Re: juice for carbs....

November 27, 2006

Jen,

I think that she'd make better progress if you'd pull some things. I'd

eliminate the raw apple. The pealing can be especially hard to digest, but I'd

take it out even if you have been pealing the apple. Raw celery is also an

advanced food. I'd remove that. I'd also remove the peanutbutter.

Peanutbutter has been a problematic food for many...maybe even most...of the

children. What about substituting almond butter...which you can find in

stores...or pecan butter...which you'd have to make yourself. How is she eating

the raw garlic? Is it juiced to be used as an antifungal? I might pull this

one as well, but I'm not sure that it is as concerning as the raw apple, raw

celery, and peanutbutter. You can certainly use diluted orange juice, grape

gruice, or cranberry juice for extra carbs. Just make sure that they are the

legal brands. I think that you should be giving K all pealed, seeded, and

cooked foods at this point. Have you tried giving her any of the other cooked

veggies listed in the early stages on the " beyoond the intro " chart? Does she

not tolerate them, not like them, ect? If she doesn't want to eat them, have

you tried sneaking them in somehow?

Meleah

juice for carbs....

My dd won't eat barely any baked goods, barely any nuts and not in cooked or

crushed form. She also cannot tolerate dairy much yet. Is it ok to be using

watered-down grape, oj or cranberry juice instead to give her the carbs? She is

hypoglycemic. This is what we've been doing. Adding barely any new foods slowly.

This is what her diet looks like:

applesauce & also raw apples

raw celery

salmon patties(salmon, eggs & macadamia flour)

eggs(hard boiled and fried(olive oil))

Santa Cruz PB

steak

chicken

occassionally bacon

walnuts

occassionally raw garlic & onions

occassionally avacado

water & homemade cranberry juice & OJ mixed with water

-sometimes honey in baked goods

K eats only free-range, organic foods.

She cannot tolerate:

Berries, dairy, spinach, some nuts, & mold

Supplements include:

TMG, folinic acid, & mb12

melatonin

magnesium/epsom salts baths sometimes

ginko biloba

coconut oil

clo & fish oil(nordic naturals)orange

chelated zinc

She is also on Nystatin right now per DAN!

He also recommended her to take calcium supp. but, she can't without the C

coming back again.

She is a very hyper child at times which seems to be getting better.

I usually don't get a response to many of my posts on this board and need

help. I beleiev this is why we are lost right now. Can someone please chime in

here? Jenn & K

November 27, 2006

Jenn,

I think I've responded to several of your posts recently. I've tried to answer

any questions as best I could. If there's ever a time that you don't get an

answer, please re-post. There are only four of us who share the moderating tasks

here, and life is hectic for all of us. Not getting an answer could also just

mean that we really don't know the answer.... but always try reposting. We're

only human.

You didn't mention here how long your daughter has been on SCD, but that doesn't

matter. I will go by the fact that you are seeing some digestive problems....

and to me, that means you need to take a step back.

I think you have to take out the raw foods.... raw apple, raw celery, raw

garlic and onions. These things need to be cooked.... unless the individual is

doing well with BMs, making progress and symptoms (whatever symptoms you started

the diet for) are reduced.

I also personally think you need to pull the peanut butter. Unless a kid is

doing really well... moving along and making positive progress, I don't

recommend peanut butter anymore for ANYone. It's really a legume... and should

be considered advanced. It may impede progress for many kids, so if you're not

where you wanna be, pull the peanut butter.

You've listed walnuts.... if that means WHOLE walnuts, I'd recommend you pull

those, too.

You said she gets honey sometimes in baked goods.... which flour are you using

for " baked goods " ? Just the macadamia?

If she eats applesauce, you should be able to begin to sneak just a very small

amount of pureed squash into that.... or get some variety by mixing in a small

amount of pear sauce with the applesauce.... and increase slowly.

If she's eating the salmon patties, you should be able to sneak squash in with

that, too. Or pureed green beans.

No, I don't think relying on juice to get carbs in is adequate.

Patti

juice for carbs....

My dd won't eat barely any baked goods, barely any nuts and not in cooked or

crushed form. She also cannot tolerate dairy much yet. Is it ok to be using

watered-down grape, oj or cranberry juice instead to give her the carbs? She is

hypoglycemic. This is what we've been doing. Adding barely any new foods slowly.

This is what her diet looks like:

applesauce & also raw apples

raw celery

salmon patties(salmon, eggs & macadamia flour)

eggs(hard boiled and fried(olive oil))

Santa Cruz PB

steak

chicken

occassionally bacon

walnuts

occassionally raw garlic & onions

occassionally avacado

water & homemade cranberry juice & OJ mixed with water

-sometimes honey in baked goods

K eats only free-range, organic foods.

She cannot tolerate:

Berries, dairy, spinach, some nuts, & mold

Supplements include:

TMG, folinic acid, & mb12

melatonin

magnesium/epsom salts baths sometimes

ginko biloba

coconut oil

clo & fish oil(nordic naturals)orange

chelated zinc

She is also on Nystatin right now per DAN!

He also recommended her to take calcium supp. but, she can't without the C

coming back again.

She is a very hyper child at times which seems to be getting better.

I usually don't get a response to many of my posts on this board and need

help. I beleiev this is why we are lost right now. Can someone please chime in

here? Jenn & K

November 27, 2006

What kind of problems can happen when one eats raw celery? We destring it and

she doesn't have or never did have D except during die-off periods. What should

I give her to eat for lunches in school? We don't have many choices. We usually

use PB to dip the celery into. She is allergic to almonds and cashews. I have

tried to make pecanbutter but cannot get it the same smoothness as the creamy

pb. Any bits or pieces found by her and she refuses to eat it. I have been

battling this for 18 months with SCD and ended up here. We are stuck but, we're

still seeing improvements. We started out with cooked, deseeded, & peeled

apples, pears, avacado & carrots. She rarely ever eats the carrots anymore and

it was a real fuss to get them in her. We are doing legal juices and most of the

time her garlic is juiced too but, rarely she will swipe a piece before it goes

into the juicer. I juice some veggies like cucumber, celery, carrots & lettuces.

At least I'm getting the veggies in her somehow. I would have to treat any

cooked foods besides for the meat like medicine, half of a bite at a time. She

refuses to eat anything red as well except for the apples. Thanks for the help I

think. Although, I don't think it's necessary to peel, deseed and cook

everything for her anymore like we did for the first year. Jenn & K

juice for carbs....

My dd won't eat barely any baked goods, barely any nuts and not in cooked or

crushed form. She also cannot tolerate dairy much yet. Is it ok to be using

watered-down grape, oj or cranberry juice instead to give her the carbs? She is

hypoglycemic. This is what we've been doing. Adding barely any new foods slowly.

This is what her diet looks like:

applesauce & also raw apples

raw celery

salmon patties(salmon, eggs & macadamia flour)

eggs(hard boiled and fried(olive oil))

Santa Cruz PB

steak

chicken

occassionally bacon

walnuts

occassionally raw garlic & onions

occassionally avacado

water & homemade cranberry juice & OJ mixed with water

-sometimes honey in baked goods

K eats only free-range, organic foods.

She cannot tolerate:

Berries, dairy, spinach, some nuts, & mold

Supplements include:

TMG, folinic acid, & mb12

melatonin

magnesium/epsom salts baths sometimes

ginko biloba

coconut oil

clo & fish oil(nordic naturals)orange

chelated zinc

She is also on Nystatin right now per DAN!

He also recommended her to take calcium supp. but, she can't without the C

coming back again.

She is a very hyper child at times which seems to be getting better.

I usually don't get a response to many of my posts on this board and need

help. I beleiev this is why we are lost right now. Can someone please chime in

here? Jenn & K

November 27, 2006

Patti,

Yes. You are one of those helpers for us lately. Thank you. Kali has been on

SCD for over 18 months now. K doesn't seem to have any Gi issues except C ONLY

SOMETIMES. Mostly cleared all up. Used to be hives, eczema, C and wheezing. So,

since her symptoms have been reduced to almost none, she is able to tolerate

coconut, & some raw stuff.

I am thinking of pulling the PB although, I need a good replacement.

I am using coconut & macadamia flour. Are veggies considered a carb too? I can

try to sneak some squash into her salmon patties. That's a good idea. Thanks for

giving me some real things to think about. Jenn & K

juice for carbs....

My dd won't eat barely any baked goods, barely any nuts and not in cooked or

crushed form. She also cannot tolerate dairy much yet. Is it ok to be using

watered-down grape, oj or cranberry juice instead to give her the carbs? She is

hypoglycemic. This is what we've been doing. Adding barely any new foods slowly.

This is what her diet looks like:

applesauce & also raw apples

raw celery

salmon patties(salmon, eggs & macadamia flour)

eggs(hard boiled and fried(olive oil))

Santa Cruz PB

steak

chicken

occassionally bacon

walnuts

occassionally raw garlic & onions

occassionally avacado

water & homemade cranberry juice & OJ mixed with water

-sometimes honey in baked goods

K eats only free-range, organic foods.

She cannot tolerate:

Berries, dairy, spinach, some nuts, & mold

Supplements include:

TMG, folinic acid, & mb12

melatonin

magnesium/epsom salts baths sometimes

ginko biloba

coconut oil

clo & fish oil(nordic naturals)orange

chelated zinc

She is also on Nystatin right now per DAN!

He also recommended her to take calcium supp. but, she can't without the C

coming back again.

She is a very hyper child at times which seems to be getting better.

I usually don't get a response to many of my posts on this board and need

help. I beleiev this is why we are lost right now. Can someone please chime in

here? Jenn & K

November 27, 2006

Jenn,

Yes, veggies are great carb sources. Squash especially.... carrots, too.

Macadamia butter would be a good replacement if you decide to pull the peanut

butter out. I realise peanut butter is inexpensive and convenient.... but if

someone is having problems (digestive or otherwise), I'd just like to see them

pull it out for a couple of weeks... just to see if things improve.

Patti

Re: juice for carbs....

Patti,

Yes. You are one of those helpers for us lately. Thank you. Kali has been on

SCD for over 18 months now. K doesn't seem to have any Gi issues except C ONLY

SOMETIMES. Mostly cleared all up. Used to be hives, eczema, C and wheezing. So,

since her symptoms have been reduced to almost none, she is able to tolerate

coconut, & some raw stuff.

I am thinking of pulling the PB although, I need a good replacement.

I am using coconut & macadamia flour. Are veggies considered a carb too? I can

try to sneak some squash into her salmon patties. That's a good idea. Thanks for

giving me some real things to think about. Jenn & K

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November 27, 2006

Jenn,

<<What kind of problems can happen when one eats raw celery? We destring it and

she doesn't have or never did have D except during die-off periods. >>

If you think the celery is being well tolerated and digested, then that's

fine.... it's just that when anyone describes problems that they can't seem to

get beyond, we like to recommend taking a step back to see if the problem has to

do with the gut not really being truly healed yet. Raw celery is very fibrous...

even if you de-string it. This may not cause a really *obvious* symptom like

diarrhea, but still could get in the way of healing. But, you know her best....

and if your instincts tell you this is not causing any trouble, that's fine.

<<What should I give her to eat for lunches in school? We don't have many

choices. We usually use PB to dip the celery into. She is allergic to almonds

and cashews.>>

I would look for macadamia butter.... or hazelnut. I know you said she does

fine with macadamia flour.

<<I have tried to make pecanbutter but cannot get it the same smoothness as the

creamy pb. Any bits or pieces found by her and she refuses to eat it.>>

I know what you mean.... pecan butter works well in certain recipes... but you

can't get it as smooth as peanut butter.

<<We are stuck but, we're still seeing improvements. We started out with cooked,

deseeded, & peeled apples, pears, avacado & carrots. She rarely ever eats the

carrots anymore and it was a real fuss to get them in her.>>

Hmmm.... I suppose you'd need to hide them by pureeing and mixing into meatloaf

or something. Or, do you think she might accept cooked baby carrots if they were

chilled and she could dip them in the nut butter?

<<We are doing legal juices and most of the time her garlic is juiced too>>

That's a great way..... raw garlic is fine in juice.

<<I juice some veggies like cucumber, celery, carrots & lettuces. At least I'm

getting the veggies in her somehow.>>

That's perfectly fine.... you can do the raw juices because that removes the

fiber so there is not the same concern about needing to break down the cell

walls in the fibrous parts of raw veggies by cooking, to make them more

digestible. Trouble is, then you've removed the fiber that is really needed

when someone tends toward constipation. These juices are fine, though.... great

way to get the nutrients in.... and you are getting carbs in. Yes... veggies

have carbs!

<<Thanks for the help I think.>>

You're welcome... I think.

<<Although, I don't think it's necessary to peel, deseed and cook everything for

her anymore like we did for the first year.>>

That's up to you.... if you feel things are progressing along just fine, then

keep doing what you're doing. It just sounded to me like you were not

pleased.... you've said you're " stuck " . It sounds like she is still pretty

self-limiting, too.... which always makes me suspicious that there may be some

healing hurdles. If that is true, I always feel it's best to go back to cooked

foods.... for a while.... but if that would seriously impede her wanting to eat

at all, then you need to do what you feel is best. I was giving it my best

shot!

Patti

November 27, 2006

You you have done a beautiful job trying to help here. I am willing to take

suggestions and I'm learning here too. You're right. We've always had to back up

to stage intro foods when she is having a regression or die-off. Macadamia

butter seems like something she would try. She doesn't like her foods mixed.

Although, just today she ate PB on her celery for lunch, instead of the pb and

celery alone. That's really something for her. She won't eat soup. I have to

separate it afterwards. Chicken & broth in separate containers. She keeps her

foods on a 3 day rotation also. That is she likes the same foods for 3 days and

then won't eat them again for a few more days at least. It's hard to find foods

to actually feed her sometimes.

Does she really need the carrots cooked when I'm juicing them? I know she needs

some fiber. How much exactly do you think she needs daily? Maybe somehow I could

work up to that amt.

I am NOT pleased that se has VERY limited language. This is what I need the most

help with now with her.

We are living day to day thinking, what can we do today to get better?. It's

easier than saying to wait for something for a long time for me. There are

hurdles in healing. Ups and downs. I can't tell you how many times K has had

die-off in the first year of the diet. She was sick for 3 weeks at 3 months into

it. I was relieved when she finally started to feel better. We have been through

---. I really appreciate you taking the time to think about Kali today.

I would be afraid to take a lot of foods away so, maybe one at a time. She

really has a very limited diet already.

Jenn & K

Re: juice for carbs....

Jenn,

<<What kind of problems can happen when one eats raw celery? We destring it

and she doesn't have or never did have D except during die-off periods. >>