Re: coughing

[Guest guest]

Hi Jerry, My husband Leo has had a peg for about 3 years. It was necessary

because the swallow test showed no movment in the esophagus, anything in his

tummy got there by gravity. Plus he lost 40 lbs. sitting . So, he was

dehydrated and malnourished because he could not swallow enough. He still

chokes some on saliva that he doesn't swallow but it doesn't present a

problem. The only time he aspirated was when he threw up in the bed (on his

back) but he had had a pneumonia shot and with breathing treatments it

cleared up.

I hope I haven't told you a whole lot more than you wanted to know.

Ginger

coughing

> Greetings,

>

> I've learned about the neuro's comments regarding coughing at my brother's

> last visit. Apparently she was explaining symptoms that may be associated

> with increasing difficulties with swallowing as a precursor to discussing

> with him the eventual need for a PEG.

>

> Just wondering how many on the list have PEGs and at what point are the

> usually necessary? Also, I assume - from what understand of the PEG - that

> it doesn't really help with swallowing difficulties that might result in

> choking or strangling?

>

> Are there exercises that he might be doing now to prolong his swallowing

> mechanism?

>

> Thanks for any information or replies,

>

> Jerry Cash

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

Yes, thank you. I just had an email from my brother and

he describes his attitude to toward the PEG as " it sounds

like it's no big deal " . I hope that turns out to be

the case when he does need it.

Thanks again, Jerry

Re: coughing

Hi Jerry, My husband Leo has had a peg for about 3 years. It was necessary

because the swallow test showed no movment in the esophagus, anything in his

tummy got there by gravity. Plus he lost 40 lbs. sitting . So, he was

dehydrated and malnourished because he could not swallow enough. He still

chokes some on saliva that he doesn't swallow but it doesn't present a

problem. The only time he aspirated was when he threw up in the bed (on his

back) but he had had a pneumonia shot and with breathing treatments it

cleared up.

I hope I haven't told you a whole lot more than you wanted to know.

Ginger

coughing

> Greetings,

>

> I've learned about the neuro's comments regarding coughing at my brother's

> last visit. Apparently she was explaining symptoms that may be associated

> with increasing difficulties with swallowing as a precursor to discussing

> with him the eventual need for a PEG.

>

> Just wondering how many on the list have PEGs and at what point are the

> usually necessary? Also, I assume - from what understand of the PEG - that

> it doesn't really help with swallowing difficulties that might result in

> choking or strangling?

>

> Are there exercises that he might be doing now to prolong his swallowing

> mechanism?

>

> Thanks for any information or replies,

>

> Jerry Cash

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

Jerry,

This is not what you asked but it has to do with swallowing problems. A

respiratory doctor answered my question on what are some of the beginning

signs of swallowing problems. He said that my nose would begin to run while

eating. Apparently, nose running while eating is one of the earliest signs

of problems.

later and hugs,

cindy

coughing

> Greetings,

>

> I've learned about the neuro's comments regarding coughing at my brother's

> last visit. Apparently she was explaining symptoms that may be associated

> with increasing difficulties with swallowing as a precursor to discussing

> with him the eventual need for a PEG.

>

> Just wondering how many on the list have PEGs and at what point are the

> usually necessary? Also, I assume - from what understand of the PEG - that

> it doesn't really help with swallowing difficulties that might result in

> choking or strangling?

>

> Are there exercises that he might be doing now to prolong his swallowing

> mechanism?

>

> Thanks for any information or replies,

>

> Jerry Cash

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

Cindy:

Your response about one's nose running while eating was interesting.

Ken's nose ran when he ate for the last couple of years of hi life. He did

have aspiration pneumonia once about a year before his death, but an

extensive swallowing test showed no problem, and he continued to eat well

until he died. In fact, four days before he died, he asked for and ate a huge

bean burrito in its entirety.

I was grateful that he was never told he needed a PEG tube because he would

have refused it, and I would have had to honor his decision.

Barbara

[Guest guest]

Greetings Cindy!

I read with interest:

> Apparently, nose running while eating is one of the

> earliest signs of [swallowing] problems.

And here I was thinking how interesting as I reach for a tissue as I munch

on my morning breakfast. It amazes me how often I have the symptom, then

have the problem explained. Will have to keep an eye on this.

Regards,

=jbf=

B. Fisher

[Guest guest]

Hi everyone: Bob has swallowing problems, but not a runny nose. Go

figure! I guess everyone gets a different set of symptoms with this

disease. Regards, jerrie

[Guest guest]

You need to watch it . He did say it was one of the earliest signs.

later and hugs,

cindy

RE: coughing

> Greetings Cindy!

>

> I read with interest:

>

> > Apparently, nose running while eating is one of the

> > earliest signs of [swallowing] problems.

>

> And here I was thinking how interesting as I reach for a tissue as I munch

> on my morning breakfast. It amazes me how often I have the symptom, then

> have the problem explained. Will have to keep an eye on this.

>

>

> Regards,

> =jbf=

>

> B. Fisher

>

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

Kind of fits what the doctor told me.

later and hugs,

cindy

Re: coughing

> Cindy:

> Your response about one's nose running while eating was

interesting.

> Ken's nose ran when he ate for the last couple of years of hi life. He did

> have aspiration pneumonia once about a year before his death, but an

> extensive swallowing test showed no problem, and he continued to eat well

> until he died. In fact, four days before he died, he asked for and ate a

huge

> bean burrito in its entirety.

> I was grateful that he was never told he needed a PEG tube because he

would

> have refused it, and I would have had to honor his decision.

> Barbara

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

Is there any relationship between the problems that people with MSA have with

coughing/difficulty swallowing and hiatal hernias? Have any of you with MSA

also been diagnosed with hiatal hernias? I'm asking because I always thought

(in the pre-MSA days) that my dad's problems with swallowing were caused by

his hernia. Also, do the running nose and coughing correspond as symptoms of

hiatal hernia?

Thanks,

Cindy V.

[Guest guest]

Cindy and ,

I am confused about this running nose issue. Are you saying that a runny

nose while eating is an early indicator of MSA? My nose runs when I eat and

I usually have to cough after eating, but I don't have MSA - my dad does.

Should this symptom only be viewed in the context of other symptoms of MSA?

Thanks,

The other Cindy

[Guest guest]

Greetings " The other Cindy " !

Sorry I did not respond earlier. You wondered:

> I am confused about this running nose issue. Are you

> saying that a runny nose while eating is an early

> indicator of MSA?

Nope. Just an indication that you produce a lot of thin mucous to help with

swallowing an digestion. However, it can also be an indication that your

normal reflexes are not working correctly. That is, it may indicate you are

not swallowing correctly.

> My nose runs when I eat and I usually have to cough

> after eating, but I don't have MSA - my dad does.

> Should this symptom only be viewed in the context of

> other symptoms of MSA?

Yes. Doctors refer to this as the constellation of symptoms. If you have

no other symptoms, then in and of itself, this symptom is meaningless.

However, if you have other MSA type symptoms, then problems with swallowing

is typical. Thus doctors and physical therapists will use this type of

symptom to gauge if it is necessary to run diagnostic tests for swallowing.

Hope that explains it - at least as best as I understand the process.

Regards,

=jbf=

B. Fisher

[Guest guest]

Greetings " The other Cindy " !

Sorry I did not respond earlier. You wondered:

> I am confused about this running nose issue. Are you

> saying that a runny nose while eating is an early

> indicator of MSA?

Nope. Just an indication that you produce a lot of thin mucous to help with

swallowing an digestion. However, it can also be an indication that your

normal reflexes are not working correctly. That is, it may indicate you are

not swallowing correctly.

> My nose runs when I eat and I usually have to cough

> after eating, but I don't have MSA - my dad does.

> Should this symptom only be viewed in the context of

> other symptoms of MSA?

Yes. Doctors refer to this as the constellation of symptoms. If you have

no other symptoms, then in and of itself, this symptom is meaningless.

However, if you have other MSA type symptoms, then problems with swallowing

is typical. Thus doctors and physical therapists will use this type of

symptom to gauge if it is necessary to run diagnostic tests for swallowing.

Hope that explains it - at least as best as I understand the process.

Regards,

=jbf=

B. Fisher

[Guest guest]

Greetings " The other Cindy " !

Sorry I did not respond earlier. You wondered:

> I am confused about this running nose issue. Are you

> saying that a runny nose while eating is an early

> indicator of MSA?

Nope. Just an indication that you produce a lot of thin mucous to help with

swallowing an digestion. However, it can also be an indication that your

normal reflexes are not working correctly. That is, it may indicate you are

not swallowing correctly.

> My nose runs when I eat and I usually have to cough

> after eating, but I don't have MSA - my dad does.

> Should this symptom only be viewed in the context of

> other symptoms of MSA?

Yes. Doctors refer to this as the constellation of symptoms. If you have

no other symptoms, then in and of itself, this symptom is meaningless.

However, if you have other MSA type symptoms, then problems with swallowing

is typical. Thus doctors and physical therapists will use this type of

symptom to gauge if it is necessary to run diagnostic tests for swallowing.

Hope that explains it - at least as best as I understand the process.

Regards,

=jbf=

B. Fisher