Re: My daughter - I need help!!!

[Guest guest]

In short, yes: it *can* be that bad. Some of us are lucky,

however, and can function with special attention to diet, exercise,

and sleep. Proper management is paramount, as is emotional support

from loved ones. You are in a unique position to help your daughter,

and you've gotten a good start on the most important aspect of being

able to really help her: educating yourself about FMS, its symptoms,

and coping strategies for FMS sufferers and their loved ones.

Let me assure you: your daughter is *not* making this up - and she

has every right to feel depressed. FMS is debilitating, as any

chronic pain condition. Why? Because not only is it ever-present, as

we know it, there is no cure. So, we're left with trying to find a

way to manage a dizzying array of symptoms for a condition that is

not only hard to define, but hard to 'prove' for insurance or

disability benefits coverage. Employment is possible for those whose

symptoms are fairly mild (like me), but even the " lucky ones " have

bad days where all they can do is wish they felt better.

So, by all means: read widely, ask lots of questions, and try to

support your daughter with your love and acceptance. Let her know

she's not a bad person, that she doesn't " deserve " this stuff: it

just happened. And that she can manage it & have good days, too.

Cheers,

D.

>

> Hello everyone,

>

> I have a 21 year old daughter who was diagnosed with Fibromyalgia

> about three weeks ago. She is always hurting, and is also

depressed.

> Her friends think everything is in her head, and she is making this

> all up, the aches the pains and the headaches so bad she cannot

> sleep at nite, therefore she can't get up early or anything because

> lack of a good nite sleep. She has no insurance and is currently

> not working, but has looked for jobs, but no takers as yet.

>

> But she seriously thinks she cannot work full time she says because

> of how bad she feels on a regular basis. The rheumatoligist

> prescribed flexorall and myobic for her, but she says it doesn't

> work. I cannot afford to pay for the Rheumatolgist she is supposed

> to see on a monthly basis. We are in financial straits ourselves.

>

> She was turned down before for medical assistance until she could

> find a job, but was turned down awhile back.

>

> Does anyone have any resources for her??? And if you do have

> Fibromyalgia, is it that bad that you cannot work funcionally well

> on jobs???

>

>

> I would appreciate any help you can give me.

>

> Thank you, Jean

>

[Guest guest]

Fibromyalgia is about the tendons, ligaments and muscles. When those hurt or are

spasming it's difficult to do anything. Some describe it as feeling like a flu

ache while others describe it as a stabbing pain in the legs and hips area and

back. This pain of course is one that can't be seen by people only felt by the

ones experiencing it. It's very real, can be just annoying to incapcitating.

Some people can work, some can work for awhile, some can't work at all. For so

many people to be diagnosed with this could this really be all in our heads.

Pain is not something I think anyone wants to be in. I've went from taking

Flexeril to moving up to Skelaxin another muscle relaxer to now being moved up

again to Zanaflex. I've went from taking vicodin 750's, to being moved up and

now taking percocet the pain has gotten that bad and so has the muscle spasms.

I wish your daughter the best of luck. Tell her and let her listen to her

body, only she knows what she's experiencing and sometimes it's so hard to

describe. Her body will tell her when she's done to much.

Take care,

Debbie

reginabean1952 wrote:

Hello everyone,

I have a 21 year old daughter who was diagnosed with Fibromyalgia

about three weeks ago. She is always hurting, and is also depressed.

Her friends think everything is in her head, and she is making this

all up, the aches the pains and the headaches so bad she cannot

sleep at nite, therefore she can't get up early or anything because

lack of a good nite sleep. She has no insurance and is currently

not working, but has looked for jobs, but no takers as yet.

But she seriously thinks she cannot work full time she says because

of how bad she feels on a regular basis. The rheumatoligist

prescribed flexorall and myobic for her, but she says it doesn't

work. I cannot afford to pay for the Rheumatolgist she is supposed

to see on a monthly basis. We are in financial straits ourselves.

She was turned down before for medical assistance until she could

find a job, but was turned down awhile back.

Does anyone have any resources for her??? And if you do have

Fibromyalgia, is it that bad that you cannot work funcionally well

on jobs???

I would appreciate any help you can give me.

Thank you, Jean

---------------------------------

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[Guest guest]

Hi Debbie, I also take zanaflex. I started out with one pill at bedtime and am

now taking one in a half. I am only allowed up to 2 pills at night if needed. I

also was on vicodin (middle strength), but whenever I would take it it would

make me so drowsy. I even tried cutting them in half. I am now on Lyrica which I

am really hoping that it will work because I wasn't able to take the neuronton,

that made me sick. I am suppose to go tomorrow am for a drug test for a job that

I got hired for and the way I am felling right now sometimes I think I am crazy

to even think I can go out and hold down a job, but I am going to give it a try

and take it one day at a time until I get to the point that I just can't do it.

I also take a predisone pack for when my hip flares up, but thankfully that

isn't too often. The am's are the worse for me especially when I first get up

because I am so stiff. It usually takes me a few hrs. before I begin to fell

half way decent. How much zanaflex do you t ake and does it help you sleep? In

the beginning it used to help me. I have been on it for a few yrs. now and now

it doesn't seem to help that much. It usually begins to kick in within the hr.,

but then I am up again in another hr. My doctor put me on lunestia which seems

to really help and you don't fell as hung over as you do when you take the

ambien's.

[Guest guest]

>

> Hello everyone,

>

> I have a 21 year old daughter who was diagnosed with Fibromyalgia

> about three weeks ago. She is always hurting, and is also

depressed.

> Her friends think everything is in her head, and she is making

this

> all up, the aches the pains and the headaches so bad she cannot

> sleep at nite, therefore she can't get up early or anything

because

> lack of a good nite sleep. She has no insurance and is currently

> not working, but has looked for jobs, but no takers as yet.

>

> But she seriously thinks she cannot work full time she says

because

> of how bad she feels on a regular basis. The rheumatoligist

> prescribed flexorall and myobic for her, but she says it doesn't

> work. I cannot afford to pay for the Rheumatolgist she is

supposed

> to see on a monthly basis. We are in financial straits

ourselves.

>

> She was turned down before for medical assistance until she could

> find a job, but was turned down awhile back.

>

> Does anyone have any resources for her??? And if you do have

> Fibromyalgia, is it that bad that you cannot work funcionally well

> on jobs???

>

>

> I would appreciate any help you can give me.

>

> Thank you, Jean

>

[Guest guest]

Hi ~ I am sorry for your daughter's diagnosis, but she got diagnosed way

sooner thaln most of us. I am able to work full time (as an elem. teacher).

Luckily, I do get my summers off to re-charge, but I must say that since I

have been off this summer (since June 23rd) I have felt worse than I did all

year. I think it's partly b/c I am out of my usual routine. My family doc (who

diagnosed my fibro) told me the worst thing you can do for fibro is get in

bed, curl up, and stay there. I always think of that when I'm having a bad day.

Good luck, Kathy in NY

[Guest guest]

I am not sure if this will help you but you might try ssi if you have not

already. I was turned down so I called the Dr's myself and told them there was

no way I could afford the 325.00 per appointment. I was given the cash price of

75.00 per visit and also they are letting me make payments of 25.00 a month.

It sucks not to have insurance.

reginabean1952 wrote:

Hello everyone,

I have a 21 year old daughter who was diagnosed with Fibromyalgia

about three weeks ago. She is always hurting, and is also depressed.

Her friends think everything is in her head, and she is making this

all up, the aches the pains and the headaches so bad she cannot

sleep at nite, therefore she can't get up early or anything because

lack of a good nite sleep. She has no insurance and is currently

not working, but has looked for jobs, but no takers as yet.

But she seriously thinks she cannot work full time she says because

of how bad she feels on a regular basis. The rheumatoligist

prescribed flexorall and myobic for her, but she says it doesn't

work. I cannot afford to pay for the Rheumatolgist she is supposed

to see on a monthly basis. We are in financial straits ourselves.

She was turned down before for medical assistance until she could

find a job, but was turned down awhile back.

Does anyone have any resources for her??? And if you do have

Fibromyalgia, is it that bad that you cannot work funcionally well

on jobs???

I would appreciate any help you can give me.

Thank you, Jean

---------------------------------

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