Psoriatic Arthritis

April 29, 2009

Same with my daughter, looks just like cradle cap on her!!!

Lori

On Wed, Apr 29, 2009 at 8:06 PM, Moy <jaimelynmoy@...> wrote:

>

> When Andy gets scalp psoriasis, it looks like dandruff that is stuck to his

> scalp. It looks a lot like cradle cap.

> Check out this link. It might help you:

>

> http://www.psoriasis.org/about/psoriasis/scalp/

>

> On Wed, Apr 29, 2009 at 6:34 PM, Crawford

<swcrawford3@...<swcrawford3%40>

> >wrote:

>

> >

> > For those of you with kids with Psoriatic Arthritis, what does it look

> like

> > on their scalps? I noticed that Abby was scratching her head tonight and

> my

> > first thought was that she had lice. Then when I looked at her head I

> > noticed a patch that was about 1-2 inches in diameter with several small

> > dark spots. It looks like she has an area covered with very tiny

> freckles. I

> > know this is pretty new because I fix her hair all the time and have

> never

> > noticed it. I know that they have ridges on their nails but I'm not sure

> > what those look like. I did notice that her cuticles seem to be up pretty

> > far. She looks like she is in need of a manicure.lol. I don't know if I

> am

> > worrying for nothing or what. Any advice would be greatly appreciated.

> >

> > & Abby (2-pauci)

> >

>

April 29, 2009

Same here- I have psoriasis myself too, and on me it can sometimes, if I've been

scratching it (bad habit, I know...) it will look red and weepy. If it gets to

that point, it will sort of crust over and then go back to the cradle cap-

flaky/scaly look.

& Sophia, 2 1/2 psoriatic arthritis

>

> >

> > For those of you with kids with Psoriatic Arthritis, what does it look

> like

> > on their scalps? I noticed that Abby was scratching her head tonight and

> my

> > first thought was that she had lice. Then when I looked at her head I

> > noticed a patch that was about 1-2 inches in diameter with several small

> > dark spots. It looks like she has an area covered with very tiny

> freckles. I

> > know this is pretty new because I fix her hair all the time and have

> never

> > noticed it. I know that they have ridges on their nails but I'm not sure

> > what those look like. I did notice that her cuticles seem to be up pretty

> > far. She looks like she is in need of a manicure.lol. I don't know if I

> am

> > worrying for nothing or what. Any advice would be greatly appreciated.

> >

> > & Abby (2-pauci)

> >

>

April 30, 2009

My child doesn't have psoriatic arthritis, but I have psoriasis, and this is how

I can describe mine. The difference in my typical dandruff and the psoriasis

patches is the weepiness. Kymberli

>

> >

>

> >

>

> > >

>

> > >

>

> > > For those of you with kids with Psoriatic Arthritis, what does it look

>

> > like

>

> > > on their scalps? I noticed that Abby was scratching her head tonight and

>

> > my

>

> > > first thought was that she had lice. Then when I looked at her head I

>

> > > noticed a patch that was about 1-2 inches in diameter with several small

>

> > > dark spots. It looks like she has an area covered with very tiny

>

> > freckles. I

>

> > > know this is pretty new because I fix her hair all the time and have

>

> > never

>

> > > noticed it. I know that they have ridges on their nails but I'm not sure

>

> > > what those look like. I did notice that her cuticles seem to be up pretty

>

> > > far. She looks like she is in need of a manicure.lol. I don't know if I

>

> > am

>

> > > worrying for nothing or what. Any advice would be greatly appreciated.

>

> > >

>

> > > & Abby (2-pauci)

>

> > >

>

> > >

>

> > >

>

> >

>

> >

August 23, 2009

psoriasis has much to do with candida.go to the site of dr simoncini and looks

how he treats it with iodine 7%.

>

> I had been on Remicade for several years and it cleared up my psoriasis and

arthritis. But we continually had to increase the dose until I was taking it

every 4 weeks, maxamim dose. Also my liver enzymes started to rise. The Dr.

said that was not because of Remicade but I wasn't so sure.

>

> A new primary Dr. suggested LDN. I started the standard regiment and it has

worked miracles for the last 5 months anf my liver enzymes returned to normal.

However, recently my psoriasis has returned and I am starting to get joint pain

again over the last few days.

>

> I think I will return to the Remicade but at much greater intervals. But I

will probably have to switch Rhuematologists because he does not know I am on

LDN and will probably refuse to treat me as long as I take it.

>

> Any other suggestions? I have tried coconut oil and other suggested

alternative remedies with no success.

>

> Neil

>

July 4, 2010

Hi Darrin,

I live in Buffalo N.Y. and I see a Dr. in Niagara Falls, N.Y. I hope you will be

able to find someone closer...but if not his name is:

Cutler M.D.

652 Elmwood Ave.

Niagara Falls, NY 14031

(716) 284-5140

He was recommended to me by the road back foundation. I was diagnosed with

dermatomyositis last July, after less then 1 year on AP I am in full remission!!

Best of Luck to you!

Jen K

rheumatic

From: darrinneedhelp@...

Date: Sun, 4 Jul 2010 20:05:00 +0000

Subject: rheumatic psoriatic arthritis

I am new to the group and was hoping someone could help me. I was recently

diagnosed with psoriatis arthritis. I researched the antibiotic protocol and was

hoping to find a physician that has experience with the protocol. Does anyone

know of a physician in the Pittsburgh area that has experience with the

protocol?

Thank you,

Darrin

_________________________________________________________________

The New Busy is not the too busy. Combine all your e-mail accounts with Hotmail.

http://www.windowslive.com/campaign/thenewbusy?tile=multiaccount & ocid=PID28326::\

T:WLMTAGL:ON:WL:en-US:WM_HMP:042010_4

July 4, 2010

There is a good AP doctor in New Jersy. His name is Dr. Whitman. I can give you

his address if you wish.

soheila

> From: Krieger <kkrieger36@...>

> Subject: RE: rheumatic psoriatic arthritis

> rheumatic

> Date: Sunday, July 4, 2010, 4:53 PM

>

> Hi Darrin,

>

> I live in Buffalo N.Y. and I see a Dr. in Niagara Falls,

> N.Y. I hope you will be able to find someone closer...but if

> not his name is:

>

> Cutler M.D.

>

> 652 Elmwood Ave.

>

> Niagara Falls, NY 14031

>

> (716) 284-5140

>

> He was recommended to me by the road back foundation. I was

> diagnosed with dermatomyositis last July, after less then 1

> year on AP I am in full remission!! Best of Luck to you!

>

> Jen K

>

> rheumatic

> From: darrinneedhelp@...

> Date: Sun, 4 Jul 2010 20:05:00 +0000

> Subject: rheumatic psoriatic arthritis

>

> I am new to the group and was hoping someone could help me.

> I was recently diagnosed with psoriatis arthritis. I

> researched the antibiotic protocol and was hoping to find a

> physician that has experience with the protocol. Does anyone

> know of a physician in the Pittsburgh area that has

> experience with the protocol?

>

> Thank you,

> Darrin

>

> _________________________________________________________________

> The New Busy is not the too busy. Combine all your e-mail

> accounts with Hotmail.

>

http://www.windowslive.com/campaign/thenewbusy?tile=multiaccount & ocid=PID28326::\

T:WLMTAGL:ON:WL:en-US:WM_HMP:042010_4

>

July 4, 2010

Hi Darrin,

Below is the list of MDs in PA; one is from Pittsburg; see the red ink

below. The list is dated and if someone else has more current info I'm sure

they will weigh in. Welcome to the group; we will help in any way we can.

You are not alone! Regards, El

PENNSYLVANIA

Francis Powers, M.D. - alternative medicine - oral and IV

1625 Elliott St.

port, PA 17701

P: 717-326-8203

Harder,

Lankenau Hospital,

Philadelphia.

Helen Oven Hiserman, PA-C - offers AP

Nutritional & Preventive Clinic

1201 Grampian Blvd. - Suite 3

port, PA 17701

Email: <mailto:hohpac@...> hohpac@...

Rose, M.D. - takes referrals (No record of this name)

42 Dogwood Dr.

Maple Glen, PA 19002

P:

F. Pepe, M.D. (RHU - 1966)

Center Medical & Surgical Associates

1850 E. Park Ave.

State College, PA 16803

P: 814-234-8800

Frederick D. Burton, M.D. (Alternative) (oral and IV) - Uses antibiotic or

anti-fungal therapies

69 W. Schoolhouse Lane

Phildadelphia PA 19144

P: 215-844-4660 Mon Wed Fri & Sat

also at 321 E. Emmaus Ave.

town, PA 18103

P: 610-791-2453 Tues & Thurs

http://burtonwellnesscenter.com

E. Engel, M.D. (RHU - 1984)

3317 Liberty St.,

Erie, PA 16508.

P: 814-868-8531.

P. Gallagher, D.C.,

Medical Wellness Associates,

91 Lincoln Way East,

Jeanette, PA 15644.

P: 412-523-5505.

Hurst, M.D. (from. MCV)

Leola Family Health Center

146 E. Main St.

Leola, PA 17540

P : 717-656-2141

F : 717-656-4986

Goldstein, M.D. *(from (MCV)

9401 McKnight Rd. - Suite 301B

Pittsburgh, PA 15237

P: 412-366-6780

F: 412-366-8644

Email: <mailto:g25@...> g25@... no Medicare

W. Shay, D.O. (FP - 1973)

19 s Mill Rd.,

Barto, PA 19504-8811.

P: 610-845-8400.

M. Sullivan, M.D. (FP - 1975)

1001 S. Market St., Suite B.,

Mechanicsburg, PA 17055.

P: 717 697 5050.

M. Fisher, M. D. - uses levaquin & flagyl 11-2-00

Holistic Medicine 500 mg. Levaquin daily

Lotus Medical Arts, P.C. 500 mg. 3 x a day flagyl

530 S. 2nd St. Suite 108 also uses Diflucan

Philadelphia, PA 19147

P: 215-627-3001

F: 215-627-8401

Dr. Chesner - oral only

Rheumatic Disease Associates, Ltd.

2400 land Ave.

Upper Moreland, PA

P: 215-657-6776

P. Bock, DO - FP

2415 N. Broad St.

Colmar, PA 18915

215-997-9421

_____

From: rheumatic [mailto:rheumatic ] On Behalf

Of darrinneedhelp

Sent: Sunday, July 04, 2010 4:05 PM

rheumatic

Subject: rheumatic psoriatic arthritis

I am new to the group and was hoping someone could help me. I was recently

diagnosed with psoriatis arthritis. I researched the antibiotic protocol and

was hoping to find a physician that has experience with the protocol. Does

anyone know of a physician in the Pittsburgh area that has experience with

the protocol?

Thank you,

Darrin

July 5, 2010

Dr. Burton no longer has an office at Schoolhouse Lane.

That office was moved to:

1455 City Avenue

Wynnewood, PA 19096

610-649-4325

M-W-F - 8:30 AM to 5 PM

T & TH - 9-4

Sat. 8:30 AM till noon

www.burtonwellnesscenter.com

Dr. Burton was trained by Dr. McPherson Brown in the use of the

antibiotic therapy.

rheumatic psoriatic arthritis

>

> I am new to the group and was hoping someone could help me. I was recently

> diagnosed with psoriatis arthritis. I researched the antibiotic protocol

> and

> was hoping to find a physician that has experience with the protocol. Does

> anyone know of a physician in the Pittsburgh area that has experience with

> the protocol?

>

> Thank you,

> Darrin

>

July 6, 2010

Hi Darrin,

I go to Dr. Goldstein in North Hills. He is experienced with AP and even

gives IV's in his office. The only thing he does NOT take any kind of

insurance. I pay out of pocket. I have been seeing him for 12 years. When I

first started doing IV's he let me do my own at home.but he only does them

in the office now. I have to admit.he will try to get you on other things

(supplements) but will order antibiotics. He is not a rheumatologist.

Cooky

I am new to the group and was hoping someone could help me. I was recently

diagnosed with psoriatis arthritis. I researched the antibiotic protocol and

was hoping to find a physician that has experience with the protocol. Does

anyone know of a physician in the Pittsburgh area that has experience with

the protocol?

Thank you,

Darrin

August 18, 2010

I am treating my Psoriatic Arthritis with Minocycline since June 2008 and added

LDN in Feb 2009. You can read my testimonial on the roadback foundation

testimonial section.

vinnylid

>

> Dear Group,

>

> Has anyone successfully applied the AP to psoriatic arthritis?

>

> Sincerely, Harald

>

August 21, 2010

Hi, Harald:

In many cases of PsA there is a demonstrated link with underlying

celiac-sprue.Â Chances are antibiotics would help a little bit, but there is a

variety of arthritogenic pathogens in the gut and fixing LGS first is the better

course in this disease as antibiotics can encourage the wrong kinds of growth

and cause dysbiosis (bacterial balance) issues.

If You are NOT B27+ there is a chance of having PsA but in an antigen-positive

individual I would put that at a very low probability.

HEALTH,

From: Harald Weiss, Technical Marketing Group <hweiss@...>

Subject: rheumatic Psoriatic Arthritis

rheumatic

Date: Wednesday, August 18, 2010, 8:26 AM

Â

Dear Group,

Has anyone successfully applied the AP to psoriatic arthritis?

Sincerely, Harald

September 28, 2010

>

> Hi Harald,

>

> I am happy to ask my Chinese naturopath for the names. It¹s a mix

> of several Chinese herbs. I am sure, he will give me the names of the herbs.

>

> The elimination diet helped me also. I just slipped over the years and

> got back to ³regular²nutrition. I like sweets and I ate more than I

> should have eaten the past years.

>

> I have a few spots of psoriasis too and Vitiligo (loss of pigmentation).

> If you are interested, I am happy to send you a list of the foods that

> you should eat and avoid. This diet really makes a difference. I have

> been on it for some weeks again and it feels good but it has not reduced

> the pain yet. It normally takes a while to see results. You basically eat some

> brown rice, lots of veggies (no nightshade plants though), some fruits,

> some soy, some cold water fish, nuts, quinoa and drink lots of fresh

> vegetable juices with fresh ginger.

>

> The past 6 years I have been taking (ordered via vitacost.com my favorite

> herbal

> provider good brand names and inexpensive):

>

> ArthriPower from Synergy

>

> It is a high dose vitamin supplement with some Turmeric Extract, Green Tea,

> Glucosamine and other herbs. This supplement is created for people with

> arthritis (about $30/month). I have been taking also taking fish oil

> and enzymes.

>

> Now I am taking the same supplements (anti-inflammatory) and more herbs

> because of my

> flare-up:

>

> Higher dose of turmeric

> Higher dose of ginger

> Borage Oil

> Devil¹s Claw

> Boswella

> Flaxseed Oil

> High dose of pancreatic enzymes

> Potassium (Prednisone reduces the Potassium level

> Folic Acid ( - ³)

>

> The elimination diet, the Chinese herbs and the supplements plus

> lots of exercises have helped me 9 years ago. I stopped taking

> the Chinese herbs/teas when I felt better.

>

> Another tip is the book ³Arthritis² from T. Murray. Reduce

> and even reverse the effects of arthritis naturally. I love this book.

> Great guide through all of these herbs.

>

> Good luck for you!

>

> Best,

> Antje

> (Sorry for my bad English English is not my mother language)

>

> Antje,

>

> Please share the names of the Chinese medicine and herbal supplements

> that helped you for six years.

>

> As for you, both of my feet, my ankles and wrists developed a sudden

> and painful inflammation earlier this year. As a result, I am now on

> Simponi, the strongest anti-arthritis medicine that money will buy

> ($1,800 for one injection per month).

>

> Inflammation of feet, ankles and wrists may indicate psoriatic

> arthritis. Please see

> http://arthritis.webmd.com/psoriatic-arthritis/psoriatic-arthritis-symptoms

>

> Psoriatic arthritis is most often associated with the skin condition

> psoriasis; however, 20% of patients have arthritis alone and no skin

> manifestation.

>

> Sincerely, Harald

>

> At 08:08 PM 9/26/2010, Antje Waxman wrote:

>> >

>> >Hello, my name is Antje. I developed RA (S-negative) 9 years ago and

>> >went in remission

>> >for more than 6 years. A specific diet, Chinese medicine, herbal

>> >supplements and lots

>> >of movement helped me to heal my body and I have not been taking any

>> medicine

>> >for 6 years. This June both of my feet, my ankles and wrists

>> >inflamed again and I have been

>> >in much pain. My physician prescribed Prednisone and Plaquenil but I

>> >don't want to

>> >stay on these drugs. I have been taking my supplements but they

>> >don't seem to help

>> >as much as they did many years ago.

>> >

>> >I live in Virginia, 2 hours from Washington D.C. Does anybody know an AP doc

>> >in this area?

>> >

>> >Many thanks and all the best for you all,

>> >Antje

>

September 28, 2010

Thank you for this valuable and detailed information. I will be looking

into ³Arthritis² from T. Murray this weekend at B & N.

Lindsey

On Tue, Sep 28, 2010 at 4:53 PM, Antje Kohrs Waxman <

antjekohrshsd@...> wrote:

>

> >

> > Hi Harald,

> >

> > I am happy to ask my Chinese naturopath for the names. It¹s a mix

> > of several Chinese herbs. I am sure, he will give me the names of the

> herbs.

> >

> > The elimination diet helped me also. I just slipped over the years and

> > got back to ³regular²nutrition. I like sweets and I ate more than I

> > should have eaten the past years.

> >

> > I have a few spots of psoriasis too and Vitiligo (loss of pigmentation).

> > If you are interested, I am happy to send you a list of the foods that

> > you should eat and avoid. This diet really makes a difference. I have

> > been on it for some weeks again and it feels good but it has not reduced

> > the pain yet. It normally takes a while to see results. You basically eat

> some

> > brown rice, lots of veggies (no nightshade plants though), some fruits,

> > some soy, some cold water fish, nuts, quinoa and drink lots of fresh

> > vegetable juices with fresh ginger.

> >

> > The past 6 years I have been taking (ordered via vitacost.com my

> favorite

> > herbal

> > provider good brand names and inexpensive):

> >

> > ArthriPower from Synergy

> >

> > It is a high dose vitamin supplement with some Turmeric Extract, Green

> Tea,

> > Glucosamine and other herbs. This supplement is created for people with

> > arthritis (about $30/month). I have been taking also taking fish oil

> > and enzymes.

> >

> > Now I am taking the same supplements (anti-inflammatory) and more herbs

> > because of my

> > flare-up:

> >

> > Higher dose of turmeric

> > Higher dose of ginger

> > Borage Oil

> > Devil¹s Claw

> > Boswella

> > Flaxseed Oil

> > High dose of pancreatic enzymes

> > Potassium (Prednisone reduces the Potassium level

> > Folic Acid ( - ³)

> >

> > The elimination diet, the Chinese herbs and the supplements plus

> > lots of exercises have helped me 9 years ago. I stopped taking

> > the Chinese herbs/teas when I felt better.

> >

> > Another tip is the book ³Arthritis² from T. Murray. Reduce

> > and even reverse the effects of arthritis naturally. I love this book.

> > Great guide through all of these herbs.

> >

> > Good luck for you!

> >

> > Best,

> > Antje

> > (Sorry for my bad English English is not my mother language)

> >

> > Antje,

> >

> > Please share the names of the Chinese medicine and herbal supplements

> > that helped you for six years.

> >

> > As for you, both of my feet, my ankles and wrists developed a sudden

> > and painful inflammation earlier this year. As a result, I am now on

> > Simponi, the strongest anti-arthritis medicine that money will buy

> > ($1,800 for one injection per month).

> >

> > Inflammation of feet, ankles and wrists may indicate psoriatic

> > arthritis. Please see

> >

> http://arthritis.webmd.com/psoriatic-arthritis/psoriatic-arthritis-symptoms

> >

> > Psoriatic arthritis is most often associated with the skin condition

> > psoriasis; however, 20% of patients have arthritis alone and no skin

> > manifestation.

> >

> > Sincerely, Harald

> >

> > At 08:08 PM 9/26/2010, Antje Waxman wrote:

> >> >

> >> >Hello, my name is Antje. I developed RA (S-negative) 9 years ago and

> >> >went in remission

> >> >for more than 6 years. A specific diet, Chinese medicine, herbal

> >> >supplements and lots

> >> >of movement helped me to heal my body and I have not been taking any

> >> medicine

> >> >for 6 years. This June both of my feet, my ankles and wrists

> >> >inflamed again and I have been

> >> >in much pain. My physician prescribed Prednisone and Plaquenil but I

> >> >don't want to

> >> >stay on these drugs. I have been taking my supplements but they

> >> >don't seem to help

> >> >as much as they did many years ago.

> >> >

> >> >I live in Virginia, 2 hours from Washington D.C. Does anybody know an

> AP doc

> >> >in this area?

> >> >

> >> >Many thanks and all the best for you all,

> >> >Antje

> >

>

October 12, 2010

Hi, I haven't posted for awhile. I am seronegative blood but present with joint

pain in back, neck, wrists, hands and feet. Sometimes knees. I have been on

Plaquenil for 4 months. I think it may be helping, but hard to tell because I

found out I was pregnant a month ago. Plaquenil is safe for pregnancy.

The RA doctor has been leaning towards a diagnosis of RA, however, I have

developed nail problems. I blamed the Plaq. but she assured me it does not do

this. I went to dermatologist who tested for fungus infection which came back

negative and she said most likely its psoriasis of the nails.

I went to my RA doctor and let her look at my nails and she concurred with

dermatologist that it is. She said it can be associated with joint pain and

swelling. When I looked it up on internet, looks like I may have psoriatic

arthritis.

What does anyone know about this disease? Or, can I have RA still and psoriasis

of the nails? Any input is welcomed. Thanks

October 12, 2010

Hi ...RA and Psoriatic arthritis are dx I have.Â I have had fingernail

involvement from time to time.Â I know a lot of people think you have one or

the other...RA or PsA...my rheumy believes I have some sort of overlap

syndrome.Â I have used Humira and Mtx with pretty good results for 7 years...of

course I am 59 with NO chance of pregnancy.Â

I wish you and yours well on this journey.

Cheryle in Oregon...aka Tess

[ ] Psoriatic Arthritis