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ander in Oregon

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is back at Doernbecher and they have decided to do his heart

surgery It will be done tomorrow!! He has Tetralogy of Fallot.

It is exciting and scary at the same time.

Liz

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Guest guest

Good luck. had TOF and pulmonary atresia. She was a new kid after that

repair!!!

Prayers to you from the Myers house!

Lori Myers

Spouse - Trent, Children - (9), (6, CHARGE Syndrome, Congenital

Heart Defects/TOF Pulmonary Atresia/repaired, ECMO 12 days, Bi-lateral Choanal

Atresia, Decanullated Trach, G-button, partial hearing loss, walking as of

12/22/04!, and Emma (4 on the 24!)

Dallas, Texas

in Oregon

is back at Doernbecher and they have decided to do his heart

surgery It will be done tomorrow!! He has Tetralogy of Fallot.

It is exciting and scary at the same time.

Liz

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Liz,

Keep us posted! Will be thinking of him tomorrow.

>

> is back at Doernbecher and they have decided to do his heart

> surgery It will be done tomorrow!! He has Tetralogy of Fallot.

> It is exciting and scary at the same time.

>

> Liz

>

>

>

--

" It is far better to grasp the universe as it really is than to persist in

delusion, however satisfying and reassuring. " --Carl Sagan

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Guest guest

praying here is Boston.

xo

pam

in Oregon

is back at Doernbecher and they have decided to do his heart

surgery It will be done tomorrow!! He has Tetralogy of Fallot.

It is exciting and scary at the same time.

Liz

CHARGE SYNDROME LISTSERV PHOTO PAGE:

http://www.imagestation.com/album/?id=2117043995

Membership of this email support group does not constitute membership in the

CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

Foundation or to become a member (and get the newsletter),

please contact marion@... or visit

the web site at http://www.chargesyndrome.org

8th International

CHARGE Syndrome Conference, July, 2007. Information will be available at

www.chargesyndrome.org or by calling 1-.

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Liz, prayers and positive thoughts for healing coming your way. Please keep us

posted as to when the surgery is done and how he is doing. Be sure to give his

family our very best!

in Oregon

is back at Doernbecher and they have decided to do his heart

surgery It will be done tomorrow!! He has Tetralogy of Fallot.

It is exciting and scary at the same time.

Liz

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Guest guest

Liz, will be in our prayers. Good luck!

, mom of Ben(5) and (2, CHARGER)

>

> is back at Doernbecher and they have decided to do his heart

> surgery It will be done tomorrow!! He has Tetralogy of Fallot.

> It is exciting and scary at the same time.

>

> Liz

>

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Liz,

It is amazing what kids can do once their heart is

healthy. We saw such a dramatic change in Vinny once

his heart was repaired.

Here is a piece of unsolicited advice, and I certainly

don't mean to scare you, but PLEASE make sure EVERYONE

washes their hands and that all staff wear gloves

anytime they are around . Make sure his incision

is covered at all times. We didn't know enough to do

this and the top of Vinny's incision was uncovered.

We think that some saline from his nose found its way

to his incision and he developed a life threatening

infection. He survived, but I don't want to have

to experience something that seems to be so easily

prevented.

Our prayers are with you and your family!!!

Love,

ina, mom to Luca (3) & Vinny (16 months w/ cHARgE)

--- liz_dolz wrote:

> is back at Doernbecher and they have decided to

> do his heart

> surgery It will be done tomorrow!! He has Tetralogy

> of Fallot.

> It is exciting and scary at the same time.

>

> Liz

>

>

>

__________________________________________________

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Guest guest

paulina i agree with you bout the hands and stuff ive had drs whove come to

me with out doing their hands when ive had a line mum will go pls wash ur

hands and reluctantly they will love u all

>

> Liz,

>

> It is amazing what kids can do once their heart is

> healthy. We saw such a dramatic change in Vinny once

> his heart was repaired.

>

> Here is a piece of unsolicited advice, and I certainly

> don't mean to scare you, but PLEASE make sure EVERYONE

> washes their hands and that all staff wear gloves

> anytime they are around . Make sure his incision

> is covered at all times. We didn't know enough to do

> this and the top of Vinny's incision was uncovered.

> We think that some saline from his nose found its way

> to his incision and he developed a life threatening

> infection. He survived, but I don't want to have

> to experience something that seems to be so easily

> prevented.

>

> Our prayers are with you and your family!!!

>

> Love,

> ina, mom to Luca (3) & Vinny (16 months w/ cHARgE)

>

> --- liz_dolz <liz_dolz@... <liz_dolz%40yahoo.com>> wrote:

>

> > is back at Doernbecher and they have decided to

> > do his heart

> > surgery It will be done tomorrow!! He has Tetralogy

> > of Fallot.

> > It is exciting and scary at the same time.

> >

> > Liz

> >

> >

> >

>

> __________________________________________________

>

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Guest guest

Many, many prayers from Phoenix!

, mommy to Meagan (CHaRgE) and 2 year old twins, and big brother

4 years, married to the best daddy in the world for 9 years!

-- in Oregon

is back at Doernbecher and they have decided to do his heart

surgery It will be done tomorrow!! He has Tetralogy of Fallot.

It is exciting and scary at the same time.

Liz

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