At my wits end

[Guest guest]

Hi Darci,

I don't have much help as far as supplements, etc as I'm new and just

getting started. BUT on another list a mother recently posted about Exposure

Anxiety in ASD kids. The manifestation is very similar to what you describe.

My

son will indicate that he wants something then when it is offered to him he

will refuse it and even tantrum. Then if we put the object down he will take

it. EA is sometimes described as *no means yes*.

I found it very helpful to read about because it helped me to moderate my

interactions with my son and to understand the best strategies to help him

mitigate the anxiety. After all, in the middle of the night, your son's

probably

really does want his diaper changed, it's just a matter of his anxiety

around the interaction.

My son only exhibits this intermittently and I haven't been able to

relate it directly to a food or supplement. But perhaps someone else can help

you with that.

The definition is: EA is an involuntary social-emotional self-protection

response that jumps in to defend against sensed 'invasion'. Signs of EA is when

yes=no and no=yes.

I hope that will help you.

Kind Regards,

Darla

London

DH Boban

DS 2 years 1 month

In a message dated 12/07/2006 15:02:00 GMT Standard Time, bdnwk1@...

writes:

Hi there,

I have a 4 year old son with autism and have been experiencing an issue with

him for a while and it just hit me last night that maybe it is due to not

tolerating something and wanted to see if anyone has shared this experience.

He tells me several times throughout the day " No _____. It could be over

the simplest thing such as no push button, or no go upstairs, no good night

kiss. Last night he woke up at 2:30 and his diaper was wet through his

jammies and it was no change diaper. If I walk away and ignore him he has a

tantrum and isn't okay until I return to give him the kiss etc. But he gets

stuck in it. If I return he says yes change diaper and when I go to do it

he says no again. Most the time I have to allow him to have a tantrum and

then finally he will do as I ask. If I tell him mommy is going to push the

button to close the garage and I do he freaks out and then he will do it, if

I tell him no movies when he says no to me (or something else he really

likes) I can sometimes pull him out of it and he will stop saying no. It's

just non-stop all day with different things. It's like he has to finish

what he started or it's a tantrum. I can't decide if this is a struggle for

control or could it be he isn't tolerating one of his supplements. Just

wanted to see what your thoughts were before I pull him off of all his

supplements and start over. Could this be an OCD characteristic? Any

advice would be great.

Thanks so much!!

Darci

[Guest guest]

Hi there,

I have a 4 year old son with autism and have been experiencing an issue with

him for a while and it just hit me last night that maybe it is due to not

tolerating something and wanted to see if anyone has shared this experience.

He tells me several times throughout the day " No _____. It could be over

the simplest thing such as no push button, or no go upstairs, no good night

kiss. Last night he woke up at 2:30 and his diaper was wet through his

jammies and it was no change diaper. If I walk away and ignore him he has a

tantrum and isn't okay until I return to give him the kiss etc. But he gets

stuck in it. If I return he says yes change diaper and when I go to do it

he says no again. Most the time I have to allow him to have a tantrum and

then finally he will do as I ask. If I tell him mommy is going to push the

button to close the garage and I do he freaks out and then he will do it, if

I tell him no movies when he says no to me (or something else he really

likes) I can sometimes pull him out of it and he will stop saying no. It's

just non-stop all day with different things. It's like he has to finish

what he started or it's a tantrum. I can't decide if this is a struggle for

control or could it be he isn't tolerating one of his supplements. Just

wanted to see what your thoughts were before I pull him off of all his

supplements and start over. Could this be an OCD characteristic? Any

advice would be great.

Thanks so much!!

Darci

[Guest guest]

Hi Darci,

You might like to research " Movement Disorder " in autism. Basically, once the

person starts on an action they must complete it, and they cannot stop the

action even if they really want to.

Regards,

Sylvia

[Guest guest]

Darci,

I have no idea if this will help at all, but with my son, who is

also 4, when he starts getting upset at everything I say I am going

to do, I go back to writing things down (used to be drawing/showing

a picture, but now he is learning to read). I only say it out loud

after he has looked at it.

I also find that I am so worn out by all of this that I realize I

haven't smiled in a long time and I stop and try to make a game out

of it (even though it may not feel funny at the time!). It does

work sometimes. One example is when he doesn't want shoes or socks,

I might pretend to put the socks on his head or on my feet or put

one shoe on the foot that already has a shoe.

I can't advise on what might be causing it. Every time I start to

think I have some little bit of this figured out, something else

goes haywire. If you find a trick that works with him, please share

it!

Trish in PA

>

> I have a 4 year old son with autism and have been experiencing an

issue with him for a while...

[Guest guest]

Hi Trish,

It is so tireing. With my son I know that he comprehends what I am saying,

his receptive language is far better than I give him credit for and I know

he knows what I am asking he just seems to want to be in control. Which I

guess is good that he is expressing his opinion. Plus he has such little

control with all the therapy we do so I can understand and try to cut him

slack as much as I can. I do the silly stuff too to pull him out of it and

it does work with him (he forgets that he was telling me no). I have

started to ignore his no's which seems to be working okay to. If he tells

me no night night, I just take his hand and say lets go upstairs and

rephrase it a little. One thing I never do is say yes back to his no's

because that makes it worse. I think he is having some yeast dye off right

now and it is worse. Thanks for your response and I hope it gets better

for you.

Take care,

Darci

>From: " Trish " <thedellers@...>

>Reply-

>

>Subject: Re: At my wits end

>Date: Thu, 13 Jul 2006 02:50:09 -0000

>

>Darci,

>

>I have no idea if this will help at all, but with my son, who is

>also 4, when he starts getting upset at everything I say I am going

>to do, I go back to writing things down (used to be drawing/showing

>a picture, but now he is learning to read). I only say it out loud

>after he has looked at it.

>

>I also find that I am so worn out by all of this that I realize I

>haven't smiled in a long time and I stop and try to make a game out

>of it (even though it may not feel funny at the time!). It does

>work sometimes. One example is when he doesn't want shoes or socks,

>I might pretend to put the socks on his head or on my feet or put

>one shoe on the foot that already has a shoe.

>

>I can't advise on what might be causing it. Every time I start to

>think I have some little bit of this figured out, something else

>goes haywire. If you find a trick that works with him, please share

>it!

>

>Trish in PA

>

>

> >

> > I have a 4 year old son with autism and have been experiencing an

>issue with him for a while...

>

>

>

[Guest guest]

thanks I am going to check this out right now.

>From: " Sylvia " <smithsd@...>

>Reply-

>< >

>Subject: Re: At my wits end

>Date: Thu, 13 Jul 2006 07:25:55 +1000

>

>Hi Darci,

>

>You might like to research " Movement Disorder " in autism. Basically, once

>the person starts on an action they must complete it, and they cannot stop

>the action even if they really want to.

>

>Regards,

>Sylvia

>

>

>

>

[Guest guest]

For us this is bacteria. We call in contrariness. Says the opposite of what he

means. Thought it was yeast, but it happens with yeast treatment. Lasted a

couple of years for us before it was finally gone. Creeps up once in a while

here, usually as we're completing a yeast treatment cycle. 3 Culturelle 3 x a

day and Candidase and Candex on an empty stomach 3 x a day and we've got some

beautiful behavior. Expensive as all get out though. I'm trying to get the

enzymes covered by the insurance. I thought this was mentioned on the list a

while back, at the time we were doing an HMO, now we're back with a PPO and I'm

trying to get this taken care of. Anyone had any luck in this arena? Our

insurance (Medco) for prescriptions said that they need the NDC #'s, that is an

abbreviation for National Drug Code #'s. Anyone got those handy? Ha ha ha. You

never know with this group, our collective brain grows at a phenomenal rate.

At my wits end

Hi there,

I have a 4 year old son with autism and have been experiencing an issue with

him for a while and it just hit me last night that maybe it is due to not

tolerating something and wanted to see if anyone has shared this experience.

He tells me several times throughout the day " No _____. It could be over

the simplest thing such as no push button, or no go upstairs, no good night

kiss. Last night he woke up at 2:30 and his diaper was wet through his

jammies and it was no change diaper. If I walk away and ignore him he has a

tantrum and isn't okay until I return to give him the kiss etc. But he gets

stuck in it. If I return he says yes change diaper and when I go to do it

he says no again. Most the time I have to allow him to have a tantrum and

then finally he will do as I ask. If I tell him mommy is going to push the

button to close the garage and I do he freaks out and then he will do it, if

I tell him no movies when he says no to me (or something else he really

likes) I can sometimes pull him out of it and he will stop saying no. It's

just non-stop all day with different things. It's like he has to finish

what he started or it's a tantrum. I can't decide if this is a struggle for

control or could it be he isn't tolerating one of his supplements. Just

wanted to see what your thoughts were before I pull him off of all his

supplements and start over. Could this be an OCD characteristic? Any

advice would be great.

Thanks so much!!

Darci

[Guest guest]

> He tells me several times throughout the day " No _____. It could be

over

> the simplest thing such as no push button, or no go upstairs, no

good night

> kiss.

This was ODD issue for my son. It was caused by several things,

including too much of certain supplements, mineral toxicity issues,

EFAs without mito cocktail, and a few other things.

Dana

[Guest guest]

Tell the doctor you want to try something else. My son, 17 is on Prozac, now for about 3 month, he has yelled at me a few times, but I didn't think of it being the prozac cuz he has done this in the past, I will pay more attention to this. He has been on several different meds, you just gotta try them until one works. And I feel like someone else has already pointed out here, the meds seem to work well at first and then just stop, it'e weird, our children are moody, and seem to go in cycles of problems or doing well. I guess it's just life. Just tell yourself, this too will pass.

Hi everyone,I posted a message about a week and a half ago about my daughter being put into a partial hospitalization program. She had become severely depressed, and they wanted to try some medication changes. They confirmed the diagnosis of aspergers on friday, and started her on prozac. Well her moods have been out of control since starting the prozac! She was better off without it I feel. She had been on Zoloft at one point with the same results. He warned me that these types of meds can aggrivate children with aspergers and autism. He wasn't kidding! She is yelling at everyone, and threatening her siblings. She is not normally like this. Her sensitivity to sound has intensified. I'm just going nuts. She's already been out of school for a week and a half. If she isn't better by the end of vacation, she won't be going back then either. Do any of you have anti-depression meds that are working

for your child? If they take them of course. I'm so so sad right now, and I want to get her the help she so needs. This just isn't fair for her, or anyone else:-( Thanks for listening.Sheryl

Never miss a thing. Make your homepage.

[Guest guest]

The few days I had my son on Prozac when he was in the second grade for ,major anxiety, he hit our cat with a hand weight (completely out of character), walked into the room, announcing to me in a sing song, happy, CREEPY voice "I hate you, Mommy!" for no apparent reason, and was throwing text books up to the ceiling and knocking ceiling tiles out of place at school. After 36 hours of this med, we took him off. I've been told you have to wait for it to build up and work (like 2 weeks?) but there was no way in HELL I was keeping my son on that med to find out. I know everyone is different and some probably have good experiences with it, but my son did not.

Re: ( ) at my wits end

Tell the doctor you want to try something else. My son, 17 is on Prozac, now for about 3 month, he has yelled at me a few times, but I didn't think of it being the prozac cuz he has done this in the past, I will pay more attention to this. He has been on several different meds, you just gotta try them until one works. And I feel like someone else has already pointed out here, the meds seem to work well at first and then just stop, it'e weird, our children are moody, and seem to go in cycles of problems or doing well. I guess it's just life. Just tell yourself, this too will pass.

Hi everyone,I posted a message about a week and a half ago about my daughter being put into a partial hospitalization program. She had become severely depressed, and they wanted to try some medication changes. They confirmed the diagnosis of aspergers on friday, and started her on prozac. Well her moods have been out of control since starting the prozac! She was better off without it I feel. She had been on Zoloft at one point with the same results. He warned me that these types of meds can aggrivate children with aspergers and autism. He wasn't kidding! She is yelling at everyone, and threatening her siblings. She is not normally like this. Her sensitivity to sound has intensified. I'm just going nuts. She's already been out of school for a week and a half. If she isn't better by the end of vacation, she won't be going back then either. Do any of you have anti-depression meds that are working

for your child? If they take them of course. I'm so so sad right now, and I want to get her the help she so needs. This just isn't fair for her, or anyone else:-( Thanks for listening.Sheryl

Never miss a thing. Make your homepage.

[Guest guest]

Hi. My son is both AS and bipolar. A lot of bp kids can't take antidepressants b/c they bring on the bp cycles. Much like you are describing. Not saying that she is bp, but just telling you. There are other things she can take......don't give up. Depression is horrible.

in GA

[Guest guest]

good for you , you know your son best. When my son was younger, other parents including his medical doctor said 'medicate him'. I didn't want that for my son, T.G. I was able to find a person to work with my son that cared for all the children he works with. now, without meds, he is fine. (by stopping aggression behavior). However...I have seen children, don't know what they situation was, that they did need meds. I've also seen some parents that medicated their child too fast without trying other solutions first. for some, it's needed and a life saver, for others, will try different strategies. I guess it's a personal choice. just another opinion Rose MacAllister <smacalli@...> wrote: The few days I had my son on Prozac when he was in the second grade for ,major anxiety, he hit our cat with a hand weight (completely out of character), walked into the room, announcing to me in a sing song, happy, CREEPY voice "I hate you, Mommy!" for no apparent reason, and was throwing text books up to the ceiling and knocking ceiling tiles out of place at school. After 36 hours of this med, we took him off. I've been told you have to wait for it to build up and work (like 2 weeks?) but there was no way in HELL I was keeping my son on

that med to find out. I know everyone is different and some probably have good experiences with it, but my son did not. Re: ( ) at my wits end Tell the doctor you want to try something else. My son, 17 is on Prozac, now for about 3 month, he has yelled at me a few times, but I didn't think of it being the prozac cuz

he has done this in the past, I will pay more attention to this. He has been on several different meds, you just gotta try them until one works. And I feel like someone else has already pointed out here, the meds seem to work well at first and then just stop, it'e weird, our children are moody, and seem to go in cycles of problems or doing well. I guess it's just life. Just tell yourself, this too will pass. Hi everyone,I posted a message about a week and a half ago about my daughter being put into a partial hospitalization program. She had become severely depressed, and they wanted to try some medication changes. They confirmed the diagnosis of aspergers on friday, and started her on prozac. Well her moods have been out of control since starting the prozac! She was better off without it I feel. She had been on Zoloft at one point with the same results. He warned me that

these types of meds can aggrivate children with aspergers and autism. He wasn't kidding! She is yelling at everyone, and threatening her siblings. She is not normally like this. Her sensitivity to sound has intensified. I'm just going nuts. She's already been out of school for a week and a half. If she isn't better by the end of vacation, she won't be going back then either. Do any of you have anti-depression meds that are working for your child? If they take them of course. I'm so so sad right now, and I want to get her the help she so needs. This just isn't fair for her, or anyone else:-( Thanks for listening.Sheryl Never miss a thing. Make your homepage.

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

Hello (((Sheryl))) A big big hug for you hon., went crazy on Prozac too. He would throw himself against the furniture or wall & scream, "You pushed me or see what you made me do?" He was completely out of control. He was hitting himself & yelling that we did it. He was very aggravated. It was very scary to see him like that. After she took him off he was still like that for 2 weeks. He never did well on any antidepressants. I told his new Psych that & he put him on a low dose of Celexa 10 mgs. Now he is on 20mgs. He is happy as a lark & doing very well on it. Ask about Celexa. Sheryl <sherylfoster@...> wrote: Hi everyone,I posted a message about a week and a half ago about my daughter being put into a partial hospitalization program. She had become severely depressed, and they wanted to try some medication changes. They confirmed the diagnosis of aspergers on friday, and started her on prozac. Well her moods have been out of control since starting the prozac! She was better off without it I feel. She had been on Zoloft at one point with the same results. He warned me that these types of meds can aggrivate children with aspergers and autism. He wasn't kidding! She is yelling at everyone, and

threatening her siblings. She is not normally like this. Her sensitivity to sound has intensified. I'm just going nuts. She's already been out of school for a week and a half. If she isn't better by the end of vacation, she won't be going back then either. Do any of you have anti-depression meds that are working for your child? If they take them of course. I'm so so sad right now, and I want to get her the help she so needs. This just isn't fair for her, or anyone else:-( Thanks for listening.SherylTake care, Betty

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

Did the doctor change her meds then? There are other meds for depression out there that are not SSRI meds. So ask the doc and see what ideas he/she has. It is hard to say what might work for her! Here we are currently using "abilify."

RoxannaAutism Happens

( ) at my wits end

Hi everyone,I posted a message about a week and a half ago about my daughter being put into a partial hospitalization program. She had become severely depressed, and they wanted to try some medication changes. They confirmed the diagnosis of aspergers on friday, and started her on prozac. Well her moods have been out of control since starting the prozac! She was better off without it I feel. She had been on Zoloft at one point with the same results. He warned me that these types of meds can aggrivate children with aspergers and autism. He wasn't kidding! She is yelling at everyone, and threatening her siblings. She is not normally like this. Her sensitivity to sound has intensified. I'm just going nuts. She's already been out of school for a week and a half. If she isn't better by the end of vacation, she won't be going back then either. Do any of you have anti-depression meds that are working for your child? If they take them of course. I'm so so sad right now, and I want to get her the help she so needs. This just isn't fair for her, or anyone else:-( Thanks for listening.Sheryl

[Guest guest]

Hi Sheryl,

Our ds was recently started on Lexapro for depression. He has

Aspenber w/depression. He takes Invega to help him with the

organization of his thoughts and Lexapro for depression. He is 17

and he tells me it does help. I know he has seemed happier. He's

even smiling. He hasn't had any side effects that I can tell. His

doctor told us it would act very quickly and it has.

We didn't realize he was dealing with depression. He had a girl

friend that broke up with him and we did realize he was having a

hard time with that and he even had made statements like he will

never had another girl friend. We just thought it would pass.

He is doing much better.

Ginny

>

> Hi everyone,

> I posted a message about a week and a half ago about my daughter

being

> put into a partial hospitalization program. She had become

severely

> depressed, and they wanted to try some medication changes. They

> confirmed the diagnosis of aspergers on friday, and started her on

> prozac. Well her moods have been out of control since starting

the

> prozac! She was better off without it I feel. She had been on

Zoloft

> at one point with the same results. He warned me that these types

of

> meds can aggrivate children with aspergers and autism. He wasn't

> kidding! She is yelling at everyone, and threatening her

siblings.

> She is not normally like this. Her sensitivity to sound has

> intensified. I'm just going nuts. She's already been out of

school

> for a week and a half. If she isn't better by the end of

vacation, she

> won't be going back then either. Do any of you have anti-

depression

> meds that are working for your child? If they take them of

course. I'm

> so so sad right now, and I want to get her the help she so needs.

This

> just isn't fair for her, or anyone else:-( Thanks for listening.

> Sheryl

>