Re: ALS/MND Does LDN help

[Guest guest]

Welcome Kay,

I will forward on some earlier chats regarding ALS, and yes it helps many people with that affliction.

So far the only testing completed for LDN is for Crohn's. Things are in the works for MS and Fibro. I will send you what I have.

Kind regards

Aletha

[low dose naltrexone] ALS/MND Does LDN help

Hi There

I have Motor Neurone Disease for over a year.. Looking for alternatives does LDN help. Would like to hear from those who take it and what research has been done. What are the side effects.

Its just to get someone to prescribe it in NZ

Interested in what you have to share

Kay

[Guest guest]

Hi Kay,

It helps some eg and Zana on Ozpals, but others find it doesn't

seem to help. That said, nothing works for everyone and I suspect that

at least some of those who didn't feel it was helping either a) didn't

give it long enough (9 months minimum) or weren't getting it from a

recommended chemist (see

http://www.low dose naltrexone.org/comp_pharm.htm) so possibly it wasn't

made up properly. Or they may have had candida or have even been

misdiagnosed with motor neurone disease (ALS) when they really had Lyme

disease, neither of which LDN can effectively work against.

Side effects for some people are slight sleeplessness and/or vivid

dreams and/or increased stiffness but these disappear in a few days or a

week or so in most people for whom they even occur.

Research on LDN is virtually non existent so if your doc wants that bad

luck unfortunately. However, the anecdotal evidence is overwhelming.

Bottom line - it can't hurt you and it may help! Try it for 9 months

and see!

kay wrote:

> Hi There

> I have Motor Neurone Disease for over a year.. Looking for

> alternatives does LDN help. Would like to hear from those who take it

> and what research has been done. What are the side effects.

> Its just to get someone to prescribe it in NZ

> Interested in what you have to share

>

> Kay

> __

[Guest guest]

I would check out LDN and calcium EAP for ALS. I knew someone with ALS who did very well with calcium EAP injections. (11 years) Eleven years of time can buy you alot in the way of medical knowledge. They are doing so much with stem cell . There is much hope. You can e-mail me if you wish and i will tell you how to get the info. Best, Kathy

Re: [low dose naltrexone] ALS/MND Does LDN help

Hi Kay,It helps some eg and Zana on Ozpals, but others find it doesn't seem to help. That said, nothing works for everyone and I suspect that at least some of those who didn't feel it was helping either a) didn't give it long enough (9 months minimum) or weren't getting it from a recommended chemist (see http://www.low dose naltrexone.org/comp_pharm.htm) so possibly it wasn't made up properly. Or they may have had candida or have even been misdiagnosed with motor neurone disease (ALS) when they really had Lyme disease, neither of which LDN can effectively work against.Side effects for some people are slight sleeplessness and/or vivid dreams and/or increased stiffness but these disappear in a few days or a week or so in most people for whom they even occur.Research on LDN is virtually non existent so if your doc wants that bad luck unfortunately. However, the anecdotal evidence is overwhelming.Bottom line - it can't hurt you and it may help! Try it for 9 months and see!kay wrote:> Hi There> I have Motor Neurone Disease for over a year.. Looking for > alternatives does LDN help. Would like to hear from those who take it > and what research has been done. What are the side effects.> Its just to get someone to prescribe it in NZ> Interested in what you have to share> > Kay> __