes it worse. http://www.tmj.org

Hope this helps,

Bonnie

[Guest guest]

I too had eye/head pain, sometimes for 11 or 14 days straight. I'd

get 2-5 days off and it would start again. They got somewhat better

after I.V. therapy, but I still get them pretty often (2-3 per week)

and it's 6+ years after treatment.

>

> >

> > I just wondered if anyone experienced face pain/headache. I've

had a

> > terrible pain behind and around my left eye off and on for the

last 4

> > weeks. Excedrin or other pain killers do not make it go away.

When

> I

> > go to sleep, it goes away, but returns the next morning. Do you

> think

> > it's related to my lyme? Thanks. Judy

[Guest guest]

-

-- In , " Whitney Koski " <whitkoski@...>

wrote:

>

> I am awaiting my Lyme test results from Igenex. However, assuming

that

> they are positive, I thought I'd respond. I, too, have horrible,

> horrible pain behind my left eye. It sometimes extends all the way

to

> the back of my skull. Nothing but sleep relieves it, but - like

you - I

> will get them several days in a row before getting any relief.

Like

> every other one of my symptoms, it comes in waves. I would be

> interested to see what others say.

>

>

> >

> > I just wondered if anyone experienced face pain/headache. I've

had a

> > terrible pain behind and around my left eye off and on for the

last 4

> > weeks. Excedrin or other pain killers do not make it go away.

When

> I

> > go to sleep, it goes away, but returns the next morning. Do you

> think

> > it's related to my lyme? Thanks. Judy

> >

It sounds like the pain you are having is migraine pain. I sometimes

get these weeks at a time also. The only thing that works is sleep

but also migraine medicine. I take 10mg. Maxalt tablets but that

sometimes doesn't even work . Hope that helped.

shrry_rowe

>

[Guest guest]

<<Charolette wrote:

I used to get a lot of pain as you have described and

found that they were tied in with the barometric

pressure (i.e. if the pressure has a sudden drop or

increase) changes. >>

HELLO, My first lyme infection was over 30 years ago when I was a kid... I

suffered for YEARS as an adult with weird facial pain, stabbing pain behind

the eyes and skull pain... my headaches, also along with all that, was VERY

MUCH tied to the barometric pressure... I always said I was a barometer

head.... could tell ahead when a storm or low pressure system was coming in...

AND SINCE BEING TREATED for the lyme ALL THAT HAS STOPPED!!!! I also had

terrible creaking of the neck and could not let the back of my head or neck get

cold or stay wet, such as after swimming, drafts or after a shower etc... had

to be dry and covered.... that too has stopped... I can swim or let my hair

air dry for the first time ever.... no other explanation had to be lyme

related... hope your lyme treatment helps all that for you also.... c in vt.

[Guest guest]

For everyone with pain behind the eye and just above the eye,

There is a trigger point at the base of the skull just behind the ear - there's

a little divot that your finger fits nicely into. It's where the splenius

capitus (a muscle that extends the neck) attaches to the mastoid process - part

of the temporal bone.

Press here, and in the area within half a finger's width of the divot, and see

if the pain gets worse when you press on any spot. If it does, keep pressing on

the hot spot until the pain stops, or at least diminishes greatly. Better still

is if you can get someone else to press it while you lie quiety, allowing your

neck to relax.

Supplemeting magnesium, over time, may also help.

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