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I was having trouble with painful eyes, and not seeing well, blurring, and it

seemed like the words would jump all over the page if I didn't use my finger as

a guide. So, mainly due to the pain, I went to see my eye doctor. It was only

about 1 1/12 years since my last appointment. After the test he asked me if I

drive with my glasses on, and I said no, I'm far sighted. He said well, you

should you are legally blind without them. I couldn't believe it.When I left I

asked " don't I need those little dark sunglasses, due to the eye drops, he said

no, it will be just like when you drove her without your glasses (ha ha, funny

doc). But he said I could use my current prescript glasses to drive and new

stronger prescrip for reading.

I told him about my Lyme and he said, nope your eyes are very healthy. And he

did seem to do a thorough exam. That was last January, (I Think) and I already

notice that I need my glasses all the time, and my eye pain comes and goes

still. But we know Lyme affects our nerves, and with the eye you have the Optic

nerve, plus I think there is a muscle in your eye (not sure) but that is what my

pain feels like, like a pulled muscle right behind my eyeball. I tried to tell

my eye doctor that Lyme can effect your eyes. I didn't know how, but I know I

read that, probably in Dr. Burrascano's guidelines somewhere, but the eye doctor

didn't believe that. What else is new. I don't think too many doctors are really

very educated in Lyme, and I guess that makes sense, its a bacteria, so they

don't pay attention. But I think they should. Can't wait to go back and see how

fast they have changed now, and see what he thinks then! Vicki

Yes, I have good and bad days with my vision too. Some days I can read the

fine print in an ad and other days I can't read my email.

Kiana

Hi Pepipony,

My last vision check was in mid October, he said I have

20-20 vision, but I disagree, I told him sometimes I can read the TV

guide and sometimes I can't. That is my test to see if I am having a bad

eyesight day.....does anyone else have that????

Marta

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Has anyone had eye problems that are related to RA? I have been having a

problem with my eye tearing quite a lot. Does this sound like something that

could be related to RA?

Thanks,

ette

"

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ette,

I have a constant problem with my eyes, either they're burning or

pouring tears. I also find this problem often blurs my vision

somewhat. I've been told that these symptoms stem from having dry eyes

(the pouring tears included)and that I likely also have Sjogren's

syndrome, which I gather is fairly common among RA patients. I

frequently apply Real Tears type eye drops throughout the day and it

helps but it doesn't completely fix the problem. It's also a good idea

to wear sunglasses outside to keep the wind from drying them out

further.

Hugs,

a Peden

ette Portnoy wrote:

>

> Has anyone had eye problems that are related to RA? I have been having a

> problem with my eye tearing quite a lot...

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ette,

I used to have teary eyes and it was related to overactive thyroid.

Bev

> Has anyone had eye problems that are related to RA? I have been having a

> problem with my eye tearing quite a lot. Does this sound like something

that

> could be related to RA?

>

> Thanks,

> ette

>

> "

>

>

> ------------------------------------------------------------------------

> Chocolate eggs, tulips, bunnies and more...

> Click Here

> 1/3120/0/_/532797/_/955726528/

> ------------------------------------------------------------------------

>

>

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Dear paulette,

I have problems with my eyes from RA. I have never had a vision

problem, but I have started having vision changes with distant vision in

the last year. I also have a lot of tearing and I wake up with gluppy

stuff in my eyes. I have a big problem with dry eyes that gets so bad

sometimes, I cannot open my eyes because they are sticky.

This happens in the middle of the night whenever I eat something that

will cause my RA to flare.

I was told by the eye doctor to use artificial tears even if my eyes are

tearing and that this will help it. Sometimes it does and sometimes not.

love,

gloria

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Hi Roe,

Good to hear from you and thanks for posting about the eye problems one

can experience with LD, I am sure your information helped at least one

person today. I hope you don't consider the surgery, do you find that your

problem with your eyes comes and goes, like most other symptoms of LD??

Hugs,

Marta

-From: nne Montalvo <roe0325@...>

>I read a post recently from someone wanting info about

>eye problems and Lyme. i am sorry, but i am really

>not able to respond properly, due to my constant brain

>fog. i usually forget the names of people in the group

>and have a hard time replying to emails. I want to

>share this with all of you because i think its

>something we all suffer from.. i went to the

>optomologist today and told him of my eye pain and the

>itchy sand like feeling i get in my eyes. and i told

>him my eyes hurt. i also told him i have lyme disease

>and many others with this disease have this problem...

> of course he is not LL, and he diagnosed dry eye

>syndrome. and gave me eye drops. he advised minor

>surgery, but from what i have read it may not be

>worth it. He of course said it had nothing to due

>with lyme, but was because of aging! i am 45, but I

>know many young lymies with this problem, so i am sure

>it has nothing to do with age. i found this web site

>about dry eye syndrome and it discribes it to a t. of

>course it says nothing about lyme causing this

>syndrome, but dose mention other diseases that may

>cause it. Dry eyes need attention and can be helped

>by over the counter eye drops. the sample he gave me

>is called " refresh tears " lubricant eye drops.

>http://www.eri.harvard.edu/htmlfiles/dryeye.html

>hope this helps

>roe

>

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Hi, Marta, no i am not considering the surgery. The symptoms do come

and go. When i was off antibiotics for 4 weeks, it was the worst. My

eyes got infected and they were a real mess. i am in my 4th week of IV

and they still hurt and feel dry and burn, but a lot better than they

were. I think i will be on antibiotics in one form or another for the

rest of my life. I just wish the insurance company would let me stay

on the IV until I don't have symptoms, but i don't see that happening!

they approved 6 weeks so far, so i cant complain. this is my third

round of IV and i am still having bad herxing... its amazing how

resilient these buggers are. by the way i am on an " IV push " -- not a

drip. it is administered in 2-4 minutes instead of 1/2 hour. At first

i was skeptical but now i am used to it.

roe

--- Marta McCoy <mlmccoy@...> wrote:

> Hi Roe,

> Good to hear from you and thanks for posting about the eye

> problems one

> can experience with LD, I am sure your information helped at least

> one

> person today. I hope you don't consider the surgery, do you find

> that your

> problem with your eyes comes and goes, like most other symptoms of

> LD??

> Hugs,

> Marta

>

> -From: nne Montalvo <roe0325@...>

>

>

> >I read a post recently from someone wanting info about

> >eye problems and Lyme. i am sorry, but i am really

> >not able to respond properly, due to my constant brain

> >fog. i usually forget the names of people in the group

> >and have a hard time replying to emails. I want to

> >share this with all of you because i think its

> >something we all suffer from.. i went to the

> >optomologist today and told him of my eye pain and the

> >itchy sand like feeling i get in my eyes. and i told

> >him my eyes hurt. i also told him i have lyme disease

> >and many others with this disease have this problem...

> > of course he is not LL, and he diagnosed dry eye

> >syndrome. and gave me eye drops. he advised minor

> >surgery, but from what i have read it may not be

> >worth it. He of course said it had nothing to due

> >with lyme, but was because of aging! i am 45, but I

> >know many young lymies with this problem, so i am sure

> >it has nothing to do with age. i found this web site

> >about dry eye syndrome and it discribes it to a t. of

> >course it says nothing about lyme causing this

> >syndrome, but dose mention other diseases that may

> >cause it. Dry eyes need attention and can be helped

> >by over the counter eye drops. the sample he gave me

> >is called " refresh tears " lubricant eye drops.

> >http://www.eri.harvard.edu/htmlfiles/dryeye.html

> >hope this helps

> >roe

> >

>

>

__________________________________________________

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Hi Roe,

Boy, that's a relief, so many times people have unnecessary surgeries

when they have LD, and the symptoms are notorious for waxing and waning. I

had the IV-push method too, both times when I had IV, I was skeptical too,

even the second time, it just seemed to me it should take longer to do any

good, but I did herx in my fourth week. I know what you mean about not

staying on IV long enough to do any good, I sure hope someday, somehow, we

can convince the insurers how badly we need long term IV. Instead they will

pay enormous bills for MRI's, PET scans and other expensive tests that we

need. Hope those eyes feel better soon.

Hugs,

Marta

-From: nne <roe0325@...>

>Hi, Marta, no i am not considering the surgery. The symptoms do come

>and go. When i was off antibiotics for 4 weeks, it was the worst. My

>eyes got infected and they were a real mess. i am in my 4th week of IV

>and they still hurt and feel dry and burn, but a lot better than they

>were. I think i will be on antibiotics in one form or another for the

>rest of my life. I just wish the insurance company would let me stay

>on the IV until I don't have symptoms, but i don't see that happening!

>they approved 6 weeks so far, so i cant complain. this is my third

>round of IV and i am still having bad herxing... its amazing how

>resilient these buggers are. by the way i am on an " IV push " -- not a

>drip. it is administered in 2-4 minutes instead of 1/2 hour. At first

>i was skeptical but now i am used to it.

>roe

>

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Hi Roe,

Good to hear from you and thanks for posting about the eye problems one

can experience with LD, I am sure your information helped at least one

person today. I hope you don't consider the surgery, do you find that your

problem with your eyes comes and goes, like most other symptoms of LD??

Hugs,

Marta

-From: nne Montalvo <roe0325@...>

>I read a post recently from someone wanting info about

>eye problems and Lyme. i am sorry, but i am really

>not able to respond properly, due to my constant brain

>fog. i usually forget the names of people in the group

>and have a hard time replying to emails. I want to

>share this with all of you because i think its

>something we all suffer from.. i went to the

>optomologist today and told him of my eye pain and the

>itchy sand like feeling i get in my eyes. and i told

>him my eyes hurt. i also told him i have lyme disease

>and many others with this disease have this problem...

> of course he is not LL, and he diagnosed dry eye

>syndrome. and gave me eye drops. he advised minor

>surgery, but from what i have read it may not be

>worth it. He of course said it had nothing to due

>with lyme, but was because of aging! i am 45, but I

>know many young lymies with this problem, so i am sure

>it has nothing to do with age. i found this web site

>about dry eye syndrome and it discribes it to a t. of

>course it says nothing about lyme causing this

>syndrome, but dose mention other diseases that may

>cause it. Dry eyes need attention and can be helped

>by over the counter eye drops. the sample he gave me

>is called " refresh tears " lubricant eye drops.

>http://www.eri.harvard.edu/htmlfiles/dryeye.html

>hope this helps

>roe

>

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Hi, Marta, no i am not considering the surgery. The symptoms do come

and go. When i was off antibiotics for 4 weeks, it was the worst. My

eyes got infected and they were a real mess. i am in my 4th week of IV

and they still hurt and feel dry and burn, but a lot better than they

were. I think i will be on antibiotics in one form or another for the

rest of my life. I just wish the insurance company would let me stay

on the IV until I don't have symptoms, but i don't see that happening!

they approved 6 weeks so far, so i cant complain. this is my third

round of IV and i am still having bad herxing... its amazing how

resilient these buggers are. by the way i am on an " IV push " -- not a

drip. it is administered in 2-4 minutes instead of 1/2 hour. At first

i was skeptical but now i am used to it.

roe

--- Marta McCoy <mlmccoy@...> wrote:

> Hi Roe,

> Good to hear from you and thanks for posting about the eye

> problems one

> can experience with LD, I am sure your information helped at least

> one

> person today. I hope you don't consider the surgery, do you find

> that your

> problem with your eyes comes and goes, like most other symptoms of

> LD??

> Hugs,

> Marta

>

> -From: nne Montalvo <roe0325@...>

>

>

> >I read a post recently from someone wanting info about

> >eye problems and Lyme. i am sorry, but i am really

> >not able to respond properly, due to my constant brain

> >fog. i usually forget the names of people in the group

> >and have a hard time replying to emails. I want to

> >share this with all of you because i think its

> >something we all suffer from.. i went to the

> >optomologist today and told him of my eye pain and the

> >itchy sand like feeling i get in my eyes. and i told

> >him my eyes hurt. i also told him i have lyme disease

> >and many others with this disease have this problem...

> > of course he is not LL, and he diagnosed dry eye

> >syndrome. and gave me eye drops. he advised minor

> >surgery, but from what i have read it may not be

> >worth it. He of course said it had nothing to due

> >with lyme, but was because of aging! i am 45, but I

> >know many young lymies with this problem, so i am sure

> >it has nothing to do with age. i found this web site

> >about dry eye syndrome and it discribes it to a t. of

> >course it says nothing about lyme causing this

> >syndrome, but dose mention other diseases that may

> >cause it. Dry eyes need attention and can be helped

> >by over the counter eye drops. the sample he gave me

> >is called " refresh tears " lubricant eye drops.

> >http://www.eri.harvard.edu/htmlfiles/dryeye.html

> >hope this helps

> >roe

> >

>

>

__________________________________________________

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Hi Roe,

Boy, that's a relief, so many times people have unnecessary surgeries

when they have LD, and the symptoms are notorious for waxing and waning. I

had the IV-push method too, both times when I had IV, I was skeptical too,

even the second time, it just seemed to me it should take longer to do any

good, but I did herx in my fourth week. I know what you mean about not

staying on IV long enough to do any good, I sure hope someday, somehow, we

can convince the insurers how badly we need long term IV. Instead they will

pay enormous bills for MRI's, PET scans and other expensive tests that we

need. Hope those eyes feel better soon.

Hugs,

Marta

-From: nne <roe0325@...>

>Hi, Marta, no i am not considering the surgery. The symptoms do come

>and go. When i was off antibiotics for 4 weeks, it was the worst. My

>eyes got infected and they were a real mess. i am in my 4th week of IV

>and they still hurt and feel dry and burn, but a lot better than they

>were. I think i will be on antibiotics in one form or another for the

>rest of my life. I just wish the insurance company would let me stay

>on the IV until I don't have symptoms, but i don't see that happening!

>they approved 6 weeks so far, so i cant complain. this is my third

>round of IV and i am still having bad herxing... its amazing how

>resilient these buggers are. by the way i am on an " IV push " -- not a

>drip. it is administered in 2-4 minutes instead of 1/2 hour. At first

>i was skeptical but now i am used to it.

>roe

>

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I saw an LL-neuro-opthalmologist several weeks ago. I wrote up a summary

of my visit, which I can post if anyone's interested. But wanted to

relay what the optometrist he works w/told me about which drops to use

for the dry eyes:

- Genteal or Theratears (mild preparations, but better than the Tears

Naturale by Alcon I'm using - said they're too watery)

- Ocucoat PF (for moderate remoisturizing) this is the one I'm using

- Celluvisc (for heavy-duty remoisturizing;-)

Supposedly the difference is the degree of viscosity. These are all OTC.

He also told me to take Vit A, whichI did,but have since stopped. They

couldn't rule out pseudotumor cerebri, but since I felt my symptoms of it

were getting better, we agreed not to tx, for now. There's an issue w/VitA

and ptc.

Sue

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Dry eyes need attention and can be helped

by over the counter eye drops. the sample he gave me

is called " refresh tears " lubricant eye drops.

http://www.eri.harvard.edu/htmlfiles/dryeye.html

hope this helps

roe

________________________________

Thank you roe for taking time out to write. I have the same problem

with my eyes being dry and feel like sand paper. Those eye drops do

help. I also learned from my LLMD that yeast and fungi infections may

cause lots of eye problems as well. I guess not only spiros like that

eyeball area! Pretty good website also.

Barb

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I saw an LL-neuro-opthalmologist several weeks ago. I wrote up a summary

of my visit, which I can post if anyone's interested. But wanted to

relay what the optometrist he works w/told me about which drops to use

for the dry eyes:

- Genteal or Theratears (mild preparations, but better than the Tears

Naturale by Alcon I'm using - said they're too watery)

- Ocucoat PF (for moderate remoisturizing) this is the one I'm using

- Celluvisc (for heavy-duty remoisturizing;-)

Supposedly the difference is the degree of viscosity. These are all OTC.

He also told me to take Vit A, whichI did,but have since stopped. They

couldn't rule out pseudotumor cerebri, but since I felt my symptoms of it

were getting better, we agreed not to tx, for now. There's an issue w/VitA

and ptc.

Sue

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Sue, i would be very interested in what you doctor said regarding dry

eyes. thanks for the info on the drops, i hate using eye drops, but i

guess i have no choice at this time. but at least now i have a little

more info to take to the drug store. Please post the summary of your

visit.

thanks nne

--- " Sue D. " <tlizzy@...> wrote:

> I saw an LL-neuro-opthalmologist several weeks ago. I wrote up a

> summary

> of my visit, which I can post if anyone's interested. But wanted to

> relay what the optometrist he works w/told me about which drops to

> use

> for the dry eyes:

>

> - Genteal or Theratears (mild preparations, but better than the

> Tears

> Naturale by Alcon I'm using - said they're too watery)

>

> - Ocucoat PF (for moderate remoisturizing) this is the one I'm

> using

>

> - Celluvisc (for heavy-duty remoisturizing;-)

>

> Supposedly the difference is the degree of viscosity. These are all

> OTC.

> He also told me to take Vit A, whichI did,but have since stopped.

> They

> couldn't rule out pseudotumor cerebri, but since I felt my symptoms

> of it

> were getting better, we agreed not to tx, for now. There's an issue

> w/VitA

> and ptc.

>

> Sue

>

>

__________________________________________________

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OK - here's what I'd written up after my LL-neuro-opthal. and optometrist

appts.

Sue

****

Saw a Lyme-literate opthalmologist a few weeks ago, and followed up w/the

optometrist in the same practice. I have the following conditions, which

might be corrected w/new glasses:

- Astigmatisms, both eyes (used to be just one).

- Near-sightedness, due to the above (my whole life, I've been far-

sighted, and that's what all my previous glasses were for - no

wonder I've been seeing better w/out them;-).

- Dryness (opt. confirmed that this could be due to autoimmune disease,

set off by the Lyme).

(Told to take Vitamin A).

- Convergence problem (eyes " wander " after focusing on something,

can't refocus and brain can't reconcile what I'm seeing).

The following problem has no solution, but might be partly resolved w/lyme

tx, but there is no other specific remedy for it:

- Saccadic problem: " rapid involuntary small movements of both eyes

simultaneously in changing the point of fixation on a visualized object,

such as the series of jumps the eyes make in scanning a line of print " .

This could be part of my reading problem. During parts of my exam, I

reported that things seemed to be on different parts of the screen or

page than they just were, even tho I know they didn't move. Same thing

happened during one test using his hand as a reference point.

Neither have totally ruled out this condition often seen w/Lyme that causes

the head pressure (known as pseudotumor cerebri - one symptom is headaches

from approaching storm fronts, another is tinnitus). Since it seemed to

be improving lately, none of us wanted to see me try tx just yet. UPDATE

5/5/00: This had been getting worse recently, and my pseudotumor research

led me to some statements about ptc + Vitamin A that were confusing, so I

stopped taking the Vit A, and the symptoms haven't gotten any worse (I

think they're getting better, but slight enough that this could be wishful

thinking;-) I think this whole problem is due to not enough thyroid (T3).

If it were working properly, i'd be converting all the beta carotene in

the many veggies I eat to Vit A. Recently, I cut back on my Synthroid,

just on a hunch and believe this was the route for me to go. I've begun

losing weight again, but some things have become disregulated since doing

this - so I'll be following up on adding some T3 to my regimen.

Anyway, I'm to try a month w/the new glasses and see him again, at which

point he'll decide if I need the vision therapy (exercises to rebuild the

eye muscles) - to help the convergence problem. He asked lots of questions

like " How's your handwriting " , and if I reverse letters, transpose words,

read words as other words, etc. SAid much of this, and my reading problem,

could be corrected w/the new rx. He also said that my brain's having to work

so hard, to figure out what I'm seeing, that this could be a large contributor

of the fatigue I feel! I hope he's right;-) Update: I can honestly say that

some of my mental fatigue seems to have been eliminated since wearing the new

glasses - but not the physical fatigue.

I do believe the convergence problem was contributing a lot to my brain

fog. I was told the saccadic problem may resolve as my Lyme tx progresses,

and I hope that's true because I was told there's no tx for this.

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OK - here's what I'd written up after my LL-neuro-opthal. and optometrist

appts.

Sue

****

Saw a Lyme-literate opthalmologist a few weeks ago, and followed up w/the

optometrist in the same practice. I have the following conditions, which

might be corrected w/new glasses:

- Astigmatisms, both eyes (used to be just one).

- Near-sightedness, due to the above (my whole life, I've been far-

sighted, and that's what all my previous glasses were for - no

wonder I've been seeing better w/out them;-).

- Dryness (opt. confirmed that this could be due to autoimmune disease,

set off by the Lyme).

(Told to take Vitamin A).

- Convergence problem (eyes " wander " after focusing on something,

can't refocus and brain can't reconcile what I'm seeing).

The following problem has no solution, but might be partly resolved w/lyme

tx, but there is no other specific remedy for it:

- Saccadic problem: " rapid involuntary small movements of both eyes

simultaneously in changing the point of fixation on a visualized object,

such as the series of jumps the eyes make in scanning a line of print " .

This could be part of my reading problem. During parts of my exam, I

reported that things seemed to be on different parts of the screen or

page than they just were, even tho I know they didn't move. Same thing

happened during one test using his hand as a reference point.

Neither have totally ruled out this condition often seen w/Lyme that causes

the head pressure (known as pseudotumor cerebri - one symptom is headaches

from approaching storm fronts, another is tinnitus). Since it seemed to

be improving lately, none of us wanted to see me try tx just yet. UPDATE

5/5/00: This had been getting worse recently, and my pseudotumor research

led me to some statements about ptc + Vitamin A that were confusing, so I

stopped taking the Vit A, and the symptoms haven't gotten any worse (I

think they're getting better, but slight enough that this could be wishful

thinking;-) I think this whole problem is due to not enough thyroid (T3).

If it were working properly, i'd be converting all the beta carotene in

the many veggies I eat to Vit A. Recently, I cut back on my Synthroid,

just on a hunch and believe this was the route for me to go. I've begun

losing weight again, but some things have become disregulated since doing

this - so I'll be following up on adding some T3 to my regimen.

Anyway, I'm to try a month w/the new glasses and see him again, at which

point he'll decide if I need the vision therapy (exercises to rebuild the

eye muscles) - to help the convergence problem. He asked lots of questions

like " How's your handwriting " , and if I reverse letters, transpose words,

read words as other words, etc. SAid much of this, and my reading problem,

could be corrected w/the new rx. He also said that my brain's having to work

so hard, to figure out what I'm seeing, that this could be a large contributor

of the fatigue I feel! I hope he's right;-) Update: I can honestly say that

some of my mental fatigue seems to have been eliminated since wearing the new

glasses - but not the physical fatigue.

I do believe the convergence problem was contributing a lot to my brain

fog. I was told the saccadic problem may resolve as my Lyme tx progresses,

and I hope that's true because I was told there's no tx for this.

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Hello

To all those who have dry sore eyes, don't use the usual liquid tear

replacement - it runs out of the eye. Try to get the gel type which remains

in the eye for longer and is really soothing if you can bear it, straight

from the fridge. In England it is marketed under the brand name 'GELTEARS'.

sheila

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Sheila, one of the eye drops Sue mentions in her post are thicker than

the normal drops that run down your face. its called Celluvisc

lubricant eye drops. I hate eye drops, thick or thin. but realize i

need to use them. the thicker drops feel kind of sticky, and may cause

blurry vision for a few seconds. but its important to replace the

moisture thats missing. so i will use them.

roe

--- Sheila Darbyshire <sheila-e@...> wrote:

> Hello

> To all those who have dry sore eyes, don't use the usual liquid tear

> replacement - it runs out of the eye. Try to get the gel type which

> remains

> in the eye for longer and is really soothing if you can bear it,

> straight

> from the fridge. In England it is marketed under the brand name

> 'GELTEARS'.

> sheila

>

>

__________________________________________________

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Dear Sue,I developed the problems you describe below in 1980. I now have to have vertical and horizontal prisms in my lenses to control the "ping-ponging" of the eyes. The prisms pull the eye muscles in and down (depending on the level of eye wandering) and make them centered in the middle of your visual range.

As an editor and writer, this problem created huge problems on the job (couldn't copy type, proofread accurately, or even read a book without rereading a page). Also, created severe muscular tension, headaches, dizziness, and fatigue.

At first, I only had to wear these glasses for reading. Wore reading prescription prisms over my contacts. Five years ago, driving was also affected, so now I wear glasses full-time.

It's worth asking about. My last prescription (filled last month) showed the eye-muscles had improved, and the prisms were made weaker.

Love ya,Rose in Texas

"Sue D." <tlizzy@...> wrote:

- Convergence problem (eyes "wander" after focusing on something, can't refocus and brain can't reconcile what I'm seeing).- Saccadic problem: "rapid involuntary small movements of both eyes simultaneously in changing the point of fixation on a visualized object, such as the series of jumps the eyes make in scanning a line of print". This could be part of my reading problem. During parts of my exam, I reported that things seemed to be on different parts of the screen or page than they just were, even tho I know they didn't move. Same thing happened during one test using his hand as a reference point.I

The "RoseWriter" says: "Teach Tolerance, Overcome Ignorance, Advocate Lyme Literacy." See http://www.angelfire.com/tx3/RoseWriter/ or http://www.angelfire.com/biz/romarkaraoke/james.html for our Lyme Disease Horror Stories, links to LD research articles & websites, & current news items on Lyme. These sites are updated frequently, so please revisit.

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Rose wrote:

>It's worth asking about. My last prescription (filled last month) showed

the >eye-muscles had improved, and the prisms were made weaker.

Both the optometrist and opthalmologist tested me w/the prisms. I'm

sure that's what they used to do, but at this particular eye tx center,

they're moving toward the vision therapy before resorting to the prisms.

That's supposed to strengthen the eye muscles - I haven't been back yet,

but feel that my eyes are constantly improving w/my new glasses;)

Thanks for the feedback,

Sue

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Should've mentioned that I think at the eye center where I was examined,

they usually use the prisms for those with actual double-vision. My

double-vision was actually called blurriness, because altho I see 2

images, they're superimposed on each other - not distinctly separate.

I'm pretty sure, from what was said during my appt, that if I'd had

actual double-vision, they'd have gone w/the prisms.

Sue

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Sheila, one of the eye drops Sue mentions in her post are thicker than

the normal drops that run down your face. its called Celluvisc

lubricant eye drops. I hate eye drops, thick or thin. but realize i

need to use them. the thicker drops feel kind of sticky, and may cause

blurry vision for a few seconds. but its important to replace the

moisture thats missing. so i will use them.

roe

--- Sheila Darbyshire <sheila-e@...> wrote:

> Hello

> To all those who have dry sore eyes, don't use the usual liquid tear

> replacement - it runs out of the eye. Try to get the gel type which

> remains

> in the eye for longer and is really soothing if you can bear it,

> straight

> from the fridge. In England it is marketed under the brand name

> 'GELTEARS'.

> sheila

>

>

__________________________________________________

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Dear Sue,I developed the problems you describe below in 1980. I now have to have vertical and horizontal prisms in my lenses to control the "ping-ponging" of the eyes. The prisms pull the eye muscles in and down (depending on the level of eye wandering) and make them centered in the middle of your visual range.

As an editor and writer, this problem created huge problems on the job (couldn't copy type, proofread accurately, or even read a book without rereading a page). Also, created severe muscular tension, headaches, dizziness, and fatigue.

At first, I only had to wear these glasses for reading. Wore reading prescription prisms over my contacts. Five years ago, driving was also affected, so now I wear glasses full-time.

It's worth asking about. My last prescription (filled last month) showed the eye-muscles had improved, and the prisms were made weaker.

Love ya,Rose in Texas

"Sue D." <tlizzy@...> wrote:

- Convergence problem (eyes "wander" after focusing on something, can't refocus and brain can't reconcile what I'm seeing).- Saccadic problem: "rapid involuntary small movements of both eyes simultaneously in changing the point of fixation on a visualized object, such as the series of jumps the eyes make in scanning a line of print". This could be part of my reading problem. During parts of my exam, I reported that things seemed to be on different parts of the screen or page than they just were, even tho I know they didn't move. Same thing happened during one test using his hand as a reference point.I

The "RoseWriter" says: "Teach Tolerance, Overcome Ignorance, Advocate Lyme Literacy." See http://www.angelfire.com/tx3/RoseWriter/ or http://www.angelfire.com/biz/romarkaraoke/james.html for our Lyme Disease Horror Stories, links to LD research articles & websites, & current news items on Lyme. These sites are updated frequently, so please revisit.

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Rose wrote:

>It's worth asking about. My last prescription (filled last month) showed

the >eye-muscles had improved, and the prisms were made weaker.

Both the optometrist and opthalmologist tested me w/the prisms. I'm

sure that's what they used to do, but at this particular eye tx center,

they're moving toward the vision therapy before resorting to the prisms.

That's supposed to strengthen the eye muscles - I haven't been back yet,

but feel that my eyes are constantly improving w/my new glasses;)

Thanks for the feedback,

Sue

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