New Question

[Guest guest]

Good Morning Everyone,

My husband would like to know--

Is the arthritis a symptom of the psoriasis? And if so, shouldn't the

doctors be treating the P which is the cause rather than the PA which is a

symptom?

From emails we can tell some people have treated the P which resulted in

relief of the PA.

Another thought from my Hubby. Of all the people with PA, 75% are women. He

wants to know if possibly more men do have it but just live with the aches.

Maybe just aren't diagnosed? I believe it took 10 years for me to be

properly diagnosed.

Jeanne In Idaho

Moderator note: I understand approx. 10% of the people who have P will develop

PA. My P was fairly limited when my PA flared for the first time. My RD told

me that sometimes if the P is controlled, the PA follows, but there isn't

causative relationship. They are related in some fashion (that we all don't

completely understand yet), but one does not cause the other. Make any sense?

Patty PHDRWD@..., moderator from OH

[Guest guest]

Also the PA can come before the P ever shows up...my doc says it makes

diagnosing difficult in those patients.

Rae

Re: [ ] New Question

> Good Morning Everyone,

>

> My husband would like to know--

> Is the arthritis a symptom of the psoriasis? And if so, shouldn't the

> doctors be treating the P which is the cause rather than the PA which is a

> symptom?

>

> >From emails we can tell some people have treated the P which resulted in

> relief of the PA.

>

> Another thought from my Hubby. Of all the people with PA, 75% are women.

He

> wants to know if possibly more men do have it but just live with the

aches.

> Maybe just aren't diagnosed? I believe it took 10 years for me to be

> properly diagnosed.

>

> Jeanne In Idaho

>

> Moderator note: I understand approx. 10% of the people who have P will

develop PA. My P was fairly limited when my PA flared for the first time.

My RD told me that sometimes if the P is controlled, the PA follows, but

there isn't causative relationship.. They are related in some fashion (that

we all don't completely understand yet), but one does not cause the other.

Make any sense?

>

> Patty PHDRWD@..., moderator from OH

>

>

>

> Please visit our new web page at:

> http://www.wpunj.edu/icip/pa

>

> This past year had moderated a chat on arthritis at

www.about.com on Thursday evenings and hopes to start up doing so again

soon- we will keep you posted! Meanwhile, if anyone would like to start a

weekly chat on egroups, please contact or . Thanks

>

>

>

[Guest guest]

In a message dated 10/29/00 9:48:22 PM Eastern Standard Time,

now4now5@... writes:

<< I understand approx. 10% of the people who have P will develop PA. My P

was fairly limited when my PA flared for the first time. My RD told me that

sometimes if the P is controlled, the PA follows, but there isn't causative

relationship. They are related in some fashion (that we all don't completely

understand yet), but one does not cause the other. Make any sense?

>>

The way my RD explained it...you have the P gene....for SOME people (2-8%)

with P, you have the PA risk factor gene sitting right beside the P gene...so

the PA kicks in. In other people with JUST P (like my 4 brothers & my dad),

they DON'T have the PA risk factor gene. This is as simple as he could get

to explain it to us. It is the " luck of the drawn " genetically-speaking:)

He said the AMOUNT of P would make no difference...I asked the

question.... " so cure the P and the PA goes away, right " ...and he said

no...there is no " cure " for P...only control, and once the PA kicks in, the

treating of the P doesn't change the level of the PA...you have to treat them

both but curing or controling the P won't cure or control the PA. Does that

make sense? That's the story from my RD, Derm and my Ortho guy (who

originally suspected the diagnosis BEFORE my Derm did!!!!)

[Guest guest]

In a message dated 10/29/00 9:48:30 PM Eastern Standard Time,

now4now5@... writes:

<< Another thought from my Hubby. Of all the people with PA, 75% are women.

He

wants to know if possibly more men do have it but just live with the aches.

Maybe just aren't diagnosed? >>

I don't think that men " just live with the aches " - if you have PA and a PA

flare, it is impossible to just live with it. I felt myself becoming worse

and worse through a flare until I was sure I would never walk again. I only

finally got a diagnosis by going " psycho " on my m.d. and telling her that if

she didn't do something soon I would be in a wheelchair for life. That

finally got her going on sending me to a specialist. Maybe men just don't

know how to be quite the bitch I am?? )

[Guest guest]

In a message dated 10/30/2000 11:17:58 AM Mountain Standard Time,

TADEL630@... writes:

<< Maybe men just don't

know how to be quite the bitch I am?? ) >>

LOL--you guys are just great! I tried to explain to my macho husband that

this isn't something you just 'live' with--but I'm glad he will now hear it

from others.

We also appreciate saewen@... comments explaining that gene factor of PA.

I'm going to have to think on that one a little longer but I think I

understand much better how it all works.

I have had 2 days of feeling pretty good. In fact, once I stopped the

Celebrex everything improved. Hmm--I have notes in my diary--'Did the

Celebrex cause the pain? " Could that have been some type of weird allergic

reaction?

Hope all are doing well today,

Jeanne In Idaho

[Guest guest]

In a message dated 10/30/00 2:22:06 PM Eastern Standard Time,

now4now5@... writes:

<< I have had 2 days of feeling pretty good. In fact, once I stopped the

Celebrex everything improved. Hmm--I have notes in my diary--'Did the

Celebrex cause the pain? " Could that have been some type of weird allergic

reaction? >>

Jeanne: I just don't think certain NSAID's are for everyone. I was put on

Celebrex at one point & it did nothing for me. There was another one we

tried, but I cannot remember the name, and it did not work either - my foot &

ankle swelling was amazing. Until the RD put me on Indomethocin, which he

says is an " old stable " NSAID. When I first tried it last year, I had a

rapid heartbeat & dizzy feeling with it...so we switched the dosage around

from 75mg 2x a day to 50mg 3x a day - spreading it out through the day...and

that is working for me. So...don't give up...just keep making them try other

NSAID's until you find the right one.

[Guest guest]

Hello Everyone,

I am one of the people who have very little P but have PA in many joints.

The NPF newsletter arrived the other day. In it was an article about

different types of P. I have separated nails but only about 10 pimple size

spots of P on my body. Before being diagnosed with PA I had only about 2 of

those spots and didn't have a clue they were anything more than dry skin.

Now, I have a few more and they are silver or gray and rough textured.

My question is:

Since I appear to be in the beginning stages of developing P, is there

anything I could do now? And does P develop slowly like this? Is there a

cream or special lotion that may help to delay the development? Any other

advice?

Thanks,

Jeanne In Idaho

[Guest guest]

> Hello Everyone,

>

> I am one of the people who have very little P but have PA in many

joints.

>

> The NPF newsletter arrived the other day. In it was an article

about

> different types of P. I have separated nails but only about 10

pimple size

> spots of P on my body. Before being diagnosed with PA I had only

about 2 of

> those spots and didn't have a clue they were anything more than dry

skin.

> Now, I have a few more and they are silver or gray and rough

textured.

>

> My question is:

> Since I appear to be in the beginning stages of developing P, is

there

> anything I could do now? And does P develop slowly like this? Is

there a

> cream or special lotion that may help to delay the development?

Any other

> advice?

>

> Thanks,

> Jeanne In Idaho

Hi Jeanne,

I also do not have much P, but do have PA. I have very small P in my

hair line. I buy Vit. E and apply it to the red area. It helps

alot. Good luck (I also take Vit.E internally along with other

nutrients to keep my immune system the best it can be to fight the P

and PA)

[Guest guest]

Go see a dermatologist.

>From: now4now5@...

>Reply- egroups

> egroups

>Subject: [ ] Re: New Question

>Date: Thu, 9 Nov 2000 18:59:53 EST

>

>Hello Everyone,

>

>I am one of the people who have very little P but have PA in many joints.

>

>The NPF newsletter arrived the other day. In it was an article about

>different types of P. I have separated nails but only about 10 pimple size

>spots of P on my body. Before being diagnosed with PA I had only about 2

>of

>those spots and didn't have a clue they were anything more than dry skin.

>Now, I have a few more and they are silver or gray and rough textured.

>

>My question is:

>Since I appear to be in the beginning stages of developing P, is there

>anything I could do now? And does P develop slowly like this? Is there a

>cream or special lotion that may help to delay the development? Any other

>advice?

>

>Thanks,

>Jeanne In Idaho

>

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[Guest guest]

Jeanne: I am in the same boat as you...the P is very minimal on my

body...small spots here & there and some on my back..I have LOTS of

freckles, so people don't even notice the P unless the run their hand

up my arm. The exception to this is my SCALP...it is bad there and

has been forever...I see a Derm regularly & get treatment...UV also.

You should probably do the same....the RD did tell me that the PA is

not controled by the P...but that I need to continue to treat it

anyway!

In egroups, ediemosback@a... wrote:

>

> > Hello Everyone,

> >

> > I am one of the people who have very little P but have PA in many

> joints.

> >

> > The NPF newsletter arrived the other day. In it was an article

> about

> > different types of P. I have separated nails but only about 10

> pimple size

> > spots of P on my body. Before being diagnosed with PA I had only

> about 2 of

> > those spots and didn't have a clue they were anything more than

dry

> skin.

> > Now, I have a few more and they are silver or gray and rough

> textured.

> >

> > My question is:

> > Since I appear to be in the beginning stages of developing P, is

> there

> > anything I could do now? And does P develop slowly like this?

Is

> there a

> > cream or special lotion that may help to delay the development?

> Any other

> > advice?

> >

> > Thanks,

> > Jeanne In Idaho

>

>

> Hi Jeanne,

>

> I also do not have much P, but do have PA. I have very small P in

my

> hair line. I buy Vit. E and apply it to the red area. It helps

> alot. Good luck (I also take Vit.E internally along with other

> nutrients to keep my immune system the best it can be to fight the

P

> and PA)

[Guest guest]

Our son was on the diet, then he started realizing that everyone was eating

something different and started to refuse his GFCF foods. He had been on the

enzymes for 6 months so we challenged the diet and he did fine, so we took him

off the diet and use the enzymes instead. He's doing great.

Remember though that every child is different. But you could try it. Mine son

get HNI Peptizyde and Zyme Prime.

HTH

Rhonda in CA

[Guest guest]

> issues with our food we haven't really had a bad problem with him

> wanting our food until now, it is like he just realized ours is

> different from his, is it ok to just use enzymes?

For many kids, you can use enzymes instead of removing foods. Just

add back one food at a time, so you can learn whether your child will

tolerate each food with enzymes.

>>what enzymes could i use instead of the diet and do they

> really make it ok to be off of the diet,

For many kids, yes. My kids left gfcf with HNI enzymes

http://www.houstonni.com/

Dana

[Guest guest]

>,

We recently went off of the gfcf diet with the enzymes, I give my son

2 afp and one zyme prime and one No-phenol with meals. We worked up

to that slowly, like over several weeks. He gets a varied amount with

snacks, depending on the size.

He has been back on gluten and dairy for a month and we have not seen

any negatives. We have noticed problems when he eats rice and/or

potato. He had been gfcf for two years and when he was 2 it was no

problem, but he had become very aware and stressed about his food.

This has been alleviated.

Its really a very personal choice to take a chance in going off the

trusted diet. The only change we have seen is that he is not as

regular, but this was a problem before and I think its for various

reasons.

All of my friends who are gfcf were very alarmed at the thought of me

challenging the diet. We were just getting to the point with

infractions that we felt it was worth taking a chance. I will let the

group know if anything changes.

Elaine

> Hi all. Have been reading posts and am wondering if you guys can help.

> My 5 year old son is autistic and been on the gfcf diet for 2 years now

> with great gains, also been on afp peptizide for 1 year and 6 months,

> we see dr usman and are seeing her again in january, my son is having

> issues with our food we haven't really had a bad problem with him

> wanting our food until now, it is like he just realized ours is

> different from his, is it ok to just use enzymes? his food allergy

> tests came back only still showing problems with yogurt and slight

> wheat allergy, what enzymes could i use instead of the diet and do they

> really make it ok to be off of the diet, any advice is greatly

> appreciated, he is very sad and i would love to give him some regular

> food if it will not harm him thank you all.

>

[Guest guest]

Hey Everyone,

I have a question from my 8 year old her self. When she is telling a story she

has difficulty in two areas (aside from her speech). She repeats a sentence over

and over again, as if she is lost and can't remember the next detail of the

story. She also goes over a miner detail repeatedly saying it in different ways

and doesn't get to the main issue. If she wants to tell me about something she

saw in the store, she will begin by saying " The other day when we went to the

store...remember we took the car, we took the black car, remember when we drove

down the road.... " . I usually guide her back to " the store " so she can get her

point across. She asked me if this was part of her apraxia. I'm thinking it may

be part of motor planning? Sequencing? I told her I'd put the question to you

all and see if anyone else has had experience with this. Thanks you guys! I'll

let Shyann know if you respond.

Joy

[Guest guest]

My 8 years 8 mos daughter does this too and she does not have

Apraxia. I find myself thinking " Spit it out honey! " She talks a lot

and I always felt she was talking before she thought about what she

wanted to say. I find if I wait it out and not interupt she can

usually complete a thought.

I'll be interested to read what others in this group think.

>

> Hey Everyone,

> I have a question from my 8 year old her self. When she is telling

a story she has difficulty in two areas (aside from her speech). She

repeats a sentence over and over again, as if she is lost and can't

remember the next detail of the story. She also goes over a miner

detail repeatedly saying it in different ways and doesn't get to the

main issue. If she wants to tell me about something she saw in the

store, she will begin by saying " The other day when we went to the

store...remember we took the car, we took the black car, remember

when we drove down the road.... " . I usually guide her back to " the

store " so she can get her point across. She asked me if this was part

of her apraxia. I'm thinking it may be part of motor planning?

Sequencing? I told her I'd put the question to you all and see if

anyone else has had experience with this. Thanks you guys! I'll let

Shyann know if you respond.

> Joy

>

>

>

[Guest guest]

Hi Joy,

My 13 yr. old ASD son stuggles with his speech in a similar way as your

daughter. However, my son's issue's are evident in the way he will repeat the

last word (sometimes the sentence) several times (mid-thought) and then resume

with what he is trying to say. Its almost as if he is trying to 'buy some extra

time' to: think about, organize, sequence, and then finally verbalize the rest

of his thoughts. If I can figure out the initial omega supplements recommended

for these kids according to this list serve, I am hoping to try them with him

and hope for some improvement!

[Guest guest]

,

This sounds like an auditory sequential processing issue. Try testing your

son's digit spans. Mark used to do this as well. He'd say, " I wanna go, I

wanna go, I wanna go.....pause.... to the store and get some bubble gum (or

whatever). He spoke like this all day long. He would always say, " What?

Pardon? " all day long as well because he simply was not processing my longer

sentences completely and needed another chance to determine what I was saying.

He had trouble following instructions and had trouble with math word problems

and remembering multi-step sequences.

I discovered that he had an auditory digit span of 5 at the age of 11. This

meant that he was processing auditory information at the level of a 5 year old.

Supplements did nothing to help with this. We did digit spans 3 to 4 times a

day to work his short term auditory memory and his auditory processing. In 8

months, he had an auditory digit span of 8 which is normal for a college bound

adult. We also did The Listening Program to work his tonal processing and he

listened to 'interesting' books on tape daily to work his ears and listening and

comprehension some more.

It changed a lot in him; he was able to tell stories with a beginning, a middle

and an ending. He was able to follow verbal instructions coherently and

acurately. He was able to understand innuendo of conversation and developed

better socializing skills. His dry wit began to emerge and I discovered that my

son was funny! Before this, listening to him trying to tell a story was

'painful' to say the least.

This issue does not go away on its own but requires remediation. Once the

auditory processing gets 'stalled' for whatever reason, the feedback loop from

the ears to the brain only seems to get better with daily, continuous auditory

therapy. This area requires a 'jumpstart' and that is what therapy provides.

We need to work the short term auditory memory and work it HARD! Then, it

slowly gets better and our children's function increases exponentially.

It truly does get better and the difference to global function is truly

remarkeable......but you need to identify where your son is at and then do the

work to correct the problem. I haven't found the magic pill on this one....

sorry! But I have found the magic therapy!

Hope this provides you with another area to research.....

Take care,

Janice

Mother of Mark, 13

[sPAM][ ] Re: New Question

Hi Joy,

My 13 yr. old ASD son stuggles with his speech in a similar way as your

daughter. However, my son's issue's are evident in the way he will repeat the

last word (sometimes the sentence) several times (mid-thought) and then resume

with what he is trying to say. Its almost as if he is trying to 'buy some extra

time' to: think about, organize, sequence, and then finally verbalize the rest

of his thoughts. If I can figure out the initial omega supplements recommended

for these kids according to this list serve, I am hoping to try them with him

and hope for some improvement!

[Guest guest]

Phil, do you know if Chrysin does the same thing as DIM, and under what

conditions would Nettle and Saw Palmeto be helpful?

Thanks.

From: pmgamer18@...

Date: Sun, 8 Aug 2010 09:41:19 -0700

Subject: Re: Re: Androgel TRT

The brand that has the word Indolplex in it works the best.

Co-Moderator

Phil

> From: jtd1701d <jtd1701d@...>

> Subject: Re: Androgel TRT

>

> Date: Sunday, August 8, 2010, 12:08 PM

>

>

>

>

> I assumed the huge amount of Test was too much, hence body

> conveting some into Estrogen (already at a the high end),

> hence the nipple issue. this morning is now day 6, and

> now now it looking slightly puffy.

>

> I certainly want to get my e2 investigated and down, but

> first concern is this nipple. I do have OCD when it

> comes to my health, and the thought of my puffy nipple being

> permenent cannot escape me! I even had to dig up my

> shrinks phone number to make an apppointment.

>

> I will look into this DIM product, its listed at the

> viaminshoppe website, perhaps i'll just walk into the local

> store and see if they have it.

>

>

>

> > > > > >

> > > > > > > From: jtd1701d

> <jtd1701d@>

> > > > > > > Subject: Re:

> Androgel

> > > TRT

> > > > > > >

> > > > > > > Date: Friday, August 6, 2010,

> 5:57 PM

> > > > > > > All my Endo did to rule out

> Secondary

> > > > > > > was an MRI, which came back

> fine.Â

> > > Then they

> > > > > jumped to

> > > > > > > the diagnosis that it was

> Primary.

> > > > > > >

> > > > > > > My doctor too also threw the

> line

> > > " stop

> > > > > concerning yourself

> > > > > > > with the cause, and focus on

> > > treatment " . I

> > > > > REALLY do

> > > > > > > not want to be on TRT if I

> dont want to

> > > be.

> > > > > > >

> > > > > > > Phil, Just another ?

> please. The

> > > Doctor

> > > > > already

> > > > > > > injected me with 300 MG of T

> on Tuesday

> > > 8/3.Â

> > > > > And wants

> > > > > > > to see me in two weeks for

> another

> > > Injection,

> > > > > then start

> > > > > > > Androgel.

> > > > > > >

> > > > > > > After my own consideration

> and your

> > > advice, I

> > > > > will NOT get

> > > > > > > that 2nd injection or start

> any TRT

> > > until the

> > > > > root cause is

> > > > > > > found, and all options are

> exhausted.

> > > > > > >

> > > > > > > I want to start with a new,

> competent

> > > Endo. And

> > > > > just

> > > > > > > for the sake of my past test

> results,

> > > and wanting

> > > > > a BASELINE

> > > > > > > - I want to get my labs

> retaken.Â

> > > Again I was

> > > > > injected

> > > > > > > on 8/3, How long do I have to

> wait for

> > > me to

> > > > > " normalize " so

> > > > > > > I can go for another blood

> test workup,

> > > any

> > > > > idea?

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> ------------------------------------

> > > > > > >

> > > > > > >

[Guest guest]

Chrysin dies in your stomach but if you can get it compounded the right way I

hear it works. Just to much trouble not worth it. I did Saw Palmeto for yrs

never helped and I use it for BPH problems. Nettle I tried it nothing but thats

me and it's hard to find good stuff.

Co-Moderator

Phil

>

>

>

> > From: jtd1701d <jtd1701d@...>

>

> > Subject: Re: Androgel TRT

>

> >

>

> > Date: Sunday, August 8, 2010, 12:08 PM

>

> >

>

> >

>

> >

>

> >

>

> > I assumed the huge amount of Test was too much, hence

> body

>

> > conveting some into Estrogen (already at a the high

> end),

>

> > hence the nipple issue.  this morning is now day

> 6, and

>

> > now now it looking slightly puffy. 

>

> >

>

> > I certainly want to get my e2 investigated and down,

> but

>

> > first concern is this nipple.  I do have OCD when

> it

>

> > comes to my health, and the thought of my puffy nipple

> being

>

> > permenent cannot escape me!  I even had to dig up

> my

>

> > shrinks phone number to make an apppointment.

>

> >

>

> > I will look into this DIM product, its listed at the

>

> > viaminshoppe website, perhaps i'll just walk into the

> local

>

> > store and see if they have it.

>

> > 

>

> >

>

> >

>

> > > > > > >

>

> > > > > > > > From: jtd1701d

>

> > <jtd1701d@>

>

> > > > > > > > Subject:

> Re:

>

> > Androgel

>

> > > > TRT

>

> > > > > > > >

>

> > > > > > > > Date: Friday, August 6,

> 2010,

>

> > 5:57 PM

>

> > > > > > > > All my Endo did to rule

> out

>

> > Secondary

>

> > > > > > > > was an MRI, which came

> back

>

> > fine.Â

>

> > > > Then they

>

> > > > > > jumped to

>

> > > > > > > > the diagnosis that it

> was

>

> > Primary.

>

> > > > > > > >

>

> > > > > > > > My doctor too also threw

> the

>

> > line

>

> > > > " stop

>

> > > > > > concerning yourself

>

> > > > > > > > with the cause, and

> focus on

>

> > > > treatment " .  I

>

> > > > > > REALLY do

>

> > > > > > > > not want to be on TRT if

> I

>

> > dont want to

>

> > > > be.

>

> > > > > > > >

>

> > > > > > > > Phil, Just another ?

>

> > please.  The

>

> > > > Doctor

>

> > > > > > already

>

> > > > > > > > injected me with 300 MG

> of T

>

> > on Tuesday

>

> > > > 8/3.Â

>

> > > > > > And wants

>

> > > > > > > > to see me in two weeks

> for

>

> > another

>

> > > > Injection,

>

> > > > > > then start

>

> > > > > > > > Androgel.

>

> > > > > > > >

>

> > > > > > > > After my own

> consideration

>

> > and your

>

> > > > advice, I

>

> > > > > > will NOT get

>

> > > > > > > > that 2nd injection or

> start

>

> > any TRT

>

> > > > until the

>

> > > > > > root cause is

>

> > > > > > > > found, and all options

> are

>

> > exhausted.

>

> > > > > > > >

>

> > > > > > > > I want to start with a

> new,

>

> > competent

>

> > > > Endo.  And

>

> > > > > > just

>

> > > > > > > > for the sake of my past

> test

>

> > results,

>

> > > > and wanting

>

> > > > > > a BASELINE

>

> > > > > > > > - I want to get my labs

>

> > retaken.Â

>

> > > > Again I was

>

> > > > > > injected

>

> > > > > > > > on 8/3, How long do I

> have to

>

> > wait for

>

> > > > me to

>

> > > > > > " normalize " so

>

> > > > > > > > I can go for another

> blood

>

> > test workup,

>

> > > > any

>

> > > > > > idea?

>

> > > > > > > >

>

> > > > > > > >

>

> > > > > > > >

>

> > > > > > > >

>

> > ------------------------------------

>

> > > > > > > >

>

> > > > > > > >