Hello Everyone

[Guest guest]

Wow, so many responses in such a little time with so much info. I

was not aware that there are Chiari Specialist, however I have

looked onto the Dr.'s list that is provided through here. The

closest ones to us is Dallas or Houston. The problem remains that

as of Friday my husband no longer has a job which means no

insurance. I am going to look into seeing what some organizations

can do to help us, and then I will be doing everything I can to help

my daughter as well as myself. I will say however that we both have

the top Nuerosurgeons here and around San . But I know that

it doesn't hurt to have a specialist look into it now. I do

appreciate all of the information and the help that everyone has

already given. Please any info will be helpful. Thank You to

everyone. This place is a godsend for me.

Lil

[Guest guest]

Hello! I joined this group to learn more about chiari because I

helped create a group for infant torticollis and I have been lead to

believe that chiari can be a cause of infant torticollis. I am hoping

to learn if this is true or if anyone has heard of such? Simply put,

torticollis means twisted neck and usually looks like someone's ear

is touching their shoulder with their chin pointing up in the

opposite direction.

Can chiari cause this kind of positioning and is chiari something

that occurs in infants, children or adults (or all three?)

Thank you so much for the help and education!

Pattie Everett

[Guest guest]

Tricia,

I wish I had some wonderful words of wisdom for you. It certainly seems as if life keeps handing you these "challenges" that you do not need on top of having to deal with RSD, etc.

I have suggested to some, and maybe it is an option for Mom.. is there anything that she can do as a home business? I trained for awhile to be a medical transcriptionist. You can do the courses online, fairly quickly, and the price was fairly reasonable as well. There are other things, but that seems to be one of the professions learned by almost anyone, regardless of education, etc. It's not a scam, as I would have figured that out (I think) When I had to stop the program due to the new career course I'm on, they refunded me quite a bit of what I had paid.. right away, too. There are so many different things... within a matter of months, a new career! I spoke to a number of my Drs, and they did not care where a cert was obtained, as long as the transcription was timely and accurate...

Hopefully, Mom is able to collect U/E benefits for a bit until she finds something, or is able to do something different.

Sometimes we just have to think outside the box.. finding employment at ANY age is difficult, so maybe something she could do at home might work.

As for the loss of your friend.. I can only hope that she sees the error of her ways. People can be so selfish and thoughless.. You have every right to grieve over a long term friendship lost.

Although we can never be that friend lost, we can be new friends found.. I hope you know that there are a lot of us here who will always be there to listen when you need it. You're lucky in that you can meet up with some of your "State mates" up there in MA on occasion. I know that has been of help to you..

Ok, enough of MY book!

Hugs,

Jo

[Guest guest]

Tricia,

I wish I had some wonderful words of wisdom for you. It certainly seems as if life keeps handing you these "challenges" that you do not need on top of having to deal with RSD, etc.

I have suggested to some, and maybe it is an option for Mom.. is there anything that she can do as a home business? I trained for awhile to be a medical transcriptionist. You can do the courses online, fairly quickly, and the price was fairly reasonable as well. There are other things, but that seems to be one of the professions learned by almost anyone, regardless of education, etc. It's not a scam, as I would have figured that out (I think) When I had to stop the program due to the new career course I'm on, they refunded me quite a bit of what I had paid.. right away, too. There are so many different things... within a matter of months, a new career! I spoke to a number of my Drs, and they did not care where a cert was obtained, as long as the transcription was timely and accurate...

Hopefully, Mom is able to collect U/E benefits for a bit until she finds something, or is able to do something different.

Sometimes we just have to think outside the box.. finding employment at ANY age is difficult, so maybe something she could do at home might work.

As for the loss of your friend.. I can only hope that she sees the error of her ways. People can be so selfish and thoughless.. You have every right to grieve over a long term friendship lost.

Although we can never be that friend lost, we can be new friends found.. I hope you know that there are a lot of us here who will always be there to listen when you need it. You're lucky in that you can meet up with some of your "State mates" up there in MA on occasion. I know that has been of help to you..

Ok, enough of MY book!

Hugs,

Jo

[Guest guest]

Tricia,

I wish I had some wonderful words of wisdom for you. It certainly seems as if life keeps handing you these "challenges" that you do not need on top of having to deal with RSD, etc.

I have suggested to some, and maybe it is an option for Mom.. is there anything that she can do as a home business? I trained for awhile to be a medical transcriptionist. You can do the courses online, fairly quickly, and the price was fairly reasonable as well. There are other things, but that seems to be one of the professions learned by almost anyone, regardless of education, etc. It's not a scam, as I would have figured that out (I think) When I had to stop the program due to the new career course I'm on, they refunded me quite a bit of what I had paid.. right away, too. There are so many different things... within a matter of months, a new career! I spoke to a number of my Drs, and they did not care where a cert was obtained, as long as the transcription was timely and accurate...

Hopefully, Mom is able to collect U/E benefits for a bit until she finds something, or is able to do something different.

Sometimes we just have to think outside the box.. finding employment at ANY age is difficult, so maybe something she could do at home might work.

As for the loss of your friend.. I can only hope that she sees the error of her ways. People can be so selfish and thoughless.. You have every right to grieve over a long term friendship lost.

Although we can never be that friend lost, we can be new friends found.. I hope you know that there are a lot of us here who will always be there to listen when you need it. You're lucky in that you can meet up with some of your "State mates" up there in MA on occasion. I know that has been of help to you..

Ok, enough of MY book!

Hugs,

Jo

[Guest guest]

Jo - Thank you for the suggestion and I will definitely pass it along to Mom. She's also been involved with this management company, that her former company hired to help the employees transition once they were let go. Through it she's been taking computer courses to get more familiar with various systems, as well as getting tips on how to construct and polish her resume, conduct herself during interviews, etc.......but she's open to all suggestions at this point and everything can be nothing but a help.

You're right in that having some contact with my state mates has been very helpful. Don't get out much, so it was wonderful to meet up with Ginny and Donna. And Barb, well it's almost worth having RSD because it led me to her friendship.....she helps keep me sane. Only hope I can return the support to others. Thanks so much for caring. Really means a lot to me Hugs, Triciajomal1@... wrote:

Tricia,

I wish I had some wonderful words of wisdom for you. It certainly seems as if life keeps handing you these "challenges" that you do not need on top of having to deal with RSD, etc.

I have suggested to some, and maybe it is an option for Mom.. is there anything that she can do as a home business? I trained for awhile to be a medical transcriptionist. You can do the courses online, fairly quickly, and the price was fairly reasonable as well. There are other things, but that seems to be one of the professions learned by almost anyone, regardless of education, etc. It's not a scam, as I would have figured that out (I think) When I had to stop the program due to the new career course I'm on, they refunded me quite a bit of what I had paid.. right away, too. There are so many different things... within a matter of months, a new career! I spoke to a number of my Drs, and they did not care where a cert was obtained, as long as the transcription was timely and accurate...

Hopefully, Mom is able to collect U/E benefits for a bit until she finds something, or is able to do something different.

Sometimes we just have to think outside the box.. finding employment at ANY age is difficult, so maybe something she could do at home might work.

As for the loss of your friend.. I can only hope that she sees the error of her ways. People can be so selfish and thoughless.. You have every right to grieve over a long term friendship lost.

Although we can never be that friend lost, we can be new friends found.. I hope you know that there are a lot of us here who will always be there to listen when you need it. You're lucky in that you can meet up with some of your "State mates" up there in MA on occasion. I know that has been of help to you..

Ok, enough of MY book!

Hugs,

Jo

[Guest guest]

Jo - Thank you for the suggestion and I will definitely pass it along to Mom. She's also been involved with this management company, that her former company hired to help the employees transition once they were let go. Through it she's been taking computer courses to get more familiar with various systems, as well as getting tips on how to construct and polish her resume, conduct herself during interviews, etc.......but she's open to all suggestions at this point and everything can be nothing but a help.

You're right in that having some contact with my state mates has been very helpful. Don't get out much, so it was wonderful to meet up with Ginny and Donna. And Barb, well it's almost worth having RSD because it led me to her friendship.....she helps keep me sane. Only hope I can return the support to others. Thanks so much for caring. Really means a lot to me Hugs, Triciajomal1@... wrote:

Tricia,

I wish I had some wonderful words of wisdom for you. It certainly seems as if life keeps handing you these "challenges" that you do not need on top of having to deal with RSD, etc.

I have suggested to some, and maybe it is an option for Mom.. is there anything that she can do as a home business? I trained for awhile to be a medical transcriptionist. You can do the courses online, fairly quickly, and the price was fairly reasonable as well. There are other things, but that seems to be one of the professions learned by almost anyone, regardless of education, etc. It's not a scam, as I would have figured that out (I think) When I had to stop the program due to the new career course I'm on, they refunded me quite a bit of what I had paid.. right away, too. There are so many different things... within a matter of months, a new career! I spoke to a number of my Drs, and they did not care where a cert was obtained, as long as the transcription was timely and accurate...

Hopefully, Mom is able to collect U/E benefits for a bit until she finds something, or is able to do something different.

Sometimes we just have to think outside the box.. finding employment at ANY age is difficult, so maybe something she could do at home might work.

As for the loss of your friend.. I can only hope that she sees the error of her ways. People can be so selfish and thoughless.. You have every right to grieve over a long term friendship lost.

Although we can never be that friend lost, we can be new friends found.. I hope you know that there are a lot of us here who will always be there to listen when you need it. You're lucky in that you can meet up with some of your "State mates" up there in MA on occasion. I know that has been of help to you..

Ok, enough of MY book!

Hugs,

Jo

[Guest guest]

Jo - Thank you for the suggestion and I will definitely pass it along to Mom. She's also been involved with this management company, that her former company hired to help the employees transition once they were let go. Through it she's been taking computer courses to get more familiar with various systems, as well as getting tips on how to construct and polish her resume, conduct herself during interviews, etc.......but she's open to all suggestions at this point and everything can be nothing but a help.

You're right in that having some contact with my state mates has been very helpful. Don't get out much, so it was wonderful to meet up with Ginny and Donna. And Barb, well it's almost worth having RSD because it led me to her friendship.....she helps keep me sane. Only hope I can return the support to others. Thanks so much for caring. Really means a lot to me Hugs, Triciajomal1@... wrote:

Tricia,

I wish I had some wonderful words of wisdom for you. It certainly seems as if life keeps handing you these "challenges" that you do not need on top of having to deal with RSD, etc.

I have suggested to some, and maybe it is an option for Mom.. is there anything that she can do as a home business? I trained for awhile to be a medical transcriptionist. You can do the courses online, fairly quickly, and the price was fairly reasonable as well. There are other things, but that seems to be one of the professions learned by almost anyone, regardless of education, etc. It's not a scam, as I would have figured that out (I think) When I had to stop the program due to the new career course I'm on, they refunded me quite a bit of what I had paid.. right away, too. There are so many different things... within a matter of months, a new career! I spoke to a number of my Drs, and they did not care where a cert was obtained, as long as the transcription was timely and accurate...

Hopefully, Mom is able to collect U/E benefits for a bit until she finds something, or is able to do something different.

Sometimes we just have to think outside the box.. finding employment at ANY age is difficult, so maybe something she could do at home might work.

As for the loss of your friend.. I can only hope that she sees the error of her ways. People can be so selfish and thoughless.. You have every right to grieve over a long term friendship lost.

Although we can never be that friend lost, we can be new friends found.. I hope you know that there are a lot of us here who will always be there to listen when you need it. You're lucky in that you can meet up with some of your "State mates" up there in MA on occasion. I know that has been of help to you..

Ok, enough of MY book!

Hugs,

Jo

[Guest guest]

Oh, Tricia, you talk so darn pretty about me. As my dad used to say, you're a keeper. BarbaraTricia Skiba wrote:

Jo - Thank you for the suggestion and I will definitely pass it along to Mom. She's also been involved with this management company, that her former company hired to help the employees transition once they were let go. Through it she's been taking computer courses to get more familiar with various systems, as well as getting tips on how to construct and polish her resume, conduct herself during interviews, etc.......but she's open to all suggestions at this point and everything can be nothing but a help.

You're right in that having some contact with my state mates has been very helpful. Don't get out much, so it was wonderful to meet up with Ginny and Donna. And Barb, well it's almost worth having RSD because it led me to her friendship.....she helps keep me sane. Only hope I can return the support to others. Thanks so much for caring. Really means a lot to me Hugs, Triciajomal1@... wrote:

Tricia,

I wish I had some wonderful words of wisdom for you. It certainly seems as if life keeps handing you these "challenges" that you do not need on top of having to deal with RSD, etc.

I have suggested to some, and maybe it is an option for Mom.. is there anything that she can do as a home business? I trained for awhile to be a medical transcriptionist. You can do the courses online, fairly quickly, and the price was fairly reasonable as well. There are other things, but that seems to be one of the professions learned by almost anyone, regardless of education, etc. It's not a scam, as I would have figured that out (I think) When I had to stop the program due to the new career course I'm on, they refunded me quite a bit of what I had paid.. right away, too. There are so many different things... within a matter of months, a new career! I spoke to a number of my Drs, and they did not care where a cert was obtained, as long as the transcription was timely and accurate...

Hopefully, Mom is able to collect U/E benefits for a bit until she finds something, or is able to do something different.

Sometimes we just have to think outside the box.. finding employment at ANY age is difficult, so maybe something she could do at home might work.

As for the loss of your friend.. I can only hope that she sees the error of her ways. People can be so selfish and thoughless.. You have every right to grieve over a long term friendship lost.

Although we can never be that friend lost, we can be new friends found.. I hope you know that there are a lot of us here who will always be there to listen when you need it. You're lucky in that you can meet up with some of your "State mates" up there in MA on occasion. I know that has been of help to you..

Ok, enough of MY book!

Hugs,

Jo

[Guest guest]

Oh, Tricia, you talk so darn pretty about me. As my dad used to say, you're a keeper. BarbaraTricia Skiba wrote:

Jo - Thank you for the suggestion and I will definitely pass it along to Mom. She's also been involved with this management company, that her former company hired to help the employees transition once they were let go. Through it she's been taking computer courses to get more familiar with various systems, as well as getting tips on how to construct and polish her resume, conduct herself during interviews, etc.......but she's open to all suggestions at this point and everything can be nothing but a help.

You're right in that having some contact with my state mates has been very helpful. Don't get out much, so it was wonderful to meet up with Ginny and Donna. And Barb, well it's almost worth having RSD because it led me to her friendship.....she helps keep me sane. Only hope I can return the support to others. Thanks so much for caring. Really means a lot to me Hugs, Triciajomal1@... wrote:

Tricia,

I wish I had some wonderful words of wisdom for you. It certainly seems as if life keeps handing you these "challenges" that you do not need on top of having to deal with RSD, etc.

I have suggested to some, and maybe it is an option for Mom.. is there anything that she can do as a home business? I trained for awhile to be a medical transcriptionist. You can do the courses online, fairly quickly, and the price was fairly reasonable as well. There are other things, but that seems to be one of the professions learned by almost anyone, regardless of education, etc. It's not a scam, as I would have figured that out (I think) When I had to stop the program due to the new career course I'm on, they refunded me quite a bit of what I had paid.. right away, too. There are so many different things... within a matter of months, a new career! I spoke to a number of my Drs, and they did not care where a cert was obtained, as long as the transcription was timely and accurate...

Hopefully, Mom is able to collect U/E benefits for a bit until she finds something, or is able to do something different.

Sometimes we just have to think outside the box.. finding employment at ANY age is difficult, so maybe something she could do at home might work.

As for the loss of your friend.. I can only hope that she sees the error of her ways. People can be so selfish and thoughless.. You have every right to grieve over a long term friendship lost.

Although we can never be that friend lost, we can be new friends found.. I hope you know that there are a lot of us here who will always be there to listen when you need it. You're lucky in that you can meet up with some of your "State mates" up there in MA on occasion. I know that has been of help to you..

Ok, enough of MY book!

Hugs,

Jo

[Guest guest]

Barb - Know that it was meant as a gentle nudge and with the best of intentions, and not as a pressure. And occassionally this hermit needs it, just to remind her to peak out of that protective shell every once in a while......glad ya think I'm a keeper; feel the same about you. Hugs, TriciaBARBARA TORREY wrote:

Tricia -

I for one have never felt angered, worried, or offended by anything you've ever written or by your decision not to respond. While I realize that you feel at times that you have nothing more to add, I've often noticed that you frame things well. I always look forward to your posts. You're an incredibly kind and supportive woman who has been given gifted with both sensitivity to others and insight. Your ability to articulately express yourself is enhanced by those traits. Sometimes you go at things from a different (and helpful !) angle and sometimes you say things that, although they be similar to what has been written, clarify a thought or idea.

I know that life has not been particularly easy for you and have felt honored by your willingness to share with me your life on the other side of the computer monitor. My encouraging you to post more often was not meant to pressure. Rather, I did so out of a hope that others would be able to receive a bit of what you've given to me. You're quite valuable! I also hoped that you might, in turn, also receive the support that you deserve and, like all of us, sometimes need. Love - Barbara

__________________________________________________

[Guest guest]

Barb - Know that it was meant as a gentle nudge and with the best of intentions, and not as a pressure. And occassionally this hermit needs it, just to remind her to peak out of that protective shell every once in a while......glad ya think I'm a keeper; feel the same about you. Hugs, TriciaBARBARA TORREY wrote:

Tricia -

I for one have never felt angered, worried, or offended by anything you've ever written or by your decision not to respond. While I realize that you feel at times that you have nothing more to add, I've often noticed that you frame things well. I always look forward to your posts. You're an incredibly kind and supportive woman who has been given gifted with both sensitivity to others and insight. Your ability to articulately express yourself is enhanced by those traits. Sometimes you go at things from a different (and helpful !) angle and sometimes you say things that, although they be similar to what has been written, clarify a thought or idea.

I know that life has not been particularly easy for you and have felt honored by your willingness to share with me your life on the other side of the computer monitor. My encouraging you to post more often was not meant to pressure. Rather, I did so out of a hope that others would be able to receive a bit of what you've given to me. You're quite valuable! I also hoped that you might, in turn, also receive the support that you deserve and, like all of us, sometimes need. Love - Barbara

__________________________________________________

[Guest guest]

Barb - Know that it was meant as a gentle nudge and with the best of intentions, and not as a pressure. And occassionally this hermit needs it, just to remind her to peak out of that protective shell every once in a while......glad ya think I'm a keeper; feel the same about you. Hugs, TriciaBARBARA TORREY wrote:

Tricia -

I for one have never felt angered, worried, or offended by anything you've ever written or by your decision not to respond. While I realize that you feel at times that you have nothing more to add, I've often noticed that you frame things well. I always look forward to your posts. You're an incredibly kind and supportive woman who has been given gifted with both sensitivity to others and insight. Your ability to articulately express yourself is enhanced by those traits. Sometimes you go at things from a different (and helpful !) angle and sometimes you say things that, although they be similar to what has been written, clarify a thought or idea.

I know that life has not been particularly easy for you and have felt honored by your willingness to share with me your life on the other side of the computer monitor. My encouraging you to post more often was not meant to pressure. Rather, I did so out of a hope that others would be able to receive a bit of what you've given to me. You're quite valuable! I also hoped that you might, in turn, also receive the support that you deserve and, like all of us, sometimes need. Love - Barbara

__________________________________________________

[Guest guest]

> Tricia

My heart goes out to you and all that you are facing in your life

right now. There are probably not alot of of words of comfort that I

can offer that you havent heard hundreds of times before but please

know that you are in my thoughts and I truly hope that things start

to look up and that your parents are able to come to a solution that

will help to save your home. Having this disease is hard enough but

having the very foundation ripped out from underneath you can only

tear that shred of sanity left....please take some time Tricia to do

the very best for yourself. Find a way to treat yourself to something

special, even if its hot cocoa and a good book for an afternoon. You

need to recharge yourself Tricia or you are going to completely fall

into that hole that many of us love to crawl into.

Email me if you want to talk Tricia, Im always bound to be around

Hugs

Donna

[Guest guest]

> Tricia

My heart goes out to you and all that you are facing in your life

right now. There are probably not alot of of words of comfort that I

can offer that you havent heard hundreds of times before but please

know that you are in my thoughts and I truly hope that things start

to look up and that your parents are able to come to a solution that

will help to save your home. Having this disease is hard enough but

having the very foundation ripped out from underneath you can only

tear that shred of sanity left....please take some time Tricia to do

the very best for yourself. Find a way to treat yourself to something

special, even if its hot cocoa and a good book for an afternoon. You

need to recharge yourself Tricia or you are going to completely fall

into that hole that many of us love to crawl into.

Email me if you want to talk Tricia, Im always bound to be around

Hugs

Donna

[Guest guest]

> Tricia

My heart goes out to you and all that you are facing in your life

right now. There are probably not alot of of words of comfort that I

can offer that you havent heard hundreds of times before but please

know that you are in my thoughts and I truly hope that things start

to look up and that your parents are able to come to a solution that

will help to save your home. Having this disease is hard enough but

having the very foundation ripped out from underneath you can only

tear that shred of sanity left....please take some time Tricia to do

the very best for yourself. Find a way to treat yourself to something

special, even if its hot cocoa and a good book for an afternoon. You

need to recharge yourself Tricia or you are going to completely fall

into that hole that many of us love to crawl into.

Email me if you want to talk Tricia, Im always bound to be around

Hugs

Donna

[Guest guest]

Donna - It helps to know that there are good people out there like you, who genuinely care. Appreciate all the kindness that you have shown to me since stumbling upon one another through this group. I'm sorry that your family is having a hard time learning that the comfort you can find in the patches does not equate to recovery. Whenever you do find a treatment that helps some with the pain, it's always difficult to explain to those around you that while the mask may have changed, the face underneath is still the same (so to speak.) You'll have to forgive the metaphors.....I've been up all night and I think I'm getting a little loopy

I have been trying to steal a little time away for myself here and there, just to escape reality for a bit and concentrate on other things. Just have to keep reminding myself to look at only the day in front of me and not try to tackle the future just yet. Hopefully in the end we will find a way to stop the ground from shaking under us. Take care.....and enjoy the heat wave we're supposed to be in for today Hugs, TriciaDonna wrote:

> TriciaMy heart goes out to you and all that you are facing in your life right now. There are probably not alot of of words of comfort that I can offer that you havent heard hundreds of times before but please know that you are in my thoughts and I truly hope that things start to look up and that your parents are able to come to a solution that will help to save your home. Having this disease is hard enough but having the very foundation ripped out from underneath you can only tear that shred of sanity left....please take some time Tricia to do the very best for yourself. Find a way to treat yourself to something special, even if its hot cocoa and a good book for an afternoon. You need to recharge yourself Tricia or you are going to

completely fall into that hole that many of us love to crawl into.Email me if you want to talk Tricia, Im always bound to be around :)HugsDonna

[Guest guest]

Donna - It helps to know that there are good people out there like you, who genuinely care. Appreciate all the kindness that you have shown to me since stumbling upon one another through this group. I'm sorry that your family is having a hard time learning that the comfort you can find in the patches does not equate to recovery. Whenever you do find a treatment that helps some with the pain, it's always difficult to explain to those around you that while the mask may have changed, the face underneath is still the same (so to speak.) You'll have to forgive the metaphors.....I've been up all night and I think I'm getting a little loopy

I have been trying to steal a little time away for myself here and there, just to escape reality for a bit and concentrate on other things. Just have to keep reminding myself to look at only the day in front of me and not try to tackle the future just yet. Hopefully in the end we will find a way to stop the ground from shaking under us. Take care.....and enjoy the heat wave we're supposed to be in for today Hugs, TriciaDonna wrote:

> TriciaMy heart goes out to you and all that you are facing in your life right now. There are probably not alot of of words of comfort that I can offer that you havent heard hundreds of times before but please know that you are in my thoughts and I truly hope that things start to look up and that your parents are able to come to a solution that will help to save your home. Having this disease is hard enough but having the very foundation ripped out from underneath you can only tear that shred of sanity left....please take some time Tricia to do the very best for yourself. Find a way to treat yourself to something special, even if its hot cocoa and a good book for an afternoon. You need to recharge yourself Tricia or you are going to

completely fall into that hole that many of us love to crawl into.Email me if you want to talk Tricia, Im always bound to be around :)HugsDonna

[Guest guest]

Donna - It helps to know that there are good people out there like you, who genuinely care. Appreciate all the kindness that you have shown to me since stumbling upon one another through this group. I'm sorry that your family is having a hard time learning that the comfort you can find in the patches does not equate to recovery. Whenever you do find a treatment that helps some with the pain, it's always difficult to explain to those around you that while the mask may have changed, the face underneath is still the same (so to speak.) You'll have to forgive the metaphors.....I've been up all night and I think I'm getting a little loopy

I have been trying to steal a little time away for myself here and there, just to escape reality for a bit and concentrate on other things. Just have to keep reminding myself to look at only the day in front of me and not try to tackle the future just yet. Hopefully in the end we will find a way to stop the ground from shaking under us. Take care.....and enjoy the heat wave we're supposed to be in for today Hugs, TriciaDonna wrote:

> TriciaMy heart goes out to you and all that you are facing in your life right now. There are probably not alot of of words of comfort that I can offer that you havent heard hundreds of times before but please know that you are in my thoughts and I truly hope that things start to look up and that your parents are able to come to a solution that will help to save your home. Having this disease is hard enough but having the very foundation ripped out from underneath you can only tear that shred of sanity left....please take some time Tricia to do the very best for yourself. Find a way to treat yourself to something special, even if its hot cocoa and a good book for an afternoon. You need to recharge yourself Tricia or you are going to

completely fall into that hole that many of us love to crawl into.Email me if you want to talk Tricia, Im always bound to be around :)HugsDonna

[Guest guest]

Tricia,

I know what you mean by withdrawing. I tend to do that myself. I just don't have the extra energy to keep up sometimes. And when I read posts from others I feel for their pain but can't seem to be able to communicate or put in words the support I want to give or the understanding of the situation. Some of the guys here and you say a lot of what I want to express. You are so wise. I hope that you know that I'm here and understand and have empathy for what goes on in our lives.

Your words are never hurtful unless it's appropriate. witch is very rarely done. This place is just a wonderful place to land and feel secure in our thoughts.

Luv Laurie

[Guest guest]

Welcome back Pam

well hello everyone i have been gone for a while. Just wanted to catch up with every one.. well i had to delete about 1,500 e-mails so if i missed some one i'm sorry.. congrats Jo you must be so happy. barbara glad to hear that the ketamine is working for you. ginny i will say a prayer for your family and i'm so sorry ...to all the new people welcome .. hello Joanne, Debbie , and every one..well i went to a pain management clinic before i left for florida and he said there isnt much he can do because i've had rsd for ten years.. he was talking about a block but he didnt seem to think it would work so why put my self threw it.. but he upped my neurontin to 3,200 a day and then put me on a clondine patch it seems to help...He also put me on 3,600 of skelaxin , kept my effexor at 150 a day and also put me on flexiril 3x a day... but i ran out of meds in florida and my pain went thru thr roof so had to leave early...finally got meds last evening and by that time i could not walk or move my right arm...it really scard me ...thankfully the er doc gave me a shot and it helped.. my meds are working today some what.. well my vacation was wonderful i loved the jacuzzi we had it helped me so much...i almost felt normal in the water..haha....sorry for the book but i'm glad to be home my kittys missed me and i missed them soft hugs to all love , pam

[Guest guest]

well my vacation was wonderful i loved the jacuzzi we had it helped me so much...i almost felt normal in the water..haha....sorry for the book but i'm glad to be home my kittys missed me

Pam,

Welcome home! Glad you enjoyed yourself even if you had to come home early. I'm looking forward to the jacuzzi also! I know I'll miss my cats too, but sure looking forward to the warm weather!

Love,

N.__________________________________________________

[Guest guest]

, just becareful you dont fall like I did..we went out to eat breakstfast and i went to get up and my left leg gave out well I went crashing to the floor. right on my right arm on a cement floor and I hit my head ...but I always hit my head it seems.. but my right arm i now have a hair line fracture in it ...well when I looked up the whole place of people were standing over me i was so embarrased. then when i got up they said i ate too many pancakes ...well that just made my day.... I hope you have fun.... soft hugs Pam Nation wrote:

well my vacation was wonderful i loved the jacuzzi we had it helped me so much...i almost felt normal in the water..haha....sorry for the book but i'm glad to be home my kittys missed me

Pam,

Welcome home! Glad you enjoyed yourself even if you had to come home early. I'm looking forward to the jacuzzi also! I know I'll miss my cats too, but sure looking forward to the warm weather!

Love,

N.

__________________________________________________

[Guest guest]

, just becareful you dont fall like I did..we went out to eat breakstfast and i went to get up and my left leg gave out well I went crashing to the floor. right on my right arm on a cement floor and I hit my head ...but I always hit my head it seems.. but my right arm i now have a hair line fracture in it ...well when I looked up the whole place of people were standing over me i was so embarrased. then when i got up they said i ate too many pancakes ...well that just made my day.... I hope you have fun.... soft hugs Pam Nation wrote:

well my vacation was wonderful i loved the jacuzzi we had it helped me so much...i almost felt normal in the water..haha....sorry for the book but i'm glad to be home my kittys missed me

Pam,

Welcome home! Glad you enjoyed yourself even if you had to come home early. I'm looking forward to the jacuzzi also! I know I'll miss my cats too, but sure looking forward to the warm weather!

Love,

N.

__________________________________________________